Re: [QUAD-L] Pressure sores

[Eric Olson]

If your going to do the protein thing, I suggest buying a hand-held stick
blender and buying whey protein in bulk.  You can get it in 2-5 pound
containers.  My problem is to much of an appetite.


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Thu, Mar 28, 2019 at 6:08 PM Eric Olson  wrote:

> I always advise anyone with a sore to first and foremost, stay off of it.
> I know staying in bed sucks but you have to for the area to heal.  Where
> are the sores on your hips?  If there not from sitting, maybe the pressure
> is from whatever your sleeping on.  I think you should see a wound care
> doctor.  I have heard good things about a wound vac.  Whenever I'm on my
> back, I have my caregivers pull my knees up towards my head and out to the
> side.  Fold a pillow in half under each knee for support.  It makes me look
> like I'm pretending to be a frog. It takes pressure off the bottom of your
> butt.  I use a roho cushion and sleep on a memory foam mattress.  So far,
> I've been alright with this combo as far as sores goes.  Now if I could
> just get the rest of my shit straight.  LOL
>
>
> 
>  Virus-free.
> www.avast.com
> 
> <#m_-1417834397646014598_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>
> On Thu, Mar 28, 2019 at 3:36 PM Greg  wrote:
>
>> I eat Protein Bars 20g.
>> My helper also makes Peanut Butter Cookies, using Peanut Butter /
>> Chocolate Protein Powder instead of Flower. Tastes great.
>> Also drink lots of water.
>> And see a Wound Doctor if you are not. It must be cleaned and debrided
>> often.
>>
>> Greg
>>
>> On 3/28/2019 1:25 PM, Danny Hearn wrote:
>>
>> Judy..if you don't eat a lot try Protein Shakes. There are many types
>> and flavors such as Boost- these are excellent for this. Dan H.***
>>
>> On Thursday, March 28, 2019, 3:19:28 PM CDT, Judy Meredith
>>   wrote:
>>
>>
>> Hi all,
>> It has been awhile since I have been on this list due to my e-mails
>> bouncing or something. However I finally got a new address and I hope some
>> of you remember me.
>>   I have a question for all of you. I have 3 pressure sores, one on each
>> hip that are not bad but one on my butt that has tunneled about 6
>> centimeters but is almost closed. Any suggestions? I have been told that I
>> need protein and to gain weight but I am not able to eat a lot because I
>> feel nauseous and depressed. Please any advice would be appreciated.
>>
>> Meredith
>>
>>
>>

Re: [QUAD-L] Pressure sores

[Eric Olson]

I always advise anyone with a sore to first and foremost, stay off of it.
I know staying in bed sucks but you have to for the area to heal.  Where
are the sores on your hips?  If there not from sitting, maybe the pressure
is from whatever your sleeping on.  I think you should see a wound care
doctor.  I have heard good things about a wound vac.  Whenever I'm on my
back, I have my caregivers pull my knees up towards my head and out to the
side.  Fold a pillow in half under each knee for support.  It makes me look
like I'm pretending to be a frog. It takes pressure off the bottom of your
butt.  I use a roho cushion and sleep on a memory foam mattress.  So far,
I've been alright with this combo as far as sores goes.  Now if I could
just get the rest of my shit straight.  LOL


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Thu, Mar 28, 2019 at 3:36 PM Greg  wrote:

> I eat Protein Bars 20g.
> My helper also makes Peanut Butter Cookies, using Peanut Butter /
> Chocolate Protein Powder instead of Flower. Tastes great.
> Also drink lots of water.
> And see a Wound Doctor if you are not. It must be cleaned and debrided
> often.
>
> Greg
>
> On 3/28/2019 1:25 PM, Danny Hearn wrote:
>
> Judy..if you don't eat a lot try Protein Shakes. There are many types
> and flavors such as Boost- these are excellent for this. Dan H.***
>
> On Thursday, March 28, 2019, 3:19:28 PM CDT, Judy Meredith
>   wrote:
>
>
> Hi all,
> It has been awhile since I have been on this list due to my e-mails
> bouncing or something. However I finally got a new address and I hope some
> of you remember me.
>   I have a question for all of you. I have 3 pressure sores, one on each
> hip that are not bad but one on my butt that has tunneled about 6
> centimeters but is almost closed. Any suggestions? I have been told that I
> need protein and to gain weight but I am not able to eat a lot because I
> feel nauseous and depressed. Please any advice would be appreciated.
>
> Meredith
>
>
>

RE: [QUAD-L] Pressure sores

[poajoan]

Welcome back Meredith

I can empathize with you about not wanting to eat, especially enough protein.  
I never eat enough at meals to make my daily quota.  You can figure 1/3 g of 
protein daily for each pound that you weigh.  I supplement with a protein drink 
(don’t like Wal-Mart, but I do like their Equate vanilla more than most and it 
has 30 g) .  I don’t care for yogurt, so I eat Oikas Greek yogurt as a medicine 
 15 g.  That gives me 45 g per day, luckily I like cheese and eggs, cottage 
cheese, nuts, and vegetables.  I consider the yogurt and protein drink 
medicine, so I usually eat them in-between meals.  I hope that helps

I don’t suffer from depression but my oldest daughter has and has found 
walnuts, beans, poultry, help her keep more evenly balanced.  Especially 
staying away from sugars.

Good luck, I don’t know where you live but for me and Reno we’re looking 
forward to better weather, hopefully no more snow and very little more rain for 
a while.  Sunshine is my antidote to everything.

Joan

 

Life is 10% of what happens to us and 90% how we react to it.

 

 

 

From: Judy Meredith  
Sent: Thursday, March 28, 2019 1:19 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Pressure sores

 

Hi all, 

It has been awhile since I have been on this list due to my e-mails bouncing or 
something. However I finally got a new address and I hope some of you remember 
me. 

  I have a question for all of you. I have 3 pressure sores, one on each hip 
that are not bad but one on my butt that has tunneled about 6 centimeters but 
is almost closed. Any suggestions? I have been told that I need protein and to 
gain weight but I am not able to eat a lot because I feel nauseous and 
depressed. Please any advice would be appreciated.

 

Meredith  

Re: [QUAD-L] Pressure sores

[Greg]

I eat Protein Bars 20g.
My helper also makes Peanut Butter Cookies, using Peanut Butter / 
Chocolate Protein Powder instead of Flower. Tastes great.

Also drink lots of water.
And see a Wound Doctor if you are not. It must be cleaned and debrided 
often.


Greg

On 3/28/2019 1:25 PM, Danny Hearn wrote:
Judy..if you don't eat a lot try Protein Shakes. There are many 
types and flavors such as Boost- these are excellent for this. Dan H.***


On Thursday, March 28, 2019, 3:19:28 PM CDT, Judy Meredith 
 wrote:



Hi all,
It has been awhile since I have been on this list due to my e-mails 
bouncing or something. However I finally got a new address and I hope 
some of you remember me.
  I have a question for all of you. I have 3 pressure sores, one on 
each hip that are not bad but one on my butt that has tunneled about 6 
centimeters but is almost closed. Any suggestions? I have been told 
that I need protein and to gain weight but I am not able to eat a lot 
because I feel nauseous and depressed. Please any advice would be 
appreciated.


Meredith

Re: [QUAD-L] Pressure sores

[Danny Hearn]

 Judy..if you don't eat a lot try Protein Shakes. There are many types and 
flavors such as Boost- these are excellent for this. Dan H.***
On Thursday, March 28, 2019, 3:19:28 PM CDT, Judy Meredith 
 wrote:  
 
 Hi all, It has been awhile since I have been on this list due to my e-mails 
bouncing or something. However I finally got a new address and I hope some of 
you remember me.   I have a question for all of you. I have 3 pressure sores, 
one on each hip that are not bad but one on my butt that has tunneled about 6 
centimeters but is almost closed. Any suggestions? I have been told that I need 
protein and to gain weight but I am not able to eat a lot because I feel 
nauseous and depressed. Please any advice would be appreciated.
Meredith    

[QUAD-L] Pressure sores

[Judy Meredith]

Hi all,
It has been awhile since I have been on this list due to my e-mails
bouncing or something. However I finally got a new address and I hope some
of you remember me.
  I have a question for all of you. I have 3 pressure sores, one on each
hip that are not bad but one on my butt that has tunneled about 6
centimeters but is almost closed. Any suggestions? I have been told that I
need protein and to gain weight but I am not able to eat a lot because I
feel nauseous and depressed. Please any advice would be appreciated.

Meredith

Re: [QUAD-L] Sore

[Eric Olson]

I live in Zubaz. https://zubaz.com/  They were popular in the 80's.  I only
wear jeans if I'm going somewhere (movie, restaurant etc.).  Jeans are just
plain hard on your skin.  Zubaz are lightweight, don't hold in heat like
sweat pants and come in funky colors/patterns.  You can even get sports
teams (although those can be pricey).  I like the urban camo.  Goes with
everything, but don't have it extra large right now.  Check out the sale
section if you're interested


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Wed, Mar 27, 2019 at 9:31 PM Robert Vogel  wrote:

> Hi Greg,
>
> My ‘2-cents’, check out GlideWear underwear and/or shorts. They have a two
> layer backside that
> ‘slides against each other’ thus removing most shear. They also make
> custom cushion covers.
>
> Here is a link to an article I wrote about the shorts for New Mobility
> magazine. I’m 34-years into
> being a T10 complete para and I wear GlideWear exclusively.
> http://www.newmobility.com/2017/11/glidewear-skin-protection-underwear/
>
> Bob V
>
> On Mar 27, 2019, at 7:24 PM, Greg  wrote:
>
> I have a small butt sore, been going to the wound doc once a week to get
> debrided. It was just a surface wound, like a sheered area of skin. It was
> 66% healed on Mon. Today its twice as big as when it started. Something
> caused sheer, but only sometimes. Wearing jeans 1 day is what caused the
> sore. Doc said it looked like sheer, not pressure.
>
> Greg
>
>
>

[QUAD-L] Support S.651 ABLE Age Adjustment Act

[Jim Lubin]

Support S.651 ABLE Age Adjustment Act
United Spinal supports the ABLE Age Adjustment Act, S.651, which would
increase the age of onset of disability from up to the age of 26 to up to
the age of 46, adding millions of new potential ABLE account holders into
the pool of eligible individuals. ABLE accounts are tax-advantaged savings
accounts for individuals with disabilities and their families which can
cover disability-related expenses such as education, housing,
transportation, employment support and other support expenses.

https://www.unitedspinal.org/advocacy-action/?vvsrc=%2fcampaigns%2f60168%2frespond