RE: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread Danny Espinoza
I have a Supra-Pubic Catheter and get infections about once every 2 months
it really sucks. I take  Vitamin C and  Cranberry Pills and cant figure
out how to stop them either! L

 

Danny Espinoza 24/m/California

Occupation before accident - Network engineer / SR. Network security
engineer

Broke c2,c6,c7 and doner  bone at c2

TBI from blood going to central cortex from spinal cord

off a vent woohoo however only one diaphragm works right now due to

asymmetric SCI

 

http://secureminds.us/

 

 

 

From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Friday, March 07, 2008 8:02 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] UTI and ETC Help Aids

 

Hello  Gang, I was wondering how many use these products --- (1) D Mannose--
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple
Cider Vinegar   I get UTI 's all the Time  and the only One of these I
have not Tried is  Collodial Silver. { I stay faithfull on the cranberry
and vitamin C } but never go long without bad UTI trouble.   I have a
Supra-Pubic Catheter and doctors say there will always be infection trouble,
But don't some of you with indwelling Catheters go long periods between
serious UTI infections???  It's hard to be able to live in pain but always
worry about infection killing you.

 Thanks All!!
Dan H. - Saint Louis, Mo. c-6

   



Re: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread wheelchair
Your cultures should reveal the source if its hygiene related. Washing and  
cleaning around the area is important and sweating in that area should be  
contolled.
Best Wishes
 
 
In a message dated 3/7/2008 10:40:19 A.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

I  have a Supra-Pubic Catheter and get infections about once every  2 months “
it really sucks”. I take  Vitamin C and  Cranberry Pills  and cant figure out 
how to stop them either! L 
Danny  Espinoza  24/m/California




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FW: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread Merrill Burghardt
 

 

Hello Danny,

 

The tests done on cranberry was on fresh juice not pill form.  The Colloidal
Silver has had my attention lately.  Seems the more I read the less
consistent the literature is.  I think there is something to it if I can
ever figure it out.  Every info source contradicts the next.

 

In the past I wore externals.  UTIs were like two in three months.  My
doctors were always on me to get a SP which I did last April in which time
I've had two UTIs.  Every doctor or person with a SP says that this is the
best thing you can do for yourself.  The catheter is changed every six
weeks.  The site is cleaned daily and triple action antibiotic jell is also
put around the site.

 

I drink horsetail tea daily which is a weed bought cheaply or found.  Tastes
like the cob on corn on the cob.  Drunk also as tea is the silk from the
cob.  Freshness opposed to capsules is important.

 

Actually I have had more than two UTIs since last year but they required
antibiotics.  One item you failed to mention to do is drink, drink, drink
fluids, even throughout the night.  If I do not drink enough then I will
come down with an infection. 

 

Merrill

 

  _  

From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Friday, March 07, 2008 8:02 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] UTI and ETC Help Aids

 

Hello  Gang, I was wondering how many use these products --- (1) D Mannose--
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple
Cider Vinegar   I get UTI 's all the Time  and the only One of these I
have not Tried is  Collodial Silver. { I stay faithfull on the cranberry
and vitamin C } but never go long without bad UTI trouble.   I have a
Supra-Pubic Catheter and doctors say there will always be infection trouble,
But don't some of you with indwelling Catheters go long periods between
serious UTI infections???  It's hard to be able to live in pain but always
worry about infection killing you.

 Thanks All!!
Dan H. - Saint Louis, Mo. c-6

   



FW: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread Merrill Burghardt
Danny,

 

I forgot to suggest that you ask your doctor for Oxybutin which shrinks the
bladder thus less urine to pool.

 

mb

 

  _  

From: Merrill Burghardt [mailto:[EMAIL PROTECTED] 
Sent: Friday, March 07, 2008 12:11 PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] UTI and ETC Help Aids

 

 

 

Hello Danny,

 

The tests done on cranberry was on fresh juice not pill form.  The Colloidal
Silver has had my attention lately.  Seems the more I read the less
consistent the literature is.  I think there is something to it if I can
ever figure it out.  Every info source contradicts the next.

 

In the past I wore externals.  UTIs were like two in three months.  My
doctors were always on me to get a SP which I did last April in which time
I've had two UTIs.  Every doctor or person with a SP says that this is the
best thing you can do for yourself.  The catheter is changed every six
weeks.  The site is cleaned daily and triple action antibiotic jell is also
put around the site.

 

I drink horsetail tea daily which is a weed bought cheaply or found.  Tastes
like the cob on corn on the cob.  Drunk also as tea is the silk from the
cob.  Freshness opposed to capsules is important.

 

Actually I have had more than two UTIs since last year but they required
antibiotics.  One item you failed to mention to do is drink, drink, drink
fluids, even throughout the night.  If I do not drink enough then I will
come down with an infection. 

 

Merrill

 

  _  

From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Friday, March 07, 2008 8:02 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] UTI and ETC Help Aids

 

Hello  Gang, I was wondering how many use these products --- (1) D Mannose--
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple
Cider Vinegar   I get UTI 's all the Time  and the only One of these I
have not Tried is  Collodial Silver. { I stay faithfull on the cranberry
and vitamin C } but never go long without bad UTI trouble.   I have a
Supra-Pubic Catheter and doctors say there will always be infection trouble,
But don't some of you with indwelling Catheters go long periods between
serious UTI infections???  It's hard to be able to live in pain but always
worry about infection killing you.

 Thanks All!!
Dan H. - Saint Louis, Mo. c-6

   



Re: FW: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread Danny Hearn
Thanks ,,Merrill-  I use oxybutinin as needed and I take cranberry pills and or 
drink the juice a lot. I do drink lots of water because I know its needed. I 
think i'm more at risk having Diabetes and having the supra-pubicthe 
doctors told me that both those increase my UTI and infection troubles.
Dan 
H. 

Merrill Burghardt [EMAIL PROTECTED] wrote:
v\:* {behavior:url(#default#VML);}  o\:* {behavior:url(#default#VML);}  
w\:* {behavior:url(#default#VML);}  .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }Danny,
   
  I forgot to suggest that you ask your doctor for Oxybutin which shrinks the 
bladder thus less urine to pool.
   
  mb
   

-
  
  From: Merrill Burghardt [mailto:[EMAIL PROTECTED] 
Sent: Friday, March 07, 2008 12:11 PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] UTI and ETC Help Aids

   
   

   
  Hello Danny,
   
  The tests done on cranberry was on fresh juice not pill form.  The Colloidal 
Silver has had my attention lately.  Seems the more I read the less consistent 
the literature is.  I think there is something to it if I can ever figure it 
out.  Every info source contradicts the next.
   
  In the past I wore externals.  UTIs were like two in three months.  My 
doctors were always on me to get a SP which I did last April in which time I’ve 
had two UTIs.  Every doctor or person with a SP says that this is the best 
thing you can do for yourself.  The catheter is changed every six weeks.  The 
site is cleaned daily and triple action antibiotic jell is also put around the 
site.
   
  I drink horsetail tea daily which is a weed bought cheaply or found.  Tastes 
like the cob on corn on the cob.  Drunk also as tea is the silk from the cob.  
Freshness opposed to capsules is important.
   
  Actually I have had more than two UTIs since last year but they required 
antibiotics.  One item you failed to mention to do is drink, drink, drink 
fluids, even throughout the night.  If I do not drink enough then I will come 
down with an infection. 
   
  Merrill
   

-
  

  From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Friday, March 07, 2008 8:02 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] UTI and ETC Help Aids

   
Hello  Gang, I was wondering how many use these products --- (1) D 
Mannose-- (2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) 
Apple Cider Vinegar   I get UTI 's all the Time  and the only One of these 
I have not Tried is  Collodial Silver. { I stay faithfull on the cranberry 
and vitamin C } but never go long without bad UTI trouble.   I have a 
Supra-Pubic Catheter and doctors say there will always be infection trouble,  
But don't some of you with indwelling Catheters go long periods between serious 
UTI infections???  It's hard to be able to live in pain but always worry about 
infection killing you.

 Thanks All!!   
  Dan H. - Saint Louis, Mo. c-6

   







Re: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread John S.
Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is 
doing your personal care must scrub and use sterile gloves when changing your 
cath. If they have kids or love houseplants, they need dipped in liquid 
sterilizer.  If you can keep your bladder acidic then you should be able to ask 
your doc about using Mandelamine. Great anti infective but doctors are afraid 
patients won't keep their urine acid. 
I'll suggest this again and you can ignore me. Get a very small leg bag and 
keep it attached to your indwelling catheter. Attach your leg bag and bed bag 
to it. It adds an anti backflow barrier at the usual point of infection. Handy 
for seeing if your urine is starting to look bad or to get samples for tests. 
All my best,
john
 
- Original Message 
From: Danny Hearn [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC Help Aids

Hello  Gang, I was wondering how many use these products --- (1) D Mannose-- 
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider 
Vinegar   I get UTI 's all the Time  and the only One of these I have not 
Tried is  Collodial Silver. { I stay faithfull on the cranberry and vitamin C 
} but never go long without bad UTI trouble.   I have a Supra-Pubic Catheter 
and doctors say there will always be infection trouble,  But don't some of you 
with indwelling Catheters go long periods between serious UTI infections???  
It's hard to be able to live in pain but always worry about infection killing 
you.
   Thanks All!! 
Dan H. - Saint Louis, Mo. c-6
 






  

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RE: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread Jim Lubin
How much Vitamin C do you take? I take 1000mg x 3 daily. Haven't had 
a UTI in about 15 years. Only had a cold once about 8 years ago.


Jim
C2 vent dependent quad due to acute transverse myelitis in 1989.

At 08:51 AM 3/7/2008, Danny Espinoza wrote:

I have a Supra-Pubic Catheter and get infections about once every 2 
months it really sucks. I take  Vitamin C and  Cranberry Pills and 
cant figure out how to stop them either! L






Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org





FW: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread Merrill Burghardt
I also take C 500mg a day with Methylamine Mandelate for UTI's.  No
substitute for fluids.  Do it all.

 

Merrill

 

  _  

From: Jim Lubin [mailto:[EMAIL PROTECTED] 
Sent: Friday, March 07, 2008 5:14 PM
To: Danny Espinoza; 'Danny Hearn'; quad-list@eskimo.com
Subject: RE: [QUAD-L] UTI and ETC Help Aids

 

How much Vitamin C do you take? I take 1000mg x 3 daily. Haven't had a UTI
in about 15 years. Only had a cold once about 8 years ago. 

Jim
C2 vent dependent quad due to acute transverse myelitis in 1989.

At 08:51 AM 3/7/2008, Danny Espinoza wrote:




I have a Supra-Pubic Catheter and get infections about once every 2 months
it really sucks. I take  Vitamin C and  Cranberry Pills and cant figure
out how to stop them either! L

 


Jim Lubin   
[EMAIL PROTECTED]
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org http://www.makoa.org/ 







Re: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread Stacy Harim
How do you attatch your leg bag and bed bag?  The leg bag where it empties is 
either losens to empty or has a lever to pull to empty it.  At least mine do.

Stacy




- Original Message 
From: John S. [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 7:52:55 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids


Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is 
doing your personal care must scrub and use sterile gloves when changing your 
cath. If they have kids or love houseplants, they need dipped in liquid 
sterilizer.  If you can keep your bladder acidic then you should be able to ask 
your doc about using Mandelamine. Great anti infective but doctors are afraid 
patients won't keep their urine acid. 
I'll suggest this again and you can ignore me. Get a very small leg bag and 
keep it attached to your indwelling catheter. Attach your leg bag and bed bag 
to it. It adds an anti backflow barrier at the usual point of infection. Handy 
for seeing if your urine is starting to look bad or to get samples for tests. 
All my best,
john


- Original Message 
From: Danny Hearn [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC Help Aids


Hello  Gang, I was wondering how many use these products --- (1) D Mannose-- 
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider 
Vinegar   I get UTI 's all the Time  and the only One of these I have not 
Tried is  Collodial Silver. { I stay faithfull on the cranberry and vitamin C 
} but never go long without bad UTI trouble.   I have a Supra-Pubic Catheter 
and doctors say there will always be infection trouble,  But don't some of you 
with indwelling Catheters go long periods between serious UTI infections???  
It's hard to be able to live in pain but always worry about infection killing 
you.
 Thanks All!! 
Dan H. - Saint Louis, Mo. c-6
   





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Re: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread DiannaL767
 
In a message dated 3/7/2008 10:55:35 PM Eastern Standard Time,  
[EMAIL PROTECTED] writes:

How do you attatch your leg bag and bed bag?  The leg bag where it  empties 
is either losens to empty or has a lever to pull to empty it.  At  least mine 
do.


this is where i got confused. my foley is attached to leg bag for day. it's  
then switched to a night bag that clips to the bed with an extension for  
night,,,which is where i'm headed!
nite all!
dianna



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Re: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread John S.
They have nice cheap 8 oz. bags with lines that have metal clips shutting them. 
You remove the line from the bottom and simply attach a short length of yellow 
foam line to the bag where the nasty green line was. 
You attach your regular bed bag or leg bag to the drain end of the small bag. I 
have to get a cam and make a video. I've never had trouble connecting bags to 
bags.
Let me know if that is any help?

best wishes,
 john

- Original Message 
From: Stacy Harim [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Friday, March 7, 2008 10:55:04 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids

How do you attatch your leg bag and bed bag?  The leg bag where it empties is 
either losens to empty or has a lever to pull to empty it.  At least mine do.
 
Stacy
 


 
- Original Message 
From: John S. [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 7:52:55 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids

Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is 
doing your personal care must scrub and use sterile gloves when changing your 
cath. If they have kids or love houseplants, they need dipped in liquid 
sterilizer.  If you can keep your bladder acidic then you should be able to ask 
your doc about using Mandelamine. Great anti infective but doctors are afraid 
patients won't keep their urine acid. 
I'll suggest this again and you can ignore me. Get a very small leg bag and 
keep it attached to your indwelling catheter. Attach your leg bag and bed bag 
to it. It adds an anti backflow barrier at the usual point of infection. Handy 
for seeing if your urine is starting to look bad or to get samples for tests. 
All my best,
john

- Original Message 
From: Danny Hearn [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC Help Aids

Hello  Gang, I was wondering how many use these products --- (1) D Mannose-- 
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider 
Vinegar   I get UTI 's all the Time  and the only One of these I have not 
Tried is  Collodial Silver. { I stay faithfull on the cranberry and vitamin C 
} but never go long without bad UTI trouble.   I have a Supra-Pubic Catheter 
and doctors say there will always be infection trouble,  But don't some of you 
with indwelling Catheters go long periods between serious UTI infections???  
It's hard to be able to live in pain but always worry about infection killing 
you.
 Thanks All!! 
Dan H. - Saint Louis, Mo. c-6
   





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Re: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread Stacy Harim
I understand.  It's just a matter of finding them.  I got them a few times when 
I had a homehealth nurse coming in but since my sore is finally gone (woohoo), 
I don't need them to come anymore.  I get legbags from appledrug and that is 
the only pharmacy in my area that carries medical supplies such as catheters, 
leg bags, etc.

Stacy


- Original Message 
From: John S. [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:20:48 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids


They have nice cheap 8 oz. bags with lines that have metal clips shutting them. 
You remove the line from the bottom and simply attach a short length of yellow 
foam line to the bag where the nasty green line was. 
You attach your regular bed bag or leg bag to the drain end of the small bag. I 
have to get a cam and make a video. I've never had trouble connecting bags to 
bags.
Let me know if that is any help?

best wishes,
 john


- Original Message 
From: Stacy Harim [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Friday, March 7, 2008 10:55:04 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids


How do you attatch your leg bag and bed bag?  The leg bag where it empties is 
either losens to empty or has a lever to pull to empty it.  At least mine do.
 
Stacy
 


 
- Original Message 
From: John S. [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 7:52:55 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids


Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is 
doing your personal care must scrub and use sterile gloves when changing your 
cath. If they have kids or love houseplants, they need dipped in liquid 
sterilizer.  If you can keep your bladder acidic then you should be able to ask 
your doc about using Mandelamine. Great anti infective but doctors are afraid 
patients won't keep their urine acid. 
I'll suggest this again and you can ignore me. Get a very small leg bag and 
keep it attached to your indwelling catheter. Attach your leg bag and bed bag 
to it. It adds an anti backflow barrier at the usual point of infection. Handy 
for seeing if your urine is starting to look bad or to get samples for tests. 
All my best,
john


- Original Message 
From: Danny Hearn [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC Help Aids


Hello  Gang, I was wondering how many use these products --- (1) D Mannose-- 
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider 
Vinegar   I get UTI 's all the Time  and the only One of these I have not 
Tried is  Collodial Silver. { I stay faithfull on the cranberry and vitamin C 
} but never go long without bad UTI trouble.   I have a Supra-Pubic Catheter 
and doctors say there will always be infection trouble,  But don't some of you 
with indwelling Catheters go long periods between serious UTI infections???  
It's hard to be able to live in pain but always worry about infection killing 
you.
 Thanks All!! 
Dan H. - Saint Louis, Mo. c-6
   





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Re: [QUAD-L] UTI and ETC Help Aids

2008-03-07 Thread John S.
We are getting 12 of snow in Cincy.
Well, It is like the vans. I never had one. I haven't had a real UTI since '88. 
I sure never liked SP but had it for 2 years.  
I have 3 bed bags hanging on my bed because it is very likely nobody will make 
it in a foot of snow. 
You can double and triple leg bags but not the kind with screw valves. Slide 
the yellow utility hose over the end of the lever valves and other end to the 
next bag. Leave the valve open. 
I wish you the best.
john

- Original Message 
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:03:41 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids

 In a message dated 3/7/2008 10:55:35 PM Eastern Standard Time, 
[EMAIL PROTECTED] writes:
How do you attatch your leg bag and bed bag?  The leg bag where it 
  empties is either losens to empty or has a lever to pull to empty it.  At 
  least mine do.

this is where i got confused. my foley is attached to leg bag for day. it's 
then switched to a night bag that clips to the bed with an extension for 
night,,,which is where i'm headed!
nite all!
dianna



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Looking for last minute shopping deals?  
Find them fast with Yahoo! Search.  
http://tools.search.yahoo.com/newsearch/category.php?category=shopping