Re: Re: [QUAD-L] Uroquid
Thanks John for summing that up regarding Mandelamine. My time at the computer is very limited these days. One more thing (in case someone missed it) about a couple of posts I made here whereby I could not get my urine acidic no matter what I did. If I wanted to try Mandelamine for example. In the article whereby I found that your urine needs to be acidic (ideally a '6' on the urinalysis test strip) for Mandelamine to work -- *it also said* to limit your potassium intake to lower your urine pH. I had been eating a banana a day and that was just enough to keep my urine always above a '7.5' on the urinalysis test strip. I stopped eating bananas and wala! Doctors don't know everything but I feel that my urologist should have known how big a part potassium plays with the urinary system and therefore asked me if I was taking in a lot of potassium. One more example of how the Internet (and myself) solved many a problem for me when doctors have failed. Lori Michaelson Age - 44 C4/5 complete quad, 29 years post Tucson, AZ On Sat, Jun 6, 2009 at 12:47 PM, John S. alcibiat...@yahoo.com wrote: Mandelamine is an anti-infective but it is real medicine and as Lori said, you must keep your urine acidic. A pH level of 6 would be great. You may need to take more vitamin C as this is what creates the acid environment and causes the Mandelamine to change chemically into formaldehyde. Bacteria simply can not survive in it. It is important that your urologist agree with the treatment and your aides or nurse check your urine with a PH strip to be sure your staying acidic. I usually tell people to use pro-biotics while treating any bacteria infection. It is the same with Mandelamine. It has side effects and you can look it up at WebMD. Do not be afraid to discuss it with your doctor. I think I mentioned there is a solution that can be injected through your catheter into your bladder that can also destroy harmful bacteria colonies. Do not reuse the catheter flush kits. They really will create another infection or depending on what was used to clean it, you could actually be injecting that cleaning substance into your bladder. It just is not worth the risk. A catheter is an open source of infection. This is why many quads must be able to live with some degree of infection. The trick is not to simply get use to having an infection, but learning to keep the infection to a minimum. There is a limit to how many times you can take an antibiotic before your body and the bacteria simply do not respond to it. Mandelamine comes in different names. Remember to drink a plenty of water. Don't overdo it. You can wash out your electrolytes and mess yourself up. I've heard quads on here also using UTI Clear. While it contains other ingredients, I noticed it used an obscure name for Mandelamine and also contained 1g of vitamin C per daily dose. It isn't cheap, but if it works, I'd buy it. I honestly feel your better off talking to your doctor, getting a script and controlling your UTI's with your doctor involved. UTI Clear was not created with quadriplegics in mind. Not many things are. Do ask about probiotics. They are finally discovering that good bacteria can be very helpfull against bad bacteria. It simply eats the food and starves the bad bacteria. Simple and for women esp. it is very important. best wishes, john -- *From:* andrea murray emma_wolf2...@yahoo.com *To:* quad quad-list@eskimo.com *Sent:* Saturday, June 6, 2009 1:47:23 PM *Subject:* Fw: Re: [QUAD-L] Uroquid I have had Bludder infection all winter lone, I have a nurse come and change my cath every other week. I have no choice no family. I have been taking vitamin C 1000cc a day. I have tried changing cath bags and everything.What is Mandelamine? WW --- On *Fri, 6/5/09, John S. alcibiat...@yahoo.com* wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Uroquid To: Danny Hearn ddh...@sbcglobal.net, quad-list@eskimo.com Date: Friday, June 5, 2009, 5:09 PM have you tried Mandelamine? You should drink a lot and for it to really work, take vitamin C untill your urine becomes as acidic as your doctor thinks it should be with that dosage of Mandelamine. It is great against persistent bacterial infections. As it leaves your kidneys it turns to formaldehyde. You should take it the same time each day and never stop unless your doctor says to. Only take it if your doctor agrees. It is not an anti-biotic but if you suddenly stop taking it or take it off and on you may create hard to kill bacteria. It can be gotten in the mail without a script. I use to have an indwelling cath and I wouldn't consider not taking something to deal with the oncoming infections. If you take acidophylus you reduce your chances of getting diarrhea or constipation related to drugs and anti-biotics. Acidophylus and other pro-biotics will help by out eating the bad bacteria and killing or
Re: Re: [QUAD-L] Uroquid
Mandelamine is an anti-infective but it is real medicine and as Lori said, you must keep your urine acidic. A pH level of 6 would be great. You may need to take more vitamin C as this is what creates the acid environment and causes the Mandelamine to change chemically into formaldehyde. Bacteria simply can not survive in it. It is important that your urologist agree with the treatment and your aides or nurse check your urine with a PH strip to be sure your staying acidic. I usually tell people to use pro-biotics while treating any bacteria infection. It is the same with Mandelamine. It has side effects and you can look it up at WebMD. Do not be afraid to discuss it with your doctor. I think I mentioned there is a solution that can be injected through your catheter into your bladder that can also destroy harmful bacteria colonies. Do not reuse the catheter flush kits. They really will create another infection or depending on what was used to clean it, you could actually be injecting that cleaning substance into your bladder. It just is not worth the risk. A catheter is an open source of infection. This is why many quads must be able to live with some degree of infection. The trick is not to simply get use to having an infection, but learning to keep the infection to a minimum. There is a limit to how many times you can take an antibiotic before your body and the bacteria simply do not respond to it. Mandelamine comes in different names. Remember to drink a plenty of water. Don't overdo it. You can wash out your electrolytes and mess yourself up. I've heard quads on here also using UTI Clear. While it contains other ingredients, I noticed it used an obscure name for Mandelamine and also contained 1g of vitamin C per daily dose. It isn't cheap, but if it works, I'd buy it. I honestly feel your better off talking to your doctor, getting a script and controlling your UTI's with your doctor involved. UTI Clear was not created with quadriplegics in mind. Not many things are. Do ask about probiotics. They are finally discovering that good bacteria can be very helpfull against bad bacteria. It simply eats the food and starves the bad bacteria. Simple and for women esp. it is very important. best wishes, john From: andrea murray emma_wolf2...@yahoo.com To: quad quad-list@eskimo.com Sent: Saturday, June 6, 2009 1:47:23 PM Subject: Fw: Re: [QUAD-L] Uroquid I have had Bludder infection all winter lone, I have a nurse come and change my cath every other week. I have no choice no family. I have been taking vitamin C 1000cc a day. I have tried changing cath bags and everything.What is Mandelamine? WW --- On Fri, 6/5/09, John S. alcibiat...@yahoo.com wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Uroquid To: Danny Hearn ddh...@sbcglobal.net, quad-list@eskimo.com Date: Friday, June 5, 2009, 5:09 PM have you tried Mandelamine? You should drink a lot and for it to really work, take vitamin C untill your urine becomes as acidic as your doctor thinks it should be with that dosage of Mandelamine. It is great against persistent bacterial infections. As it leaves your kidneys it turns to formaldehyde. You should take it the same time each day and never stop unless your doctor says to. Only take it if your doctor agrees. It is not an anti-biotic but if you suddenly stop taking it or take it off and on you may create hard to kill bacteria. It can be gotten in the mail without a script. I use to have an indwelling cath and I wouldn't consider not taking something to deal with the oncoming infections. If you take acidophylus you reduce your chances of getting diarrhea or constipation related to drugs and anti-biotics. Acidophylus and other pro-biotics will help by out eating the bad bacteria and killing or keeping it in control. If your attaching an indwelling catheter to a bed bag, clamp the catheter closed while the bag is lifted higher than the connection to you. Anything in the bag line can run back into your bladder giving you an instant infection. Less than a drop is more than enough. For some reason, the bags have an anti-backflow valve at the wrong end of the line. There use to be an anti-infective solution that was used to flush the bladder each day. I can't seem to find it or remember its name. You may want to bring it up with your Urologist. It is important to fight infections in ways that do not create superbugs or reduce the efficacy of drugs used on superbugs. Don't get too freaked out about infections because if you have an indwelling catheter for a week, you have an infection. Reducing the infection to one you can live with is possible. Always use sterile technique and hope for a relative to change the catheter. (better the germs you know) The agency nurses are often not sterile and just dropped off a load of bacteria from everyone they have visited for the last week. I'm sure others have
