Re: [CMLHope] Re: 12 years old boy with CML

2015-07-17 Thread 'Icandoallttc' via CMLHope
Hi Sherri and all. I guess we have to realize that we are so unique and different. We have to do what we have to do to survive. When I first went on Gleevec it wasn't working. So we crush the pills and everything hoping it would work. I didn't know at the time that we were not supposed to

Re: [CMLHope] Re: 12 years old boy with CML

2015-07-17 Thread sherri swanson
No problem. It is strange to tell someone that you don't eat solid food and still take Gleevec. Or whenever I say that my stomach is paralyzed I get the funniest looks.  But I just explain what kind of illness I have and people are so surprised. But I will say one thing, that Gleevec is just

Re: [CMLHope] Re: 12 years old boy with CML

2015-07-17 Thread Marty Gartenberg
Hi Sherri, I am just curious I have tasted some awful things in my life, including liquid Cyclosporine with was the absolutely worth thing I have ever tasted in my life, but since i have never been on Gleevec can you tell me what does it taste? On Fri, Jul 17, 2015 at 2:32 PM, sherri swanson

Re: [CMLHope] CBC results 7/17

2015-07-17 Thread 'Marcie Goodman' via CMLHope
Richard, Thoughts and prayers coming your way for the RBC counts to rise quickly. Sometimes I feel like a yo-yo the way my counts rise and fall. Take good care. Marcie Sent from my iPad On Jul 18, 2015, at 12:26 AM, Richard H rbhuffm...@gmail.com wrote: After all the weeks working to get

[CMLHope] CBC results 7/17

2015-07-17 Thread Richard H
After all the weeks working to get my RBC up to 12.3 it has started dropping again. Two weeks ago it was at 12.0, and today's count was down to 11.1. So it appears that I will be playing with attempting to keep my counts up. I will have my next BCR-ABR 2nd week of Aug and get the results 2