[QUAD-L] AD
Just curious if anyone has had a bad case of AD and then experience hypersensitivity that causes AD more often. I had a bad case on Feb 1 and now just putting the sling under me, unbuttoning my pants, coughing, taking my shoes off, pulling wedge out from under my feet causes my blood pressure to sky rocket. I've been taking a lortab and clonidine an hour before my aid gets here but I'm still getting AD (this morning all I did was move my arm to get my water and it made me have a throbbing headache) Nicki
RE: [QUAD-L] AD
I'm so frustratedwent to dr today and they're putting me on a high blood pressure medicine (beta-blocker) because they think my headaches are causing the high blood pressureif that were the cause then shouldn't we be treating the headache and not the symptom...I so wish I lived close to a SCI hospital. From: nichole rohling [mailto:zoocr...@windstream.net] Sent: Monday, February 10, 2014 12:06 PM To: quad-list@eskimo.com Subject: [QUAD-L] AD Just curious if anyone has had a bad case of AD and then experience hypersensitivity that causes AD more often. I had a bad case on Feb 1 and now just putting the sling under me, unbuttoning my pants, coughing, taking my shoes off, pulling wedge out from under my feet causes my blood pressure to sky rocket. I've been taking a lortab and clonidine an hour before my aid gets here but I'm still getting AD (this morning all I did was move my arm to get my water and it made me have a throbbing headache) Nicki
RE: [QUAD-L] AD
no pressure sores but I have hemorrhoids and believe that is what triggered it initially. I’m good once I’m up in my chair. Yes, headaches come on very quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! Went to ER yesterday evening but by the time I got there my blood pressure was fine…….wasted trip! Nicki From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Monday, February 10, 2014 5:10 PM To: nichole rohling; quad-list@eskimo.com Subject: Re: [QUAD-L] AD I just keep thinking... there has to be something wrong causing the A.D. In the past my worst cases of it were because of severe uti's and bladder stones. Have you been checked for pressure sores and so on ? Do the headaches come on fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it figured out, be praying for you Nicki. Dan H** From: nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Monday, February 10, 2014 4:36 PM Subject: RE: [QUAD-L] AD I’m so frustrated……….went to dr today and they’re putting me on a high blood pressure medicine (beta-blocker) because they think my headaches are causing the high blood pressure……..if that were the cause then shouldn’t we be treating the headache and not the symptom………I so wish I lived close to a SCI hospital. From: nichole rohling [mailto:zoocr...@windstream.net] Sent: Monday, February 10, 2014 12:06 PM To: quad-list@eskimo.com Subject: [QUAD-L] AD Just curious if anyone has had a bad case of AD and then experience hypersensitivity that causes AD more often. I had a bad case on Feb 1 and now just putting the sling under me, unbuttoning my pants, coughing, taking my shoes off, pulling wedge out from under my feet causes my blood pressure to sky rocket. I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m still getting AD (this morning all I did was move my arm to get my water and it made me have a throbbing headache) Nicki
Re: [QUAD-L] AD
Nicki, after bowel routine have hemorrohid creme put on to help shrink them down and see if that helps at all, if you have not been trying that, good luck ! From: nichole rohling zoocr...@windstream.net To: 'Danny Hearn' ddh...@sbcglobal.net; quad-list@eskimo.com Sent: Monday, February 10, 2014 6:34 PM Subject: RE: [QUAD-L] AD no pressure sores but I have hemorrhoids and believe that is what triggered it initially. I’m good once I’m up in my chair. Yes, headaches come on very quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! Went to ER yesterday evening but by the time I got there my blood pressure was fine…….wasted trip! Nicki From:Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Monday, February 10, 2014 5:10 PM To: nichole rohling; quad-list@eskimo.com Subject: Re: [QUAD-L] AD I just keep thinking... there has to be something wrong causing the A.D. In the past my worst cases of it were because of severe uti's and bladder stones. Have you been checked for pressure sores and so on ? Do the headaches come on fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it figured out, be praying for you Nicki. Dan H** From:nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Monday, February 10, 2014 4:36 PM Subject: RE: [QUAD-L] AD I’m so frustrated……….went to dr today and they’re putting me on a high blood pressure medicine (beta-blocker) because they think my headaches are causing the high blood pressure……..if that were the cause then shouldn’t we be treating the headache and not the symptom………I so wish I lived close to a SCI hospital. From:nichole rohling [mailto:zoocr...@windstream.net] Sent: Monday, February 10, 2014 12:06 PM To: quad-list@eskimo.com Subject: [QUAD-L] AD Just curious if anyone has had a bad case of AD and then experience hypersensitivity that causes AD more often. I had a bad case on Feb 1 and now just putting the sling under me, unbuttoning my pants, coughing, taking my shoes off, pulling wedge out from under my feet causes my blood pressure to sky rocket. I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m still getting AD (this morning all I did was move my arm to get my water and it made me have a throbbing headache) Nicki
RE: [QUAD-L] AD
we’ve been doing it the night before J once we push it back in I’m good to go thanks From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Monday, February 10, 2014 6:40 PM To: nichole rohling; quad-list@eskimo.com Subject: Re: [QUAD-L] AD Nicki, after bowel routine have hemorrohid creme put on to help shrink them down and see if that helps at all, if you have not been trying that, good luck ! From: nichole rohling zoocr...@windstream.net To: 'Danny Hearn' ddh...@sbcglobal.net; quad-list@eskimo.com Sent: Monday, February 10, 2014 6:34 PM Subject: RE: [QUAD-L] AD no pressure sores but I have hemorrhoids and believe that is what triggered it initially. I’m good once I’m up in my chair. Yes, headaches come on very quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! Went to ER yesterday evening but by the time I got there my blood pressure was fine…….wasted trip! Nicki From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Monday, February 10, 2014 5:10 PM To: nichole rohling; quad-list@eskimo.com Subject: Re: [QUAD-L] AD I just keep thinking... there has to be something wrong causing the A.D. In the past my worst cases of it were because of severe uti's and bladder stones. Have you been checked for pressure sores and so on ? Do the headaches come on fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it figured out, be praying for you Nicki. Dan H** From: nichole rohling zoocr...@windstream.netwe do it at night I’m so frustrated……….went to dr today and they’re putting me on a high blood pressure medicine (beta-blocker) because they think my headaches are causing the high blood pressure……..if that were the cause then shouldn’t we be treating the headache and not the symptom………I so wish I lived close to a SCI hospital. From: nichole rohling [mailto:zoocr...@windstream.net] Sent: Monday, February 10, 2014 12:06 PM To: quad-list@eskimo.com Subject: [QUAD-L] AD Just curious if anyone has had a bad case of AD and then experience hypersensitivity that causes AD more often. I had a bad case on Feb 1 and now just putting the sling under me, unbuttoning my pants, coughing, taking my shoes off, pulling wedge out from under my feet causes my blood pressure to sky rocket. I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m still getting AD (this morning all I did was move my arm to get my water and it made me have a throbbing headache) Nicki
Re: [QUAD-L] AD
Check for ingrown toenails, cather placement any broken bones below injury. Just a few thoughts, hopefully some help. From: nichole rohling zoocr...@windstream.net To: 'Danny Hearn' ddh...@sbcglobal.net; quad-list@eskimo.com Sent: Monday, February 10, 2014 4:34 PM Subject: RE: [QUAD-L] AD no pressure sores but I have hemorrhoids and believe that is what triggered it initially. I’m good once I’m up in my chair. Yes, headaches come on very quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! Went to ER yesterday evening but by the time I got there my blood pressure was fine…….wasted trip! Nicki From:Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Monday, February 10, 2014 5:10 PM To: nichole rohling; quad-list@eskimo.com Subject: Re: [QUAD-L] AD I just keep thinking... there has to be something wrong causing the A.D. In the past my worst cases of it were because of severe uti's and bladder stones. Have you been checked for pressure sores and so on ? Do the headaches come on fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it figured out, be praying for you Nicki. Dan H** From:nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Monday, February 10, 2014 4:36 PM Subject: RE: [QUAD-L] AD I’m so frustrated……….went to dr today and they’re putting me on a high blood pressure medicine (beta-blocker) because they think my headaches are causing the high blood pressure……..if that were the cause then shouldn’t we be treating the headache and not the symptom………I so wish I lived close to a SCI hospital. From:nichole rohling [mailto:zoocr...@windstream.net] Sent: Monday, February 10, 2014 12:06 PM To: quad-list@eskimo.com Subject: [QUAD-L] AD Just curious if anyone has had a bad case of AD and then experience hypersensitivity that causes AD more often. I had a bad case on Feb 1 and now just putting the sling under me, unbuttoning my pants, coughing, taking my shoes off, pulling wedge out from under my feet causes my blood pressure to sky rocket. I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m still getting AD (this morning all I did was move my arm to get my water and it made me have a throbbing headache) Nicki
Re: [QUAD-L] AD episodes
My primary physician mentioned that this might be an alternative for me. Trying to find something I can use to control spasms. They think my medication for bladder spasms might be causing spikes in my blood pressure. I'm not sure anymore. I have ceased taking the medication most of the time and I'm still spiking whenever I am in bed, but having normal blood pressure any other time. Q Sent from my iPad On Feb 7, 2014, at 9:58 AM, wheelch...@aol.com wrote: For some, botex injections, inside the bladder, can help with bladder spasms. Not for everyone, it is best to check with your Uro to determine if you are a candidate for this procedure. Its also successfully used to prevent bladder spillage with older/seniors with bladder issues. Best Wishes In a message dated 2/7/2014 8:37:55 A.M. Central Standard Time, swl...@gmail.com writes: Any time the catheter moves it triggers dysreflexia, so I keep it taped down. Draining the collection bag also triggers a very short episode of dysreflexia, so I wonder if something is going on inside the bladder. I started using the duette catheter, so far it hasn't made any difference. The only pain killer I've tried is aleve, unfortunately it hasn't helped. The constant dysreflexia goes away after a couple of days following changing the catheter. Then it only hits during transfers, or draining the bag. On Thu, Feb 6, 2014 at 5:34 PM, Quadius quad...@gmail.com wrote: I had some problems with pain and AD whenever I've had my suprapubic. I found that a lot of the problems were occurring because the catheter was rubbing against the back of the bladder. Have you tried tethering the catheter to your belly so that it doesn't slide into the bladder too far? You might also have a problem with bladder atrophy. Mine was pretty severe and it would happen at least once or twice a day that the catheter would stop draining because the bladder had wrapped around the catheter. Q Sent from my iPad On Feb 5, 2014, at 9:34 AM, Fragile swl...@gmail.com wrote: I've been having trouble with AD for the past 14 months after having a SP cath put in. The first few days after the catheter is changed, AD occurs every 10 minutes or so. Transferring in and out of my chair also sets it off. When getting dressed, any contact to the groin area also sets it off. The only thing that gets rid of it is to lay on my side. Blood pressure gets up to 180/120. Local Doctors are clueless. The supposed good doctors are 3 hours away, I'm afraid of trying to travel that far. On Tue, Feb 4, 2014 at 7:59 PM, Gmail bobbiehumphre...@gmail.com wrote: I had a very bad AD episode back in 1986 before anybody knew what it was and what he signs are. I was hospitalized for severe headache's, they ended up putting an elderly woman who was almost complexly deaf in my room. Every person who came to communicate with her had to SHOUT! It ended up having a full blown stroke on my right side. I couldn't speak or move my left arm. Then I threw-up bile which was a clear indicator that my gallbladder was very bad. After they removed it I got my speech back and could move my left arm again ... I am SO LUCKY! As a result of the stroke I have some long-term memory loss. Bobbie Smile Everyday
Re: [QUAD-L] AD episodes
Yes. Ended up having an urostomy procedure done. I still have some pain, but I don't have the bouts with AD like I used to. My recovery was pretty long and difficult, but all in all for me it was the only option other than continuing on with dysreflexia and other problems. Q Sent from my iPad On Feb 7, 2014, at 9:43 AM, Fragile swl...@gmail.com wrote: Did you find a solution for bladder atrophy and the bladder wrapping around the catheter? On Thu, Feb 6, 2014 at 5:34 PM, Quadius quad...@gmail.com wrote: I had some problems with pain and AD whenever I've had my suprapubic. I found that a lot of the problems were occurring because the catheter was rubbing against the back of the bladder. Have you tried tethering the catheter to your belly so that it doesn't slide into the bladder too far? You might also have a problem with bladder atrophy. Mine was pretty severe and it would happen at least once or twice a day that the catheter would stop draining because the bladder had wrapped around the catheter. Q Sent from my iPad On Feb 5, 2014, at 9:34 AM, Fragile swl...@gmail.com wrote: I've been having trouble with AD for the past 14 months after having a SP cath put in. The first few days after the catheter is changed, AD occurs every 10 minutes or so. Transferring in and out of my chair also sets it off. When getting dressed, any contact to the groin area also sets it off. The only thing that gets rid of it is to lay on my side. Blood pressure gets up to 180/120. Local Doctors are clueless. The supposed good doctors are 3 hours away, I'm afraid of trying to travel that far. On Tue, Feb 4, 2014 at 7:59 PM, Gmail bobbiehumphre...@gmail.com wrote: I had a very bad AD episode back in 1986 before anybody knew what it was and what he signs are. I was hospitalized for severe headache's, they ended up putting an elderly woman who was almost complexly deaf in my room. Every person who came to communicate with her had to SHOUT! It ended up having a full blown stroke on my right side. I couldn't speak or move my left arm. Then I threw-up bile which was a clear indicator that my gallbladder was very bad. After they removed it I got my speech back and could move my left arm again ... I am SO LUCKY! As a result of the stroke I have some long-term memory loss. Bobbie Smile Everyday
Re: [QUAD-L] AD
these doctors are guessing at best. they need to read about the definition of autonomic dysreflexia and maybe they could begin to comprehend. in any case nurse you hemmroids and get them well. keep emergency blood pressure meds close in case of a spike, but don't get your body all messed up by taking them everyday. high blood pressure isn't your problem, the prob is whats triggering the dysreflexia. ron keep From: Danny Hearn ddh...@sbcglobal.net To: nichole rohling zoocr...@windstream.net; quad-list@eskimo.com quad-list@eskimo.com Sent: Monday, February 10, 2014 6:40 PM Subject: Re: [QUAD-L] AD Nicki, after bowel routine have hemorrohid creme put on to help shrink them down and see if that helps at all, if you have not been trying that, good luck ! From: nichole rohling zoocr...@windstream.net To: 'Danny Hearn' ddh...@sbcglobal.net; quad-list@eskimo.com Sent: Monday, February 10, 2014 6:34 PM Subject: RE: [QUAD-L] AD no pressure sores but I have hemorrhoids and believe that is what triggered it initially. I’m good once I’m up in my chair. Yes, headaches come on very quickly and go away fairly quick. Thank you for the prayers…….it is scaring me! Went to ER yesterday evening but by the time I got there my blood pressure was fine…….wasted trip! Nicki From:Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Monday, February 10, 2014 5:10 PM To: nichole rohling; quad-list@eskimo.com Subject: Re: [QUAD-L] AD I just keep thinking... there has to be something wrong causing the A.D. In the past my worst cases of it were because of severe uti's and bladder stones. Have you been checked for pressure sores and so on ? Do the headaches come on fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it figured out, be praying for you Nicki. Dan H** From:nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Monday, February 10, 2014 4:36 PM Subject: RE: [QUAD-L] AD I’m so frustrated……….went to dr today and they’re putting me on a high blood pressure medicine (beta-blocker) because they think my headaches are causing the high blood pressure……..if that were the cause then shouldn’t we be treating the headache and not the symptom………I so wish I lived close to a SCI hospital. From:nichole rohling [mailto:zoocr...@windstream.net] Sent: Monday, February 10, 2014 12:06 PM To: quad-list@eskimo.com Subject: [QUAD-L] AD Just curious if anyone has had a bad case of AD and then experience hypersensitivity that causes AD more often. I had a bad case on Feb 1 and now just putting the sling under me, unbuttoning my pants, coughing, taking my shoes off, pulling wedge out from under my feet causes my blood pressure to sky rocket. I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m still getting AD (this morning all I did was move my arm to get my water and it made me have a throbbing headache) Nicki
Re: [QUAD-L] AD
I just keep thinking... there has to be something wrong causing the A.D. In the past my worst cases of it were because of severe uti's and bladder stones. Have you been checked for pressure sores and so on ? Do the headaches come on fairly quick?? if so that is related to the AD. Gosh, I sure hope you get it figured out, be praying for you Nicki. Dan H** From: nichole rohling zoocr...@windstream.net To: quad-list@eskimo.com Sent: Monday, February 10, 2014 4:36 PM Subject: RE: [QUAD-L] AD I’m so frustrated……….went to dr today and they’re putting me on a high blood pressure medicine (beta-blocker) because they think my headaches are causing the high blood pressure……..if that were the cause then shouldn’t we be treating the headache and not the symptom………I so wish I lived close to a SCI hospital. From:nichole rohling [mailto:zoocr...@windstream.net] Sent: Monday, February 10, 2014 12:06 PM To: quad-list@eskimo.com Subject: [QUAD-L] AD Just curious if anyone has had a bad case of AD and then experience hypersensitivity that causes AD more often. I had a bad case on Feb 1 and now just putting the sling under me, unbuttoning my pants, coughing, taking my shoes off, pulling wedge out from under my feet causes my blood pressure to sky rocket. I’ve been taking a lortab and clonidine an hour before my aid gets here but I’m still getting AD (this morning all I did was move my arm to get my water and it made me have a throbbing headache) Nicki
