Re: [QUAD-L] Unidentified subject!

2014-06-13 Thread diannal767

funny, I remember that clearly too. I asked them not to cut it then heard the 
scissors. Sunday will be my 24th anniversary.
dianna

  I did hear the clippers as they shaved off most of my hair and the drill as 
they prepared to place the Crutchfield tongs in my head, but that was all.  

 
 
 
-Original Message-
From: jume jume9...@comcast.net
To: Nan nlg52...@yahoo.com; quad-list quad-list@eskimo.com
Sent: Thu, Jun 12, 2014 1:24 pm
Subject: Re: [QUAD-L] Unidentified subject!



Wow, Nan, that was almost exactly my story, from my boyfriend being there to 
them cutting off a borrowed swimsuit. Some things you never forget.



Meredith




From: Nan nlg52...@yahoo.com
To: quad-list quad-list@eskimo.com
Sent: Wednesday, June 11, 2014 4:34:18 PM
Subject: [QUAD-L] Unidentified subject!





June 7, 1968.  A day just like today.  It was a Friday ... I woke up, did all 
my primping and went to school ... I was a sophomore in HS and my world was 
perfect.  My parents had opened our pool earlier in the week, so I had invited 
my best friend and our boyfriends over for a swim after school.  We got home 
about 2:30 and headed out back - full of youthful enthusiasm.  We hit the pool 
playfully, used the diving board and the slide ... we were having a blast.  
Sometime before 3:30 (the details about time are a bit fuzzy), I took my last 
step. I walked to the slide, climbed the ladder, put my hands over my head and 
gracefully slid down hands first.  The minute my head hit the water I felt a 
zing and everything stopped.  I just floated in the water ... it felt like I 
was doing the jellyfish (aka dead man's) float, but I realized I couldn't move. 
 I knew I was in trouble, and wondered if anyone else knew it.  I directed my 
thoughts to my boyfriend ... Paul, help me.  Please, see me.  Please  He 
was the only one who realized I wasn't playing.  (I think I do believe in 
telepathy.)  They pulled me up into the air, and I could breathe again.  The 
next thing I remember is laying on the pool deck.  It was hard to get a deep 
breath, but I was breathing on my own.  People kept putting my hands across my 
stomach, and they would just fall off... again and again.  I still don't know 
why they did that.  Eventually a sheriff came - he wanted to do artificial 
respiration, but my neighbor sternly told him not to lay a f***ing  finger on 
me.  I was shocked to hear an adult use that word ... no one I knew used it 
back then.  Finally an ambulance came, about 45 minutes after my accident. They 
lifted me onto their gurney (no manual stabilization, no C-collar, no back 
board), slid me into the back of the ambulance and placed a sandbag on either 
side of my neck.  We rode to the hospital with one guy kneeling over me holding 
the sand bags and the other blaring the siren the whole way.  Gave me one hell 
of a headache!  At the hospital they cut off my bathing suit - I was so 
embarrassed.  I was also appalled ... it was a borrowed suit after all - I 
scolded them for wrecking it.  My memories start to fade out at that point.  I 
did hear the clippers as they shaved off most of my hair and the drill as they 
prepared to place the Crutchfield tongs in my head, but that was all.  


Much later, I found out that the doctors had given me a 5% chance ... of 
surviving.
 
I am 62 years old, and have forgotten so much of my life, yet these memories 
remain crystal clear.  Time has not clouded them.  You'd think by now these 
memories would only bring remembrance ... not regret and sorrow.  Usually I 
celebrate each anniversary - the survival of one more year.  This year, 
however, it's hit me hard.  I am not needed as I once was.  I am so lonely.  
Being dependent on others sucks.  I want a do over - another chance.  I don't 
want to be a quad any more.


Thanks, O Quads, for being there to hear me.  













[QUAD-L] medicine for sores

2014-06-13 Thread diannal767

Hi everyone,
When I was in the hospital getting chemo, my doctor (oncologist) started me on 
some stuff you might be interested in. I always had to fight open sores in the 
groin area. he prescribed Nystop  powder or Econazole Nitrate Cream. The powder 
worked best for me.

We wipe the cracks with a wet cloth in the morning and 'pat' it dry with a 
bounty sheet. (softer) Then softly put the powder on so it won't cake.

If it helped me in that area, I thought if others were having the same problem 
or others, you may want to consider it. I still use the powder everyday to keep 
it dry and medicated.

Dianna


[QUAD-L] Dreams

2014-06-13 Thread greg
For weeks now I've been waking up every few hours, with panic dreams. My heart is racing, pounding. My breathing is heavy, and I feel like I need to get up. I haven't changed meds or anything. If it was just waking up in the morning like that I could handle it, but it's like 5 times a night. Often I think I can't breath. Other times I'm getting chased by a mob, etc. I'm so tired.
Greg




RE: [QUAD-L] medicine for sores

2014-06-13 Thread nichole rohling
Thanks..I fight them in the smiley face area of my butt cheeks J

I wonder if these are fungal treatments?

 

Nicki

 

From: diannal...@aol.com [mailto:diannal...@aol.com] 
Sent: Friday, June 13, 2014 5:49 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] medicine for sores

 

Hi everyone,

When I was in the hospital getting chemo, my doctor (oncologist) started me
on some stuff you might be interested in. I always had to fight open sores
in the groin area. he prescribed Nystop  powder or Econazole Nitrate Cream.
The powder worked best for me.

 

We wipe the cracks with a wet cloth in the morning and 'pat' it dry with a
bounty sheet. (softer) Then softly put the powder on so it won't cake.

 

If it helped me in that area, I thought if others were having the same
problem or others, you may want to consider it. I still use the powder
everyday to keep it dry and medicated.

 

Dianna



Fwd: [QUAD-L] Dreams

2014-06-13 Thread Larry Willis
Panic attacks. About four years ago I began having them at night. Not as
frequent as yours, but I still felt like I was going to explode. It was
horrible. My doc gave me a small dose of Xanax to take at bedtime. I
haven't had one since. Good luck.

-- Forwarded message --
From: *greg* g...@eskimo.com
Date: Friday, June 13, 2014
Subject: [QUAD-L] Dreams
To: quad-list@eskimo.com


For weeks now I've been waking up every few hours, with panic dreams. My
heart is racing, pounding. My breathing is heavy, and I feel like I need to
get up. I haven't changed meds or anything. If it was just waking up in the
morning like that I could handle it, but it's like 5 times a night. Often I
think I can't breath. Other times I'm getting chased by a mob, etc. I'm so
tired.
Greg


Re: [QUAD-L] Dreams

2014-06-13 Thread Quadius
I have been having a similar problem, but not as often. I usually have it a
couple of times a night. I have found putting my TV on a timer and
listening to a historical-based documentary has helped me get to sleep
without having these terrible dreams. If they keep up, I might consider
asking for medication.
Quadius


On Fri, Jun 13, 2014 at 8:20 PM, Larry Willis lwillis82...@gmail.com
wrote:

 Panic attacks. About four years ago I began having them at night. Not as
 frequent as yours, but I still felt like I was going to explode. It was
 horrible. My doc gave me a small dose of Xanax to take at bedtime. I
 haven't had one since. Good luck.


 -- Forwarded message --
 From: *greg* g...@eskimo.com
 Date: Friday, June 13, 2014
 Subject: [QUAD-L] Dreams
 To: quad-list@eskimo.com


 For weeks now I've been waking up every few hours, with panic dreams. My
 heart is racing, pounding. My breathing is heavy, and I feel like I need to
 get up. I haven't changed meds or anything. If it was just waking up in the
 morning like that I could handle it, but it's like 5 times a night. Often I
 think I can't breath. Other times I'm getting chased by a mob, etc. I'm so
 tired.
 Greg




Re: [QUAD-L] Dreams

2014-06-13 Thread RONALD L PRACHT
Another drug that works well to calm you and wont hurt you is lorezapam. You 
can take a 1mg pill and it helps out a lot.

I have dealt with the crazy dreams at night. When Im experiencing pain or when 
im dysreflexic from needing to urinate my dreams get more intense.

One more thing to add is activity during the day to wear you out helps you 
sleep. Obviously your level of function depends on how much you can wear 
yourself out. When I wheel my chair at least a mile or attach my handcycle and 
do a few miles Im in a better mood, less pain and sleep better. Each person can 
probally figure some activity to tire themselves out, maybe a handcycle on a 
table like at rehab or have some 20 min routine you do with moving your arms or 
a light freeweight attached to a cuff. 

There is a guy on youtube that sets up basic simple workout routines for people 
in chairs that require very little. I set  goal for myself of 30 miles each 
month on my attachable rio dragonfly handcycle. I document the miles and write 
it all down. It helps my mind and the pain from my syrinx and hernia.

Good luck
Ron  


On Friday, June 13, 2014 8:23 PM, Quadius quad...@gmail.com wrote:
  


I have been having a similar problem, but not as often. I usually have it a 
couple of times a night. I have found putting my TV on a timer and listening to 
a historical-based documentary has helped me get to sleep without having these 
terrible dreams. If they keep up, I might consider asking for medication.
Quadius




On Fri, Jun 13, 2014 at 8:20 PM, Larry Willis lwillis82...@gmail.com wrote:

Panic attacks. About four years ago I began having them at night. Not as 
frequent as yours, but I still felt like I was going to explode. It was 
horrible. My doc gave me a small dose of Xanax to take at bedtime. I haven't 
had one since. Good luck.


-- Forwarded message --
From: greg g...@eskimo.com
Date: Friday, June 13, 2014
Subject: [QUAD-L] Dreams
To: quad-list@eskimo.com



For weeks now I've been waking up every few hours, with panic dreams. My heart 
is racing, pounding. My breathing is heavy, and I feel like I need to get up. 
I haven't changed meds or anything. If it was just waking up in the morning 
like that I could handle it, but it's like 5 times a night. Often I think I 
can't breath. Other times I'm getting chased by a mob, etc. I'm so tired. 
Greg  


Re: [QUAD-L] Dreams

2014-06-13 Thread RONALD L PRACHT



On Friday, June 13, 2014 10:04 PM, RONALD L PRACHT r.pra...@sbcglobal.net 
wrote:
 



Another drug that works well to calm you and wont hurt you is lorezapam. You 
can take a 1mg pill and it helps out a lot.

I have dealt with the crazy dreams at night. When Im experiencing pain or when 
im dysreflexic from needing to urinate my dreams get more intense.

One more thing to add is activity during the day to wear you out helps you 
sleep. Obviously your level of function depends on how much you can wear 
yourself out. When I wheel my chair at least a mile or attach my handcycle and 
do a few miles Im in a better mood, less pain and sleep better. Each person can 
probally figure some activity to tire themselves out, maybe a handcycle on a 
table like at rehab or have some 20 min routine you do with moving your arms or 
a light freeweight attached to a cuff. 

There is a guy on youtube that sets up basic simple workout routines for people 
in chairs that require very little. I set  goal for myself of 30 miles each 
month on my attachable rio dragonfly handcycle. I document the miles and write 
it all down. It helps my mind and the pain from my syrinx and hernia.

Good luck
Ron  


On Friday, June 13, 2014 8:23 PM, Quadius quad...@gmail.com wrote:
  


I have been having a similar problem, but not as often. I usually have it a 
couple of times a night. I have found putting my TV on a timer and listening to 
a historical-based documentary has helped me get to sleep without having these 
terrible dreams. If they keep up, I might consider asking for medication.
Quadius




On Fri, Jun 13, 2014 at 8:20 PM, Larry Willis lwillis82...@gmail.com wrote:

Panic attacks. About four years ago I began having them at night. Not as 
frequent as yours, but I still felt like I was going to explode. It was 
horrible. My doc gave me a small dose of Xanax to take at bedtime. I haven't 
had one since. Good luck.


-- Forwarded message --
From: greg g...@eskimo.com
Date: Friday, June 13, 2014
Subject: [QUAD-L] Dreams
To: quad-list@eskimo.com



For weeks now I've been waking up every few hours, with panic dreams. My heart 
is racing, pounding. My breathing is heavy, and I feel like I need to get up. 
I haven't changed meds or anything. If it was just waking up in the morning 
like that I could handle it, but it's like 5 times a night. Often I think I 
can't breath. Other times I'm getting chased by a mob, etc. I'm so tired. 
Greg  





   
https://www.youtube.com/watch?v=Lo-zyj89IuU

This guy here is the wheelchair exercise man. He has quite a few videos up. 
Kind of funny, might help some. Fast forward to the part where hes in a chair. 
If anything you can get a laugh, te guy is trying.