[QUAD-L] Jim Mullen

2007-10-12 Thread RONALD L PRACHT
Im sitting here thinking about your situation. It is bull that the pension 
board refused allowing you to go back to work at the station for 15 a month. I 
would think if you stir the pot enough maybe you can get that reversed. 
   
  I really hope you can pull it off...we are all in the same sort of situation 
with different details.
   
  You are doing a good job at getting yourself out there...keep it up
   
  Ron c7


[QUAD-L] Fwd: Fw: Audio transcript of the Senate Finance Comm. Community Choice Act H...

2007-10-12 Thread DAANOO




** See what's new at http://www.aol.com
---BeginMessage---
- Original Message -
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Sent: Wednesday, October 10, 2007 8:15 PM
Subject: Audio transcript of the Senate Finance Comm. Community Choice Act
Hearing from 9/25/07


Hi,

For those of you who were unable to tune into the Senate Finance Committee
Community Choice Act Hearing on September 25, here is a link where you can
hear the whole thing. Go to .

http://www.endeavorfreedom.tv/

About a third of the way down the page on the left next to the video list is a
link to the Senate Finance Committee CCA Hearing. If you click on #1 the
hearing will start, and will go automatically from #1 to #2 and so on.

Bob Liston from Montana was asked by Senator Baucus to represent the national
disability community on the hearing panel. Other panel members included
researcher Mitch LaPlante, University of California, San Francisco; Patrick
Flood, Director of Health and Human Services, Vermont; and  Kevin Concannon,
Director of Health and Human Services, Iowa.


Thanks to Zen Garcia of Georgia for capturing the hearing on his
EndeavorFreedom site, especially since the Senate Finance Committee seems to
have lost their video tape of the hearing because it was held in a room other
than the regular Sen. Fin. Comm. Hearing Room.

Marsha

-
---
Email and AIM finally together. You've gotta check out free AOL Mail!

NATIONAL ADAPT MAILING LIST - Adapt Community Choice Act List 
http://www.adapt.org
---End Message---


Re: [QUAD-L] Quad Police officer and work

2007-10-12 Thread Danny Hearn
  HI,, RON.I WAS CURIOUS ON THIS SUBJECT, I KNOW YOU WERE A POLICE OFFICER 
ALSO, YOU SAID YOU GOT HURT WHILE OFF DUTY---WERE YOU ABLE TO DRAW A PERCENTAGE 
LIKE THE OFFICER MENTIONED HERE OR DID IT REQUIRE A CERTAIN LENGTH OF TIME ON 
THE JOB OR REQUIRE GETTING HURT WHILE ON DUTY??  ALSO DID YOU EVER GET THAT 
HAND-BIKE AND IF SO HOW DO YOU LIKE DRIVING-RIDING IN IT?   
   DAN H.

RONALD L PRACHT [EMAIL PROTECTED] wrote:Hi,
  I think Ill comment on this since I was a Police officer myself back in 98. I 
think he is really getting a pretty good deal to receive 75 percent of his 
income before injured. You have to realize he looks like he was a veteran 
officer when he was injured ..so he was probally bringing in 40 grand or so 
before injury.75 percent of that isnt bad. 
   
  I think he should keep his position at the station as volunteer only. This 
may sound harsh but actually if he was under volunteer status then when he was 
ill,  had a pressure sore or couldnt get an attendant that day it wouldnt be a 
big deal.
   
  As John mentioned which I agree on is we are all going through these same 
issues, and some of us would love to be able to receive 75 percent of a 40 
grand salary to live on. I have much empathy for the mans situation, but hes 
not anyone special and this sort of things goes on everyday.
   
  ron c7



Re: [QUAD-L] quad police

2007-10-12 Thread wheelchair
 
Mr Mullin and his wife Athena, are not members yet.  But as  friends, I 
send him copies of many of the postings to review. The posting  regarding his 
dilemma was forwarded to me from Sam Schmidt's secretary and I  sent it to the 
Quad List.  I hope this explains
 
Best Wishes
 
 
 
 
In a message dated 10/12/2007 12:26:37 A.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

Hey Jim,
 
I wasnt aware you were actually on the list, lol.I thought people  were 
just talking about your situation. Anyway if I was in your shoes and had  the 
backing you have I would do the same thing you are doing. You obviously  have 
friends in the right places, and I sure wouldnt condemn you for taking  
advantage of that
 
And there is nothing to debate...I was just sticking up for the no  name 
quads that are receiving under 1000 a month to live on. 
 
Ron c7



 



** See what's new at http://www.aol.com


[QUAD-L] Dan Hearn

2007-10-12 Thread RONALD L PRACHT
Hey,
  I was a fairly new officer when I was involved in a rollover crash in my 
personal vehicle. I spent the next 4 months in St. Johns Mercy. My department 
called my father after 1.5 months and told him that they were seperating from 
me. My dad then told them we would be speaking to a lawyer regarding the 
situation. 
   
  The situation on the evening preceding my accident was my watch commander 
called me to a meeting on my day off. On the 37 mile trip back home I skidded 
in a corner and rolled my Geo Tracker convt, was ejected..resulting in a 
broken neck and damaged spine at the c7 level. After six years of court battles 
the judge and the review board deemed my accident in the line of duty because I 
was called in by my superior officer. 
   
  The sad part to my situation was since I was a Rookie officer I wasnt making 
much, but I did get 80 percent of my backpay wages paid for the six years I was 
in court. I took the lump sum settlement for the rest of the deal...which 
again I was thankful for but didnt amount to near what you would expect. I did 
hire a financial planner to help me figure out how to make this last and if I 
live small it might .   

   The hell I went through with nothing but 688.00 a month for my first six 
years as a quad humbled me to say the least. I couldnt volunteer, work or even 
mention doing anything during the six years for fear of not getting a dime. I 
was driven around in a baby blue 1984 ford wheelchair van with no tie downs 
that I was trapped on at least six occassions. My parents divorced during this 
time and I was written off by my entire
 family except for my dad, mom and lil bro. The thing that I did that saved me 
was I wheeled the 3 mile loop in my neighborhood and met enough people to get 
me into the swimming program, regional center, and a few other services. 
Cheerios and a banquet tv dinners was my meal everyday unless mom picked up a 
burger. My father at that time worked second shift and was gone from 2-12 
midnight and I was on my own during those times. He would come home in a rage 
and ask me why I lived...tell me I should have died and rid him of the 
burden. 
   
   
   I was ready to purchase the bike. I called sportaid and all but I 
was having issues on where to store it so I held up for the time being. Im 
still going to do it though. Will tell you about it when I get it. 
   
  Ron c7


[QUAD-L] PICCs, central lines, and such-- my specialty!

2007-10-12 Thread Miriam Braunstein
Hi Danny,
A PICC is a peripherally inserted central catheter.They're strung through your 
subclavian, into the large vein to your heart via arm. Usually, they stay in 6 
months TOPS.

I have a hickman-- a central line tunneled under the skin into the subclavian 
or jugular vein. The lumens protrude from my upper chest. I have had one for 20 
years, because my form of MD destroyed my ability to digest food or medicine, 
and I had to have my upper intestine removed b/c of infection. I get all my 
nutrition, fluid, and meds (including antibiotics) via Hickman. They can be 
left in indefinitely, but are replaced every so often if they break or I have a 
bloodstream infection. (in most folks.) I'm on my 38th line, so we keep them 
and treat and cross our fingers. I was released two days ago from my 110th bout 
of hemosepsis (blood infection).

When my Hickman has gotten infected, I have had PICCs. Here at my hospital, 
they're done as a day procedure if you're a central line virgin. The 
department of Interventional Radiology does them under fluoroscopy. They CAN 
theoretically be  done bedside, but it is a lot easier of they aren't working 
blind. Your doctor can order one through interventional radiology by sending in 
an order for it. I don't think that goes to you in prescription form, I think 
it gets sent directly over to your hospital. 
Once you have one, be really careful not to expose the entry site (under a 
tegaderm) and depending on whether you have one or two lumens, keep the 
lumen/lumens CLEAN. Home nursing will come out to teach you/your caregiver how 
to care for it. If you have caregivers to run the antibiotics yourselves, 
that's cool. If you don't, the nurse will come x-number of times a day, hook it 
up, clean and flush it. Whenever the dressing is wet, it has to be replaced to 
avoid hemosepsis. 
If you want something kind of on call for IV meds, there is something called 
a mediport.It is placed in the large vein with a reservoir to access it but it 
stays under the skin. Way less infection, just needs to be flushed with heparin 
every 3-4 weeks if it is unused, but you can have it accessed and presto, 
central line when you need it. Way less infection, no worries in showers that 
the site is wet unaccessed, and it doesn't show unless you're using it. If you 
have sensation, it is less painful because it is just breaking the skin with 
the needle, not a vein. And it can stay in indefinitely. You doc can schedule 
you with a line surgeon, takes 30 minutes in OR under twilight sleep.

Rambling today. Bad night.
If I can help, please e-mail or send a note via quad-l.

Best of luck!

Miri
Danny Hearn [EMAIL PROTECTED] wrote: Hi Lori-- I know a while back you had a 
picc line for antibiotics. Over the years I have only been hospitalized twice 
for serious UTI , both those times it was pseudamonas and each time it took 
nearly a week of IV antibiotics to get me well--each time I got so ill with bad 
AD  and had most of my white blood cells destoyed. In each case my Urologist 
told me to wait as long as i can to see what happens. Both times I was rushed 
to the emergency and admitted. Well this Is my 3rd time being diagnosed with 
Pseudamonas in my Urine culture. We asked the Urologist how to go about getting 
a picc line for the IV drugsthe only type that can help me because this 
wacko Urologist made me take cipro every single day for one entire year!! And 
now the bug is resistant to that. Anyhow he said you don't need any IV drugs 
now-just wait and lets see what  happens..same advice he gave me both 
other times! My family doc wants to try to help
 but can't see  me till next tuesday---hope I can survive without getting 
deathly sick...I don't know if this stuff can go away on its own, I'm drinking 
tons of water, cranberry pills juice-vitamin c and all the  usual 
stuffPlus flushing bladder every 4 days or so with acetic acid when urine 
gets way to fowl smelling to stand.  ( I know i'm rambling but here is my main 
question How to you go about getting a picc line  does a 
doctor order it or will emergency room? I see my family doc next Tuesday about 
it. Also---with a picc line does a person just go to the hospital each day or 
do they come to your home?? Our insurance will allow 20 nurse visits a year but 
so far I have  never used a home nurse.  Thanks in advance for any 
advice Dan H.

   
-
Moody friends. Drama queens. Your life? Nope! - their life, your story.
 Play Sims Stories at Yahoo! Games. 

Re: [QUAD-L] Dan Hearn

2007-10-12 Thread Danny Hearn
Glad that they ruled for you in line of duty and helped you get at least that 
settlement, Man -- what you had to live on those 1st 6 years indeed would have 
been tough ! . Also the mental strain of your Dad saying things like that is 
awful. Glad you survived and found ways to be a bit more independent and found 
those activities to do.   Dan**

RONALD L PRACHT [EMAIL PROTECTED] wrote:Hey,
  I was a fairly new officer when I was involved in a rollover crash in my 
personal vehicle. I spent the next 4 months in St. Johns Mercy. My department 
called my father after 1.5 months and told him that they were seperating from 
me. My dad then told them we would be speaking to a lawyer regarding the 
situation. 
   
  The situation on the evening preceding my accident was my watch commander 
called me to a meeting on my day off. On the 37 mile trip back home I skidded 
in a corner and rolled my Geo Tracker convt, was ejected..resulting in a 
broken neck and damaged spine at the c7 level. After six years of court battles 
the judge and the review board deemed my accident in the line of duty because I 
was called in by my superior officer. 
   
  The sad part to my situation was since I was a Rookie officer I wasnt making 
much, but I did get 80 percent of my backpay wages paid for the six years I was 
in court. I took the lump sum settlement for the rest of the deal...which 
again I was thankful for but didnt amount to near what you would expect. I did 
hire a financial planner to help me figure out how to make this last and if I 
live small it might .   

   The hell I went through with nothing but 688.00 a month for my first six 
years as a quad humbled me to say the least. I couldnt volunteer, work or even 
mention doing anything during the six years for fear of not getting a dime. I 
was driven around in a baby blue 1984 ford wheelchair van with no tie downs 
that I was trapped on at least six occassions. My parents divorced during this 
time and I was written off by my entire
 family except for my dad, mom and lil bro. The thing that I did that saved me 
was I wheeled the 3 mile loop in my neighborhood and met enough people to get 
me into the swimming program, regional center, and a few other services. 
Cheerios and a banquet tv dinners was my meal everyday unless mom picked up a 
burger. My father at that time worked second shift and was gone from 2-12 
midnight and I was on my own during those times. He would come home in a rage 
and ask me why I lived...tell me I should have died and rid him of the 
burden. 
   
   
   I was ready to purchase the bike. I called sportaid and all but I 
was having issues on where to store it so I held up for the time being. Im 
still going to do it though. Will tell you about it when I get it. 
   
  Ron c7



Re: [QUAD-L] PICCs, central lines, and such-- my specialty!

2007-10-12 Thread Danny Hearn
Thank you for that information Miri,   Wow you have been through quite a bit.. 
hang in there, Dan*

Miriam Braunstein [EMAIL PROTECTED] wrote:
  Hi Danny,
A PICC is a peripherally inserted central catheter.They're strung through your 
subclavian, into the large vein to your heart via arm. Usually, they stay in 6 
months TOPS.

I have a hickman-- a central line tunneled under the skin into the subclavian 
or jugular vein. The lumens protrude from my upper chest. I have had one for 20 
years, because my form of MD destroyed my ability to digest food or medicine, 
and I had to have my upper intestine removed b/c of infection. I get all my 
nutrition, fluid, and meds (including antibiotics) via Hickman. They can be 
left in indefinitely, but are replaced every so often if they break or I have a 
bloodstream infection. (in most folks.) I'm on my 38th line, so we keep them 
and treat and cross our fingers. I was released two days ago from my 110th bout 
of hemosepsis (blood infection).

When my Hickman has gotten infected, I have had PICCs. Here at my hospital, 
they're done as a day procedure if you're a central line virgin. The 
department of Interventional Radiology does them under fluoroscopy. They CAN 
theoretically be  done bedside, but it is a lot easier of they aren't working 
blind. Your doctor can order one through interventional radiology by sending in 
an order for it. I don't think that goes to you in prescription form, I think 
it gets sent directly over to your hospital. 
Once you have one, be really careful not to expose the entry site (under a 
tegaderm) and depending on whether you have one or two lumens, keep the 
lumen/lumens CLEAN. Home nursing will come out to teach you/your caregiver how 
to care for it. If you have caregivers to run the antibiotics yourselves, 
that's cool. If you don't, the nurse will come x-number of times a day, hook it 
up, clean and flush it. Whenever the dressing is wet, it has to be replaced to 
avoid hemosepsis. 
If you want something kind of on call for IV meds, there is something called 
a mediport.It is placed in the large vein with a reservoir to access it but it 
stays under the skin. Way less infection, just needs to be flushed with heparin 
every 3-4 weeks if it is unused, but you can have it accessed and presto, 
central line when you need it. Way less infection, no worries in showers that 
the site is wet unaccessed, and it doesn't show unless you're using it. If you 
have sensation, it is less painful because it is just breaking the skin with 
the needle, not a vein. And it can stay in indefinitely. You doc can schedule 
you with a line surgeon, takes 30 minutes in OR under twilight sleep.

Rambling today. Bad night.
If I can help, please e-mail or send a note via quad-l.

Best of luck!

Miri
Danny Hearn [EMAIL PROTECTED] wrote:  Hi Lori-- I know a while back you had a 
picc line for antibiotics. Over the years I have only been hospitalized twice 
for serious UTI , both those times it was pseudamonas and each time it took 
nearly a week of IV antibiotics to get me well--each time I got so ill with bad 
AD  and had most of my white blood cells destoyed. In each case my Urologist 
told me to wait as long as i can to see what happens. Both times I was rushed 
to the emergency and admitted. Well this Is my 3rd time being diagnosed with 
Pseudamonas in my Urine culture. We asked the Urologist how to go about getting 
a picc line for the IV drugsthe only type that can help me because this 
wacko Urologist made me take cipro every single day for one entire year!! And 
now the bug is resistant to that. Anyhow he said you don't need any IV drugs 
now-just wait and lets see what  happens..same advice he gave me both 
other times! My family doc wants to try to help
 but can't see me till next tuesday---hope I can survive without getting 
deathly sick...I don't know if this stuff can go away on its own, I'm drinking 
tons of water, cranberry pills juice-vitamin c and all the  usual 
stuffPlus flushing bladder every 4 days or so with acetic acid when urine 
gets way to fowl smelling to stand.  ( I know i'm rambling but here is my main 
question How to you go about getting a picc line  does a 
doctor order it or will emergency room? I see my family doc next Tuesday about 
it. Also---with a picc line does a person just go to the hospital each day or 
do they come to your home?? Our insurance will allow 20 nurse visits a year but 
so far I have  never used a home nurse.  Thanks in advance for any 
advice Dan H.

-
  Moody friends. Drama queens. Your life? Nope! - their life, your story.
Play Sims Stories at Yahoo! Games. 


Re: [QUAD-L] Lori--and others familiar with picc line for anti-biotics

2007-10-12 Thread Lori Michaelson
Hey Danny,

Firstly, I am no specialist except for first-hand experience many many many
times.  And, to be blunt and perfectly honest, that is most often the best
type of specialist!  :-)  BUT you simply cannot be having *a raging UTI or
you would be in bed 24 hours a day with a fever with chills that you can not
stand or in the hospital.  It has been well over a month now that you have
been talking about having a pseudomonas infection.*

Either the laboratory is not getting it right (a GREAT possibility) or it is
not affecting you very badly or you would be in the shape that I mentioned
above.  And most definitely not being able to write an e-mail.


Pseudomonas is an aggressive pathogen.  It is not like E. coli or some other
ones that can exist for long long periods of time without any symptoms.
When I get an infection I feel like I am going to die... like I said before
until the correct the antibiotic and ibuprofen brings down the high fever
... one that will not go down until it either kills me or it responds to the
medications..

If these goings on with you is not the laboratory (and without being so
redundant) your urologist is a total quack and a jerk.  If you go back to
him I am going to commit you to an insane asylum myself!  LOL.  But
seriously!

I would be asking him so many questions or turning him into the state board
for not treating you for a pseudomonas infection.  Unless you are
non-symptomatic which seems to be the case or you would not be able to
function.
In any case... none of this story jives.

If you already HAVE a urinary tract infection... trying to flush out your
system with lotsa water, taking cranberry pills and juices as well as
vitamin C is not going to do crap!  All of those things are only
preventatives... not treatments!!!

What Miriam said about PICC lines was correct and well written.  BUT, if the
laboratory is wrong and the diagnosis is wrong... the LAST thing that you
want to do to yourself is having the most powerful form of antibiotics going
into your system if you do not need them.  Because, as you know, if there is
a time when you REALLY need them... they may not work.


--

Now I will add my two cents about the last two summers (not including this
last one but the two before) about what I had to do to get rid of my two
different infections that were only going to respond to IV antibiotics...
and one better make sure that they are the right antibiotics taboot!

*A doctor of course has to order that it has been determined that no oral
antibiotics will work on the type of infection* *you have.  That being the
case... IV antibiotics are the only other option*.  I am trying to remember
the exact order of events but I believe that my doctor gave me the
prescription and I contacted the area of the hospital that puts in PICC
lines and I chose a day/time (of course as soon as possible) they had open
and I could get over there.  Most hospitals only have two specialists that
work together in a small area of the hospital *and their only expertise (job
or existence there) is putting in these lines.*

So anyway... I go over and have inserted.  It goes into the arm and then
thread carefully it into your chest cavity.  You do not feel a thing for the
most part except for the pinprick of the entry.  But because I am such a
baby I always have them choose a spot where I have no feeling.  After it is
inserted... they take a quick x-ray that can be done in your chair to make
sure that it is in the proper place in the chest.

After that, I go home and the home health agency is responsible for coming
once a day to administer the dose of antibiotics and flush the line twice to
keep it clear of clots or anything else.  About 90 minutes.  Both in the
summers of 95 and 96... it was a 10 day course.  The line can stay in longer
and it probably should stay in until another specimen of your urine takes
place to make sure that the antibiotics hit it.  Otherwise you are going to
have to go through having the line put in all over again.

Like another person on the list recently mentioned (pardon me as I have
forgotten at this moment) ... one of the IV antibiotics was called Zosyn.
Come to find out later... a pharmacist told my husband that Zosyn was
essentially only a stasis drug.  In other words it is not an aggressive
attacker as an antibiotic like one needs to have when they have a serious
infection like Pseudomonas or Proteus Mirabilis (the 2 big bad infections
that I was dealing with that were resistant to oral antibiotics).  To be
honest... pharmacists usually know much more about antibiotics and their
functions since that is their job!

So the 10 day course of Zosyn in the summer of 95 was a really bad call on
the part of my doctor... my regular physician at that time.  I have left him
since.  He was a jerk.  Also, because Medicare is my only insurance... it
only pays for the antibiotic.

When you have a PICC line put in...  local pharmaceutical 

[QUAD-L] 15 years married 25 together ~ wow

2007-10-12 Thread Bobbie299
Hi All,
 Pete  I met when I was 9 years post. I'm C 5,6 motor cross jumping 
accident 1973. We just celebrated 15 years married  25 living together. Pete 
has 
been my soul care giver 24/7 for well over 20 years. 
  I'm mentioning this to those of you not yet in a relationship. There is 
someone out there for you. I found Pete in a bar.
  ~ Peace ~ Bobbie  Pete



** See what's new at http://www.aol.com


Re: [QUAD-L] Lori--and others familiar with picc line for anti-biotics

2007-10-12 Thread Danny Hearn
 Thanks  Lori-- I never get fevers ever---this amazes some of the doctors, I 
can be on my deathbed but no fevers. I went 5 months uti free the September 5th 
I came down with this bad one I got now, my family doc had a culture done then 
but had more than 2 organisms as always, so the lab threw it out...my 
family doc gave me 10 days of macrobid and that only slowed it down and reduced 
the fowl smell,,after the macrobid ran out then came the horrible bladder pain 
again and very fowl smelling urine. Ran a 2nd culture and got pseudamonas 
results. Family doc office said call the urologist and tell him because he is 
on vacation and can't see me  till next Tuesday. So that is where I am at 
now,,, waiting in severe pain, thank god for Vicodin. The Acetic acid is 
keeping me from the emergency room I think because it backs it off but only for 
a while.  I always know when I get a bad uti because the pain and awful smell 
and cloudy urine plus I get severe Bladder and Body spasms. I
 never get bad body spasms any other time.  Take careI will have my wife 
flush my bladder again tonight  or in the morning.  Oh this Quad life is grand  
 LOL   Dan

Lori Michaelson [EMAIL PROTECTED] wrote:Hey Danny,
   
  Firstly, I am no specialist except for first-hand experience many many many 
times.  And, to be blunt and perfectly honest, that is most often the best type 
of specialist!  :-)  BUT you simply cannot be having a raging UTI or you would 
be in bed 24 hours a day with a fever with chills that you can not stand or in 
the hospital.  It has been well over a month now that you have been talking 
about having a pseudomonas infection. 
Either the laboratory is not getting it right (a GREAT possibility) or it 
is not affecting you very badly or you would be in the shape that I mentioned 
above.  And most definitely not being able to write an e-mail.  
  
Pseudomonas is an aggressive pathogen.  It is not like E. coli or some other 
ones that can exist for long long periods of time without any symptoms.  When I 
get an infection I feel like I am going to die... like I said before until the 
correct the antibiotic and ibuprofen brings down the high fever ... one that 
will not go down until it either kills me or it responds to the medications..  
  If these goings on with you is not the laboratory (and without being so 
redundant) your urologist is a total quack and a jerk.  If you go back to him I 
am going to commit you to an insane asylum myself!  LOL.  But seriously! 
  I would be asking him so many questions or turning him into the state board 
for not treating you for a pseudomonas infection.  Unless you are 
non-symptomatic which seems to be the case or you would not be able to 
function.  
In any case... none of this story jives.
  If you already HAVE a urinary tract infection... trying to flush out your 
system with lotsa water, taking cranberry pills and juices as well as vitamin C 
is not going to do crap!  All of those things are only preventatives... not 
treatments!!! 
  What Miriam said about PICC lines was correct and well written.  BUT, if the 
laboratory is wrong and the diagnosis is wrong... the LAST thing that you want 
to do to yourself is having the most powerful form of antibiotics going into 
your system if you do not need them.  Because, as you know, if there is a time 
when you REALLY need them... they may not work. 
   
--
  Now I will add my two cents about the last two summers (not including this 
last one but the two before) about what I had to do to get rid of my two 
different infections that were only going to respond to IV antibiotics... and 
one better make sure that they are the right antibiotics taboot! 
  A doctor of course has to order that it has been determined that no oral 
antibiotics will work on the type of infection you have.  That being the 
case... IV antibiotics are the only other option .  I am trying to remember the 
exact order of events but I believe that my doctor gave me the prescription and 
I contacted the area of the hospital that puts in PICC lines and I chose a 
day/time (of course as soon as possible) they had open and I could get over 
there.  Most hospitals only have two specialists that work together in a small 
area of the hospital and their only expertise (job or existence there) is 
putting in these lines.
  So anyway... I go over and have inserted.  It goes into the arm and then 
thread carefully it into your chest cavity.  You do not feel a thing for the 
most part except for the pinprick of the entry.  But because I am such a baby I 
always have them choose a spot where I have no feeling.  After it is 
inserted... they take a quick x-ray that can be done in your chair to make sure 
that it is in the proper place in the chest. 
  After that, I go home and the home health agency is responsible for coming 
once a day to administer the 

Re: [QUAD-L] Voice activated phone Finally

2007-10-12 Thread Lori Michaelson
We came across that site a little over a year ago.  That dude, if he makes
many or any sales at all, is robbing people blind.  Firstly he wants that
astronomical amount of money just for the phone!  Over $600!  Then, if you
really really really examine closely everything else you would need for your
bed, for your wheelchair, etc. etc. etc. that are really only little wires
or little plastic parts... the total bill gets up to around $1400.
And that is before even beginning to talk about the phone service bill!

We were considering it until we examined it much closer.  What people try to
get away with.  And it is a shame that it seems to be another quad that is
robbing other quads/severely disabled folks in a manner of speaking.

Lori
C4/5 complete quad, 28 years post
Tucson, AZ

On 10/11/07, RollinOn [EMAIL PROTECTED] wrote:

  Here it is folks and it looks like what everyone's been asking for and
 more.
 HYPERLINK
 http://store.accesstr.com/Search.bok?category=Aids+for+Daily+LivingpageID=1
 *
 http://store.accesstr.com/Search.bok?category=Aids+for+Daily+LivingpageID=1
 *

 Mark Jackson
 501-840-2291



[QUAD-L] BEWARE! *Sink Testing* in the labs....

2007-10-12 Thread Lori Michaelson
*Within the lab... it is the lab technicians who call this phenomenon
*sink testing*.*

Even though this is not something new it is probably running rampant now
more than ever.  Sink Testing

It was in the 1970s that my husband was a Chief Laboratory Technician with
his own laboratory in a medium-sized hospital.  In other words... all the
other technicians worked under him and he trained them and he was the head
honcho.  So he was the one doing and overlooking all laboratory work
including bloodwork, urinalysis, etc. etc. etc..

On so many occasions he would see other lazy technicians who were simply too
lazy to say, for example, run the test for ordered blood gases (to be run on
a person which is very important) ... and simply just dump the blood *down
the* *sink* and ONLY write down numbers (just flat out not doing their
job).  In other words, the test never took place!  Of course my husband had
a boss and there was one occasion when my husband saw an equal colleague
doing this all the time.  He reported it to his boss who would not, or cared
not, to do anything about it.

So, with my husband's set of ethics and morals he just told them that he was
going to report it and did not want to work in such a facility and moved
on.  I should mention here that my husband worked in several hospitals in
several states as he was going through school and so on.  So he has seen
this many times in many places.

But the point I want to make is that I know unequivocally that more and more
and more of this is going on still today.  Cuz of lazy, incompetent lab
techs.  Instead of doing a urine culture, as another example, a technician
might just do a simple urinalysis or just sink test it which means pouring
it down the drain and just writing down the name of any bug OR that the test
was negative.  Just plain laziness but so detrimental to so many patients!
I have experienced the latter several times within the last year.
I know that I experienced it firsthand but proving it is another matter.

After I had my big bladder stones removed... I still had some systemic
(fever) infections and after 25 years of being a quad... I KNOW exactly how
my body responds to a bad UTI  when it involves a fever I shake and
shake and shake until I think I am going to die.  I of course immediately
send a urine specimen to the laboratory.  Over the last year and a half it
has been taken to my urologist's office and they send it out to the
laboratory that they use for culture and sensitivities.  Three or four
different times the results came back negative!  I have a high fever, the
most awful looking urine, and the tests come back negative?  I don't think
so but I can't prove it!

Since I had the antibiotics on hand (that the bug in question fortunately
responded to!) I took them and treated myself.  I had no choice unless I
wanted to put myself in grave danger.  The other problem is that the doctor
begins not to believe you and they do not have the spine to question the
laboratory.  God help everyone!

It's a nasty medical world out there...

Lori
C4/5 complete quad, 28 years post
Tucson, AZ


Re: [QUAD-L] 15 years married 25 together ~ wow

2007-10-12 Thread Lori Michaelson
At the end of next month... my husband and I will hit the aluminum
anniversary of 10 years of marriage!  That makes me laugh to think that 10
years is the tinny, aluminum anniversary year!  I think it should at least
be a ruby or something!  I guess I could give my husband one of the many,
many empty tin cans we have around.  LOL.  But, if I can pull it off and
because he is so hard to buy for, I think I know what I'm going to try to
get him.  I can't even tell you guys until it is complete because it is a
secret.
I also inherited three stepchildren at the time of our marriage but two of
them were already on their own and in college and the daughter was with her
mother.  But they all know me and the 27-year-old has three kids already so
I am a stepgrandmother of three as well!

My husband was my knight in shining armor whom I met online and rescued me
from an assisted living facility that I moved into after my Ex-Significant
Other decided he wanted to move on after 12 years.  All in all, since I lost
my parents very young and have always had little family left... I feel like
I have been blessed with men in my life as partners in life and, in my
current situation, the real deal-- commitment equals marriage!

He has saved my life on so many occasions for someone a different reason
that I can't even count them!  We both wish we had met each other long, long
ago but things happen for a reason so here we are and every moment is
cherished!

~Love and Marriage, Love and Marriage... ...~

Lori
C4/5 complete quad, 28 years post
Tucson, AZ

On 10/12/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:

  *Hi All,*
 * Pete  I met when I was 9 years post. I'm C 5,6 motor cross jumping
 accident 1973. We just celebrated 15 years married  25 living together.
 Pete has been my soul care giver 24/7 for well over 20 years. *
 *  I'm mentioning this to those of you not yet in a relationship. There is
 someone out there for you. I found Pete in a bar.*
 *  ~ Peace ~ Bobbie  Pete*





Re: [QUAD-L] 15 years married 25 together ~ wow

2007-10-12 Thread wheelchair
 
Consider that many modern marriages failure before the ink dries on the  
marriage certificate.  You have not only beat the odds, you guys together  had 
done it in style with merits!  For this, you deserve nothing but the  very best 
in wishes for both of your futures and the continuing success of your  marriage.
 
Best Wishes
W
 
 
In a message dated 10/12/2007 6:08:30 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

He has saved my life on so many occasions for  someone a different reason 
that I can't even count them!  We both wish we  had met each other long, long 
ago 
but things happen for a reason so here we  are and every moment is cherished! 
~Love and Marriage, Love and Marriage...  ...~ 
Lori 
C4/5 complete quad, 28 years  post
Tucson, AZ







** See what's new at http://www.aol.com


Re: [QUAD-L] Quad Police officer and work

2007-10-12 Thread Quadius
I believe the primary focus of the story was to highlight how the majority
of disabled people who want to work are unable to do to stupid constraints
in the law.
Just my opinion.
Quadius

On 10/11/07, RONALD L PRACHT [EMAIL PROTECTED] wrote:

 Hi,
 I think Ill comment on this since I was a Police officer myself back in
 98. I think he is really getting a pretty good deal to receive 75 percent of
 his income before injured. You have to realize he looks like he was a
 veteran officer when he was injured ..so he was probally bringing in 40
 grand or so before injury.75 percent of that isnt bad.

 I think he should keep his position at the station as volunteer only. This
 may sound harsh but actually if he was under volunteer status then when he
 was ill,  had a pressure sore or couldnt get an attendant that day it
 wouldnt be a big deal.

 As John mentioned which I agree on is we are all going through these same
 issues, and some of us would love to be able to receive 75 percent of a 40
 grand salary to live on. I have much empathy for the mans situation, but hes
 not anyone special and this sort of things goes on everyday.

 ron c7



[QUAD-L] Total humiliation

2007-10-12 Thread Miriam Braunstein
This afternoon was such a total dignity sucker that I'm too embarrassed to even 
post the e-mail I wrote about it. I've had MD all my life, and I know I ought 
to know better, but I don't ever want to leave my house again.

Hope all are OK,
Miri

   
-
Tonight's top picks. What will you watch tonight? Preview the hottest shows on 
Yahoo! TV.

[QUAD-L] SCI Marriage

2007-10-12 Thread Lori Michaelson
WThat is so very true that it is scary.  The spinal cord injury
population that faces many, many, many challenges and is able to handle a
marriage is pretty good!  Especially compared to the fully able-bodied
population!  We have had our share of challenges that would break
apart probably 99% of an able-bodied marriage in a year or less but I must
attribute our marriage to the strength and character that my husband has.
-- He has sacrificed his job for me.

-- He has sacrificed his health and well-being for me.

-- There has been family estrangement unnecessary and unwanted but happened.

-- I have had back-to-back urinary tract infections for seven years and two
wounds that took away a year of my life as well as his since he is my
primary caregiver.

-- We have had to move twice because of those government jobs that play with
people's lives.
  -- We have hated the places we have had to put up with to live in.

Our list is endless but our devotion to each other is not.

Thanks W!
Lori
C4/5 complete quad, 28 years post
Tucson, AZ
---
 On 10/12/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:

  Consider that many modern marriages failure before the ink dries on the
 marriage certificate.  You have not only beat the odds, you guys together
 had done it in style with merits!  For this, you deserve nothing but the
 very best in wishes for both of your futures and the continuing success of
 your marriage.

 Best Wishes
 W

 In a message dated 10/12/2007 6:08:30 P.M. Central Daylight Time,
 [EMAIL PROTECTED] writes:

 He has saved my life on so many occasions for someone a different reason
 that I can't even count them!  We both wish we had met each other long, long
 ago but things happen for a reason so here we are and every moment is
 cherished!

 ~Love and Marriage, Love and Marriage... ...~

 Lori
 C4/5 complete quad, 28 years post
 Tucson, AZ





-- 
Lori
C4/5 complete quad, 27 years post
Tucson, AZ


[QUAD-L] Re: SCI Marriage

2007-10-12 Thread wheelchair
 
In a message dated 10/12/2007 8:48:32 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

Our list is endless but our devotion to each other is  not. 
Thanks W! 
Lori 
C4/5 complete quad, 28 years  post
Tucson, AZ



And that is what makes love stories so interesting.
Again best wishes
W



** See what's new at http://www.aol.com


Re: [QUAD-L] Total humiliation

2007-10-12 Thread Amy Davis
Miri, I am not sure what happened to you. But it will be better tomorrow. AB 
people are actually more accepting than you think. No matter what happened, it 
will be ok. Hang in there~!!! 
  And please...You HAVE to go out ! It was a bad day but they will not always 
be like that...I promise.
((( HUGS)))
  Amy
Miriam Braunstein [EMAIL PROTECTED] wrote:
  This afternoon was such a total dignity sucker that I'm too embarrassed to 
even post the e-mail I wrote about it. I've had MD all my life, and I know I 
ought to know better, but I don't ever want to leave my house again.

Hope all are OK,
Miri

-
  Tonight's top picks. What will you watch tonight? Preview the hottest shows 
on Yahoo! TV. 

   
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