[QUAD-L] Re: To Stacy Haim
Thanks Lori, I don't have family nearby which is why I chose to move alone after rehab but had so many issues. My Mom has her own health problems and quite frankly upsets me to be around her because she could do so much better but she doesn't take care of herself and gets lazy when it comes to doing things she should be doing better like walking. She had a mini stroke in her late 40's and broker her hip on the other side a few years ago. I know she can walk, pick up her feet better because she does it in public but as soon as we get home, it stops. She pushed me so hard when I got sick. If I got lazy or scaredI was going to fall from sitting up she pushed me but she doesn't push herself at all. Oh, and she lives in Florida. No offense to those of you that live there and it's a nice place to visit but it isn't for me. MY Dad doesn't have much patience so at home, pretty much all I have is my neighbor/friend. She would only come a couple of hours a day I would rather have rehab during my healing prcess. I'm going to talk to the doctor about it probably today or sotomorrow so we'll see. - Original Message - From: Lori Michaelson To: Stacy Harim ; Quad Sent: Saturday, June 03, 2006 10:26 PM Subject: To Stacy Haim I am so glad to hear from you Stacy! Even if you had to go through this medium ... you at least got to us to let us know that you made it through surgery! At least you know that you have that in your past now! YIPPPEEE! It is up my opinion [which agrees with you] that you would be better off recovering at home. Is there no family to step up and layit on the line to check you out of the hospital and help you at home? This was one of our biggest concerns when I just had my surgery for the bladder stones. Most often, medical facilities will like to keep you for the money [depending on the insurance companies however]. Just remember you know your body best as well as your home caregivers. Back in 1995 when I had my shunt surgery ... when I was finally in the clear after two full weeks of hell ... they were just letting me lie there day after day and doing nothing but giving me some heart palpitation medication. After three days of just lying there ... I checked myself out of the hospital and recovered at home. To answer your question about the magic bullet suppositories and your recent experience ... I can say that you and I both sound like we are on the same routine. I also do my routine every third day using the magic bullets. And, yes, I have had that experience before several times no matter how much we try to avoid it. I can only guess that the reason it happened to you at this time is because of the extra pain medicine. I know that it is my pain medicine that makes my bowel routine sluggish. Sometimes, even if I eat the same amount, I will skip going completely on the third day routine. Ironically, that happened to me last night. And I have been encouraging going by eating shredded wheat which has helped. But I did not go last night or any time afterward. But it is not like it is not happened before so I can expect to go a large [very large - LOL] on Monday evening. Remember that doctors are not gods and they still put theirpants on one leg at a time as we all do. As well as all the other management staff at the hospital. And of course a hospital is the breeding ground for bacteria so, forus quads, we want to spend as little time there as we possibly can. I am on my way to bed that I wanted to respond ASAP because I am so glad to hear from you so soon! Lori C4/5 Complete, 26 yrs post Tucson, AZ AGE - 41 ---Original Message--- From: Stacy Harim Date: 06/03/06 13:41:37 To: Quad-List@eskimo.com Subject: [QUAD-L] Unidentified subject! Hey everyone, I just found out from one of the nurses that I could sign on as a guest through their internet connection since that is all my lap top is picking up. I found that pretty exciting. My surgery was Wed. morning and I just saw the doctor this morning. He said he would send me out of here probably on Monday but I really am considering a rehab hospital. First I will tell you that it does hurt but the pain is finally treatable through the pain pump. I think its something like dylantin. I'm not sure how its spelled but my
Re: [QUAD-L] Re: (no subject)
Hello Eric, Yes im vent dependent 24/7im on the pulmoneticLTV950 its about the size of a lap top computer its in a back pack and its hangs on the back of my chair. Silas p- Original Message - From: Eric Olson To: Silas Cc: quad-list@eskimo.com Sent: Saturday, June 03, 2006 2:01 PM Subject: Re: [QUAD-L] Re: (no subject) Silas,Are you not vent dependent 24/7? Eric Silas wrote: Well hell yesterday I ordered the Motorola Razr Vc3 the Motorola HS850 bluetooth headset was free, I already have service with Verizon so thats the reason I picked their phone. Im c3/c4 so I hope I can turn it on and leave it on, oh well this will be the third phone ive tried maybe it'll work out. Third times a charm! Lol. Mark suggested the Kyocera 7135 but didn't have service in my area, the Motorola has all the same features plus a few more. Guess ill soon see, the phone I have now works but I have to open with my mouth. When I got thrown sideways I couldn't reach it, well ive been F**KED twice once more mite be GREAT!!! Lol. What we quads must endure plus being paralyzed. Silaas
Re: [QUAD-L] quad anniversary.
LOL..thanks..hope he would agree. AmyRollinOn [EMAIL PROTECTED] wrote: Silas you and Amy sound like a great pairMark---Original Message--- From: Amy Davis Date: 06/01/06 21:08:33 To: quad-list@eskimo.com Subject: [QUAD-L] quad anniversary.June 3rd is the 4th aniversary of quad-dom for my friend Silas. I know this is always a hard time for him so help me make this a good day! I know a bunch of people who are thrilled for every day that they have had with him since his injury. It has not been easy the whole way...but for me it has been worth it. I could not imagine him not being in my life. So SilasInstead of saying happy anniversary...since I don't think that is appropiate, Think of how far you have come. From being sucidal and depressed, from being bed ridden and sick, to being a successfull business man and farmer. A wonderful father, son, brother and friend.Thnaks for the past 4 years as far as I am concerned. __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com__Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Unidentified subject!
Hey Stacy, Glad you're on-lineand the surgery went good. As far as your care goes try to find a nurse you're comfortable with and be vocal with her. I found just being very talkativedoes wonders becausea lot of peoplejust don't understand paralysis and are really lost about your care so theirmost common way todeal with it is to not deal at all so just strike up an everyday conversation, it opens their eyes and mind. Mark ---Original Message--- From: Stacy Harim Date: 06/03/06 15:41:32 To: Quad-List@eskimo.com Subject: [QUAD-L] Unidentified subject! Hey everyone, I just found out from one of the nurses that I could sign on as a guest through their internet connection since that is all my lap top is picking up. I found that pretty exciting. My surgery was Wed. morning and I just saw the doctor this morning. He said he would send me out of here probably on Monday but I really am considering a rehab hospital. First I will tell you that it does hurt but the pain is finally treatable through the pain pump. I think its something like dylantin. I'm not sure how its spelled but my skin breaks out in reaction to morphine (burning, turns red.) I saw the flap. It's big but does look good. There is a little dark area close to a couple of the staples but the doctor isn't worried about it. It hasnt gotten any worse. I just can'tbelieve how bit the incision is for this. Its from close to my anus to close to my knee on the back. He didn't take any skin from anywhere else either which is a plus for me. The care could be better. I wonder somedays if I would be better off at home because I feel like I'm not getting it here. Last night my catheter leaked so my bed was wet. The cna came in to change it Then it leaked again, just then I knew that it was clogged and it was about time to change it anyhow so I told them I needed a new one. They didn't have the size I needed on this floor and waited for transport to bring it up. He came up an hour later but never got the message about the catheter. I just kept leaking, sitting in a mess. I finally got it a couple of hours after that and I still needed to do my bowel program. I brought the magic bullets with me but things didn't run smoothly. I usually go every 3 days considering since I went on Tues., I tried last night. I waited a longtime and nothing. The only thing that did come out was the suppository. I normally go sitting up and change fo diet/meds. I ended up going a couple of hours later but didn't empty. Has this happened to anyone else after doing your bowel program sitting up for so long? So the patient care whatever's started pushing me out of the door before I could even act like myself. Asking if I were going home or not. The doctor said they asked him 5 times and he said no that he is keeping me. Anyhow I am pretty sure that I will go to a rehab facility but it's a matter of who has a bed. I might have to turn one down. This hospital is rated one of the top 100 but I don't see how with the nursing. Some are nice but the majority aren't really helpling that much. I rarely see them to tell you the truth. I then have a few great ones who do everything that they can. Iknow in rehab facilities and nursing homes, the nurses are more underpaid here so there is a shortalge so they are pretty thinned out. I have the weekend to think about it. The mattress was ordered by the case/social worker and can always be cancelled. All in all, so far health wise I am doing great. Way better than I expected. Stacy
Re: [QUAD-L] Re: (no subject)
I'm confused. How can be out by yourself? It doesn't sound like you have the ability to take care of your vent circuit coming apart or the ability to connect an ambu bag by yourself. Eric Silas wrote: Hello Eric, Yes im vent dependent 24/7im on the pulmoneticLTV950 its about the size of a lap top computer its in a back pack and its hangs on the back of my chair. Silas p- Original Message - From: Eric Olson To: Silas Cc: quad-list@eskimo.com Sent: Saturday, June 03, 2006 2:01 PM Subject: Re: [QUAD-L] Re: (no subject) Silas, Are you not vent dependent 24/7? Eric Silas wrote: Well hell yesterday I ordered the Motorola Razr Vc3 the Motorola HS850 bluetooth headset was free, I already have service with Verizon so thats the reason I picked their phone. Im c3/c4 so I hope I can turn it on and leave it on, oh well this will be the third phone ive tried maybe it'll work out. Third times a charm! Lol. Mark suggested the Kyocera 7135 but didn't have service in my area, the Motorola has all the same features plus a few more. Guess ill soon see, the phone I have now works but I have to open with my mouth. When I got thrown sideways I couldn't reach it, well ive been F**KED twice once more mite be GREAT!!! Lol. What we quads must endure plus being paralyzed. Silaas
Re: [QUAD-L] Re: (no subject)
LOL. I don't! But im usally able to make it back to the house if something happens, I can breath off for awhile. Shit if something happens while im out on the farm at least ill die doing what I enjoy, hell getting in a car is taking a big chance! Silas - Original Message - From: Eric Olson To: Silas Cc: quad-list@eskimo.com Sent: Sunday, June 04, 2006 10:34 AM Subject: Re: [QUAD-L] Re: (no subject) I'm confused. How can be out by yourself? It doesn't sound like you have the ability to take care of your vent circuit coming apart or the ability to connect an ambu bag by yourself. Eric Silas wrote: Hello Eric, Yes im vent dependent 24/7im on the pulmoneticLTV950 its about the size of a lap top computer its in a back pack and its hangs on the back of my chair. Silas p- Original Message - From: Eric Olson To: Silas Cc: quad-list@eskimo.com Sent: Saturday, June 03, 2006 2:01 PM Subject: Re: [QUAD-L] Re: (no subject) Silas,Are you not vent dependent 24/7? Eric Silas wrote: Well hell yesterday I ordered the Motorola Razr Vc3 the Motorola HS850 bluetooth headset was free, I already have service with Verizon so thats the reason I picked their phone. Im c3/c4 so I hope I can turn it on and leave it on, oh well this will be the third phone ive tried maybe it'll work out. Third times a charm! Lol. Mark suggested the Kyocera 7135 but didn't have service in my area, the Motorola has all the same features plus a few more. Guess ill soon see, the phone I have now works but I have to open with my mouth. When I got thrown sideways I couldn't reach it, well ive been F**KED twice once more mite be GREAT!!! Lol. What we quads must endure plus being paralyzed. Silaas
[QUAD-L] Watersking group, AZ
I saw a story on the news about a group that took disabled people out boating and waterskiing. I think in Tempe, AZ. It showed a quad sitting on the custom ski. But it did not record it correctly. I didnt hear the name of the group, or what news channel it was. Has anyone heard of them, or know who to contact? I think that would be so cool. I havent tried anything like that for years. Years ago I went up in a ultralite/hangglider. I told myself then that Id try to continue to go out on adventures. I also saw a hot air balloon that is wheelchair accessible. I tried to go on that earlier this year at the hot air balloon festival, but by the time it was my turn he was out of gas. Thanks, Greg
[QUAD-L] How many collective years of SCI do we have here?
I was curious just a few days ago of how many collective SCI years are represented here on the list. Please reply to the list with your name and how long you have been enjoying these special challenges we all have been dealt. Add your name years and update the total... Dave [EMAIL PROTECTED] 39 years Total 39 Dave www.daveoconnell.com c3-inc-1967
RE: [QUAD-L] How many collective years of SCI do we have here?
Title: Message I was curious just a few days ago of how many collective SCI years are represented here on the list. Please reply to the list with your name and how long you have been enjoying these special challenges we all have been dealt. Add your name years and update the total... Dave [EMAIL PROTECTED] 39 years Eric [EMAIL PROTECTED]9 Total48
RE: [QUAD-L] How many collective years of SCI do we have here?
Sorry, scratch that! Corrections madebelow: Michael (ehM eN ) Norville - 29 years 361 days +39 years + 9 years=77 years 361 days... -From: [EMAIL PROTECTED] - To: quad-list@eskimo.com Subject: [QUAD-L] How many collective years of SCI do we have here? Date: Sun, 4 Jun 2006 21:08:03 EDT I was curious just a few days ago of how many collective SCI years are represented here on the list. Please reply to the list with your name and how long you have been enjoying these special challenges we all have been dealt. Add your name years and update the total... Dave [EMAIL PROTECTED] 39 years Total 39 Dave www.daveoconnell.com c3-inc-1967 - Eric [EMAIL PROTECTED]9 Total48
Re: [QUAD-L] How many collective years of SCI do we have here?
Title: Re: [QUAD-L] How many collective years of SCI do we have here? Houston 8yrs yall can do the math ;) On 6/4/06 8:49 PM, ehM eN [EMAIL PROTECTED] wrote: Sorry, scratch that! Corrections made below: Michael (ehM eN ) Norville - 29 years 361 days + 39 years + 9 years = 77 years 361 days... - From: [EMAIL PROTECTED] http://by108fd.bay108.hotmail.msn.com/cgi-bin/compose?mailto=1amp;msg=1D85684F-504C-4FE3-BB4C-933F621C7EBDamp;start=0amp;len=7147amp;src="" PROTECTED]amp;cc=amp;bcc=amp;subject=amp;body=amp;curmbox=---- - To: quad-list@eskimo.com http://by108fd.bay108.hotmail.msn.com/cgi-bin/compose?mailto=1amp;msg=1D85684F-504C-4FE3-BB4C-933F621C7EBDamp;start=0amp;len=7147amp;src="" PROTECTED]amp;cc=amp;bcc=amp;subject=amp;body=amp;curmbox=---000 Subject: [QUAD-L] How many collective years of SCI do we have here? Date: Sun, 4 Jun 2006 21:08:03 EDT I was curious just a few days ago of how many collective SCI years are represented here on the list. Please reply to the list with your name and how long you have been enjoying these special challenges we all have been dealt. Add your name years and update the total... Dave [EMAIL PROTECTED] http://by108fd.bay108.hotmail.msn.com/cgi-bin/compose?mailto=1amp;msg=4A8E1868-9773-4058-900A-1E1DFAD80968amp;start=0amp;len=6343amp;src="" PROTECTED]amp;cc=amp;bcc=amp;subject=amp;body=amp;curmbox=---- 39 years Total 39 Dave www.daveoconnell.com c3-inc-1967 - Eric [EMAIL PROTECTED] http://by108fd.bay108.hotmail.msn.com/cgi-bin/compose?mailto=1amp;msg=3B01B865-ABF9-42E4-8D3B-1BFCE6A2BD5Bamp;start=0amp;len=7357amp;src="" PROTECTED]amp;cc=amp;bcc=amp;subject=amp;body=amp;curmbox=----0 9 Total 48
RE: [QUAD-L] How many collective years of SCI do we have here?
I was curious just a few days ago of how many collective SCI years are represented here on the list. Please reply to the list with your name and how long you have been enjoying these special challenges we all have been dealt. Add your name years and update the total... Dave [EMAIL PROTECTED] 39 years Eric [EMAIL PROTECTED]9 Total48 Lori [EMAIL PROTECTED] 26 yrs New Total -- 74 yrs