Re: [QUAD-L] Environmental Control Units (mattress)

2007-01-17 Thread Dan Tessiatore
Dave, I have an Ortho Elite air diffuse mattress.  It is made by Sunrise 
Medical or a company affiliated with sunrise medical.  It has worked 
wonderfully.  It has started making a whistling sound every so often and 
someone suggested putting lambs will over it.
The only maintenance that it required is to clean the air filter once in 
awhile.  It's a simple process.  Also, if your area has a history of power 
outages you might want to get some type of backup for power because the 
mattress will deflate in the matter of seconds without electricity.  I recently 
purchased a Generac generator for backup that automatically starts when a power 
outage occurs.
I am also 30 years Post C 4-5 as a result of waterskiing accident.  This past 
six months I have been trying to heal pressure sores on my behind and it has 
been a challenge.  I think I am near the latter stages of healing as I have 
been spending a great deal of time in bed.  I was sitting on an Quattro from 
Roho and I didn't realize that it had an extremely small leak that was 
unnoticeable when sunk in water.  At one point it just more or less burst open. 
 The cushion was five years old and that is their expected life.  If anyone is 
using a Roho and you are approaching five years or later with the cushion 
please take notice that there could be problems.

David K. Kelmer [EMAIL PROTECTED] wrote:Hi Dan,
   
  I am looking for a good defusing mattress for the fist time as a Quad.  It 
will be my first air mattress so I'm taking the time to buy the right one for 
me.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
   
   
   
  Dan Tessiatore [EMAIL PROTECTED] wrote:
  Thanks for the feedback.  I am going to try the sheepskin.  Dan

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:   I had the same problem 
with mine, but I found if I covered my mattress with sheepskins it helped with 
the noise.  I used to own an alternating mattress, but I find the mattresses 
which diffuse here to be more effective in maintaining my skin integrity.
Quadius




Re: [QUAD-L] Environmental Control Units (mattress)

2007-01-17 Thread David K. Kelmer
Hi Sandy,
   
  Thanks.  I though it would make more sense to go thinner between me and the 
mattress, but thanks for confirming this for me.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
  

[EMAIL PROTECTED] wrote:
  But be careful about putting too much between you and the mattress, it 
defeats the benefits of the mattress. 
Sandy 



Re: [QUAD-L] Environmental Control Units - Generators

2007-01-17 Thread David K. Kelmer
Hi Wheels,
   
  There is a big difference between private homes and nursing  homes, but if 
it's a health care worker is responsible for the person living in either of 
them, it is very important to make sure there is a set emergency plan in place, 
and the health care workers all know how it works.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
 
[EMAIL PROTECTED] wrote:
In a message dated 1/15/2007 12:52:02 P.M. Central Standard Time, 
[EMAIL PROTECTED] writes:
I don't live in a nursing home. There are no such requirements in a private 
home. Of course you can mark your outlets as emergency if you are anally 
inclined. Our generator powers the refrigerator, freezer, microwave, numerous 
outlets, in addition to my ventilator, suction machine, and mattress. 
Sandy 

  
  LOL.  I'm anal too.  
  But when working with some health care workers, you have to be anal just to 
make sure that everyone is on the same page. If one is by themselves without 
help or aids, then it really isn't necessary, I guess.
  W



Re: [QUAD-L] Did CARECURE website move?

2007-01-17 Thread David K. Kelmer
http://sci.rutgers.edu/

Tim Syfert [EMAIL PROTECTED] wrote:Does anyone know if the CARECURE 
website moved? My links to it are coming up blank.
   
  Tim

-
  Don't be flakey. Get Yahoo! Mail for Mobile and 
always stay connected to friends.


Re: [QUAD-L] Environmental Control Units - Generators

2007-01-17 Thread StubanRN
In my home, all my essential medical equipment is plugged into an outlet  
that is backed up by the generator. So when the power goes out no one is  
frantically looking for the right outlet. Everything automatically comes on  
via 
the generator. Makes more sense to me. 
Sandy 


[QUAD-L] MurGallery.com update

2007-01-17 Thread Mike Murach
I'm proud to announce that my new, updated web gallery is finally finished
and is on the Internet.  I have spent the last three months designing and
implementing it.  It is nothing fancy, but hopefully enjoyable and
straightforward.  I would love to hear any type of feedback (please sign my
guestbook).  ALSO, my old web gallery email [EMAIL PROTECTED] has now been
discontinued because of a proliferation of SPAM.  My new gallery email is:
[EMAIL PROTECTED]  Please pass on this information to anyone that may
be interested.

 

Sincerely,

Michael Murach

 

www.MurGallery.com http://www.murgallery.com/ 

 

 

 



Re: [QUAD-L] Environmental Control Units - Generators

2007-01-17 Thread wheelchair
 
In a message dated 1/17/2007 1:29:46 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

There is a big difference between private homes and nursing   homes, but if 
it's a health care worker is responsible for the person  living in either of 
them, it is very important to make sure there is a  set emergency plan in 
place, 
and the health care workers all know how it  works.
 
With  Love,



Amen Dave. And it should be in writing since people change their healthcare  
workers so often.
A backup plan should also be on record
W


Re: [QUAD-L] Environmental Control Units (mattress)

2007-01-17 Thread David K. Kelmer
Hi Dan,
   
  This is exactly the kind of info I need.  Thanks for the help.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
  

Dan Tessiatore [EMAIL PROTECTED] wrote:
  Dave, I have an Ortho Elite air diffuse mattress.  It is made by Sunrise 
Medical or a company affiliated with sunrise medical.  It has worked 
wonderfully.  It has started making a whistling sound every so often and 
someone suggested putting lambs will over it.
The only maintenance that it required is to clean the air filter once in 
awhile.  It's a simple process.  Also, if your area has a history of power 
outages you might want to get some type of backup for power because the 
mattress will deflate in the matter of seconds without electricity.  I recently 
purchased a Generac generator for backup that automatically starts when a power 
outage occurs.
I am also 30 years Post C 4-5 as a result of waterskiing accident.  This past 
six months I have been trying to heal pressure sores on my behind and it has 
been a challenge.  I think I am near the latter stages of healing as I have 
been spending a great deal of time in bed.  I was sitting on an Quattro from 
Roho and I didn't realize that it had an extremely small leak that was 
unnoticeable when sunk in water.  At one point it just more or less burst open. 
 The cushion was five years old and that is their expected life.  If anyone is 
using a Roho and you are approaching five years or later with the cushion 
please take notice that there could be problems.

David K. Kelmer [EMAIL PROTECTED] wrote: Hi Dan,
   
  I am looking for a good defusing mattress for the fist time as a Quad.  It 
will be my first air mattress so I'm taking the time to buy the right one for 
me.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
   
   
   
  Dan Tessiatore [EMAIL PROTECTED] wrote:
  Thanks for the feedback.  I am going to try the sheepskin.  Dan

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:   I had the same problem 
with mine, but I found if I covered my mattress with sheepskins it helped with 
the noise.  I used to own an alternating mattress, but I find the mattresses 
which diffuse here to be more effective in maintaining my skin integrity.
Quadius





Re: [QUAD-L] Environmental Control Units - Generators

2007-01-17 Thread David K. Kelmer
Hi Sandy,
   
  That sounds like a sound plan to me!
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
  

[EMAIL PROTECTED] wrote:
  In my home, all my essential medical equipment is plugged into an outlet 
that is backed up by the generator. So when the power goes out no one is 
frantically looking for the right outlet. Everything automatically comes on 
via the generator. Makes more sense to me. 
Sandy 



RE: [QUAD-L] MurGallery.com update

2007-01-17 Thread poajoan
Really nice website. I'm one of those artists who can sign my name well g
My response to those who say oh you people are so talented is-I couldn't
draw before I broke my neck, and I sure can't now!

 

I really admire those who are artists, and I love your butterflies.

 

Joan C/4

  _  

From: Mike Murach [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 17, 2007 12:50 PM
To: Quad-List@eskimo.com
Subject: [QUAD-L] MurGallery.com update

 

I'm proud to announce that my new, updated web gallery is finally finished
and is on the Internet.  I have spent the last three months designing and
implementing it.  It is nothing fancy, but hopefully enjoyable and
straightforward.  I would love to hear any type of feedback (please sign my
guestbook).  ALSO, my old web gallery email [EMAIL PROTECTED] has now been
discontinued because of a proliferation of SPAM.  My new gallery email is:
[EMAIL PROTECTED]  Please pass on this information to anyone that may
be interested.

 

Sincerely,

Michael Murach

 

www.MurGallery.com http://www.murgallery.com/ 

 

 

 



RE: [QUAD-L] MurGallery.com update

2007-01-17 Thread Steve Oldaker
Mike...
 
Outstanding job on the web site and your art work.  Your web site is one of
the cleanest, leanest, content appropriate sites I have seen in a long time.
It does a perfect job of presenting your art.  I manage web services for a
living and your site is a prime example of the way sites should be done.
 
Steve


  _  

From: Mike Murach [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 17, 2007 3:50 PM
To: Quad-List@eskimo.com
Subject: [QUAD-L] MurGallery.com update



I'm proud to announce that my new, updated web gallery is finally finished
and is on the Internet.  I have spent the last three months designing and
implementing it.  It is nothing fancy, but hopefully enjoyable and
straightforward.  I would love to hear any type of feedback (please sign my
guestbook).  ALSO, my old web gallery email [EMAIL PROTECTED] has now been
discontinued because of a proliferation of SPAM.  My new gallery email is:
[EMAIL PROTECTED]  Please pass on this information to anyone that may
be interested.

 

Sincerely,

Michael Murach

 

www.MurGallery.com http://www.murgallery.com/ 

 

 

 



RE: [QUAD-L] MurGallery.com update

2007-01-17 Thread Mike Murach
Thanks a lot Joan!

Mike~

 

www.MurGallery.com http://www.murgallery.com/ 

 

 

-Original Message-
From: poajoan [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 17, 2007 5:09 PM
To: 'Mike Murach'; Quad-List@eskimo.com
Subject: RE: [QUAD-L] MurGallery.com update

 

Really nice website. I'm one of those artists who can sign my name well g
My response to those who say oh you people are so talented is-I couldn't
draw before I broke my neck, and I sure can't now!

 

I really admire those who are artists, and I love your butterflies.

 

Joan C/4

  _  

From: Mike Murach [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 17, 2007 12:50 PM
To: Quad-List@eskimo.com
Subject: [QUAD-L] MurGallery.com update

 

I'm proud to announce that my new, updated web gallery is finally finished
and is on the Internet.  I have spent the last three months designing and
implementing it.  It is nothing fancy, but hopefully enjoyable and
straightforward.  I would love to hear any type of feedback (please sign my
guestbook).  ALSO, my old web gallery email [EMAIL PROTECTED] has now been
discontinued because of a proliferation of SPAM.  My new gallery email is:
[EMAIL PROTECTED]  Please pass on this information to anyone that may
be interested.

 

Sincerely,

Michael Murach

 

www.MurGallery.com http://www.murgallery.com/ 

 

 

 



RE: [QUAD-L] MurGallery.com update

2007-01-17 Thread Mike Murach
Whoa. that was an awesome compliment!

Thanks,

Mike~

 

www.MurGallery.com http://www.murgallery.com/ 

 

 

-Original Message-
From: Steve Oldaker [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 17, 2007 6:54 PM
To: 'Mike Murach'; Quad-List@eskimo.com
Subject: RE: [QUAD-L] MurGallery.com update

 

Mike...

 

Outstanding job on the web site and your art work.  Your web site is one of
the cleanest, leanest, content appropriate sites I have seen in a long time.
It does a perfect job of presenting your art.  I manage web services for a
living and your site is a prime example of the way sites should be done.

 

Steve

 


  _  


From: Mike Murach [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 17, 2007 3:50 PM
To: Quad-List@eskimo.com
Subject: [QUAD-L] MurGallery.com update

I'm proud to announce that my new, updated web gallery is finally finished
and is on the Internet.  I have spent the last three months designing and
implementing it.  It is nothing fancy, but hopefully enjoyable and
straightforward.  I would love to hear any type of feedback (please sign my
guestbook).  ALSO, my old web gallery email [EMAIL PROTECTED] has now been
discontinued because of a proliferation of SPAM.  My new gallery email is:
[EMAIL PROTECTED]  Please pass on this information to anyone that may
be interested.

 

Sincerely,

Michael Murach

 

www.MurGallery.com http://www.murgallery.com/ 

 

 

 



[QUAD-L] Fwd: Part D Year One: Still Much To Be Done

2007-01-17 Thread DAANOO

---BeginMessage---
IT'S PART D YEAR ONE: STILL MUCH TO BE DONE

After one year's experience with Medicare Part D, many people remain confused 
and frustrated by the complexity and limitations of the benefit. Problems are 
difficult to resolve because of system failures, complicated data-sharing 
requirements among multiple entities, lack of useful and standardized 
information about plan benefits and appeal processes, and regulatory 
limitations that are more stringent than required by law.

The Center for Medicare Advocacy has prepared a Status Report based on the 
experiences of advocates and beneficiaries over the first year of Part D.  The 
beneficiary stories in the Report are illustrative of the many beneficiaries 
who are experiencing problems and high costs due, in large part, to the lack of 
uniformity in Medicare Part D.  The stories focus on particular aspects of Part 
D implementation - the failure of systems to ensure that low-income 
beneficiaries are enrolled in plans and receive their subsidies, the lack of 
useful information about benefit limitations to help beneficiaries plan, the 
failure of the system for withholding plan premiums from beneficiaries' Social 
Security checks, and the lack of uniform policies and procedures for seeking 
exceptions to formulary limitations.

Reflection on the issues underlying these problems confirms that beneficiaries 
would be better off with a redesigned benefit that is standardized, available 
throughout the country, and administered through the traditional Medicare 
program.  Such a system would be more valuable for more beneficiaries and more 
cost-effective for taxpayers.

Accordingly, the Center for Medicare Advocacy continues to call for systemic 
changes to Part D.  Our key recommendations include the following:

Recommendations for Congress:

1.  Congress should redesign Medicare Part D to create a benefit that is 
standardized, available throughout the country, and administered through the 
traditional Medicare program. Such a system would be more valuable for more 
beneficiaries and more cost-effective for taxpayers.

2. Congress should eliminate the Donut Hole. If the Donut Hole is not 
eliminated, Congress should, at a minimum, authorize payments by AIDS Drug 
Assistance Programs (ADAPs) programs and pharmaceutical assistance program 
(PAPs) to count towards the beneficiary out-of-pocket spending limit.

3. Congress should require Part D plans to give deference to the opinion of the 
beneficiary's attending physician when making coverage decisions and should 
require CMS to delete the provision to the contrary in its regulations [42 CFR§ 
423.578(f)].

4. Congress should authorize Part D coverage for off-label uses of drugs that 
are supported by peer-reviewed studies, are proven safe and effective over a 
substantial period of time, are covered by the beneficiary's state Medicaid 
program, or are listed in one of the three compendia currently included in the 
Medicare Act.

5. Congress should hold oversight hearings on the implementation of Part D. The 
hearings should include an inquiry into the special problems of dually eligible 
beneficiaries, the withholding of premiums by plans and Social Security, and 
CMS's role in setting and enforcing standards for plan participation.

6.  Congress should require CMS to expeditiously establish a full system of 
real time data-sharing among all entities involved in Part D. Congress should 
require CMS to report on its strategies to resolve these problems effectively 
and within a specific time period, and should require periodic status reports 
from CMS.  

Recommendations for the Centers for Medicare  Medicaid Services (CMS)

1. CMS should create a real time data-sharing system among all entities 
involved in Part D, and develop mandatory fail-safe systems to ensure that 
persons who are dually eligible for Medicare and Medicaid do not experience 
gaps in either their drug coverage or their low-income subsidy.

2. CMS should expand its point of service (POS) system to make its coverage 
available at the pharmacy for all dually eligible persons who experience plan 
enrollment and related drug dispensing problems at the pharmacy. Further, CMS 
should require pharmacies to use the POS system, and hold pharmacies harmless 
for good faith billings to the POS that turn out to be incorrect.

3. CMS and Part D plans should be required to provide beneficiaries with clear 
and accurate information about Part D, individual plan offerings, and in 
particular, about the Donut Hole coverage gap.  This information should include 
the following:

  -- Materials from CMS and the enrollee's plan that explain how the initial 
coverage limitation and beneficiary out-of-pocket expenses, including Donut 
Hole payments, are calculated should be mailed to beneficiaries;

  -- Monthly statements that clearly indicate the total amount of payments that 
have been made that count towards the individual's initial coverage