Thank you Marcie for the input. Did you have the surgery while you had
CML? And did your doctor have you stop taking you med's. before you had the
surgery. My doctor wants me to stop one week before having it done. I'll
look so young maybe Grace will fall in love with me again. (smile)
I was on Tasignia until it stopped working and had blasts so they admitted me
to hospital and started oral ponatanib 45mg daily. Took 2 solid months of
hospitalization for my neutrophils to come down and platelets to go up. Got a
unit of blood almost every single day and sometimes two,
Dear Millie, I am praying that everything will be O.K. with you as well...good
luck, fingers crossed, keep up the positive attitude and keep us
informedHope your computer problems get resolved so you have easier access
to writing whenever you wish! Fondly, Beth
-Original Message-
I went ponatinib last January and for the most part the only real discomfort
was going to have a blood test each week and not being able to go south for the
winter. I didn't have to go into the hospital. I am feeling quite well on this
drug although my hemoglobin is low and therefore also my
Hi Beth, I think that the computer problems are mostly with this operator, but
it's getting better. Actually, the fellow that takes care of it, did put some
things in to help, and now it's behaving better. I'm on my PC downstairs right
now as I just got supper ready to go and will stay down
Hi Millie,
If and when you ever need any advice or help with your computer just let me
know. I am a retired electrical engineer and worked designing electronic
circuitry.
Also, I've been meaning to let everyone know about Skype. If you have a web
cam (most lap tops have them already built in,
6 matches
Mail list logo