Re: [CMLHope] eyes on Gleevec

2013-08-15 Thread Myvety2k
Thank you Marcie for the input. Did you have the surgery while you had CML? And did your doctor have you stop taking you med's. before you had the surgery. My doctor wants me to stop one week before having it done. I'll look so young maybe Grace will fall in love with me again. (smile)

Re: [CMLHope] Ponatinib

2013-08-15 Thread maggy...@bellsouth.net
I was on Tasignia until it stopped working and had blasts so they admitted me to hospital and started oral ponatanib 45mg daily.    Took 2 solid months of hospitalization for my neutrophils to come down and platelets to go up.  Got a unit of blood almost every single day and sometimes two,

Re: [CMLHope] Hello fellow warriors

2013-08-15 Thread bkbarney
Dear Millie, I am praying that everything will be O.K. with you as well...good luck, fingers crossed, keep up the positive attitude and keep us informedHope your computer problems get resolved so you have easier access to writing whenever you wish! Fondly, Beth -Original Message-

[CMLHope] Ponatinib

2013-08-15 Thread John Barrons
I went ponatinib last January and for the most part the only real discomfort was going to have a blood test each week and not being able to go south for the winter. I didn't have to go into the hospital. I am feeling quite well on this drug although my hemoglobin is low and therefore also my

Re: [CMLHope] Hello fellow warriors

2013-08-15 Thread C.M. Houtz
Hi Beth, I think that the computer problems are mostly with this operator, but it's getting better. Actually, the fellow that takes care of it, did put some things in to help, and now it's behaving better. I'm on my PC downstairs right now as I just got supper ready to go and will stay down

Re: [CMLHope] Hello fellow warriors

2013-08-15 Thread Marty Gartenberg
Hi Millie, If and when you ever need any advice or help with your computer just let me know. I am a retired electrical engineer and worked designing electronic circuitry. Also, I've been meaning to let everyone know about Skype. If you have a web cam (most lap tops have them already built in,