Re: [QUAD-L] Syrinx
with a syrinx at c1 c2 neuros wont operate unless things get really bad, like function loss. the key is never operate above your level of injury. the syrinx can cause pain in abdomen and back , because yours is higher the neck area is probally affected. depnding on where you are in the states i would see out a specialist to give you an opinion. ron c7 --- On Sun, 8/23/09, David mrpockets_2...@yahoo.com wrote: From: David mrpockets_2...@yahoo.com Subject: [QUAD-L] Syrinx To: quad-list@eskimo.com Date: Sunday, August 23, 2009, 9:42 PM I've had a syrinx located at C1/C2 and because the doctors say that there is a pretty good chance of me ending up on a vent, I have elected to avoid surgery at this time. For those of you males who might have a syrinx, do you experience a lot if neuro-pathic pain between your shoulder blades and especially in the groin area. I feel lie there is someone pushing on my groin. Every time I go to push my manual wheelchair iI feel like my bladder is going to lose control because of the pressure on it. And there are times that my body feels lie it burning from the inside out. David B.
Re: [QUAD-L] Syrinx
Ron David (mrpockets_2000): ... I *do* know very few neurosurgeons will will work on a high-cord syrinx solely because of pain. If loss of function begins and continues, that's a bit different. There are just far too many risks for doing cervical cord surgery just because of pain. They'd prefer narcotics and high pain tolerance. Lower thoracic and lumbar syrinxs are more likely to be treated surgically if pain is the issue... but still mostly as a last resort. Beware the doc who suggests surgery before anything else is tried!! David... as for the pain in the groin area.. OUCH! I know! I get it pretty bad, too, even though I've had the syrinx / cord-untethering surgery. I've explained it more like riding a seatless bike, sitting on just the seat post, while hitting several speed bumps. Does that sound like a familiar feeling? Man -- If ANYONE ever comes up with a cure, drug or treatment for that... sign me up! Best to All! --Tod RONALD L PRACHT r.pra...@sbcglobal.net wrote: with a syrinx at c1 c2 neuros wont operate unless things get really bad, like function loss. the key is never operate above your level of injury. the syrinx can cause pain in abdomen and back , because yours is higher the neck area is probally affected. depnding on where you are in the states i would see out a specialist to give you an opinion. ron c7 --- On Sun, 8/23/09, David mrpockets_2...@yahoo.com wrote: From: David mrpockets_2...@yahoo.com Subject: [QUAD-L] Syrinx To: quad-list@eskimo.com Date: Sunday, August 23, 2009, 9:42 PM I've had a syrinx located at C1/C2 and because the doctors say that there is a pretty good chance of me ending up on a vent, I have elected to avoid surgery at this time. For those of you males who might have a syrinx, do you experience a lot if neuro-pathic pain between your shoulder blades and especially in the groin area. I feel lie there is someone pushing on my groin. Every time I go to push my manual wheelchair iI feel like my bladder is going to lose control because of the pressure on it. And there are times that my body feels lie it burning from the inside out. David B.
Re: [QUAD-L] Syrinx
I agree totally with Tod below. And, even though I am not male, my symptoms began with lower abdominal PAIN whereby I could hardly think. SYRINGOMYELIA sux big time. Lori On Mon, Aug 24, 2009 at 10:44 AM, Tod E. Santee sant...@cox.net wrote: Ron David (mrpockets_2000): ... I *do* know very few neurosurgeons will will work on a high-cord syrinx solely because of pain. If loss of function begins and continues, that's a bit different. There are just far too many risks for doing cervical cord surgery just because of pain. They'd prefer narcotics and high pain tolerance. Lower thoracic and lumbar syrinxs are more likely to be treated surgically if pain is the issue... but still mostly as a last resort. Beware the doc who suggests surgery before anything else is tried!! David... as for the pain in the groin area.. OUCH! I know! I get it pretty bad, too, even though I've had the syrinx / cord-untethering surgery. I've explained it more like riding a seatless bike, sitting on just the seat post, while hitting several speed bumps. Does that sound like a familiar feeling? Man -- If ANYONE ever comes up with a cure, drug or treatment for that... sign me up! Best to All! --Tod RONALD L PRACHT r.pra...@sbcglobal.net wrote: with a syrinx at c1 c2 neuros wont operate unless things get really bad, like function loss. the key is never operate above your level of injury. the syrinx can cause pain in abdomen and back , because yours is higher the neck area is probally affected. depnding on where you are in the states i would see out a specialist to give you an opinion. ron c7 --- On Sun, 8/23/09, David mrpockets_2...@yahoo.com wrote: From: David mrpockets_2...@yahoo.com Subject: [QUAD-L] Syrinx To: quad-list@eskimo.com Date: Sunday, August 23, 2009, 9:42 PM I've had a syrinx located at C1/C2 and because the doctors say that there is a pretty good chance of me ending up on a vent, I have elected to avoid surgery at this time. For those of you males who might have a syrinx, do you experience a lot if neuro-pathic pain between your shoulder blades and especially in the groin area. I feel lie there is someone pushing on my groin. Every time I go to push my manual wheelchair iI feel like my bladder is going to lose control because of the pressure on it. And there are times that my body feels lie it burning from the inside out. David B. -- Lori Age - 45 C4/5 complete quad, nearly 30 years post Tucson, AZ
[QUAD-L] pressure wound....need help
HI THERE...I have a Stage 3 wound on the back of my leg. So no w/c.just bed to keep pressure off. Has anyone used a wound-vac? Results? How about flap surgery? Also need to get a Clinitron alternating pressure bedanyone ever use one? THANK YOU FOR YOUR HELP! Paul c5/6 - Original Message - From: Lori Michaelson To: quad-list@eskimo.com Sent: Monday, August 24, 2009 11:56 AM Subject: Re: [QUAD-L] Syrinx I agree totally with Tod below. And, even though I am not male, my symptoms began with lower abdominal PAIN whereby I could hardly think. SYRINGOMYELIA sux big time. Lori On Mon, Aug 24, 2009 at 10:44 AM, Tod E. Santee sant...@cox.net wrote: Ron David (mrpockets_2000): ... I *do* know very few neurosurgeons will will work on a high-cord syrinx solely because of pain. If loss of function begins and continues, that's a bit different. There are just far too many risks for doing cervical cord surgery just because of pain. They'd prefer narcotics and high pain tolerance. Lower thoracic and lumbar syrinxs are more likely to be treated surgically if pain is the issue... but still mostly as a last resort. Beware the doc who suggests surgery before anything else is tried!! David... as for the pain in the groin area.. OUCH! I know! I get it pretty bad, too, even though I've had the syrinx / cord-untethering surgery. I've explained it more like riding a seatless bike, sitting on just the seat post, while hitting several speed bumps. Does that sound like a familiar feeling? Man -- If ANYONE ever comes up with a cure, drug or treatment for that... sign me up! Best to All! --Tod RONALD L PRACHT r.pra...@sbcglobal.net wrote: with a syrinx at c1 c2 neuros wont operate unless things get really bad, like function loss. the key is never operate above your level of injury. the syrinx can cause pain in abdomen and back , because yours is higher the neck area is probally affected. depnding on where you are in the states i would see out a specialist to give you an opinion. ron c7 --- On Sun, 8/23/09, David mrpockets_2...@yahoo.com wrote: From: David mrpockets_2...@yahoo.com Subject: [QUAD-L] Syrinx To: quad-list@eskimo.com Date: Sunday, August 23, 2009, 9:42 PM I've had a syrinx located at C1/C2 and because the doctors say that there is a pretty good chance of me ending up on a vent, I have elected to avoid surgery at this time. For those of you males who might have a syrinx, do you experience a lot if neuro-pathic pain between your shoulder blades and especially in the groin area. I feel lie there is someone pushing on my groin. Every time I go to push my manual wheelchair iI feel like my bladder is going to lose control because of the pressure on it. And there are times that my body feels lie it burning from the inside out. David B. -- Lori Age - 45 C4/5 complete quad, nearly 30 years post Tucson, AZ
[QUAD-L] السلام عليكم
السلام عليكم ،بمناسبة حلول شهر رمضان الكريم شهر التوبة وشهر الصيام والقيام أدعوا الله جلّ وتعالى أن يجعله عليك وعلينا و على كافة المسلمين شهًرا للرّحمة والخير والبركات وأن يتقبل الله منّا ومنكم الصيام والقيام وان يعيده الله علينا أعوام عديده و أيام مديده بالصحة والهناء إن شاء الله Avec Windows Live, vous organisez, retouchez et partagez vos photos. _ Show them the way! Add maps and directions to your party invites. http://www.microsoft.com/windows/windowslive/products/events.aspx
[QUAD-L] WC Repair
I couldn't get the batteries from my TDX5 into the TDX3 and my repair shop (Preferred) wouldn't do it saying since my insurance pays for my 5, they can't work on my 3. Even if I paid cash. The batteries are smaller, 22s instead of 24s. So I brought it to Southwest Mobility in Phoenix. I called them and they said I could pay them to do it. It took them 15-20 minutes, then said No Charge. They are so nice there, have lots of parts in stock. When he was done, he showed me all their chairs. Some new European chairs and some cool features. This one not only has a seat raiser, but it lowers you to the floor too. Mostly for kids, but adults can use it too. I think my next chair I hope to get the 21st Century Bounder with a standing frame that tilts and reclines. Not the best looking chair, but reliable and Fast! Still uses belt drive, but big fast motors. I only wish my insurance would use these guys. But at least my backup chair now works. Greg
