[QUAD-L] FACEBOOK FRIENDS
To the very many of you who became a friend to my Facebook account--I just deactivated it because I do not have time in my life right now to even access the computer regularly let alone there. Hopefully, when I get back into the swing of things I will create another account and look forward to it! Just wanted to let you know! Lori Michaelson Age - 44 C4/5 complete quad, 29 years post Tucson, AZ
Re: [QUAD-L] People
I try to never get snappy with anyone that handles my food. I find most restaurants to be very accommodating. One place has several tables they can raise for people with tall chairs. The guy even shut the blower off in our section when he saw I was sweating. This is becoming more common. My niece calls it annoying dysreflexia. She has never seen it get bad. My body seems to save the really bad episodes getting back in bed or late at night all alone. Has anyone here got a drug that stops this from happening without leaving you trashed? I have pain related AD 99% of the time. The longer im in my chair, the worse this is getting. This use to occur only once a month or few weeks. So far the only treatment I find least debilitating is POT. I use to eat it but my source dried up. Thats right, I had an ex gf that worked for Keebler. I bet you all have a mental picture of me and an elf. She made cookies that should be illegal even if they didn't have pot in them. I guess this is a chronic form of AD. It is getting very difficult to predict or react to without overdosing on something. I'd love to hear what others do when an episode starts. I know you can't all be running to the ER everytime this begins. The very worst part is the anxiety and the inability to THINK straight. I know sweating is just preliminary and mostly an annoyance but I'm hoping something has come up seeing as some of the guys have kids and ,,,hair. I use to keep up with all the latest but since being on Med/Med it seems like medicine has stood still. BW, john PS yes I have checked bowel and bladder. It is from pain, but the possible sources range widely and why would it only hurt enough to cause profuse sweating 3 to 5 days a week? From: dav...@aol.com dav...@aol.com To: quad-list@eskimo.com Sent: Monday, June 22, 2009 6:28:36 PM Subject: Re: [QUAD-L] People Be careful how you come across the first time you meet strangers. We all make snap judgements within seconds of meeting someone new. I snapped at a new waitress once who turned out being about the best waitress I've ever met, because I felt she was ignoring me. I started the fight !!! I'm more careful now. AZDAVE Young people talk of the future because they have no past, while old people talk of the past because they have no future. Dave Patty's Grandkids In a message dated 6/22/2009 2:16:10 P.M. US Mountain Standard Time, r.pra...@sbcglobal.net writes: I guess every one can think of good people that were helpful and bad people that snubbed them. In life though I find that you can hope for the best but you better prepare for the worst. Just like a door lock, they arent on there for the good people, lol. ron c7 An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!
Re: [QUAD-L] Questions
When I need medical question(s) answered, I go to the experts - and that would be the Quad List. You guys are awesome. As you might remember, I have a Supra Pubic cath and use a hospital bed. Like the idiot that I am, I would lay the night time drainage bag at my feet. And here's the stupid part. I have contracture's so I sleep with two pillows under my knees and the foot of the bed cranked all the way up. Talk about trying to pee uphill! So after reading all your great advice, I now hang the bag on the side of the bed even with my Supra Pubic. The excess tubing is coiled and pinned next to my hip. I place a plastic bin on the floor under the bag. What a difference! I sleep much better and I don't wake up every morning with a bulging bladder. I know, I know, I'm an idiot. But with all the urologists I've seen you'd think one of them would tell the newbe about such things - at least hand out a pamphlet or something. Thanks again. Dan At 05:19 AM 6/9/2009, daa...@aol.com said: My aide lays mine on the floor as it would not drain hanging on the end of the bed. That seems to be the best for me. I really like the idea, laying it in a basin to prevent problems of leaking if someone forgot to not latch it securely. I sleep in a old-fashioned waterbed, which prevents any pressure and I find comfortable. Dana
Re: [QUAD-L] Questions
I've found most 'normal' medical people are pretty clueless as to how to handle quads. My very good friend is a retired ER RN nurse and she helped push me down a rounded curb in my manual chair by pushing on by backside with her knee when the footrests got stuck on the street. I love her dearly but I don't let her get behind me anymore.We had a heated chat about the movie of Hillary Swank getting quadized from a boxing accident and then euthenized as a solution to her predicament. I brought her to tears as she thought it was an understandable ending and I didn't. I softened after I actually saw the movie. I was partly getting back at her for the knee in the back push she gave me. AZDAVE Young people talk of the future because they have no past, while old people talk of the past because they have no future. _Dave Patty's Grandkids_ (http://ocgrands.com/) In a message dated 6/23/2009 2:27:22 P.M. US Mountain Standard Time, d...@unh.edu writes: When I need medical question(s) answered, I go to the experts - and that would be the Quad List. You guys are awesome. As you might remember, I have a Supra Pubic cath and use a hospital bed. Like the idiot that I am, I would lay the night time drainage bag at my feet. And here's the stupid part. I have contracture's so I sleep with two pillows under my knees and the foot of the bed cranked all the way up. Talk about trying to pee uphill! So after reading all your great advice, I now hang the bag on the side of the bed even with my Supra Pubic. The excess tubing is coiled and pinned next to my hip. I place a plastic bin on the floor under the bag. What a difference! I sleep much better and I don't wake up every morning with a bulging bladder. I know, I know, I'm an idiot. But with all the urologists I've seen you'd think one of them would tell the newbe about such things - at least hand out a pamphlet or something. Thanks again. Dan At 05:19 AM 6/9/2009, daa...@aol.com said: My aide lays mine on the floor as it would not drain hanging on the end of the bed. That seems to be the best for me. I really like the idea, laying it in a basin to prevent problems of leaking if someone forgot to not latch it securely. I sleep in a old-fashioned waterbed, which prevents any pressure and I find comfortable. Dana **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1222377052x1201454391/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun eExcfooterNO62)
Re: [QUAD-L] Questions
Sorry, I came in on the tail end of the conversation. Did you have a Foley catheter before your supra pubic catheter ? I have a Foley catheter and I'm thinking about getting a supra pubic. A really good friend of mine, who's a nurse, told me that my urethra will erode from sitting on it all the time. She suggested I get a supra pubic. I don't know if this is true or not. Anyone have any suggestions Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1222377052x1201454391/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun eExcfooterNO62)
Re: [QUAD-L] Questions
I used to be able to void on my own. Then a few years ago all of a sudden I couldn't. So Urologist suggested self intermittent cathing. I can bearly move one arm and I don't have 24 hour care. So, then he suggested a Foley which I had for about a year but it gave me excruciating pain in my right hip which is the side I lean on. My Uro said he wasn't surprised as a Foley is in contact with a lot of nerves which could be the cause of the pain. That's when he suggested the Supra Pubic. I got a second opinion from a Uro at Mass General and he concurred. Dan At 07:46 PM 6/23/2009, ladyno...@aol.com said something that elicited my response: Sorry, I came in on the tail end of the conversation. Did you have a Foley catheter before your supra pubic catheter ? I have a Foley catheter and I'm thinking about getting a supra pubic. A really good friend of mine, who's a nurse, told me that my urethra will erode from sitting on it all the time. She suggested I get a supra pubic. I don't know if this is true or not. Anyone have any suggestions Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis -- An Excellent Credit Score is 750. http://pr.atwola.com/promoclk/100126575x1222377052x1201454391/aol?redirSee Yours in Just 2 Easy Steps!
