Re: [QUAD-L] 20th anniversary
Stacy, Thank you for sharing your heartfelt thoughts. My mom sounds like yours...trying to have a sense of power and purpose by giving the illusion of helping and then never taking the time to do the real compassionate work of learning about the daily life struggles of a quad. Be well, Paul - Original Message - From: Stacy Harim To: Paul Jacobson ; Quadius ; quad-list@eskimo.com Sent: Sunday, April 13, 2008 6:53 PM Subject: Re: [QUAD-L] 20th anniversary Thanks Paul. That is kind. I wish everyone were that way. So many with minor problems find a way to complain about so much such as my own mother who had to get two toes amputated about a month ago. She's in rehab now and is constantly complaining to me. I just want to shake her. She acts so worried about me but then acts like her problems are so much bigger than mine. I sympathize but at least she can walk even if it's not well. I have it so much better than so many of you on the list and I respect what you all go through in a day. I was a quad wish absolutely no movement for a short time and now paraplegic so I know how bad it can be and thank God everyday that I am not. When I first became sick I just didnt get up one day and woke up about a month later from a coma. I realize that if I didnt have a roommate to call 911,I would be dead and am so grateful that I wake up every day. Its sad that it took so much for me to appreciate my life even if it is pretty bad at times. When it's bad, its bad and I dont even bother complaining to anyone about it. I put on a face when I'm not doing well because I don't want to bring down people around me and don't want them to feel bad for me. They have their own issues to deal with, I don't want to bother them with mine. My mom's friend gave me a card for my graduation from high school and it's the only one I remember. I will never forget his words God rest his soul. He said life is a do it yourself project I think that says it all. Stacy - Original Message From: Paul Jacobson [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; Quadius [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, April 13, 2008 9:40:35 PM Subject: Re: [QUAD-L] 20th anniversary I don't know you Stacy. But I am inspired, respectful and incredibly appreciative for your words. Clearly, you model the daily drive we all should strive for in making each day count. Good Luck and thank you Stacy! Paul C5/6 Complete Injured 11/05/03 San Diego, CA - Original Message - From: Stacy Harim To: Quadius ; quad-list@eskimo.com Sent: Sunday, April 13, 2008 6:31 PM Subject: Re: [QUAD-L] 20th anniversary I totally agree with the post. I'm coming up on my 7th memorial weekend. It seems almost every spring it has been something with me. I had bladder surgery that didnt work, pressure sore surgery twice on the same one and both in the spring, last year infection in my spinal column which required major amounts of rods and this spring a screw has broken through the vertebrae and is rubbing the one above it. Another surgery! I keep going and take it day by day. People keep telling me how strong I am and they dont know if they could do it. I just tell them that if they had to, they would. It the typical fight or flight. Deal with it and move on or curl up in a corner and live the rest of your life in a nursing home which isnt an option for me. I'm not knocking those in a nursing home b/c I realize there is no choice for some but I was lucky in finding a way to do it on my own so I did and will fight to keep my independence. Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, April 12, 2008 4:20:12 PM Subject: [QUAD-L] 20th anniversary Last year I wanted to write a blog about my 12th anniversary, but I didn't feel that inspired at that time. Now I'm trying to write one about my 13th, even though I am about a week and a half late. It seems that I copied a message from someone on this list to give me inspiration for this year's blog. I found it to be one of the best entries I had read regarding quad milestones and I am seriously considering using it as a format for my blog. I, however, would like to find out who it is, because for some reason I didn't copy down the name. The anniversary date of the person's accident was April 1, 1988. Is that person still on the list or does anyone have an idea who this might be. Below is a small excerpt of what I copied. Finding things in life I like or dislike, in other words its like being reborn all over again, minus learning to walk. Over these years I have been asked How do you do it? or I'm not sure what I would do if that happened to me. How do I do it? Easy, I live each day as it comes, take what is given to me and
Re: [QUAD-L] Anybody nerve senitive to noises?
I am the same...any sudden noise and I am @!%$*ed up for the next ten minutes.but crowd noise, like at a football game is fine. Paul c5/6 - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Sunday, April 13, 2008 7:10 PM Subject: Re: [QUAD-L] Anybody nerve senitive to noises? Bobbie, I find that I am very sensitive to any type of noise. I tend to like things quiet. Any type of noise is very irritating to me and I also startle easily. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis -- It's Tax Time! Get tips, forms and advice on AOL Money Finance.
FW: [QUAD-L] 20th anniversary
Sometimes when people complain the object or reason expressed is often not their true complaint. Sometimes companioning is a cry out to be told you are loved/ Hallmark _ From: Paul Jacobson [mailto:[EMAIL PROTECTED] Sent: Monday, April 14, 2008 8:00 AM To: Stacy Harim; Quadius; quad-list@eskimo.com Subject: Re: [QUAD-L] 20th anniversary Stacy, Thank you for sharing your heartfelt thoughts. My mom sounds like yours...trying to have a sense of power and purpose by giving the illusion of helping and then never taking the time to do the real compassionate work of learning about the daily life struggles of a quad. Be well, Paul - Original Message - From: Stacy mailto:[EMAIL PROTECTED] Harim To: Paul Jacobson mailto:[EMAIL PROTECTED] ; Quadius mailto:[EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Sunday, April 13, 2008 6:53 PM Subject: Re: [QUAD-L] 20th anniversary Thanks Paul. That is kind. I wish everyone were that way. So many with minor problems find a way to complain about so much such as my own mother who had to get two toes amputated about a month ago. She's in rehab now and is constantly complaining to me. I just want to shake her. She acts so worried about me but then acts like her problems are so much bigger than mine. I sympathize but at least she can walk even if it's not well. I have it so much better than so many of you on the list and I respect what you all go through in a day. I was a quad wish absolutely no movement for a short time and now paraplegic so I know how bad it can be and thank God everyday that I am not. When I first became sick I just didnt get up one day and woke up about a month later from a coma. I realize that if I didnt have a roommate to call 911,I would be dead and am so grateful that I wake up every day. Its sad that it took so much for me to appreciate my life even if it is pretty bad at times. When it's bad, its bad and I dont even bother complaining to anyone about it. I put on a face when I'm not doing well because I don't want to bring down people around me and don't want them to feel bad for me. They have their own issues to deal with, I don't want to bother them with mine. My mom's friend gave me a card for my graduation from high school and it's the only one I remember. I will never forget his words God rest his soul. He said life is a do it yourself project I think that says it all. Stacy - Original Message From: Paul Jacobson [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; Quadius [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, April 13, 2008 9:40:35 PM Subject: Re: [QUAD-L] 20th anniversary I don't know you Stacy. But I am inspired, respectful and incredibly appreciative for your words. Clearly, you model the daily drive we all should strive for in making each day count. Good Luck and thank you Stacy! Paul C5/6 Complete Injured 11/05/03 San Diego, CA - Original Message - From: Stacy mailto:[EMAIL PROTECTED] Harim To: Quadius mailto:[EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Sunday, April 13, 2008 6:31 PM Subject: Re: [QUAD-L] 20th anniversary I totally agree with the post. I'm coming up on my 7th memorial weekend. It seems almost every spring it has been something with me. I had bladder surgery that didnt work, pressure sore surgery twice on the same one and both in the spring, last year infection in my spinal column which required major amounts of rods and this spring a screw has broken through the vertebrae and is rubbing the one above it. Another surgery! I keep going and take it day by day. People keep telling me how strong I am and they dont know if they could do it. I just tell them that if they had to, they would. It the typical fight or flight. Deal with it and move on or curl up in a corner and live the rest of your life in a nursing home which isnt an option for me. I'm not knocking those in a nursing home b/c I realize there is no choice for some but I was lucky in finding a way to do it on my own so I did and will fight to keep my independence. Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, April 12, 2008 4:20:12 PM Subject: [QUAD-L] 20th anniversary Last year I wanted to write a blog about my 12th anniversary, but I didn't feel that inspired at that time. Now I'm trying to write one about my 13th, even though I am about a week and a half late. It seems that I copied a message from someone on this list to give me inspiration for this year's blog. I found it to be one of the best entries I had read regarding quad milestones and I am seriously considering using it as a format for my blog. I, however, would like to find out who it is, because for some reason I didn't copy down the name. The anniversary date of the person's accident was April 1, 1988. Is that person still on the list or does anyone have
RE: [QUAD-L] FW: [SPAM] Fw: Robin Williams
This is a hoax, Robin Williams never said this. In this first place, he could think of funnier lines than that, but 99% of anything that is forwarded in e-mails is not true. Subject: FW: Robin Williams I love it!!! Never knew Robin W felt this way When can we implement it??? image001.jpg
[QUAD-L] hospitalization insurance
I dont have enough money to pay for the insurance. I am barely making it as it is. - Original Message From: Merrill Burghardt [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Sunday, April 13, 2008 10:31:37 PM Subject: RE: [QUAD-L] 20th anniversary You need hospitalization insurance to in the least make days pays as you add up your cash. I’ve found Physician’s Mutual best for many reasons. If you know you will be using it annually these policies are well worth the effort. Merrill From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Sunday, April 13, 2008 6:32 PM To: Quadius; quad-list@eskimo.com Subject: Re: [QUAD-L] 20th anniversary I totally agree with the post. I'm coming up on my 7th memorial weekend. It seems almost every spring it has been something with me. I had bladder surgery that didnt work, pressure sore surgery twice on the same one and both in the spring, last year infection in my spinal column which required major amounts of rods and this spring a screw has broken through the vertebrae and is rubbing the one above it. Another surgery! I keep going and take it day by day. People keep telling me how strong I am and they dont know if they could do it. I just tell them that if they had to, they would. It the typical fight or flight. Deal with it and move on or curl up in a corner and live the rest of your life in a nursing home which isnt an option for me. I'm not knocking those in a nursing home b/c I realize there is no choice for some but I was lucky in finding a way to do it on my own so I did and will fight to keep my independence. Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, April 12, 2008 4:20:12 PM Subject: [QUAD-L] 20th anniversary Last year I wanted to write a blog about my 12th anniversary, but I didn't feel that inspired at that time. Now I'm trying to write one about my 13th, even though I am about a week and a half late. It seems that I copied a message from someone on this list to give me inspiration for this year's blog. I found it to be one of the best entries I had read regarding quad milestones and I am seriously considering using it as a format for my blog. I, however, would like to find out who it is, because for some reason I didn't copy down the name. The anniversary date of the person's accident was April 1, 1988. Is that person still on the list or does anyone have an idea who this might be. Below is a small excerpt of what I copied. Finding things in life I like or dislike, in other words its like being reborn all over again, minus learning to walk. Over these years I have been asked How do you do it? or I'm not sure what I would do if that happened to me. How do I do it? Easy, I live each day as it comes, take what is given to me and accept it for what it is. As to the other question, you either choose to live life to the fullest or wither up, the latter for me is not an option. I also have some pretty cool disabled friends that keep me focused along the way. Thanks, Quadius __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
RE: [QUAD-L] Howdy all
That's some great looking work Stunt, how long have you been taking computer graphics? Are you planning on going back into the movie biz? I hope you do well in the contest and take care. Mark Jackson RollinOn _ From: Tim Thompson [mailto:[EMAIL PROTECTED] Sent: Sunday, April 13, 2008 11:59 AM To: quad-list@eskimo.com Subject: [QUAD-L] Howdy all Well it hasn't been keeping my mouth shut during this election year that's kept me from posting, I've been very busy ;) Computer Graphics Software has really improved and I won Honorable mentions in 2 seperate contests so far in the last year. Don't know if the 1st link will work for others HYPERLINK http://www.dream-lounge.com/dreamlight/club/cpg1414/displayimage.php?album= randomcat=10095pos=-153http://www.dream-lounge.com/dreamlight/club/cpg141 4/displayimage.php?album=randomcat=10095pos=-153 But rest are on my host. HYPERLINK http://www.nw-in.com/tnt/alley_confrontation.jpghttp://www.nw-in.com/tnt/a lley_confrontation.jpg HYPERLINK http://www.nw-in.com/tnt/showdown04.jpghttp://www.nw-in.com/tnt/showdown04 .jpg And some new works: HYPERLINK http://www.nw-in.com/tnt/cyberv-n-bugship.jpghttp://www.nw-in.com/tnt/cybe rv-n-bugship.jpg HYPERLINK http://www.nw-in.com/tnt/shipwreck-C6-01.jpghttp://www.nw-in.com/tnt/shipw reck-C6-01.jpg HYPERLINK http://www.nw-in.com/tnt/tormented-01.jpghttp://www.nw-in.com/tnt/tormente d-01.jpg HYPERLINK http://www.nw-in.com/tnt/did_you_hear_that.jpghttp://www.nw-in.com/tnt/did _you_hear_that.jpg HYPERLINK http://www.nw-in.com/tnt/Quiting-the-day-job.jpghttp://www.nw-in.com/tnt/Q uiting-the-day-job.jpg HYPERLINK http://www.nw-in.com/stuntman/images/Perched%20on%20a%20ledge.jpghttp://ww w.nw-in.com/stuntman/images/Perched%20on%20a%20ledge.jpg HYPERLINK http://www.nw-in.com/stuntman/images/CG-Grim-1.jpghttp://www.nw-in.com/stu ntman/images/CG-Grim-1.jpg HYPERLINK http://www.nw-in.com/stuntman/images/DM%20Time-03.jpghttp://www.nw-in.com/ stuntman/images/DM%20Time-03.jpg HYPERLINK http://www.nw-in.com/stuntman/images/arcDaz5b.jpghttp://www.nw-in.com/stun tman/images/arcDaz5b.jpg HYPERLINK http://www.nw-in.com/stuntman/images/Darkstar-1280x960.jpghttp://www.nw-in .com/stuntman/images/Darkstar-1280x960.jpg Newest stuff (new software) HYPERLINK http://www.nw-in.com/tnt/test-01.jpghttp://www.nw-in.com/tnt/test-01.jpg HYPERLINK http://www.nw-in.com/tnt/test-04.jpghttp://www.nw-in.com/tnt/test-04.jpg And now I'm learning another super pro software, for entering an International contest, for which, just successfuly completing a submission I'll get to keep the non-commercial licensed copy of a $3000 3D modeling/animation software package. A heavy workload for the next 2 months, so see you in June. stunt No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.13/1375 - Release Date: 4/12/2008 11:32 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM
Re: [QUAD-L] PAIN
When using the acronym VA ... I am only familiar with it being Veterans Affairs. If your question is to me... I am a little bit confused. Just confused today anyway. LOL. If you ARE talking to me and asking me if I am using something for circulation, etc. since my DVT ... just a baby aspirin a day. I was on Coumadin for 10 years only because I was afraid to go off of it... because I am immobile, etc.. But that arsenic can build up in your bones and I finally called it quits about three years ago and have been fine with just a baby aspirin a day. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Sun, Apr 13, 2008 at 7:20 PM, Merrill Burghardt [EMAIL PROTECTED] wrote: Tell me about it. Are you using the VA system? Merrill -- *From:* Lori Michaelson [mailto:[EMAIL PROTECTED] *Sent:* Sunday, April 13, 2008 12:38 PM *To:* NICHOLE ROHLING; quad-list@eskimo.com *Subject:* Re: [QUAD-L] PAIN I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by surgeries. I was also very, very, very lucky to have survived it because I was telling doctors (my neurosurgeon and his staff hours away) my symptoms and they were ignoring them even though they were classic symptoms of a DVT! Hitherto ... I was not familiar with clots of any type so I was in the dark. It was the Internet that saved my life essentially. With what I described... they should have wanted to at the very least eliminate the possibility of a clot since I just had two surgeries with that doctor and that is a primary thing to worry about after surgery. But noo... I thought it was probably just swelling and I should wear some of those tight hose. QUACK, QUACK I went around for about a month with my left lower leg very swollen and very hard. I finally read an article on the net (I was very new to the Internet back then and only knew how to look things up) and one doctor in Washington state had an article about spinal cord injuries and folks with MS. A sentence said If one leg is significantly larger than the other... it could indicate a clot. All I knew was that a clot was not good but I had no idea that I had a DVT whereby all I had to do was move a certain way to have it move directly to my lungs to kill me. The very next morning I called my primary care physician and I went to see him. He looked at it and said I don't know... I don't think it could be a clot but I will send you over to the hospital to have an ultrasound done. Needless to say... I never left the hospital because it was a lengthy clot and I was in immediate danger. DOCTORS! QUACK, QUACK! I think I'm on my 95th life because of so many negligent doctors. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING [EMAIL PROTECTED] wrote: YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0 MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE BENEFITS. I'M JUST THANKFUL TO BE ALIVE. NICKI *Quadius [EMAIL PROTECTED]* wrote: Thank goodness you made it through it. They send you home with blood clots? Quadius On 4/12/08, *NICHOLE ROHLING* [EMAIL PROTECTED] wrote: I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN MY RIGHT LUNG. I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM. THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND MY KNEE - NO SWELLING REDNESS OR HEAT. HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE OFF OF THE MAIN CLOT. I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE NICKI __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com -- Lori C4/5 complete quad, 27 years post Tucson, AZ -- Lori C4/5 complete quad, 27 years post Tucson, AZ
Re: [QUAD-L] FW: [SPAM] Fw: Robin Williams
Well, whoever said it... it's all true. Unfortunately so. On Mon, Apr 14, 2008 at 9:58 AM, Greg [EMAIL PROTECTED] wrote: This is a hoax, Robin Williams never said this. In this first place, he could think of funnier lines than that, but 99% of anything that is forwarded in e-mails is not true. *Subject:* FW: Robin Williams I love it!!! Never knew Robin W felt this way When can we implement it??? -- Lori C4/5 complete quad, 27 years post Tucson, AZ image001.jpg
Re: [QUAD-L] Anybody nerve senitive to noises?
Yes, I'm very sensative to sudden loud noises. At times it feels like noise like that hurts right down to my bones. I prefer quite also. Tim http://THEQUADLINK.COM [EMAIL PROTECTED] wrote: Bobbie, I find that I am very sensitive to any type of noise. I tend to like things quiet. Any type of noise is very irritating to me and I also startle easily. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis - It's Tax Time! Get tips, forms and advice on AOL Money Finance.
RE: [QUAD-L] Getting Supra Pubic in 3 weeks
Thanks Merrill for your SP input.
Tim
http://THEQUADLINK.COM
Merrill Burghardt [EMAIL PROTECTED] wrote:
v\:* {behavior:url(#default#VML);} o\:* {behavior:url(#default#VML);}
w\:* {behavior:url(#default#VML);} .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }My SP is 15 years post
injury. The doctors always tried talking me into switching but it was just to
strange to me. Now I am part of the club, Best thing Ive ever done. In the
last two years I might have had three small UIS, where in Texas there would be
three every four months.
I have it changed every six months, clean daily with natural saline solution
then apply small film of triple action antibiotic ointment. SP + H2O=0 UTIs.
When one is suspected I push fluids which generally clears it up. If still
suspected I am successful with UTI Clear and Colloidal Meso Silver for four
days.
Be sure to tape and lock SP secirly to your leg, and leave a small loop
between sight and tape. The lock last for about a week. Do you know how your
urethra is closed to prevent Willy leaking? Some people say just introducing
the SP to the body invites bacteria. I do not know because I am opposite.
Finally, one for the good guy. Feels great to be writing this.
Merrill
-
From: Tim Syfert [mailto:[EMAIL PROTECTED]
Sent: Saturday, April 12, 2008 8:00 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Getting Supra Pubic in 3 weeks
Every once in awhile the top of Willy's head would get a little raw because
of being wrapped up in a Texas cath so much of the time so it will be nice to
'free Willy' and get rid of his sausage costume.
Tim
http://THEQUADLINK.COM
John S. [EMAIL PROTECTED] wrote:
Sorry to loose you from the Texas club, Tim. I hope you do well with
your choice.
john
- Original Message
From: Tim Syfert [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Saturday, April 12, 2008 9:36:38 PM
Subject: [QUAD-L] Getting Supra Pubic in 3 weeks
After 35 years of using external caths, I'll be getting a supra pubic in 3
weeks because my bladder just hasn't been draining well in awhile now. Those of
you with SP's, do you have any advice, tips, input, etc. for this soon to be SP
rookie?
Thanks,
Tim
http://THEQUADLINK.COM
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Re: [QUAD-L] FW: [SPAM] Fw: Robin Williams
uh-hm i'm agreeing w/ Lori herei fwd'd this w/o checkin it, at 1st thought i waswhat, the very liberal robin williams but then read the message remains Eric W Rudd [EMAIL PROTECTED] - Original Message - From: Lori Michaelson To: Greg ; quad-list@eskimo.com Sent: Monday, April 14, 2008 5:14 PM Subject: Re: [QUAD-L] FW: [SPAM] Fw: Robin Williams Well, whoever said it... it's all true. Unfortunately so.
RE: [QUAD-L] PAIN
Your medical care sounds similar as the Veterans Hospital. I am poverty income also which is exactly why having hospitalization insurance is necessary. Do the math! My monthly payment is $46.00 which I am sure you can manage. Once hospitalized it pays out $80.00 a day. Two or three days in will pay the annual premium which puts all other days paid into clear pocket money. How can you afford not to look into insurance if you know you will be hospitalized? Merrill _ From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Monday, April 14, 2008 3:13 PM To: Merrill Burghardt; quad-list@eskimo.com Subject: Re: [QUAD-L] PAIN When using the acronym VA ... I am only familiar with it being Veterans Affairs. If your question is to me... I am a little bit confused. Just confused today anyway. LOL. If you ARE talking to me and asking me if I am using something for circulation, etc. since my DVT ... just a baby aspirin a day. I was on Coumadin for 10 years only because I was afraid to go off of it... because I am immobile, etc.. But that arsenic can build up in your bones and I finally called it quits about three years ago and have been fine with just a baby aspirin a day. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Sun, Apr 13, 2008 at 7:20 PM, Merrill Burghardt [EMAIL PROTECTED] wrote: Tell me about it. Are you using the VA system? Merrill _ From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Sunday, April 13, 2008 12:38 PM To: NICHOLE ROHLING; quad-list@eskimo.com Subject: Re: [QUAD-L] PAIN I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by surgeries. I was also very, very, very lucky to have survived it because I was telling doctors (my neurosurgeon and his staff hours away) my symptoms and they were ignoring them even though they were classic symptoms of a DVT! Hitherto ... I was not familiar with clots of any type so I was in the dark. It was the Internet that saved my life essentially. With what I described... they should have wanted to at the very least eliminate the possibility of a clot since I just had two surgeries with that doctor and that is a primary thing to worry about after surgery. But noo... I thought it was probably just swelling and I should wear some of those tight hose. QUACK, QUACK I went around for about a month with my left lower leg very swollen and very hard. I finally read an article on the net (I was very new to the Internet back then and only knew how to look things up) and one doctor in Washington state had an article about spinal cord injuries and folks with MS. A sentence said If one leg is significantly larger than the other... it could indicate a clot. All I knew was that a clot was not good but I had no idea that I had a DVT whereby all I had to do was move a certain way to have it move directly to my lungs to kill me. The very next morning I called my primary care physician and I went to see him. He looked at it and said I don't know... I don't think it could be a clot but I will send you over to the hospital to have an ultrasound done. Needless to say... I never left the hospital because it was a lengthy clot and I was in immediate danger. DOCTORS! QUACK, QUACK! I think I'm on my 95th life because of so many negligent doctors. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING [EMAIL PROTECTED] wrote: YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0 MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE BENEFITS. I'M JUST THANKFUL TO BE ALIVE. NICKI Quadius [EMAIL PROTECTED] wrote: Thank goodness you made it through it. They send you home with blood clots? Quadius On 4/12/08, NICHOLE ROHLING [EMAIL PROTECTED] wrote: I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN MY RIGHT LUNG. I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM. THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY RIGHT LUNG AND A FEW IN MY LEFT. I WAS ADMITTED TO THE HOSPITAL AND MY DR HAD ULTRASOUND DONE ON MY LEGS AND SURE ENOUGH I HAD A CLOT IN MY LFT LEFT BEHIND MY KNEE - NO SWELLING REDNESS OR HEAT. HE SAID THE SMALL CLOTS IN MY LUNGS WERE MOST LIKELY FLOATERS WHICH BROKE OFF OF THE MAIN CLOT. I JUST GOT HOME AND AM FEELING REAL LUCKY TO BE ALIVE NICKI __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com http://mail.yahoo.com/ __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com http://mail.yahoo.com/ -- Lori C4/5 complete quad, 27 years post Tucson, AZ --
Re: [QUAD-L] shift happens - Now in the Future
H... About this: There is no reason to use corn to make ethanol unless you intend to drink it. Faster growing starch producing plants could be used to make more ethanol faster. -- AND -- The government does not consider studies of marijuana as valid unless it was grown for the purpose of making rope. What if it was grown to produce ethanol? After all, it grows like a weed! --Tod Tryin to be forward thinking John S. [EMAIL PROTECTED] wrote: Heres are some horrible little facts that have been widely ignored. 1.3 billion people have no access to drinkable water. By 2040 half the worlds population will not have safe water to drink. If America continues to buy up world corn surpluses to make fuel worldwide famine will increase by 200 percent in 10 years. Food riots have already happened in 8 third world nations that depend on cornbread for daily calorie needs. There is no reason to use corn to make ethanol unless you intend to drink it. Faster growing starch producing plants could be used to make more ethanol in less time without endangering world food reserves. The use of such plants is illegal. Medicare pays for viagra but not birth control pills or condoms. The government does not consider studies of marijuana as valid unless it was grown for the purpose of making rope. Pigs raised for medical harvesting of heart valves and thyroid glands are destroyed as medical waste. Finally, it is against the law to lie to anyone on the phone claiming to be a federal investigator. (Ask Martha Stewart.) In Kansas a law reads: “When trains meet at a crossing, both shall come to a full stop and neither shall proceed until the other has gone.” In Cleveland, Ohio you need a hunting permit to trap or kill mice. I personally blame it all on a lack of asylums. john - Original Message From: Tod E. Santee [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, April 12, 2008 11:29:22 PM Subject: Re: [QUAD-L] shift happens - Now in the Future Yep... technology is an incredible, useful, and evolving tool with a path that's had to predict. Not long ago, nobody would have thought Ray Kurzweil could teleport himself from his office (in MA, I believe) to a stage in Tucson to give a lecture and answer questions while looking at you face-to-face! But he did it. Kurzweil is an amazing futurist focusing on technology that seems straight out of sci-fi. Check his site at www.kurzweilai.net ... could blow your mind! --Tod
Re: [QUAD-L] PAIN
If you are on a waiver program in the state of Ohio and you have one of those
long term care insurance policies all the money it pays you must be paid to
them until you pay them back for all they have paid. You will loose your waiver
standing and be forced to reapply. At present there is a 28 month waiting
period.
You can't have life insurance and qualify for waiver.
i can see getting around it by letting a trusted family member purchase
insurance on you.
good luck in whatever you decide,
john
- Original Message
From: Merrill Burghardt [EMAIL PROTECTED]
To: Lori Michaelson [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Sent: Monday, April 14, 2008 6:45:55 PM
Subject: RE: [QUAD-L] PAIN
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Your medical care sounds similar as the
Veterans
Hospital . I am poverty income also
which is exactly why having hospitalization insurance is necessary. Do
the math! My monthly payment is $46.00 which I am sure you can
manage. Once hospitalized it pays out $80.00 a day. Two or three
days in will pay the annual premium which puts all other days paid into clear
pocket money. How can you afford not to look into insurance if you know you
will be hospitalized?
Merrill
From: LoriMichaelson [mailto:[EMAIL PROTECTED]
Sent: Monday, April 14, 2008 3:13PM
To: Merrill Burghardt;quad-list@eskimo.com
Subject: Re: [QUAD-L] PAIN
When using the acronym VA ... I am only familiar with
it being Veterans Affairs. If your question is to me... I am a little bit
confused. Just confused today anyway. LOL.
If you ARE talking to me and asking me if I am using
something for circulation, etc. since my DVT ... just a baby aspirin a
day. I was on Coumadin for 10 years only because I was afraid to go off
of it... because I am immobile, etc.. But that arsenic can build up
in your bones and I finally called it quits about three years ago and have been
fine with just a baby aspirin a day.
Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson , AZ
On Sun, Apr 13, 2008 at 7:20 PM, Merrill Burghardt[EMAIL PROTECTED] wrote:
Tell me about it.
Are you using the VA system?
Merrill
From: LoriMichaelson [mailto:[EMAIL PROTECTED]
Sent: Sunday, April 13, 2008 12:38PM
To: NICHOLE ROHLING; quad-list@eskimo.com
Subject: Re: [QUAD-L] PAIN
I had a DVT (deep vein clot/thrombosis) in 1995 that
was encouraged by surgeries. I was also very, very, very lucky to have
survived it because I was telling doctors (my neurosurgeon and his staff hours
away) my symptoms and they were ignoring them even though they were classic
symptoms of a DVT! Hitherto ... I was not familiar with clots of any type
so I was in the dark. It was the Internet that saved my life essentially.
With what I described... they should have wanted to at
the very least eliminate the possibility of a clot since I just had two
surgeries with that doctor and that is a primary thing to worry about after
surgery. But noo... I thought it was probably just swelling and I
should wear some of those tight hose. QUACK, QUACK
I went around for about a month with my left lower leg
very swollen and very hard. I finally read an article on the net (I was
very new to the Internet back then and only knew how to look things up) and one
doctor in Washington
state had an article about spinal cord injuries and folks with MS. A
sentence said If one leg is significantly larger than the other... it
could indicate a clot. All I knew was that a clot was
not good but I had no idea that I had a DVT whereby all I had to do was move a
certain way to have it move directly to my lungs to kill me.
The very next morning
I called my primary care physician and I went to see him. He looked at it
and said I don't know... I don't think it could be a clot but I will send
you over to the hospital to have an ultrasound done. Needless to
say... I never left the hospital because it was a lengthy clot and I was in
immediate danger.
DOCTORS! QUACK, QUACK!
I think I'm on my 95th life because of so many
negligent doctors.
Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ
On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING [EMAIL PROTECTED]wrote:
YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON
COUMADIN (?) TO THIN MY BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0
MR DR
Re: [QUAD-L] PAIN
I have received all of my care at the VA here in Tampa and while I did have a similar incident (Lori's DVT problem) I received unbelievable care. Don't get me wrong, when I first went to the VA in 95, it was not nearly as good as it is now. Sure, there are still problems, but I think there are problems in every hospital. As for hospital insurance through physicians mutual, I only pay around $230 a year which equates to less than $20 a month. It pays me $75 a day if I become hospitalized. I have had the insurance since 1996 though, so it might cost more now. I haven't checked in a while. On 4/14/08, Merrill Burghardt [EMAIL PROTECTED] wrote: Your medical care sounds similar as the Veterans Hospital. I am poverty income also which is exactly why having hospitalization insurance is necessary. Do the math! My monthly payment is $46.00 which I am sure you can manage. Once hospitalized it pays out $80.00 a day. Two or three days in will pay the annual premium which puts all other days paid into clear pocket money. How can you afford not to look into insurance if you know you will be hospitalized? Merrill -- *From:* Lori Michaelson [mailto:[EMAIL PROTECTED] *Sent:* Monday, April 14, 2008 3:13 PM *To:* Merrill Burghardt; quad-list@eskimo.com *Subject:* Re: [QUAD-L] PAIN When using the acronym VA ... I am only familiar with it being Veterans Affairs. If your question is to me... I am a little bit confused. Just confused today anyway. LOL. If you ARE talking to me and asking me if I am using something for circulation, etc. since my DVT ... just a baby aspirin a day. I was on Coumadin for 10 years only because I was afraid to go off of it... because I am immobile, etc.. But that arsenic can build up in your bones and I finally called it quits about three years ago and have been fine with just a baby aspirin a day. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Sun, Apr 13, 2008 at 7:20 PM, Merrill Burghardt [EMAIL PROTECTED] wrote: Tell me about it. Are you using the VA system? Merrill -- *From:* Lori Michaelson [mailto:[EMAIL PROTECTED] *Sent:* Sunday, April 13, 2008 12:38 PM *To:* NICHOLE ROHLING; quad-list@eskimo.com *Subject:* Re: [QUAD-L] PAIN I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by surgeries. I was also very, very, very lucky to have survived it because I was telling doctors (my neurosurgeon and his staff hours away) my symptoms and they were ignoring them even though they were classic symptoms of a DVT! Hitherto ... I was not familiar with clots of any type so I was in the dark. It was the Internet that saved my life essentially. With what I described... they should have wanted to at the very least eliminate the possibility of a clot since I just had two surgeries with that doctor and that is a primary thing to worry about after surgery. But noo... I thought it was probably just swelling and I should wear some of those tight hose. QUACK, QUACK I went around for about a month with my left lower leg very swollen and very hard. I finally read an article on the net (I was very new to the Internet back then and only knew how to look things up) and one doctor in Washington state had an article about spinal cord injuries and folks with MS. A sentence said If one leg is significantly larger than the other... it could indicate a clot. All I knew was that a clot was not good but I had no idea that I had a DVT whereby all I had to do was move a certain way to have it move directly to my lungs to kill me. The very next morning I called my primary care physician and I went to see him. He looked at it and said I don't know... I don't think it could be a clot but I will send you over to the hospital to have an ultrasound done. Needless to say... I never left the hospital because it was a lengthy clot and I was in immediate danger. DOCTORS! QUACK, QUACK! I think I'm on my 95th life because of so many negligent doctors. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING [EMAIL PROTECTED] wrote: YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0 MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE BENEFITS. I'M JUST THANKFUL TO BE ALIVE. NICKI *Quadius [EMAIL PROTECTED]* wrote: Thank goodness you made it through it. They send you home with blood clots? Quadius On 4/12/08, *NICHOLE ROHLING* [EMAIL PROTECTED] wrote: I HAVEN'T READ ALL THE RESPONSES BUT IT WAS I HAD A DR AISEVERAL BLOOD CLOTS IN MY RIGHT LUNG. I HAD DR APPT TUES AT 1PM BUT CALLED THE AMBULANCE AT 5AM. THE ER DOC IMMEDIATELY ORDERED A CAT SCAN WHICH SHOWED SEVERAL CLOTS IN MY RIGHT LUNG AND
Re: [QUAD-L] PAIN (DVT)
I had a DVT in 98 and had a similar situation, but albeit not nearly as bad as yours. I was bedbound for about when one day my left leg began to swell above the knee and felt warm to the touch. I called in and talked to my nurse practitioner, who then told me it was nothing serious and to simply keep it elevated income and the next day. I was clueless as to the symptoms of deep vein thrombosis at the time. Thank goodness my roommate was a resident doctor at a local hospital. Around midnight when he arrived at my house we questioned him and he let me know in no uncertain terms that I needed to get into the hospital ASAP. Right now I'm taking an adult aspirin 81 mg every other day. Quadius On 4/13/08, Lori Michaelson [EMAIL PROTECTED] wrote: I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by surgeries. I was also very, very, very lucky to have survived it because I was telling doctors (my neurosurgeon and his staff hours away) my symptoms and they were ignoring them even though they were classic symptoms of a DVT! Hitherto ... I was not familiar with clots of any type so I was in the dark. It was the Internet that saved my life essentially. With what I described... they should have wanted to at the very least eliminate the possibility of a clot since I just had two surgeries with that doctor and that is a primary thing to worry about after surgery. But noo... I thought it was probably just swelling and I should wear some of those tight hose. QUACK, QUACK
