On the tasigna my molecular level was 0.04. Since I changed to gleevec that level has risen to 3.98. So that's where I'm at Sent from my iPhone
> On May 30, 2016, at 10:18 PM, Marty Gartenberg <[email protected]> wrote: > > Hi Kate, > > First of all if you have CML then you have the Philadelphia Chromosome. What > bothers me is if the oncologist told you about you never reaching remission, > then what level was he talking about? Have you taken any PCR tests yet? And > if you did then what were the results? But since you are a " newbie" you may > have not taken any, and also is your doctor a CML specialist? > > There is a lot to think about, trust me you will learn to ask questions. > Remember the more ask the more that you will learn. > > Glad to see that your sporting the 18's > > 18's to you as well. > > Marty > >> On Mon, May 30, 2016 at 9:27 PM, kathy walls <[email protected]> >> wrote: >> I'm still a newbie was diagnosed 1/9 and started tasigna on the 23rd, oh >> yeah I'm lucky enough to have the ph chromosome to boot. I stopped tasigna >> in December because of horrible side effects, I got an awful rash and cysts. >> Switched to Gleevev and I feel much better, but did dr said at this level i >> will never see remission. I'm ok with that. Quality of like is much >> important to me than quantity. I'm 56 I have a 4 yr old grandson and 3 >> month old grandson. I'd much rather a little pep in my step than being in >> remission but to sick to anything! Just my thoughts. We all are fighting >> the same fight each in our way >> BEST TO ALL. -18's >> Kate >> >> Sent from my iPhone >> >>> On May 30, 2016, at 8:55 PM, Marty Gartenberg <[email protected]> wrote: >>> >>> Yes Jeanie, >>> >>> we are still all kicking! Jeanie what happened in the past according to >>> your oncologist about you being to old should remain in the past and I will >>> tell you why. I also want you to think about something called BASHERT, >>> which I have already mentioned many times. It's meaning is it was meant to >>> be. Sound familiar? I believe that things that are meant to be are >>> predestined. >>> >>> For instance this site, and everyone that reads it or posts on it are meant >>> to be because all of us are still kicking (as you said) and we all share >>> this disease called CML and let's not forget that. >>> >>> There are so many stories that surrounds us and every one of them are meant >>> to be. We all stand here and try help each other. Why? it's because it is >>> meant to be. We give of each other, and also to each other, and you know >>> what I am talking about. It is all about trying to live our lives the best >>> way that we can. >>> >>> Also, all of these new TKI's weren't they all predestined or if you like, >>> meant to be? That is how I look at things, how about you? And how about >>> everyone else here? >>> >>> Why do you think I always end any of my posts with those two numbers? 18's, >>> because it stands for life, and isn't that we have now. >>> >>> 18's, >>> >>> Marty >>> >>>> On Mon, May 30, 2016 at 5:41 PM, 'Jeanie' via CMLHope >>>> <[email protected]> wrote: >>>> Thank you so very much Marty. >>>> If I knew then what I knew today I think I would have >>>> Had the transplant. My onc at that time thought I >>>> Was too old. However I'm still alive and kicking >>>> After 4 tkis. I am sick; I can't seem to kick this flu. >>>> Just resting after my vacation. >>>> I sure had a good time with family. >>>> Thanks for all as usual. >>>> >>>> Sent from my iPhone >>>> >>>>> On May 30, 2016, at 4:57 PM, Marty Gartenberg <[email protected]> wrote: >>>>> >>>>> >>>>> Hi again Jeanie, >>>>> >>>>> I just spoke with my good friend Gloria today and I asked her if she >>>>> wouldn't mind for me to send you and the rest of the group three of her >>>>> pictures. One before her BMT, one during her BMT and one about one year >>>>> after her BMT. She thought it was a very good idea. She also mentioned >>>>> that she would like to try getting onto this CML site and introduce >>>>> herself so please be on the lookout for her. >>>>> >>>>> The main thing here is those pictures which proves that there is life >>>>> after a bone marrow transplant. Think about something else... What about >>>>> those 1,286 people, including myself which now makes it 1,287. >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>> Scroll down please... >>>>> >>>>> >>>>> GLORIA >>>>> >>>>> Forward >>>>> Edit subject >>>>> Pop out reply >>>>> >>>>> >>>>> To >>>>> >>>>> [email protected] >>>>> >>>>> CcBcc >>>>> Cc >>>>> >>>>> Bcc >>>>> >>>>> >>>>> >>>>> Replies will be sent from [email protected] >>>>> Loading... >>>>> >>>>> >>>>> >>>>> >>>>> <image.png> >>>>> >>>>> >>>>> >>>>> Image: >>>>> Small|Best fit|Original size|Remove >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> Sans Serif >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to [email protected]. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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