Re: [CMLHope] Big test today

2015-01-23 Thread Joyce Mesnarich
Jeanie, Beth said it well. Wonder if the inflamed stomach was caused by the hydrea. Sorry you have to take even more. This, too, shall pass. Is ponatinib the same as iclusig? (Spelling may be wrong) God bless and keep you. Joyce in IL On Jan 22, 2015, at 5:49 PM, bkbarney via CMLHo

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-23 Thread Marty Gartenberg
Richard, You got that key word right... LIVE Hey, bring back that needle[?] Being on the line myself I can just picture that. 18's, Marty On Fri, Jan 23, 2015 at 11:35 PM, Richard H wrote: > Seventeen and on my first adventure this wonderful world we live in. > > Richard H. > > On Friday, J

Re: [CMLHope] Big test today

2015-01-23 Thread Richard H
Thanks for asking Beth. I am doing very well at this time. I am in the middle of new trials to get my TKI' approved for payment. That doesn't become final until late March. Richard H. On Friday, January 23, 2015 at 9:42:00 PM UTC-6, Beth wrote: > Dear troups...Jeanie- good luck on ponatinib.

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-23 Thread Richard H
Seventeen and on my first adventure this wonderful world we live in. Richard H. On Friday, January 23, 2015 at 5:38:47 AM UTC-6, Icandoallttc wrote: > That's cute Richard--how old were you? > My IV went in good-no swelling. > This morning I am sick-- sore throat and mucus. > Glad everythin

Re: [CMLHope] Big test today

2015-01-23 Thread Marty Gartenberg
Dear Beth, You mentioned several of us with our own set of problems. You also mention what you are going through. Well, the good thing, and I want you to also say this to yourself when your feeling down... WE ARE ALL STILL HERE AND ALIVE... 18's, Marty On Fri, Jan 23, 2015 at 10:41 PM, bkbarney

Re: [CMLHope] Big test today

2015-01-23 Thread bkbarney via CMLHope
Dear troups...Jeanie- good luck on ponatinib. I asked my doc about it, and they have 12 people on it currently all doing pretty well with minimal side effects noted...just keep close eye on blood pressure going up suddenly...they they give you bp medicine, or take you off for a while or figure o

Re: [CMLHope] Big test today

2015-01-23 Thread 'Icandoallttc' via CMLHope
Sorry about that!! I hope all is well. Hang in there everyone!! Let's all look for joy in the morning. Jeanie❤️😇 Sent from my iPhone > On Jan 23, 2015, at 3:59 PM, "'Icandoallttc' via CMLHope" > wrote: > > > > Sent from my iPhone > >> On Jan 23, 2015, at 7:26 AM, Marty Gartenberg wrote

Re: [CMLHope] Big test today

2015-01-23 Thread 'Icandoallttc' via CMLHope
Sent from my iPhone > On Jan 23, 2015, at 7:26 AM, Marty Gartenberg wrote: > > Greenie, > > I also want to get this wait over with, and the way that I look at it is we > all help each other not just me. This is what this site is all about one > helping the other just compare it to a family

Re: [CMLHope] Big test today

2015-01-23 Thread sherri swanson
Hey Marty, You’re correct. If the test comes back inconclusive, then I'll be back in that procedure room having it done all over again. But at least time I'll know what to expect. And I still won't wont like it. It is better than not knowing. And once again my dear Marty you are correct, it trul

Re: [CMLHope] Big test today

2015-01-23 Thread Myvety2k via CMLHope
Going back to Disco days the song "We Are Family"... greenie In a message dated 1/23/2015 7:26:14 A.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, I also want to get this wait over with, and the way that I look at it is we all help each other not just me. This is what t

Re: [CMLHope] Big test today

2015-01-23 Thread Marty Gartenberg
Your not like a bad penny but more like a shiny dime[?] I know that it was a procedure that you would never want to go through but in the scheme of life if you needed to do it again I guess that you would have to. Just like when anyone else has to undergo something they didn't want to do they still

Re: [CMLHope] Big test today

2015-01-23 Thread Marty Gartenberg
Greenie, I also want to get this wait over with, and the way that I look at it is we all help each other not just me. This is what this site is all about one helping the other just compare it to a family situation. 18's, Marty On Thu, Jan 22, 2015 at 9:43 PM, Myvety2k via CMLHope < cmlhope@goog

Re: [CMLHope] Big test today

2015-01-23 Thread 'Icandoallttc' via CMLHope
Thanks Beth for the kind sweet words. My new med gets here soon--suppose to take care of any mutants. Ponatinib is the name. I am so thankful I could get it. How are you? Blessings Jeanie Sent from my iPhone > On Jan 22, 2015, at 6:49 PM, bkbarney via CMLHope > wrote: > > Thinking of you

Re: [CMLHope] My Update anyone had relapse after 5 years on tkis?

2015-01-23 Thread 'Icandoallttc' via CMLHope
That's cute Richard--how old were you? My IV went in good-no swelling. This morning I am sick-- sore throat and mucus. Glad everything went good Sherri but couldn't they give you something for pain?? Blessings Jeanie Sent from my iPhone > On Jan 23, 2015, at 12:03 AM, Richard H wrote: > >

Re: [CMLHope] Big test today

2015-01-23 Thread sherri swanson
Hi Marty, I went in a winner and came out one too. It takes a lot to keep me down. It was no fun and it was painful but here I am just like a bad penny. [?] My Doctor should have the results in about a week and we'll decide next steps from there. This is a procedure that I hope to never undergo a