Re: [QUAD-L] Anniversary
why don't you want to try a muscle flap? I had one almost 7 1/2 years ago with excellent results after six weeks in bed but it's rock solid ever since then! I am nearly 16 1/2 years post injury C3/4 complete spinal cord injury. Get some second, third or even fourth opinion if necessary from whatever specialists you have to find! That's what I'm doing right now regarding a bone infection nearby left elbow. From: ladyno...@aol.com ladyno...@aol.com To: quad-list@eskimo.com Sent: Fri, July 2, 2010 5:08:55 PM Subject: [QUAD-L] Anniversary Today, July 2, marks the five-year mark of being stricken with Transverse Myelitis. I am celebrating it by being bedridden, nursing two pressure sores. Have you ever tried lying on one side, for days at a time? It causes me to have claustrophobic anxiety attack , but it is quite necessary to avoid flap surgery :-( Naomi, C-4 Quad due to Transverse Myelitis since July 2, 2005
Re: [QUAD-L] Anniversary
Thank you Shirley for your encouragement Naomi, C-4 quad due to Transverse Myelitis since July 2, 2005 -Original Message- From: shirley bell sbell...@cox.net To: ladynotes ladyno...@aol.com Sent: Fri, Jul 2, 2010 7:31 pm Subject: Re: [QUAD-L] Anniversary hang in naomi.i am pulling for you. Best, Shirley Bell www.ShirleyBellDesigns.com - Original Message - From: ladyno...@aol.com To: quad-list@eskimo.com Sent: Friday, July 02, 2010 5:08 PM Subject: [QUAD-L] Anniversary Today, July 2, marks the five-year mark of being stricken with Transverse Myelitis. I am celebrating it by being bedridden, nursing two pressure sores. Have you ever tried lying on one side, for days at a time? It causes me to have claustrophobic anxiety attack , but it is quite necessary to avoid flap surgery :-( Naomi, C-4 Quad due to Transverse Myelitis since July 2, 2005
FW: [QUAD-L] Help
Worked twice for me. The bad economy is good for many quads. It can help the right people out financaly by having someone as yourself move into their house and care for you. I pay $1,800 monthly for room, board, care, laundry and everything else. I am a 57 year old, C5, basically adopted by someone who really appreciates the work at home income. Advertise once just to see what comes your way Merrill _ From: Eric W Rudd [mailto:c5sc...@gmail.com] Sent: Wednesday, June 30, 2010 1:26 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Help I'm a c5 who lives on his own w/ am pm aide about 30 hrs/wk. Eric W Rudd c5sc...@gmail.com - Original Message - From: Adam Collinsworth mailto:big46...@fuse.net To: quad-list@eskimo.com Sent: Wednesday, June 30, 2010 12:28 PM Subject: [QUAD-L] Help Hey Everyone, It has been a while since I posted. I hope you don't mind me asking but what is everyone's living situation? Are you in a group home, nursing home, apartment, independent living situation? My situation is changing and I am looking for my best option. I am a C 3/4 quad who needs about 50 hours of care. Any info would help. Thank you, Adam
Re: [QUAD-L] Anniversary
Thanks Dan, for keeping me in your thoughts and reminding me of that saying. I will keep it in the forefront of my mind, and I'm sure it will help me. Thanks again for your encouragement. Have a Blessed Day, Naomi -Original Message- From: Dan d...@alumni.unh.edu To: ladynotes ladyno...@aol.com Sent: Fri, Jul 2, 2010 6:51 pm Subject: Re: [QUAD-L] Anniversary Thinking of you Naomi and sending good thoughts your way. When I'm in a bad spot, I remember the phrase - This too shall pass. It always helps me and I hope it helps you also. Please keep us informed. Dan At 05:08 PM 7/2/2010, ladyno...@aol.com said: Today, July 2, marks the five-year mark of being stricken with Transverse Myelitis. I am celebrating it by being bedridden, nursing two pressure sores. Have you ever tried lying on one side, for days at a time? It causes me to have claustrophobic anxiety attack , but it is quite necessary to avoid flap surgery :-( Naomi, C-4 Quad due to Transverse Myelitis since July 2, 2005
RE: [QUAD-L] Help
Hi Naomi No, the legislation was written by a C56 quad about 23 years ago. He wrote the legislation and pushed it through the state legislature to be on a two year grant program, I do not know who writes the grants when they need renewing It is pretty awesome as it allows for up to five HRS per day, seven days a week. It also allow non medical personnel to handle bowel care, cathing, and wound care after being signed off by an RN. Otherwise Nevada legislature states that all that sort of thing must be done by trained medical personnel. Because I have been in the field of mental retardation and mental health I was aware of this program before I broke my neck. So it enabled me to come home from rehab, 3 1/2 months after I broke my neck, and after the first 30 days of Home Health paid for by the insurance company I was able to be accepted into this program. Now I advocate for newly injured and encourage the families to apply just as soon as they know when their loved one is coming home. It certainly helps to make the transition easier. (if there is an easy way to make such a transition J) Joan Two roads diverged in a wood, and I- I took the one less traveled by, And that has made all the difference. Robert Frost
FW: [QUAD-L] Help
I missed the thread, what again is the legislation? _ From: Joan Anglin [mailto:poaj...@sbcglobal.net] Sent: Saturday, July 03, 2010 1:10 PM To: ladyno...@aol.com; quad-list@eskimo.com Subject: RE: [QUAD-L] Help Hi Naomi No, the legislation was written by a C56 quad about 23 years ago. He wrote the legislation and pushed it through the state legislature to be on a two year grant program, I do not know who writes the grants when they need renewing It is pretty awesome as it allows for up to five HRS per day, seven days a week. It also allow non medical personnel to handle bowel care, cathing, and wound care after being signed off by an RN. Otherwise Nevada legislature states that all that sort of thing must be done by trained medical personnel. Because I have been in the field of mental retardation and mental health I was aware of this program before I broke my neck. So it enabled me to come home from rehab, 3 1/2 months after I broke my neck, and after the first 30 days of Home Health paid for by the insurance company I was able to be accepted into this program. Now I advocate for newly injured and encourage the families to apply just as soon as they know when their loved one is coming home. It certainly helps to make the transition easier. (if there is an easy way to make such a transition :-)) Joan Two roads diverged in a wood, and I- I took the one less traveled by, And that has made all the difference. Robert Frost
RE: [QUAD-L] Help
It was the legislation written by a quad to allow non medical personnel who were hired through an agency to do bowel care, cathing, and wound care. Joan From: Merrill [mailto:merril...@cox.net] Sent: Saturday, July 03, 2010 1:23 PM To: quad-list@eskimo.com Subject: FW: [QUAD-L] Help I missed the thread, what again is the legislation? _ From: Joan Anglin [mailto:poaj...@sbcglobal.net] Sent: Saturday, July 03, 2010 1:10 PM To: ladyno...@aol.com; quad-list@eskimo.com Subject: RE: [QUAD-L] Help Hi Naomi No, the legislation was written by a C56 quad about 23 years ago. He wrote the legislation and pushed it through the state legislature to be on a two year grant program, I do not know who writes the grants when they need renewing It is pretty awesome as it allows for up to five HRS per day, seven days a week. It also allow non medical personnel to handle bowel care, cathing, and wound care after being signed off by an RN. Otherwise Nevada legislature states that all that sort of thing must be done by trained medical personnel. Because I have been in the field of mental retardation and mental health I was aware of this program before I broke my neck. So it enabled me to come home from rehab, 3 1/2 months after I broke my neck, and after the first 30 days of Home Health paid for by the insurance company I was able to be accepted into this program. Now I advocate for newly injured and encourage the families to apply just as soon as they know when their loved one is coming home. It certainly helps to make the transition easier. (if there is an easy way to make such a transition J) Joan Two roads diverged in a wood, and I- I took the one less traveled by, And that has made all the difference. Robert Frost
Re: [QUAD-L] Help
Thank you Joan for the information Have a Blessed Day, Naomi -Original Message- From: Joan Anglin poaj...@sbcglobal.net To: merrill2u merril...@cox.net; quad-list quad-list@eskimo.com Sent: Sat, Jul 3, 2010 6:51 pm Subject: RE: [QUAD-L] Help It was the legislation written by a quad to allow non medical personnel who were hired through an agency to do bowel care, cathing, and wound care. Joan From: Merrill [mailto:merril...@cox.net] Sent: Saturday, July 03, 2010 1:23 PM To: quad-list@eskimo.com Subject: FW: [QUAD-L] Help I missed the thread, what again is the legislation? From: Joan Anglin [mailto:poaj...@sbcglobal.net] Sent: Saturday, July 03, 2010 1:10 PM To: ladyno...@aol.com; quad-list@eskimo.com Subject: RE: [QUAD-L] Help Hi Naomi No, the legislation was written by a C56 quad about 23 years ago. He wrote the legislation and pushed it through the state legislature to be on a two year grant program, I do not know who writes the grants when they need renewing It is pretty awesome as it allows for up to five HRS per day, seven days a week. It also allow non medical personnel to handle bowel care, cathing, and wound care after being signed off by an RN. Otherwise Nevada legislature states that all that sort of thing must be done by trained medical personnel. Because I have been in the field of mental retardation and mental health I was aware of this program before I broke my neck. So it enabled me to come home from rehab, 3 1/2 months after I broke my neck, and after the first 30 days of Home Health paid for by the insurance company I was able to be accepted into this program. Now I advocate for newly injured and encourage the families to apply just as soon as they know when their loved one is coming home. It certainly helps to make the transition easier. (if there is an easy way to make such a transition J) Joan Two roads diverged in a wood, and I- I took the one less traveled by, And that has made all the difference. Robert Frost
