RE: [QUAD-L] Living Arrangements
I know what you mean. At one time I was having a lot of trouble with my gut. And of course it often happened at night. How can I call lifeline and tell them I needed to take a dump. Or sometimes, like you said, you just need a leg or an arm moved. Lots of us have spent many a long night. Dan At 05:35 PM 10/15/2009, Greg said something that elicited my response: I could go through the day without much help, but at least once every couple weeks I start to spasm and sweat at night real bad. I need to get moved just a bit, or my cath is twisted, etc. I'd have to, but would feel funny calling LifeLine saying I need to move my leg a bit. I've tried waiting it out a few times, but it really gets bad if I wait too long. Greg -- 10 hours of daytime help. Alone at night but I do have a LifeLine button.
Re: [QUAD-L] Living Arrangements
wow! You really lucked out. We all should be so lucky. Dan At 07:13 PM 10/15/2009, Merrill said something that elicited my response: I have been alone on this trip of being a quad of C-5 since 1990. As many disable are, my income is a minimum to work with. When first injured I have been to my own demise without much money. A hospital psychiatrist refused to allow me be discharged to a nursing home, and worked with me to problem solve another challenge in life. At a loss what to do I somehow had a trust in life and in people. Not having the faith of doing this alone I wrote a classified ad in a local news paper for someone qualified in nursing care to take me in. Life has been rough, and life has had mercy but I have been able to maintain a standard of living. I used this method again ten years ago when I was fortunate to move in with a nurse who had a baby and did not want to return to work. So our needs have helped each other. I pay her $2,000 a month for food, care and lodging, living in a back room. My goal and want has often been to be even more independent on my own. For years I have had medical problems interfering with that goal. My livng situation here is fortunate for being so ill. -- From: Daniel Espinoza [mailto:stati...@roadrunner.com] Sent: Wednesday, October 14, 2009 12:50 AM To: ladyno...@aol.com; quad-list@eskimo.com Subject: RE: [QUAD-L] Living Arrangements I live with my family for now, I want to move out eventually and get my own place but it's so expensive here I don't see how I can. From: ladyno...@aol.com [mailto:ladyno...@aol.com] Sent: Tuesday, October 13, 2009 4:00 PM To: quad-list@eskimo.com Subject: [QUAD-L] Living Arrangements I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis
RE: [QUAD-L] Living Arrangements
Fantastic story Corie Your family sounds fantastic as mine. You have a great time with those little minds. One step at a time and we will reeducate and brain wash the children into believing that crips in wheelchairs are as good if not better than anybody else. J Joan What you do for yourself dies with you. What you do for others, lives forever.
Re: [QUAD-L] Living Arrangements
i have same program here in tx it's called medicaid buy in program i love it cause there finally helping those who want to help themselves and can wk. From: Don Price donpric...@yahoo.com To: Joan Anglin poaj...@sbcglobal.net; quad-list@eskimo.com Sent: Wed, October 14, 2009 3:29:35 PM Subject: Re: [QUAD-L] Living Arrangements I lived in an accessible, subsidized apartment for 15 years, in Tempe, AZ. I was within rolling distance of AZ State University, and I got my degree from there. I lived alone in the small apartment but had caregivers that came in the morning and at night [and were a phone call away if I needed them during the day.] I also developed a network of friends that were willing to help me. Once I got a degree and found a job I was able to purchase a townhome in Tempe, and one of my friends became a live-in caregiver. My caregiver gets paid by AZ Long-Terms Care, which is under our state's Medicaid programs called Arizona Health Care Cost Containment System [AHCCCS.] We have a program here in AZ called Freedom to Work which allows me to work full time and still receive my Medicaid, while only paying a small premium (I pay $30/month.) It's a great program. So, I have a live-in caregiver, my own accessible home, and everything works out prety well. Don Price c5-6 Tempe, AZ
RE: [QUAD-L] Living Arrangements
I could go through the day without much help, but at least once every couple weeks I start to spasm and sweat at night real bad. I need to get moved just a bit, or my cath is twisted, etc. I'd have to, but would feel funny calling LifeLine saying I need to move my leg a bit. I've tried waiting it out a few times, but it really gets bad if I wait too long. Greg _ 10 hours of daytime help. Alone at night but I do have a LifeLine button.
[QUAD-L] Living Arrangements
I have been alone on this trip of being a quad of C-5 since 1990. As many disable are, my income is a minimum to work with. When first injured I have been to my own demise without much money. A hospital psychiatrist refused to allow me be discharged to a nursing home, and worked with me to problem solve another challenge in life. At a loss what to do I somehow had a trust in life and in people. Not having the faith of doing this alone I wrote a classified ad in a local news paper for someone qualified in nursing care to take me in. Life has been rough, and life has had mercy but I have been able to maintain a standard of living. I used this method again ten years ago when I was fortunate to move in with a nurse who had a baby and did not want to return to work. So our needs have helped each other. I pay her $2,000 a month for food, care and lodging, living in a back room. My goal and want has often been to be even more independent on my own. For years I have had medical problems interfering with that goal. My livng situation here is fortunate for being so ill. _ From: Daniel Espinoza [mailto:stati...@roadrunner.com] Sent: Wednesday, October 14, 2009 12:50 AM To: ladyno...@aol.com; quad-list@eskimo.com Subject: RE: [QUAD-L] Living Arrangements I live with my family for now, I want to move out eventually and get my own place but it's so expensive here I don't see how I can. From: ladyno...@aol.com [mailto:ladyno...@aol.com] Sent: Tuesday, October 13, 2009 4:00 PM To: quad-list@eskimo.com Subject: [QUAD-L] Living Arrangements I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis
RE: [QUAD-L] Living Arrangements
I live with my family for now, I want to move out eventually and get my own place but it's so expensive here I don't see how I can. From: ladyno...@aol.com [mailto:ladyno...@aol.com] Sent: Tuesday, October 13, 2009 4:00 PM To: quad-list@eskimo.com Subject: [QUAD-L] Living Arrangements I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis
Re: [QUAD-L] Living Arrangements
Hey guys, I live in an apt. alone. I have a Home health service that comes in for 4hrs every morning and evening,which works out just fine. I'm on my own during the day. Lindaf
RE: [QUAD-L] Living Arrangements
How do you afford it? Daniel I prefer Danny Espinoza 26/m/California Occupation before accident: Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 with donor bone at c2, I have a traumatic brain injury from blood going to my brain from my spinal cord. I am not vent dependendent anymore! :] My myspace address - http://www.myspace.com/dannylnx http://www.myspace.com/dannylnx My spinal cord injury support website - http://spinalcordinjured.net/ http://spinalcordinjured.net My spinal cord injury support website is still a work in progress... I am looking for help with it, send me an e-mail if you're interested in helping! From: linda...@comcast.net [mailto:linda...@comcast.net] Sent: Wednesday, October 14, 2009 12:02 PM To: Quad-list@eskimo.com Subject: Re: [QUAD-L] Living Arrangements Hey guys, I live in an apt. alone. I have a Home health service that comes in for 4hrs every morning and evening,which works out just fine. I'm on my own during the day. Lindaf
RE: [QUAD-L] Living Arrangements
I am fortunate enough to live in my own home. My son in law and friends built it to my specifications seven years ago. So far I am able to get along with a personal care attendant for 3 to 4 hours in the morning, and then 1 hour in the evening. I have two mentally retarded adults that live with me, and I am a good supervisor so can instruct them what to do to finish dinner etc. I have very carefully built up a large network of people that I can call on in case of emergency, and my youngest set of grandchildren live with their mom 50% of the time, so they are in and out all the time when they are with their mother. We carefully set everything out before my PCA leaves in the morning-a drink that I can drive up to, my laptop with voice recognition, my environmental control unit so that I can open the doors or turn on TV if I want to, my old desktop computer with a mouth stick, my cell phone, a couple of snacks that I can drive up to and lean forward (for the most part it works) and get a snack, and most important for me a book to read with my mouth stick positioned correctly. Even so, there are days when the time just drags by between 8:30 AM and 4:00 PM when somebody comes back to the house. Luckily we are usually in the midst of a building project of some sort, so I do a lot of designing in my mind, and when I have it pretty well laid out I go to the old computer and draw it out. As my mother in law always said if you would stop thinking so much we all would have a lot less to do. It's still pretty true, but so far I still wake up with projects to do and a whole mess of things to look up on the Internet that I thought up during the night. Life is still exciting, and I am not ready to let go. Joan What you do for yourself dies with you. What you do for others, lives forever.
Re: [QUAD-L] Living Arrangements
I lived in an accessible, subsidized apartment for 15 years, in Tempe, AZ. I was within rolling distance of AZ State University, and I got my degree from there. I lived alone in the small apartment but had caregivers that came in the morning and at night [and were a phone call away if I needed them during the day.] I also developed a network of friends that were willing to help me. Once I got a degree and found a job I was able to purchase a townhome in Tempe, and one of my friends became a live-in caregiver. My caregiver gets paid by AZ Long-Terms Care, which is under our state's Medicaid programs called Arizona Health Care Cost Containment System [AHCCCS.] We have a program here in AZ called Freedom to Work which allows me to work full time and still receive my Medicaid, while only paying a small premium (I pay $30/month.) It's a great program. So, I have a live-in caregiver, my own accessible home, and everything works out prety well. Don Price c5-6 Tempe, AZ
Re: [QUAD-L] Living Arrangements
I live with my caregiver who does my care 24/7. I pay her rent for my room and the BSCIP pays her for my care. I've been here 6 years and it has worked out very well. Bill --The one in FL C6 Incomplete since 7/20/68 Age 58 Leesburg, FL Live your life in such a way that when your feet hit the floor in the morning, Satan says, Oh shit! He's awake! - Original Message - From: ladyno...@aol.com To: quad-list@eskimo.com Sent: Tuesday, October 13, 2009 6:59 PM Subject: [QUAD-L] Living Arrangements I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis avast! Antivirus: Inbound message clean. Virus Database (VPS): 091013-0, 10/13/2009 Tested on: 10/14/2009 4:15:27 PM avast! - copyright (c) 1988-2009 ALWIL Software.
[QUAD-L] Living Arrangements
I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis
Re: [QUAD-L] Living Arrangements
i live alone w/ service dog (mainly picking stuff up i drop) have self hired/paid help 2-3hr am put me in bed pm Eric W Rudd c5sc...@gmail.com - Original Message - From: ladyno...@aol.com To: quad-list@eskimo.com Sent: Tuesday, October 13, 2009 5:59 PM Subject: [QUAD-L] Living Arrangements I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis
Re: [QUAD-L] Living Arrangements
i live alone Lucinda C-4,5 complete July 31, '05 Mpls., MN --- On Tue, 10/13/09, ladyno...@aol.com ladyno...@aol.com wrote: From: ladyno...@aol.com ladyno...@aol.com Subject: [QUAD-L] Living Arrangements To: quad-list@eskimo.com Date: Tuesday, October 13, 2009, 5:59 PM I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis
Re: [QUAD-L] Living Arrangements
apparently i missed the question...yes u should be able to live on ur own Eric W Rudd c5sc...@gmail.com - Original Message - From: LJT To: quad-list@eskimo.com ; ladyno...@aol.com Sent: Tuesday, October 13, 2009 9:50 PM Subject: Re: [QUAD-L] Living Arrangements i live alone Lucinda C-4,5 complete July 31, '05 Mpls., MN --- On Tue, 10/13/09, ladyno...@aol.com ladyno...@aol.com wrote: From: ladyno...@aol.com ladyno...@aol.com Subject: [QUAD-L] Living Arrangements To: quad-list@eskimo.com Date: Tuesday, October 13, 2009, 5:59 PM I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis
RE: [QUAD-L] Living Arrangements
Everything is so expensive these days, I had to move back home to Mexico because my SSI wasn't enough to live on and now I lost it but I'm still better off, at least I don't have to pay rent and I have my mom to take care of me Lissette Whitehead 1177 Broadway Suite #4 Chula Vista, CA 91911 www.lissettesgoaltowalk.synthasite.com www.lwgripgloves.com From: c5sc...@gmail.com To: quad-list@eskimo.com Subject: Re: [QUAD-L] Living Arrangements Date: Tue, 13 Oct 2009 21:53:53 -0500 apparently i missed the question...yes u should be able to live on ur own Eric W Rudd c5sc...@gmail.com - Original Message - From: LJT To: quad-list@eskimo.com ; ladyno...@aol.com Sent: Tuesday, October 13, 2009 9:50 PM Subject: Re: [QUAD-L] Living Arrangements i live alone Lucinda C-4,5 complete July 31, '05 Mpls., MN --- On Tue, 10/13/09, ladyno...@aol.com ladyno...@aol.com wrote: From: ladyno...@aol.com ladyno...@aol.com Subject: [QUAD-L] Living Arrangements To: quad-list@eskimo.com Date: Tuesday, October 13, 2009, 5:59 PM I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis _ Hotmail: Powerful Free email with security by Microsoft. http://clk.atdmt.com/GBL/go/171222986/direct/01/
