Re: [QUAD-L] Sore on rear end.

2015-05-18 Thread wheelchair
Age, diet, smoker? and skin texture.  I hope your RN is certified in  wound 
care.
I hope you continue to do well.
Best Wishes
 
 
In a message dated 5/17/2015 4:09:43 P.M. Central Daylight Time,  
curlyle...@verizon.net writes:

 
I got a sore close to my  tailbone.
My nurse says cover it with gauze and  put silverdine on it everyday. Which 
i have.


What do you guys do when you get  them?.
I use like an egg crate foam on my  chair and can lift myself at times up 
on my elbows.
Dont know why i got a breakdown.
Give me some info please.






Fwd: [QUAD-L] 26 years

2015-05-18 Thread Larry Willis
Wow, Jim, you are a remarkable fellow. Congrats is not strong enough word
for what you have accomplished. I could not do it. I pray that you slug out
another 26.

I became a C2 ventilator dependent quad 26 years ago today due to
transverse myelitis.
Woke up with a sore shoulder, about 2 hrs later the pain got worse. I
suddenly, in a matter of about 15 minutes, could not stand then stopped
breathing. Next thing I remember is being the hospital unable to move or
speak.

Jim


Re: [QUAD-L] 26 years

2015-05-18 Thread wheelchair
Jim, and you changed the World.
Best Wishes
 
 
In a message dated 5/18/2015 1:19:11 A.M. Central Daylight Time,  
jlu...@eskimo.com writes:

I became a C2 ventilator dependent quad 26 years ago today due to  
transverse myelitis.   
Woke up with a sore shoulder, about 2 hrs later the pain got worse. I  
suddenly, in a matter of about 15 minutes, could not stand then stopped  
breathing. Next thing I remember is being the hospital unable to move or  speak.


Jim




Re: [QUAD-L] Sore on rear end.

2015-05-18 Thread Robert Vogel
Hi David,

Larry Willis’s advice is right on the money—every point should be followed.

1. Ditch the egg-crate for a high profile Roho. Make sure it's high profile.
2. Stay off your butt as much as you can.
3. Consume as much protein as you can. Very important. Consider supplements.
4. See a nutritionist, have analysis done to see if you are short on any 
nutrient.
5. Keep seeing wound care folks so they can monitor.

Adding my two cents: When I was first injured, back in 85’, I asked for a ROHO, 
instead I was sent home
on a memory foam cushion.  Despite constant weight shifts, within 6 months I 
got a small pressure sore
(size of a pencil eraser) on my right ischium.  I spent three months staying 
off of
it and trying to heal it on my own-- with no improvement.  Then I got my doc to 
write a prescription for
a high profile ROHO, and referral to a wound care clinic.  The combination of 
the cushion and wound care
specialist got the sore to  heal within 1-month.

Now, 30 years post injury, my butt is skin and bones, plus I have a pelvic 
obliquity (my right ischium sits 1 1/2” higher
than my left)-- so bad that the left ischium gets red after sitting up in bed 
for a couple minutes.  I protect my skin by
using a ROHO Quadtro Select high profile cushion. Nightly mirror skin checks 
every show that the ROHO  protects
my skin, with no red areas.

Bob V



 On May 18, 2015, at 5:28 AM, wheelch...@aol.com wrote:
 
 Age, diet, smoker? and skin texture.  I hope your RN is certified in wound 
 care.
 I hope you continue to do well.
 Best Wishes
  
 In a message dated 5/17/2015 4:09:43 P.M. Central Daylight Time, 
 curlyle...@verizon.net writes:
 I got a sore close to my tailbone.
 My nurse says cover it with gauze and put silverdine on it everyday. Which i 
 have.
 
 What do you guys do when you get them?.
 I use like an egg crate foam on my chair and can lift myself at times up on 
 my elbows.
 Dont know why i got a breakdown.
 Give me some info please.
 



Re: [QUAD-L] 26 years

2015-05-18 Thread Gmail
I can honestly say I love you and your heart. 


Smile Everyday

 On May 18, 2015, at 2:19 AM, Jim Lubin jlu...@eskimo.com wrote:
 
 I became a C2 ventilator dependent quad 26 years ago today due to transverse 
 myelitis. 
 Woke up with a sore shoulder, about 2 hrs later the pain got worse. I 
 suddenly, in a matter of about 15 minutes, could not stand then stopped 
 breathing. Next thing I remember is being the hospital unable to move or 
 speak.
 
 Jim



RE: [QUAD-L] 26 years

2015-05-18 Thread Joan Anglin
You have made an enormous contribution to the world Jim. The fundraiser you get 
involved with, this board, the fantastic advice you give people. I would only 
hope that I can perhaps make the change in other people in my little corner of 
the world such as you have made. Thanks for being you. Joan

 

From: jlu...@makoa.org [mailto:jlu...@makoa.org] On Behalf Of Jim Lubin
Sent: Sunday, May 17, 2015 11:19 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] 26 years

 

I became a C2 ventilator dependent quad 26 years ago today due to transverse 
myelitis. 

Woke up with a sore shoulder, about 2 hrs later the pain got worse. I suddenly, 
in a matter of about 15 minutes, could not stand then stopped breathing. Next 
thing I remember is being the hospital unable to move or speak.

 

Jim



Re: [QUAD-L] 26 years

2015-05-18 Thread Gmail
BTW. Thanks for the Quad ListBobbie

Smile Everyday

 On May 18, 2015, at 12:16 PM, Joan Anglin poaj...@sbcglobal.net wrote:
 
 You have made an enormous contribution to the world Jim. The fundraiser you 
 get involved with, this board, the fantastic advice you give people. I would 
 only hope that I can perhaps make the change in other people in my little 
 corner of the world such as you have made. Thanks for being you. Joan
  
 From: jlu...@makoa.org [mailto:jlu...@makoa.org] On Behalf Of Jim Lubin
 Sent: Sunday, May 17, 2015 11:19 PM
 To: quad-list@eskimo.com
 Subject: [QUAD-L] 26 years
  
 I became a C2 ventilator dependent quad 26 years ago today due to transverse 
 myelitis. 
 Woke up with a sore shoulder, about 2 hrs later the pain got worse. I 
 suddenly, in a matter of about 15 minutes, could not stand then stopped 
 breathing. Next thing I remember is being the hospital unable to move or 
 speak.
  
 Jim


[QUAD-L] 26 years

2015-05-18 Thread Jim Lubin
I became a C2 ventilator dependent quad 26 years ago today due to
transverse myelitis.
Woke up with a sore shoulder, about 2 hrs later the pain got worse. I
suddenly, in a matter of about 15 minutes, could not stand then stopped
breathing. Next thing I remember is being the hospital unable to move or
speak.

Jim