Re: [CMLHope] Hi all finally going in for an endoscopy next week.

2015-01-16 Thread sherri swanson
When I had mine done, they found ulcers and adenoma's. My GI removed the adenoma's while I was under and I had to be rechecked every 3 months in the beginning to be sure they didn't come back. They haven't come back but my ulcers have. LOL Good luck with your BMA. On Thu, Jan 15, 2015 at 4:29

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

2015-01-16 Thread 'Icandoallttc' via CMLHope
Hi Beth. Thanks for the uplift. We took aspirin for years before they told us to eat with them. My dad and brother has ulcers. Hard to heal. My brother ended up having one-half his tummy out. I feel I might have them. Blessings Jeanie❤️ Sent from my iPhone On Jan 15, 2015, at 5:29 PM,

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-16 Thread Marty Gartenberg
Hi Richard, It seems that you are between a rock and a hard place with the VA. That is something that you must deal with but if there is ever a chance to get rid of them for your meds or care then I don't need to go further... I wish you the best of luck. 18's. Marty On Fri, Jan 16, 2015 at

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

2015-01-16 Thread 'Icandoallttc' via CMLHope
Finished Bma --waiting on doctor-- great he had to attend computer seminar. Every thing went very well-- was asleep about 20 minutes. Went down and had breakfast--coffee finally Blessings Jeanie Sent from my iPhone On Jan 16, 2015, at 5:20 AM, 'Icandoallttc' via CMLHope

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-16 Thread 'Icandoallttc' via CMLHope
Got everything done-- had to spend all day__ Got to start a new med--ponatinib-- anyone take this? Got to see if my insurance will pay I see dr balducci at Moffitt. He is the head of senior adult oncology there. Blood counts were good. Thanks for all your prayers. Very tired. Blessings

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-16 Thread Marty Gartenberg
Greenie, if I were you I would appeal this decision. You have absolutely nothing to loose. Now you know why I want nothing to do with the VA. 18's, Marty On Fri, Jan 16, 2015 at 7:34 AM, Myvety2k via CMLHope cmlhope@googlegroups.com wrote: Good morning Marty, The VA, they are on my I don't

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

2015-01-16 Thread Marty Gartenberg
Hi Jeanie, Wow, your lucky for a better word to use. I had 17 of them and was never put out OUCH x 17[?] 18's, Marty On Fri, Jan 16, 2015 at 10:54 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Finished Bma --waiting on doctor-- great he had to attend computer seminar.

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-16 Thread Myvety2k via CMLHope
Marty, I was planning to do just that. Thanks. greenie In a message dated 1/16/2015 7:22:42 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, if I were you I would appeal this decision. You have absolutely nothing to loose. Now you know why I want nothing to do with the

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-16 Thread Marty Gartenberg
Greenie, I once had a problem with them and was refused some services that I required so I started a dispute and even if it took several months I prevailed. Some of the people working there think they have the only say in it and at times they are wrong. Now you know why I don't want to deal with

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-16 Thread Joyce Mesnarich
Richard, I don't know where you live, but I really wish you could find a CML specialist to help you determine which medication is best for you.Regular ONCs just are not that familiar with the TKIs. Also, there is an organization that will pay for your TKI and you do not have to jump

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-16 Thread Richard H
Thanks Marty.. Yes I I am. Quoting the man we celebrate on Monday. We shall overcome!. Richard H. On Friday, January 16, 2015 at 6:09:11 AM UTC-6, wa2yyx wrote: Hi Richard, It seems that you are between a rock and a hard place with the VA. That is something that you must deal with but

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-16 Thread Richard H
I do have that specialist as my Primary ONC. I have been with him since Feb 2002. In 2001 he had 3parientsd. He has not missed a national conference in those years. He has been with 3 different offices as he progressed, This last one actually made him an ONC with the Kansas University

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-16 Thread Richard H
Thanks for your service, Greenie. My active duty with the Navy from 7/58 to 6/61. I do not qualify for any thing except prescriptions. I served 5 months in The Pacific Atomic range. I arrived 6 months after the Big Mike test. Since more people have those areas I applied for the atomic

Re: [CMLHope] Hi all finally going in for an endoscopy next week.

2015-01-16 Thread bkbarney via CMLHope
great news that the BMB went so easily.. I know at Moffit they put you out for them..up here in Chicago..they just do locals!!! I am staying hopeful for you Jeannie...sending good thoughts. B -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope