[QUAD-L] NWI SCI Group presentation to the AAMA

2008-01-10 Thread wheelchair


 
  

 Subj: Fwd: NWI SCI Group presentation to the AAMA



Hello everyone,

I was honored by a request to present the _NWI SCI Group_ 
(http://nwiscig.blogspot.com/)  to the local Asian American Medical  
Association this evening. I 
gave a brief presentation of the history of the  group and our projected 
direction to about 30 physicians in Northwest Indiana.  Many were surprised to 
find 
out that a group like ours existed. A few even  approached me after and said 
they enjoyed the presentation. This should give  us more exposure to others 
with SCIs (spinal cord injuries) or SCDs (spinal  cord diseases) and more 
funding and activities. It was very well received. I  thought I would let you 
all 
know what was going on within the group. 

I  also spoke about _Unite 2 Fight Paralysis_ (http://u2fp.org/)  and the 
_Working 2 Walk Symposium/Rally_ (http://working2walk.org/) . This is a good 
time 
to  mention Bridges 2 Hope. _Bridges 2 Hope_ (http://bridges2hope.org/)  is 
an  advocacy tool used to demonstrate how many people there are living with 
SCI/Ds  in a given state or area. I urge  everyone to check out the website and 
 
submit your picture and story as soon as possible or give them to me to submit 
 under the group name and logo. 

Sincerely,

Joe  White
Northwest Indiana Spinal Cord Injury Group
219-531-0055
_nwiscig.blogspot.com_ (http://nwiscig.blogspot.com/)  



-- 
Joe  White
Northwest Indiana Spinal Cord Injury Group
219-531-0055
_nwiscig.blogspot.com_ (http://nwiscig.blogspot.com/)  




**Start the year off right.  Easy ways to stay in shape. 
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RE: [QUAD-L] Ramblings on health

2008-01-10 Thread Silas Shelburne
Thanks Joan, 

I really enjoyed reading your post, stay strong and God Bless!  Silas 

 

From: Joan Anglin [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 09, 2008 3:58 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Ramblings on health

 

Over the years I have been amazed at the differences between levels of
spinal cord injury. As is so often noted, we vary tremendously. We each have
our own demons to deal with, and we each deal with them in often ingenious
ways. I have often felt frustrated that it was so difficult to find the
answers for seemingly small problems.

Until I came up on this list a couple of years ago, I had been relatively
isolated from other quads. Reno had no physiatrist, so I just used a family
practitioner and she and I dealt with problems as they came up. Lucky for
me, I hardly had any problems. The biggest whammy was being bitten by a
brown recluse spider, and not having it diagnosed until a lot of damage was
done. Luckily, that was during the time I had insurance. The people on this
list have so much experience, and are so willing to share it with the rest
of us, that many of the small problems can be resolved rather simply.

At Santa Clara Rehabilitation, they emphasized keeping everything simple.
Since I had very little access to information about quads, I kept it simple.
The first 14 years bowel care consisted of digital simulation every third
day, but after realizing that I was major lactose intolerant we changed it
to four times a week-Monday, Wednesday, Friday, Saturday-and I've stayed on
that routine since then.

I did not even have a urologist that was familiar with quads, so I just
stayed with intermittent catheterization, not knowing the options. I do use
an overnight bag with a 14 F red rubber catheter overnight as I do not have
anybody to cath me. I've been very fortunate and do not have many UTIs, and
have never had a serious one. I must admit that having to stop activities in
order to be cathed is somewhat of a nuisance, but if it means that I will
not have to deal with UTI's I will continue to live with the scheduling
problem. Of course, I cannot be sure that that is why I do not have UTI
problems, but if it ain't broke, why fix it? My new urologist told me that
one of the advantages of using intermittent catheterization is that my
bladder has stayed a normal size, and I am able to hold around 500 CC's
before my body lets me know it is time. If I watch what I eat and drink that
is usually around 6 to 7 hours.

Except for pressure sores I have enjoyed remarkable health, and thanks to
the clinitron bed my pressure sores have been cured, and I hope that I can
remain free of pressure sores.

Because I cannot feed myself, it has been relatively easy for me not to gain
weight because I hate being fed by other people. One would think after 17
years that I would be comfortable with it, but the only time it works well
is when I share a plate and realize I am not keeping somebody from eating
their food. JIt's also very difficult to snack when I have to ask somebody
else to fix it for me.

This summer I had many tests done, because my physiatrist was appalled that
I have not had scans done regularly. Everything was just OK, and luckily for
me everything was in its right place J. They noted I had a couple of
gallstones, and wanted to watch them.

But over the holidays everything changed. My years of being healthy made me
unaware of how sick I was.  When my daughter said that I was yellow, and I
had several days of burning pain in my stomach, I went to the ER. Except for
being yellow, everything appeared to be OK-blood pressure, no fever, pulse
rate OK, and my urine was rather dark, but not really worrisome.

They were extremely busy in the ER, but we let them know I would need to be
cathed in a couple of hours. They were very understanding, and came out a
couple of times to let us know they had not forgotten us, and were able to
get me into a room as quickly as possible. Everything changed however when
they found out I was passing a gallstone and had pancreatitis, and they
moved into high gear. I was admitted, and they explained my options, and we
all agreed that I would have to have my gallbladder removed as soon as the
pancreatitis subsided. My body was ready two days later-not my mind J-and I
went to surgery, only to wake up with a tracheotomy! Certainly not what I
was hoping for, as the anesthesiologist had said there was a 5% chance that
I would have to have a tracheotomy. Unfortunately the scar tissue from my
first tracheotomy prevented a simple intubation, and my daughter had to
agree to a tracheotomy.

Now I was facing a much longer stay in the hospital. I was in ICU for nine
days because I had a major bleed-rapid response and all the rest-and really
came face to face with my mortality. My care there was absolutely great, but
then I had to move to a more long-term facility. WOW what a difference. Got
there on Tuesday and, and by Thursday I wanted to leave. I went for 

Re: [QUAD-L] Ramblings on health

2008-01-10 Thread Oconnelldb
 
 
it seems to be a pretty fast trip down that slippery slope into poor health  
that often leads us very near to the pearly gates.  i took one or 2 in  
2006.  i hope that the one that gets me is a rocket ride right  through 
the 
gates.  dying by inches just isn't in my plan.  both my  parents went that way 
- it wasn't very nice to watch.
dave
 
 
 
In a message dated 1/9/2008 2:59:08 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
Over the years I have been amazed at the differences  between levels of 
spinal cord injury. As is so often noted, we vary  tremendously. We each have 
our 
own demons to deal with, and we each deal with  them in often ingenious ways. I 
have often felt frustrated that it was so  difficult to find the answers for 
seemingly small problems. 
Until I came up on this list a couple of years ago, I had  been relatively 
isolated from other quads. Reno had no physiatrist, so I just  used a family 
practitioner and she and I dealt with problems as they came up.  Lucky for me, 
I 
hardly had any problems. The biggest whammy was being bitten  by a brown 
recluse spider, and not having it diagnosed until a lot of damage  was done. 
Luckily, that was during the time I had insurance. The people on  this list 
have so 
much experience, and are so willing to share it with the  rest of us, that 
many of the small problems can be resolved rather  simply. 
At Santa Clara Rehabilitation, they emphasized keeping  everything simple. 
Since I had very little access to information about quads,  I kept it simple. 
The first 14 years bowel care consisted of digital  simulation every third day, 
but after realizing that I was major lactose  intolerant we changed it to four 
times a week-Monday, Wednesday, Friday,  Saturday-and I’ve stayed on that 
routine since then. 
I did not even have a urologist that was familiar with  quads, so I just 
stayed with intermittent catheterization, not knowing the  options. I do use an 
overnight bag with a 14 F red rubber catheter overnight  as I do not have 
anybody to cath me. I’ve been very fortunate and do not have  many UTIs, and 
have 
never had a serious one. I must admit that having to stop  activities in order 
to be cathed is somewhat of a nuisance, but if it means  that I will not have 
to deal with UTI’s I will continue to live with the  scheduling problem. Of 
course, I cannot be sure that that is why I do not have  UTI problems, but if 
it 
ain’t broke, why fix it? My new urologist told me that  one of the advantages 
of using intermittent catheterization is that my bladder  has stayed a normal 
size, and I am able to hold around 500 CC’s before my body  lets me know it is 
time. If I watch what I eat and drink that is usually  around 6 to 7 hours. 
Except for pressure sores I have enjoyed remarkable health,  and thanks to 
the clinitron bed my pressure sores have been cured, and I hope  that I can 
remain free of pressure sores. 
Because I cannot feed myself, it has been relatively easy  for me not to gain 
weight because I hate being fed by other people. One would  think after 17 
years that I would be comfortable with it, but the only time it  works well is 
when I share a plate and realize I am not keeping somebody from  eating their 
food. JIt’s also very  difficult to snack when I have to ask somebody else to 
fix it for  me. 
This summer I had many tests done, because my physiatrist  was appalled that 
I have not had scans done regularly. Everything was just OK,  and luckily for 
me everything was in its right place J. They noted I had a couple of  
gallstones, and wanted to watch them. 
But over the holidays everything changed. My years of being  healthy made me 
unaware of how sick I was.  When my daughter said that I  was yellow, and I 
had several days of burning pain in my stomach, I went to  the ER. Except for 
being yellow, everything appeared to be OK-blood pressure,  no fever, pulse 
rate 
OK, and my urine was rather dark, but not really  worrisome. 
They were extremely busy in the ER, but we let them know I  would need to be 
cathed in a couple of hours. They were very understanding,  and came out a 
couple of times to let us know they had not forgotten us, and  were able to get 
me into a room as quickly as possible. Everything changed  however when they 
found out I was passing a gallstone and had pancreatitis,  and they moved into 
high gear. I was admitted, and they explained my options,  and we all agreed 
that I would have to have my gallbladder removed as soon as  the pancreatitis 
subsided. My body was ready two days later-not my mind J-and I went to surgery, 
only to wake up  with a tracheotomy! Certainly not what I was hoping for, as 
the  anesthesiologist had said there was a 5% chance that I would have to have 
a  tracheotomy. Unfortunately the scar tissue from my first tracheotomy 
prevented  a simple intubation, and my daughter had to agree to a  tracheotomy. 
Now I was facing a much longer stay 

Re: [QUAD-L]

2008-01-10 Thread David K. Kelmer
Hi Eric,
   
  It's not just you!   Stay strong.
   
  With Love,
 
CtrlAltDel aka Dave
C4/5 Complete - 31 Years Post
  Texas, USA 


Eric W Rudd [EMAIL PROTECTED] wrote:

  is it me or is she just loveable
   
   
  object width=425 height=355param name=movie 
value=http://www.youtube.com/v/OSfGmMmWXyArel=1;/paramparam name=wmode 
value=transparent/paramembed 
src=http://www.youtube.com/v/OSfGmMmWXyArel=1; 
type=application/x-shockwave-flash wmode=transparent width=425 
height=355/embed/object
  
Eric W Rudd
[EMAIL PROTECTED]




Re: [QUAD-L] (no subject)

2008-01-10 Thread David K. Kelmer
Hi Myron,
   
  And to be truthful, those of us that made it here are the lucky ones.  We can 
speak out about what we've beeen through and what we've seen.  There are so 
many out there without even that going for them.  
   
  With Love,
 
CtrlAltDel aka Dave
C4/5 Complete - 31 Years Post
  Texas, USA 


[EMAIL PROTECTED] wrote:

  I like your thinking...I just am so surprised such horrible conditions 
exist for so many folks..never knew what really exists until reading some of 
the emails feel like I am intruding on a private world...Best..Myron




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[QUAD-L] Re; Tv show

2008-01-10 Thread Amy Davis
I wanted to let you guys know there is a show coming on tv that you might be 
interested in. It is called Mapping Stem Cell Research: Terra Incognita. It is 
on PBS on jan 15th. Not sure what time. 
   
   It follows Dr. Jack Kessler's push to cure spinal cord injuries. Motivated 
by the plight of his own daughter, Allison_paralyzed in a skiing accident-the 
neurologist shows how personal science can be 

   
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Be a better friend, newshound, and know-it-all with Yahoo! Mobile.  Try it now.

Re: [QUAD-L] (no subject)

2008-01-10 Thread MyronBenLevy
Working with Shepherd folks to try to do something..for those that leave  
hospital after rehab..Concentrating on home environment  needs..Myron



**Start the year off right.  Easy ways to stay in shape. 
http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489


Re: [QUAD-L] jim boen's obit

2008-01-10 Thread Danny Hearn
 Yes, after reading thru a lot of his online free bookit said that he was 
75 + years old---  and man that is a ripe old age, even for a man who would not 
even be a quad!   His book told  a lot about his amazing life as a quad and is 
broke down in easy sections to read any part that you want. 
   Dan H.

[EMAIL PROTECTED] wrote:Does anyone know how old James Boen was when he 
died?
   
  --
Keep on Rollin, 
Paul
   
  -- Original message -- 
From: William Willis [EMAIL PROTECTED] 
.hmmessage P  {  margin:0px;  padding:0px  }  body.hmmessage  {  FONT-SIZE: 
10pt;  FONT-FAMILY:Tahoma  }
Boen, James R. Probably the longest surviving quadriplegic in America, Jim Boen 
died December 6, 2007. He had an idyllic childhood in Peru, Indiana, graduated 
from high school in Appleton, WI and attended Dartmouth College where he broke 
his neck during his Junior year doing the giant swing on the high bar in 1951. 
After 9 months in the hospital (where he learned a million jokes), he took 
correspondence courses, attended Lawrence University and graduated from 
Dartmouth with high distinction in mathematics. He earned his MS and PhD in 
math at the University of Illinois where he met his wife, Dorothy. After 
teaching at Southern Illinois University, a year at the University of Chicago 
and teaching algebra at the University of Michigan, he became fascinated by 
biostatistics and spe! nt seve ral years at Stanford working on a post 
doctorate before coming to the University of Minnesota in 1964. He was a full 
professor in biometry for 24 years and Associate Dean of the School of
 Public Health for 14 years before retiring in 2000. He found that as a quad, 
he could shoot a gun, so target shooting and hunting became his passion. 
Besides his wife of 50 years, he is survived by son, Dean (Dyna), 
granddaughter, Elly; daughter, Susan Koehn (Brad) and grandsons, Aidan and Alex 
Bendini; and extended family, Grace and Rick Sheely. A service will be held at 
the Cremation Society Chapel, 7110 France Ave. S. in Edina (952-924-4100) at 1 
pm December 17, with visitation at 12 and reception following. Memorials 
suggested to the Boen Scholarship 



-
  CC: [EMAIL PROTECTED]
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Subject: Re: [QUAD-L] oops
Date: Mon, 17 Dec 2007 08:17:14 -0500

  What did he die of?
  


On Dec 17, 2007, at 7:07 AM, William Willis wrote:

I found Jim Boen's book here. Hope it works.

http://www.jimboen.com/50index.htm


-
  Date: Sat, 15 Dec 2007 17:23:43 -0800
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Subject: [QUAD-L] oops

  sorry...
   
  www.startribune.com/obituaries


  Lucinda
C-4,5 complete
July 31, '05
  Mpls., MN
   
  
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[QUAD-L] Texas Health and Human Services Commission January/February Edition of In Touch

2008-01-10 Thread David K. Kelmer
 

   Health care reform package seeks to create ‘culture of insurance’   
   Medicaid I.D. card ready for statewide expansion   
   New codes, identifiers now required for Medicaid claims   
   Deadline approaching for tamper-resistant prescription pads   
   Federal review of payments comes to Texas   
   Committee aims to enhance input from medical community in cases of child 
abuse   
   Coordination of care enhances new managed care program   
   Need Medicaid provider? Check the Web   
   New group at HHSC has new leader   
   HHSC providing weekly column to Texas newspapers   
   Briefs 
  The complete In Touch newsletter can be accessed at 
http://www.hhsc.state.tx.us/stakeholder/Jan_Feb08/index.html. 
   
With Love,
 
CtrlAltDel aka Dave
C4/5 Complete - 31 Years Post
  Texas, USA 



Re: [QUAD-L] supra-pubic catheter

2008-01-10 Thread wheelchair
Did your doctor say that your body will accept a SP?  Most can, some  can't.  
There are more Pros then Cons regarding that procedure.  Is  the SP more 
effective for you then a bladder augmentation, thru the belly  button?
 
Best Wishes
 
 
In a message dated 1/10/2008 7:49:54 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

I went to my doctor yesterday and she suggested that I have  a super pubic 
catheter put in, because I am constantly plagued UTIs.  I  don't know if this 
is 
a good idea or not.  I don't have access to a  shower, so I just get bed a 
bath every day.  I have read several things  on this list regarding supra-pubic 
catheters, and I don't think many of them  were positive.
 
Can some of you shed some light on the subject for me.   What are the 
advantages and disadvantages?  Keep in mind that I do not  have hand function.  
Thanks in advance.  

Naomi




C4  quadriplegic since July 2005
due to Transverse  Myelitis



 

 Start the year off right. _Easy ways to stay in shape_ 
(http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489)  in the 
new year.  



**Start the year off right.  Easy ways to stay in shape. 
http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489


[QUAD-L] supra-pubic catheter

2008-01-10 Thread LadyNotes
I went to my doctor yesterday and she suggested that I have a  super pubic 
catheter put in, because I am constantly plagued UTIs.  I don't  know if this 
is 
a good idea or not.  I don't have access to a shower, so I  just get bed a 
bath every day.  I have read several things on this list  regarding supra-pubic 
catheters, and I don't think many of them were  positive.
 
Can some of you shed some light on the subject for me.   What are the 
advantages and disadvantages?  Keep in mind that I do not have  hand function.  
Thanks in advance.  

Naomi


C4  quadriplegic since July 2005
due to Transverse  Myelitis



**Start the year off right.  Easy ways to stay in shape. 
http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489


Re: [QUAD-L] (no subject)

2008-01-10 Thread Amy Davis
Good luck with that one! The list is endless. 

[EMAIL PROTECTED] wrote:  Working with Shepherd folks to try to do 
something..for those that leave hospital after rehab..Concentrating on home 
environment needs..Myron




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Re: [QUAD-L] supra-pubic catheter

2008-01-10 Thread LadyNotes
Wheelchair,
 
What will make someone unable to accept SP?  What is the  difference between 
bladder augmentation and SP?  I have an appointment with  my urologists in 
February.  I guess he will explain all this to me.   I'd just like to get input 
from those who have experience with SP, which will  help with my decision.
 
 
Naomi


C4  quadriplegic since July 2005
due to Transverse  Myelitis



**Start the year off right.  Easy ways to stay in shape. 
http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489


[QUAD-L] muscular contractions

2008-01-10 Thread LadyNotes
 
 
Subject:  muscular contractions

A Professor was giving a lecture on  Involuntary Muscular Contractions to 
his first year medical students.  Realizing that this was not the most 
riveting subject, the Professor decided  to lighten the mood slightly.

He pointed to a young woman in the front  row and said, Do you know what 
your ass hole is doing while you're having  an orgasm?

She replied, Probably deer hunting with his  buddies.

He laughed so hard he couldn't finish teaching the  class.




Naomi


C4  quadriplegic since July 2005
due to Transverse  Myelitis



**Start the year off right.  Easy ways to stay in shape. 
http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489


[QUAD-L] supra-pubic catheter

2008-01-10 Thread wheelchair
Bladder Augmentation, was a procedure pioneered by a URO for those born  with 
Spina Bifida.
The doctor builds a tunnel using your material from the bladder and  connects 
it to a flap by the belly button.
You know about the SP already.  You might also consider doing GOGGLE  search 
on both for your
perusal and consideration.
Best Wishes
 
 
In a message dated 1/10/2008 8:29:50 P.M. Central Standard Time, LadyNotes  
writes:

Wheelchair,
 
What will make someone unable to accept SP?  What is  the difference between 
bladder augmentation and SP?  I have an  appointment with my urologists in 
February.  I guess he will explain all  this to me.  I'd just like to get input 
from those who have experience  with SP, which will help with my decision.
 
 
Naomi







**Start the year off right.  Easy ways to stay in shape. 
http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489


Re: [QUAD-L] supra-pubic catheter

2008-01-10 Thread theomen723



-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Sent: Thu, 10 Jan 2008 10:44 pm
Subject: Re: [QUAD-L] supra-pubic catheter


I had the sp tube put in about 2 months ago.? I love it!? 

Good stuff:
1. No risk of damaging my urethra
2. My penis is free for sex
3. Is not as painful as the indwelling

Bad stuff:
1. slight mucusy leakage from the hole
2. can't really lay on my stomach
3. doesn't really change risk of UTI
4. it's kinda scary knowing I have a hole in my stomach


-Original Message-
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Thu, 10 Jan 2008 7:48 pm
Subject: [QUAD-L] supra-pubic catheter



I went to my doctor yesterday and she suggested that I have a super pubic 
catheter put in, because I am constantly plagued UTIs.? I don't know if this is 
a good idea or not.? I don't have access to a shower, so I just get bed a bath 
every day.? I have read several things on this list regarding supra-pubic 
catheters, and I don't think many of them were positive.

?

Can some of you shed some light on the subject for me.? What are the advantages 
and disadvantages?? Keep in mind that I do not have hand function.? Thanks in 
advance. 
?

Naomi

C4 quadriplegic since July 2005
due to Transverse Myelitis






Start the year off right. Easy ways to stay in shape in the new year. 


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Re: [QUAD-L] Ramblings on health

2008-01-10 Thread C C
Joan
   
  Enjoyed your rambling. Keep it up.

Joan Anglin [EMAIL PROTECTED] wrote: 
Over the years I have been amazed at the differences between 
levels of spinal cord injury. As is so often noted, we vary tremendously. We 
each have our own demons to deal with, and we each deal with them in often 
ingenious ways. I have often felt frustrated that it was so difficult to find 
the answers for seemingly small problems.
  Until I came up on this list a couple of years ago, I had been relatively 
isolated from other quads. Reno had no physiatrist, so I just used a family 
practitioner and she and I dealt with problems as they came up. Lucky for me, I 
hardly had any problems. The biggest whammy was being bitten by a brown recluse 
spider, and not having it diagnosed until a lot of damage was done. Luckily, 
that was during the time I had insurance. The people on this list have so much 
experience, and are so willing to share it with the rest of us, that many of 
the small problems can be resolved rather simply.
  At Santa Clara Rehabilitation, they emphasized keeping everything simple. 
Since I had very little access to information about quads, I kept it simple. 
The first 14 years bowel care consisted of digital simulation every third day, 
but after realizing that I was major lactose intolerant we changed it to four 
times a week-Monday, Wednesday, Friday, Saturday-and I’ve stayed on that 
routine since then.
  I did not even have a urologist that was familiar with quads, so I just 
stayed with intermittent catheterization, not knowing the options. I do use an 
overnight bag with a 14 F red rubber catheter overnight as I do not have 
anybody to cath me. I’ve been very fortunate and do not have many UTIs, and 
have never had a serious one. I must admit that having to stop activities in 
order to be cathed is somewhat of a nuisance, but if it means that I will not 
have to deal with UTI’s I will continue to live with the scheduling problem. Of 
course, I cannot be sure that that is why I do not have UTI problems, but if it 
ain’t broke, why fix it? My new urologist told me that one of the advantages of 
using intermittent catheterization is that my bladder has stayed a normal size, 
and I am able to hold around 500 CC’s before my body lets me know it is time. 
If I watch what I eat and drink that is usually around 6 to 7 hours.
  Except for pressure sores I have enjoyed remarkable health, and thanks to the 
clinitron bed my pressure sores have been cured, and I hope that I can remain 
free of pressure sores.
  Because I cannot feed myself, it has been relatively easy for me not to gain 
weight because I hate being fed by other people. One would think after 17 years 
that I would be comfortable with it, but the only time it works well is when I 
share a plate and realize I am not keeping somebody from eating their food. 
JIt’s also very difficult to snack when I have to ask somebody else to fix it 
for me.
  This summer I had many tests done, because my physiatrist was appalled that I 
have not had scans done regularly. Everything was just OK, and luckily for me 
everything was in its right place J. They noted I had a couple of gallstones, 
and wanted to watch them.
  But over the holidays everything changed. My years of being healthy made me 
unaware of how sick I was.  When my daughter said that I was yellow, and I had 
several days of burning pain in my stomach, I went to the ER. Except for being 
yellow, everything appeared to be OK-blood pressure, no fever, pulse rate OK, 
and my urine was rather dark, but not really worrisome.
  They were extremely busy in the ER, but we let them know I would need to be 
cathed in a couple of hours. They were very understanding, and came out a 
couple of times to let us know they had not forgotten us, and were able to get 
me into a room as quickly as possible. Everything changed however when they 
found out I was passing a gallstone and had pancreatitis, and they moved into 
high gear. I was admitted, and they explained my options, and we all agreed 
that I would have to have my gallbladder removed as soon as the pancreatitis 
subsided. My body was ready two days later-not my mind J-and I went to surgery, 
only to wake up with a tracheotomy! Certainly not what I was hoping for, as the 
anesthesiologist had said there was a 5% chance that I would have to have a 
tracheotomy. Unfortunately the scar tissue from my first tracheotomy prevented 
a simple intubation, and my daughter had to agree to a tracheotomy.
  Now I was facing a much longer stay in the hospital. I was in ICU for nine 
days because I had a major bleed-rapid response and all the rest-and really 
came face to face with my mortality. My care there was absolutely great, but 
then I had to move to a more long-term facility. WOW what a difference. Got 
there on Tuesday and, and by Thursday I wanted to leave. I went for hours 
without anyone checking in, no call button that I could use, and no 

RE: [QUAD-L] supra-pubic catheter

2008-01-10 Thread Danny Espinoza
I had mine done at Craig hospital in Colorado. I still have constant UTI's
however I think mine are caused by possibly my caregivers not washing
their hands enough and constantly being around my younger brothers however..
for me because im a younger male it also allows for sex.. Im not sure how
concerned you are about that, or if it's a problem for you.. changing them
is fairly easy as well, my nurse comes out once a month to change mine. Hope
this helps some!

 

 

Danny Espinoza 24/m/California

Occupation before accident - Network engineer / SR. Network security
engineer

Broke c2,c6,c7 and doner  bone at c2

TBI from blood going to central cortex from spinal cord

off a vent woohoo however only one diaphragm works right now due to

asymmetric SCI

 

http://secureminds.us/

 

 

 

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Thursday, January 10, 2008 5:49 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] supra-pubic catheter

 

I went to my doctor yesterday and she suggested that I have a super pubic
catheter put in, because I am constantly plagued UTIs.  I don't know if this
is a good idea or not.  I don't have access to a shower, so I just get bed a
bath every day.  I have read several things on this list regarding
supra-pubic catheters, and I don't think many of them were positive.

 

Can some of you shed some light on the subject for me.  What are the
advantages and disadvantages?  Keep in mind that I do not have hand
function.  Thanks in advance. 

 

Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis





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