RE: [QUAD-L] Semi-Colons
I think by now we have all seen your sales promotions. I am only speaking for myself, but I would like a permanent break from your sale pitch. Cullen C3--- On Sun, 5/18/08, Roy Abell [EMAIL PROTECTED] wrote:From: Roy Abell [EMAIL PROTECTED]Subject: RE: [QUAD-L] Semi-ColonsTo: "'William Willis'" [EMAIL PROTECTED], quad-list@eskimo.comReceived: Sunday, May 18, 2008, 5:10 PM The answer to our medical condition is... Neurogenic Bowel. This is where the bowel is permanently disabled from some form of nerve damage. If you go to http://www.mybowel.com you will see the world’s first bowel prosthetic device for Neurogenic Bowel. Yes, I am advertising and at the same time offering everyone a 50% discount on the next 12 units. To reserve one call Jimi Avery 877-482-6043 and you must use a credit card on the purchase and file your own reimbursement paperwork with your doctor’s help. Roy Abell, Inventor, Quadriplegic From: William Willis [mailto:[EMAIL PROTECTED] Sent: Saturday, May 10, 2008 9:16 AM To: quad-list@eskimo.com Subject: FW: [QUAD-L] Semi-Colons A colon introduces a list, and Lord knows we all have a list of ailments.:) From: [EMAIL PROTECTED] Date: Sat, 10 May 2008 00:09:42 -0400 To: QUAD-LIST@eskimo.com; [EMAIL PROTECTED] Subject: [QUAD-L] Semi-Colons Amen Tod I've heard of a semi-colon and Temporary Abled Colon (tac). In today's ever changing society, I've heard of the Under Active Colon (uac) and the Hyper-Active Colon (hac). I once knew of a person with a Fiesty Colon (fc) and a Stingy Colon (sc). There has to be a physically challenged colon (pcc) althought I've yet to meet the perfect permanently disabled colon (ppdc) Did we miss any? Best Wishes W In a message dated 5/9/2008 7:31:02 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Roy... What? ...a permanently disabled colon. How "insensitive." I prefer a "differently Abled" colon. It just takes a little more to, uh, you know -- work things out. LOL! Ok -- my bad! Best to All, Tod [EMAIL PROTECTED] writes: Yes, I own the company and I am also a quadriplegic and I want to help everyone that has neurogenic bowel problems. For those of you that don’t know a prosthetic medical device is a medical device that replaces the function of a permanently dysfunctional internal organ, i.e. dialysis for the kidneys and our product for neurogenic bowel ...a permanently disabled colon.. Roy Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. With Windows Live for mobile, your contacts travel with you. Connect on the go. I am using the free version of SPAMfighter for private users. It has removed 1961 spam emails to date. Paying users do not have this message in their emails. Try SPAMfighter for free now! Looking for the perfect gift? Give the gift of Flickr!
Re: FW: [QUAD-L] neurontin
Merrill, Yes, it is the same procedure with the Baclofen pump. It is refilled once every six months, and adjusted as needed. But of course it's filled with Baclofen instead of morphine. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
RE: Fw: [QUAD-L] Pain
I found a solution to this problem. I use a much larger bed bag with an additional strap over my knee. It works great. Roy Abell From: andrea murray [mailto:[EMAIL PROTECTED] Sent: Tuesday, May 20, 2008 12:09 PM To: Quadius Cc: quad-list@eskimo.com Subject: Re: Fw: [QUAD-L] Pain I do not have a problem drinking but, I don't have anyone to empty my cath bag. I'm afraid to drink because my cath bag will fell up before someone comes in the evening. Wheelchair Warrior --- On Mon, 5/19/08, Quadius [EMAIL PROTECTED] wrote: From: Quadius [EMAIL PROTECTED] Subject: Re: Fw: [QUAD-L] Pain To: [EMAIL PROTECTED] Cc: quad-list@eskimo.com Date: Monday, May 19, 2008, 8:54 PM Do you have a problem drinking or is it getting your urine emptied? On 5/18/08, andrea murray [EMAIL PROTECTED] wrote: I have a big problem!! For some Godly thing my in home care won't give me a noon visit. So I go all day with one 20 ouncz glass of water. So my bladder does not get a good cleaning out. What can I do? Wheelchair Warrior --- On Sun, 5/18/08, Merrill [EMAIL PROTECTED] wrote: From: Merrill [EMAIL PROTECTED] Subject: [QUAD-L] Pain To: quad-list@eskimo.com Date: Sunday, May 18, 2008, 2:36 PM I've recently had a revelation Re: PAIN. The cleaner my bladder, the less systemic pain. Not an advertisement but daily UTI Clear with plenty of water has huge benefits to me. Granted the bladder always has some bacteria. Merrill C 5, 18 Years
Re: Fw: [QUAD-L] Pain
I do not have a problem drinking but, I don't have anyone to empty my cath bag. I'm afraid to drink because my cath bag will fell up before someone comes in the evening. Wheelchair Warrior--- On Mon, 5/19/08, Quadius [EMAIL PROTECTED] wrote: From: Quadius [EMAIL PROTECTED]Subject: Re: Fw: [QUAD-L] PainTo: [EMAIL PROTECTED]Cc: quad-list@eskimo.comDate: Monday, May 19, 2008, 8:54 PM Do you have a problem drinking or is it getting your urine emptied? On 5/18/08, andrea murray [EMAIL PROTECTED] wrote: I have a big problem!! For some Godly thing my in home care won't give me a noon visit. So I go all day with one 20 ouncz glass of water. So my bladder does not get a good cleaning out. What can I do? Wheelchair Warrior--- On Sun, 5/18/08, Merrill [EMAIL PROTECTED] wrote: From: Merrill [EMAIL PROTECTED]Subject: [QUAD-L] PainTo: quad-list@eskimo.comDate: Sunday, May 18, 2008, 2:36 PM I've recently had a revelation Re: PAIN. The cleaner my bladder, the less systemic pain. Not an advertisement but daily UTI Clear with plenty of water has huge benefits to me. Granted the bladder always has some bacteria. Merrill C 5, 18 Years
Re: [QUAD-L] Re: too tough for meds
Hi Alan... What you describe as symptoms makes me curious about a few things... they sound eerily familiar! So, if you don't mind: 1) What diagnosis for the pain, weakness, etc, did the ER give you? 2) How did you become a C-5 Q? (i.e. broken neck or some other physical trauma? Or disease/genetic abnormality? Something else?) 3) And lastly, was there surgery to address the C-5 vertebral or spinal cord area? If so, what did they do? I'm a C5-6 from a broken neck and had a C-4/5/6 fusion with 13 weeks wearing a halo while the bone healed. About 10-12 years after my accident I started getting pains like you described and similar weakness. After a few MRIs and being referred to one of the best neurologists/neurosurgeons in the state, we started talking to a doc at Craig in (near) Denver. Just from the symptoms he was 95% sure he knew the problem. We sent the MRI films and he confirmed it... a tethered cord. After the initial trauma as the cord was healing it attached to the dura (the tough sheath surrounding the cord and brain and holding the cerebral spinal fluid). Because the cord was attached, each time I moved certain directions it pulled and/or stretched the cord causing a syrinx (a separation of the cord fibers with a pocket of fluid inside). The other docs saw the syrinx but not the cause of it. A doc I saw in Phoenix did a couple lower spine procedures to fix the pain issues from syrinxs in non-paralyzed individuals but no cervical ones, none for function and strength and no quads/paras. At the time (mid-90s) only 2 docs in the US had the experience needed... Dr. Scott Falci at Craig in Denver and Dr. Barth Green at the Miami Project in Fla. I had a very good neurosurgeon at home that pressed my insurance company (hard!!) to approve getting it done in Denver -- they paid for all but my flight. So I flew to Denver and the doc did surgery called duraplasty to untether the cord allowing it to move like it should and added a bit more tissue to the dura that increased the space between the cord and the surrounding sheath. At the time they used what they described as freezed-dried bovine peritineum -- the tough tissue that surrounds the heart, lung, etc. in the chest/abdominal cavity. (bovine = from cows) Immediate relief from the time I woke up!! I hope some of that is helpful and/or hopeful. Best regards, -- Tod [EMAIL PROTECTED] wrote: Back in January, I had to go to the ER, because I was developing numbness, weakness, and losing ability to move my arms (I'm C-5 complete.) I was on a six sleepless night stretch. I've been under a lot of stress - my mom has health problems, and the only future I see for me is a nursing home for a few decades. Anyway, at the ER, they gave my 2 mg Dilaudid and 1 mg. Ativan IV. I immediately felt my head get heavy, and my eyes falllng shut. I fell asleep for an hour and a half. When I woke up, some of my newer and newly more intense pain sensations (worse scraping off of skin, increased throbbing, extra intense tingling, etc.) had been reduced a bit, the first time any med had caused relief of any kind, and the relief lasted a few days. So, my doc arranged for me to get the meds IV at home every few days. For some reason, the meds at home do not work like they did in the ER, and we don't know why. Started with the same dose as the ER. No heavy head, no heavy eyes after the shot, no relief like the ER shots. We've upped the dosages slowly (today, 4 mg. Dilaudid, 3 mg. Ativan - might as well have injected sugar water), but still haven't even gotten the same brain and eye effects, let alone the relief. We were hoping higher doses would reduce some of the other sensations (bones through skin, ripping skin and muscles with movement, to name two), but we can't even get what we got at 2 mg. and 1 mg. Any ideas what the problem could be? Unless the pharmacy sent saline instead of dilaudid, or mislabeled the vials (2 ml./mg. instead of 2 mg./ml, which is what the label says), what could be going on? Doctor and pharmacists say I couldn't develop tolerance taking the meds every third day (sometimes longer in between), but they're stumped as to why I have no effect from the shots. All input appreciated. Alan -- --- Posted by alanh77[at]comcast.net using MR/2 ICE Newsreader #564 Proudly using eComstation 1.2R (OEM OS/2) BBS - The Nerve Center Telnet FidoNet 261/1000 tncbbs.no-ip.com ---
[QUAD-L] drainage bag
I too use a night time drainage bag during the day. I hang it on the side of my chair. The tube is looped down my pants leg and then up to the side of my chair where my bag is hooked. The tube is visible but I prefer it that way so I can see if it is flowing properly. I could give a shit if people see it. After all these years, I'm tired of pretending. Dan At 12:28 PM 5/20/2008 -0400, Roy Abell said something that elicited my response: I found a solution to this problem. I use a much larger bed bag with an additional strap over my knee. It works great. Roy Abell From: andrea murray [mailto:[EMAIL PROTECTED] Sent: Tuesday, May 20, 2008 12:09 PM To: Quadius Cc: quad-list@eskimo.com Subject: Re: Fw: [QUAD-L] Pain I do not have a problem drinking but, I don't have anyone to empty my cath bag. I'm afraid to drink because my cath bag will fell up before someone comes in the evening. Wheelchair Warrior --- On Mon, 5/19/08, Quadius [EMAIL PROTECTED] wrote: From: Quadius [EMAIL PROTECTED] Subject: Re: Fw: [QUAD-L] Pain To: [EMAIL PROTECTED] Cc: quad-list@eskimo.com Date: Monday, May 19, 2008, 8:54 PM Do you have a problem drinking or is it getting your urine emptied? On 5/18/08, andrea murray mailto:[EMAIL PROTECTED][EMAIL PROTECTED] wrote: I have a big problem!! For some Godly thing my in home care won't give me a noon visit. So I go all day with one 20 ouncz glass of water. So my bladder does not get a good cleaning out. What can I do? Wheelchair Warrior --- On Sun, 5/18/08, Merrill mailto:[EMAIL PROTECTED][EMAIL PROTECTED] wrote: From: Merrill mailto:[EMAIL PROTECTED][EMAIL PROTECTED] Subject: [QUAD-L] Pain To: mailto:quad-list@eskimo.comquad-list@eskimo.com Date: Sunday, May 18, 2008, 2:36 PM I've recently had a revelation Re: PAIN. The cleaner my bladder, the less systemic pain. Not an advertisement but daily UTI Clear with plenty of water has huge benefits to me. Granted the bladder always has some bacteria. Merrill C 5, 18 Years
Re: Fw: [QUAD-L] Pain
If I dont go anywhere, I wear my overnight bag all day. I just feed it through my clothes so it comes out at the bottom and hook it to the handle on my wheelchair cushion. Stacy - Original Message From: andrea murray [EMAIL PROTECTED] To: Quadius [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Tuesday, May 20, 2008 12:09:25 PM Subject: Re: Fw: [QUAD-L] Pain I do not have a problem drinking but, I don't have anyone to empty my cath bag. I'm afraid to drink because my cath bag will fell up before someone comes in the evening. Wheelchair Warrior --- On Mon, 5/19/08, Quadius [EMAIL PROTECTED] wrote: From: Quadius [EMAIL PROTECTED] Subject: Re: Fw: [QUAD-L] Pain To: [EMAIL PROTECTED] Cc: quad-list@eskimo.com Date: Monday, May 19, 2008, 8:54 PM Do you have a problem drinking or is it getting your urine emptied? On 5/18/08, andrea murray [EMAIL PROTECTED] wrote: I have a big problem!! For some Godly thing my in home care won't give me a noon visit. So I go all day with one 20 ouncz glass of water. So my bladder does not get a good cleaning out. What can I do? Wheelchair Warrior --- On Sun, 5/18/08, Merrill [EMAIL PROTECTED] wrote: From: Merrill [EMAIL PROTECTED] Subject: [QUAD-L] Pain To: quad-list@eskimo.com Date: Sunday, May 18, 2008, 2:36 PM I've recently had a revelation Re: PAIN. The cleaner my bladder, the less systemic pain. Not an advertisement but daily UTI Clear with plenty of water has huge benefits to me. Granted the bladder always has some bacteria. Merrill C 5, 18 Years
Re: FW: [QUAD-L] neurontin
Like Corie Jones ... I have tried everything but the pump without relief. And I have decided that I am not going to let another doctor messed around with my spinal cord anymore since the current pain than I have is probably directly related from the shunt surgery I had in 1995. I ended up having three surgeries that summer. The pain did not start until two years after the surgery but it is difficult to explain why that is the culprit. Like Stacy ... keeping busy and/or sleeping are the only two things that help my pain. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Mon, May 19, 2008 at 11:49 AM, Stacy Harim [EMAIL PROTECTED] wrote: I am in serious pain now from my back. I don't know if you know but I had 3 spinal surgeries last summer b/c i got osteomyelitis in my spinal column. A screw has popped through a vertebrea and has rubbed the one above it to a point that part of that bone is gone as well. I am getting another surgery to get more rods but I have to wait for the doctor to view the ct scan that i sent to set up the surgery. Anyhow I am in extreme pain that medicine is not helping. I personally manage pain pretty well by keeping myself busy. It's hard to fight through but I also have to live. I have a hard time meditating as well because of so many personal problems so I understand that is why I just keep myself busy to keep my mind off of it. Stacy - Original Message From: KK [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 2:39:32 PM Subject: Re: FW: [QUAD-L] neurontin Stacy, don't you have to be in control of the pain before it starts getting bad? I have so much noise going on in my head, it has never been quiet enough to meditate. Constant ocean roar in both ears. -- Lori C4/5 complete quad, 27 years post Tucson, AZ
Re: Fw: [QUAD-L] Pain
I have ALWAYS had a big drink jug full of water set on a table I roll under with the straw bent right at mouth level. Right now I am using a 64 ounce drink jug but I have smaller ones and bigger ones. 64 ounces is a great deal (or amount) of water and it lasts me all day. At one time I thought that no one could drink too much water without any problems. I was wrong. One year when I was having some blood tests done... my sodium level was down showing that I was washing out too many of the electrolytes in my body. My doctor just suggested that I cut down a little bit on my water intake. I was flushing out too many electrolytes that one's body needs. If someone has problems with electrolyte balance... that can be big-time trouble. Lori Michaelson Age - 43 C4/5 complete quad, 28 years post Tucson, AZ On Sun, May 18, 2008 at 3:08 PM, andrea murray [EMAIL PROTECTED] wrote: I have a big problem!! For some Godly thing my in home care won't give me a noon visit. So I go all day with one 20 ouncz glass of water. So my bladder does not get a good cleaning out. What can I do? Wheelchair Warrior --- On *Sun, 5/18/08, Merrill [EMAIL PROTECTED]* wrote: From: Merrill [EMAIL PROTECTED] Subject: [QUAD-L] Pain To: quad-list@eskimo.com Date: Sunday, May 18, 2008, 2:36 PM I've recently had a revelation Re: PAIN. The cleaner my bladder, the less systemic pain. Not an advertisement but daily UTI Clear with plenty of water has huge benefits to me. Granted the bladder always has some bacteria. Merrill C 5, 18 Years -- Lori C4/5 complete quad, 27 years post Tucson, AZ
[QUAD-L] Intrathecal pump
The next time I speak to my Pain Dr, plan to ask about PRIALT (somebody here recently mentioned it). Before I do; wondering if someone here can tell me, does the medication from an Intrathecal pump have to be injected above the injury site? c5, incomplete
