Re: [CMLHope] Pictures

Dear Kathy, I just wanted to say hello and let you know that many of us are out here, following your posts and are cheering for you...The beginning years are often the hardest for many with CML as finding the right TKI for you at just the right dose which helps to keep the cancer under

[CMLHope] Ron can you add Wendy to our group. She needs Marty's and others advise. Thanks.

Wendy's email. caligirlny...@aol.com Sent from my iPhone > On May 30, 2016, at 8:48 AM, 'Jeanie' via CMLHope > wrote: > > I was wondering if you could give her some advice. She is set up for a BMT > but can't decide. Thanks > > Sent from my iPhoneI love to see

Re: [CMLHope] Pictures

Hi Kathy, Well that is the story, living rather then existing, and we all have that in common, although sometimes we feel that we are existing, but that is another story that most of us have been through myself included... Anyway, since your counts are slowly rising and you seem to be tolerating

Re: [CMLHope] Pictures

Yes Marty, I was on tasigna from 1/15 to 12/15. Skin issues is putting it mild!! Horrible rash and cysts. I then started 300mg daily of gleevec(tasigna was 490mg) all my numbers looked great 3 mo out with the gleevec but still had some skin issues so he reduced the dose to 200 my daily and

Re: [CMLHope] Pictures

Hi Cathy, Please refresh my mind... Why did you have to stop Tasigna in the first place. If my memory serves me correctly was it because of some skin problems? Which ever way it is has your doctor suggested that you should try another TKI? and how long are you using Tasigna? 18's, Marty On

Re: [CMLHope] Pictures

On the tasigna my molecular level was 0.04. Since I changed to gleevec that level has risen to 3.98. So that's where I'm at Sent from my iPhone > On May 30, 2016, at 10:18 PM, Marty Gartenberg wrote: > > Hi Kate, > > First of all if you have CML then you have the