HI THERE.......I have a Stage 3 wound on the back of my
leg. So no w/c.....just bed to keep pressure off. Has
anyone used a wound-vac? Results?
How about flap surgery? Also need to get a Clinitron
alternating pressure bed....anyone ever use one?
THANK YOU FOR YOUR HELP!
Paul c5/6
----- Original Message -----
From: Lori Michaelson
To: quad-list@eskimo.com
Sent: Monday, August 24, 2009 11:56 AM
Subject: Re: [QUAD-L] Syrinx
I agree totally with Tod below. And, even though I am not male, my symptoms
began with lower abdominal PAIN whereby I could hardly think. SYRINGOMYELIA
sux big time.
Lori
On Mon, Aug 24, 2009 at 10:44 AM, Tod E. Santee <sant...@cox.net> wrote:
Ron & David (mrpockets_2000):
... I *do* know very few neurosurgeons will will work on a high-cord syrinx
solely because of pain. If loss of function begins and continues, that's a bit
different. There are just far too many risks for doing cervical cord surgery
just because of pain. They'd prefer narcotics and high pain tolerance.
Lower thoracic and lumbar syrinxs are more likely to be treated surgically
if pain is the issue... but still mostly as a last resort. Beware the doc who
suggests surgery before anything else is tried!!
David... as for the pain in the groin area.. OUCH! I know! I get it
pretty bad, too, even though I've had the syrinx / cord-untethering surgery.
I've explained it more like riding a seatless bike, sitting on just the seat
post, while hitting several speed bumps. Does that sound like a familiar
feeling?
Man -- If ANYONE ever comes up with a cure, drug or treatment for that...
sign me up!
Best to All!
--Tod
---- RONALD L PRACHT <r.pra...@sbcglobal.net> wrote:
> with a syrinx at c1 c2 neuros wont operate unless things get really bad,
like function loss. the key is never operate above your level of injury. the
syrinx can cause pain in abdomen and back , because yours is higher the neck
area is probally affected. depnding on where you are in the states i would see
out a specialist to give you an opinion.
>
> ron c7
>
> --- On Sun, 8/23/09, David <mrpockets_2...@yahoo.com> wrote:
>
>
> From: David <mrpockets_2...@yahoo.com>
> Subject: [QUAD-L] Syrinx
> To: quad-list@eskimo.com
> Date: Sunday, August 23, 2009, 9:42 PM
>
>
>
>
>
> I've had a syrinx located at C1/C2 and because the doctors say that there
> is a pretty good chance of me ending up on a vent, I have elected to avoid
> surgery at this time.
>
> For those of you males who might have a syrinx, do you experience a lot if
> neuro-pathic pain between your shoulder blades and especially in the
groin area. I feel lie there is someone pushing on my groin. Every time I go
to push my manual wheelchair iI feel like my bladder is going to lose control
because of the pressure on it. And there are times that my body feels lie it
burning from the inside out.
>
>
> David B.
>
>
--
Lori
Age - 45
C4/5 complete quad, nearly 30 years post
Tucson, AZ
