great news that the BMB went so easily.. I know at Moffit they put you out for them..up here in Chicago..they just do locals!!! I am staying hopeful for you Jeannie...sending good thoughts. B
-----Original Message----- From: Marty Gartenberg <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Jan 16, 2015 6:26 pm Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week. Hi Jeanie, Wow, your "lucky" for a better word to use. I had 17 of them and was never put out OUCH x 17 18's, Marty On Fri, Jan 16, 2015 at 10:54 AM, 'Icandoallttc' via CMLHope <[email protected]> wrote: Finished Bma --waiting on doctor-- great he had to attend computer seminar. Every thing went very well-- was asleep about 20 minutes. Went down and had breakfast--coffee finally!!!! Blessings Jeanie Sent from my iPhone On Jan 16, 2015, at 5:20 AM, "'Icandoallttc' via CMLHope" <[email protected]> wrote: Hi Beth. Thanks for the uplift. We took aspirin for years before they told us to eat with them. My dad and brother has ulcers. Hard to heal. My brother ended up having one-half his tummy out. I feel I might have them. Blessings Jeanie❤️ Sent from my iPhone On Jan 15, 2015, at 5:29 PM, bkbarney via CMLHope <[email protected]> wrote: good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for results of endoscopies, I had a small stomach ulcer..the result of taking NSAIDS on an empty stomach... to battle a broken hand. it was years ago but Iearned my lesson. I never take any pain med without food. thinking of you. big hug,. Beth -----Original Message----- From: 'Icandoallttc' via CMLHope <[email protected]> To: cmlhope <[email protected]> Sent: Thu, Jan 15, 2015 12:34 pm Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week. Hi all and thanks so much for the updates in endoscopy. Did anyone have anything discovered during the procedure? I have had an ongoing pain in my right side. I am hoping they can solve the mystery. Getting the Bma early in the morning. No food or drink after midnight. Sure will miss my morning cup if coffee. They also want to do a ct scan but put that off for a couple of weeks. I had one done last year. Blessings Jeanie Sent from my iPhone On Jan 15, 2015, at 12:43 AM, Richard H <[email protected]> wrote: You are correct about both. One time, I had both back to back. The Dr. didn't care for my remark about using clean equipment so now they schedule them at different times. On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote: Yes Jeannie, I have had an endoscopy....NO problem...at least for me. Twilight meds, remember nothing....not even a sore throat afterwards....I've had two of them. several years apart. Hope yours goes as well as mine. Easier on the body than a colonoscopy. Good luck with the bone marrow biopsy Friday. glad they will take a good look at what is going on and can reset from there...So sorry you are so nauseated.....Take good care...and jeannie, if you feel at all like talking, happy to listen. Feel free to email me at personal email and I can give you phone number. Beth -----Original Message----- From: 'Icandoallttc' via CMLHope <[email protected]> To: cmlhope <[email protected]> Sent: Wed, Jan 14, 2015 4:23 pm Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week. Anyone have an endoscopy ? Jeanie Sent from my iPhone On Jan 14, 2015, at 2:14 PM, "'Icandoallttc' via CMLHope" <[email protected]> wrote: Maybe they can find out why my side is hurting. Blessing everyone Jeanie Sent from my iPhone On Jan 14, 2015, at 10:57 AM, "'Icandoallttc' via CMLHope" <[email protected]> wrote: They put you to sleep for Bma. Sent from my iPhone On Jan 14, 2015, at 10:56 AM, "'Icandoallttc' via CMLHope" <[email protected]> wrote: Hi it's not me who lost their dad-- I lost mine many years ago. I am still so nauseas. Hanging in there. Doing Bma fri. Blessings Jeanie Sent from my iPhone On Jan 13, 2015, at 4:06 AM, sherri swanson <[email protected]> wrote: Jeanie, I'm so sorry for your loss. You will always have them in your heart. I lost my parent a long time ago but I miss them as if it were yesterday. When I read your message, I looked at their photo and asked them to take good care of your dad. L'chaim, Sherri On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope <[email protected]> wrote: Thank you Greenie I need that. Blessings Jeanie Sent from my iPhone On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope <[email protected]> wrote: Hi Jeanie, hang in their, I'm thinking good thoughts and passing them on to you. greenie In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, [email protected] writes: Thanks Susan. I'm hanging in there!!! Blessings. Jeanie<emoji_u1f41f.png><emoji_u1f41f.png><emoji_u1f41f.png> Sent from my iPhone On Jan 11, 2015, at 11:17 PM, "'Susan Zimmerman' via CMLHope" <[email protected]> wrote: Awwwww Marcie! I am so sorry for your loss, dear one. I know you've been being a good caregiver for several years to your dad. You will be rewarded some day for that. My heart hurts for you, so will surely be lifting you in prayer. No matter what the age, the loss is huge when we are the ones left behind. It was so kind of your rabbi to mention your CML battle. I pray you stop having those horrible cramps, too. Traveling mercies for you all. And Jeanie, also know what it's like to have a bad day from hydrea. Many (including me) felt like they have the flu with the nausea, and I pray this will not last long at all. A new day is coming, and I sure do hope your doc puts you on something that works! (maybe bosulif?) Here's wishing you the best, dear one. Love and 18's, Susan -----Original Message----- From: 'Marcie Goodman' via CMLHope <[email protected]> To: cmlhope <[email protected]> Sent: Sun, Jan 11, 2015 10:59 pm Subject: Re: [CMLHope] Jeanie's relapse Hi Jeanie, So sorry you are having a tough time. I'm praying for you to have good test results and a much better week. My 94 year old father passed away on Friday, funeral was today. During evening prayers our rabbi asked that everyone pray for not only my father and our family but for our group struggling with the impact of CML. My dad hated the fact that I had this illness and knew that I had such a wonderful online support family. So lots of prayers for you and all of us headed out from Baltimore all week! Much love, Marcie Sent from my iPhone On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope <[email protected]> wrote: Hi Marty. I feel so bad today!!! Thinks it's from the hydrea. I will print that out and keep it close. I love psalms also. Keep praying. Jeanie 18's Sent from my iPhone On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <[email protected]> wrote: Jeanie, I know that your feeling low right now but things will work out for you. You must have this in your heart and I know that you do. FOCUS. This was something that was given to me by one of my close friends when I had to live in that plastic bubble for all of those many months. I would read it all the time and I am now passing it on to you, and it is being sent to you from my heart because I remember my doubts but then again I also remember my strengths. EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME... FOCUS... Yes Jeanie you just keep on focusing because you are much more powerful then you think. Now you know why I keep on sending 18's. 18's, Marty On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope <[email protected]> wrote: Hi Marty Thanks for you uplifting message. I am back to square one with my counts-- 700 thousand platelets 163.28 WBC ANC high Creatine high Potassium high Took me off sprycel. Allipurinoll 2 pills Hydrea 3 twice a day Yes I will fight!!! Just so tired. I think dr will put me on new drug mon. Got to see if there is a mutant. Prays and love to all. 18's. <emoji_u1f41f.png> Jeanie Sent from my iPhone On Jan 10, 2015, at 4:31 AM, sherri swanson <[email protected]> wrote: Hi Richard, If it's one thing I got, It's Attitude! At least that's what my mom would tell me when I was a teenager. LOL Sorry to hear about the car. This cold weather can be brutal on a car's battery. Glad you were able to get a new and now you’re good to go. Uor wind chills have been bad too. And we have some open fields so there is nothing to block that wind. The other morning it was so cold that the water froze in our community and none of had any water for awhile. It's a good thing I'm an early raiser and I took my shower while we had water. Currently, it is -7 with a wind chill of -25 where I live and it isn't going to be above zero until 9 am. That's cold. Stay warm Richard and think spring! L'chaim, Sherri On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <[email protected]> wrote: Hi Jeanie, So many things effect your kidneys. The simple ageing factor is just one of them. Some medicines will also contribute to kidney function probably some of these TKI's. Mine finally gave out from all of the chemotherapy and radiation I had more then 25 years ago. I can make a suggestion: If you are not diabetic try drinking cranberry juice. Not the ones that are mixed up with juices like grape juice. Ocean Spray has pure cranberry juice so you might want to try it. Even if you are diabetic they also make a light cranberry juice. You know what? You have been through so much that this is only a bump in the road for you, and so it is for me. We have two choices. One, continue to fight and the other is not an option for me or you. That is why I always end any of my posts with 18's. You just hang in there sweetie. Marty On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope <[email protected]> wrote: Hi Sherri, I think the tki's contribute to kidney disease. I think that I am in the beginning of the disease and I have been on tki's for 11 years now. Hang in in there; blessings Jeanie<3 In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, [email protected] writes: Hi Marty, Thanks for the prayers and right back at ya. I've been struggling with my kidney disease for many years and didn't know it, and then one day voilà the doctors found that there was a problem and that I'd been fighting it for years hence the diagnoses of Chronic Kidney Disease. And the funny thing is, I'm the only one in my entire family that has any of these diseases. My family had its share of health issues from heart disease to diabetes. But never anything like what I have. All my doctors just shake their heads. I tell them that I like to keep things interesting. And what they like is that I have a sense of humor. And at this point, it is much better to joke and laugh than to worry and cry. While I still take what I have seriously, I'm just happy to be here. I would be a lot happier if the weather here would warm up. For crying out loud it was -5 here yesterday and I was out in it. Now that is one hearty person or a very foolish one. The jury is still out on that one. Today it is going to be a balmy 8. Woohoo! A heat wave. And, again I'll be out in it as I have to go and get a Rx that I need. L'chaim, Sherri On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <[email protected]> wrote: Dear Sherri, Yes, you are a fighter and it takes one to know one. I pray that everything turns out well for you. And you are correct that all of the radiation and chemotherapy did destroy both of my kidneys. It has been over 25 years that I had my BMT. It took many years for my kidneys to fail and that is probably why most transplant centers will usually not use total body radiation any more unless it is really needed. 18's, Marty On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson <[email protected]> wrote: Hi Marty, The doctors are trying to treat the different illnesses that are included in my condition. There are so many and they do so many different things, that I am happy just to to be here. I agree that as we get older there are some unusual things that that find us. But in the long run, we all got something. I'm a survivor. It's what I do. So when I found out on Monday that I have a large mass on my thyroid, I told my doctor I guess we're going to be busy this winter. At least I'm not an alarmist. <35C.png> I too have trouble with my kidneys. Not to the extend that you do, I'm working to keep myself at the current level of stage III Kidney Disease. Some days, I'm good others, not so much. Lately I've not been doing so good and I've had to go and buy new shoes as my feet have been so swollen that my current size no longer fit. I wear compression socks all the time as well. My Nephrologist ran some blood work and found that my sodium was very low and and so was a bunch of other levels. Now, he is an alarmist. If I even look like I'm getting a cold he freaks out. I love him dearly, and I do what he says, but I can't sneeze without him making me go see my GP or the Oncologist or whatever doctor he thinks I need to see. I've heard that when you have a BMT and have to have radiation and chemo, sometimes kidney failure is possible. How long have you been on the list for transplant? Well, I'm glad that you are here and that you are strong. You're an inspiration to all of us. Thanks for all you do Marty. L'chaim Sherri On Thu, Jan 8, 2015 at 10:0 ... -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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