[CMLHope] My latest Blood test.

2017-01-28 Thread Richard H
My last blood test on Jan.17 came back stating my counts were so low they couldn't be reported. I am still fighting low Hemoglobin counts but I have been in much better control than I was 3 years ago.I am still taking a CBC weekly because when my Hemoglobin decides to drop it plunges down 1

Re: [CMLHope] Change on date

2017-01-28 Thread 'Cali Doll' via CMLHope
Can someone please opt me out of this email group? I thank you in advance! Sent from my iPhone > On Jan 28, 2017, at 09:12, Marty Gartenberg wrote: > > Hi Jeanie, > > You have been through the mill but for what i see it, you remind of that > energizer pink bunny beating on a drum and always

Re: [CMLHope] Change on date

2017-01-28 Thread Marty Gartenberg
Hi Jeanie, You have been through the mill but for what i see it, you remind of that energizer pink bunny beating on a drum and always keep on going and going. I just would like to know where to go and buy one for you. 🐇 So, your 79th birthday is coming up this year, but you didn't mention a date?

Re: [CMLHope] Re: feeling worried

2017-01-28 Thread 'Jeanie' via CMLHope
Overall Ponatinib has been the best for me but it Has a lot of side effects and especially for Someone with heart issues. Hair fell out, skin dry , eye halos, and others but I'm still fighting on. Faith And pills my motto. Blessings. 💞💞 My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Le

[CMLHope] Re: feeling worried

2017-01-28 Thread Peter
Hi Ana. I changed from Gleevec to Tasigna 5 years ago. For me, it played out like this: The muscle cramps went away, but the fatigue and dizziness stayed. My fingernails started to grow again, but my hair started to fall out everywhere where I don't want it to fall out. For the first two years I

Re: [CMLHope] Change on date

2017-01-28 Thread 'Jeanie' via CMLHope
Yes I'm still nervous when I get blood checked. My BP Goes up and the dr worries about BP. So far new med Is working great. I'm tired a lot but I'm 79 this year So I've earned some tired days. Hope everyone is good. I miss Millie always giving me update on PA in the Winter. What a wonderful

Re: [CMLHope] RE: feeling worried

2017-01-28 Thread 'Jeanie' via CMLHope
How we knew my drug quit working is my platelets and wbc went into millions and I got really sick. Mutations. I was on Gleevec for 5 years when it quit working. Only on Tasigna for a few months then finally talked my onc into sprycel. Sprycel worked good for 4 years. See chart below. Just

Re: [CMLHope] RE: feeling worried

2017-01-28 Thread 'Jeanie' via CMLHope
Yes it's bad. I couldn't take it and it made me sicker however some people do well on it. Ask your onc about Ponatinib. Good luck. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 D