Re: De-id notes questions

[Dan Connolly]

a. yes, KUMC has an SOP for de-id clinical notes; we presented our adjudication 
process, a REDCap based regulatory review 
process
  at 
HackathonFour.
 The software we use to do the scrubbing is developed in collaboration with MCW:
https://bitbucket.org/MCW_BMI/notes-deidentification/src/master/
https://informatics.gpcnetwork.org/trac/Project/ticket/573#comment:18


b. yes, we make encounter, provider info available. I forget the rules for 
provider, but it's somewhere in our data request 
process,
 I'm pretty sure.

c. Yes, certain types of clinical notes are not made available; those that have 
not made it thru adjudication.

d. outside researchers... I'm not sure if that has happened, but I suppose our 
normal processes would accommodate it. The usual thing is to have a 
collaborator at KUMC.


From: Gpc-dev  on behalf of Gryzlak, Brian M 

Sent: Monday, April 13, 2020 3:59 PM
To: gpc-dev@listserv.kumc.edu 
Subject: De-id notes questions


Hi everyone,



A researcher at UIOWA is interested in knowing whether any GPC sites currently 
provide de-identified clinical notes to researchers.  The broad aim is to link 
clinical notes to other GPC data for a proposal on chemotherapy among 
overweight / obese patients with cancer to assess reasons for chemo dose 
variations.



Can sites please weigh in as to whether de-identified clinical notes are ever 
provided to researchers?



If so, answers to any/all of the following would be great to know:

  1.  Does your site use any standard processes to de-d clinical notes?  If so, 
can you please describe?
  2.  Are other attributes like provider, encounter info, etc. available along 
with the actual notes?
  3.  Are certain types of clinical notes not captured or not made available to 
researchers (e.g., phone consults that do not result in a provider referral, 
etc.)?
  4.  Have de-id notes ever been shared with outside researchers (i.e., 
researchers not currently affiliated with your site)?



Thanks!

Brian



Brian M. Gryzlak, MSW, MA

Project Coordinator

S414 CPHB

319.335.8218

The University of Iowa

Iowa City, IA 52242

brian-gryz...@uiowa.edu



Health Effectiveness Research Center 
(HERCe)


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De-id notes questions

[Gryzlak, Brian M]

Hi everyone,

A researcher at UIOWA is interested in knowing whether any GPC sites currently 
provide de-identified clinical notes to researchers.  The broad aim is to link 
clinical notes to other GPC data for a proposal on chemotherapy among 
overweight / obese patients with cancer to assess reasons for chemo dose 
variations.

Can sites please weigh in as to whether de-identified clinical notes are ever 
provided to researchers?

If so, answers to any/all of the following would be great to know:

  1.  Does your site use any standard processes to de-d clinical notes?  If so, 
can you please describe?
  2.  Are other attributes like provider, encounter info, etc. available along 
with the actual notes?
  3.  Are certain types of clinical notes not captured or not made available to 
researchers (e.g., phone consults that do not result in a provider referral, 
etc.)?
  4.  Have de-id notes ever been shared with outside researchers (i.e., 
researchers not currently affiliated with your site)?

Thanks!
Brian

Brian M. Gryzlak, MSW, MA
Project Coordinator
S414 CPHB
319.335.8218
The University of Iowa
Iowa City, IA 52242
brian-gryz...@uiowa.edu

Health Effectiveness Research Center 
(HERCe)

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Rough draft statement of work for COVID CDM work

[Russ Waitman]

Hi Dan,
As mentioned I’ll miss gpc-dev tomorrow due to the ACTS board meeting.

But, Tom Carton and the Steering Committee have been working hard at the 
request of PCORI to develop a statement of work for our COVID surveillance 
efforts so they could contract/pay us for this work.

Sharing the draft with the comment that it’s final form and budget are in flux 
but very relevant for gpc-dev discussion; especially regarding data elements..

Sincerely,


Russ Waitman, PhD
Director, Center for Medical Informatics and Enterprise Analytics
Associate Vice Chancellor for Enterprise Analytics
Professor, Department of Internal Medicine
University of Kansas Medical Center, Kansas City, Kansas
913-945-7087 (office)
615-584-0590 (cell)
rwait...@kumc.edu
http://www.kumc.edu/miea.html
http://www.gpcnetwork.org – a PCORnet 
collaborative




COVID-19 Subset-CDM+_Draft SOW_v4.docx
Description: COVID-19 Subset-CDM+_Draft SOW_v4.docx
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