Re: [CMLHope] Not getting any mail

2019-09-16 Thread 'educatorsusan' via CMLHope
I’m still here! Hugs, Susan Rosenthal > On Sep 16, 2019, at 11:10 PM, bkbarney via CMLHope > wrote: > > > > -Original Message- > From: Joyce Mesnarich > To: cmlhope > Sent: Mon, Sep 16, 2019 2:08 pm > Subject: Re: [CMLHope] Not getting any mail > > Hi Jeanie. > I think we all

Re: [CMLHope] Not getting any mail

2019-09-16 Thread bkbarney via CMLHope
-Original Message- From: Joyce Mesnarich To: cmlhope Sent: Mon, Sep 16, 2019 2:08 pm Subject: Re: [CMLHope] Not getting any mail Hi Jeanie.I think we all have just become quiet on this site.  I have received no mail either.  My husband is the CML patient.  I am his caregiver.  He is

Re: [CMLHope] Not getting any mail

2019-09-16 Thread myvety2k via CMLHope
That's funny that you put out a post, I was going send one also like (hello, is anyone out there).  I don't have to now. Thanks for posting. greenie -Original Message- From: Joyce Mesnarich To: cmlhope Sent: Mon, Sep 16, 2019 3:08 pm Subject: Re: [CMLHope] Not getting any mail Hi

Re: [CMLHope] Not getting any mail

2019-09-16 Thread Joyce Mesnarich
Hi Jeanie. I think we all have just become quiet on this site. I have received no mail either. My husband is the CML patient. I am his caregiver. He is presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But I, too, would be skeptical of getting meds from

Re: [CMLHope] Not getting any mail

2019-09-16 Thread bkbarney via CMLHope
HI Jeannie. I have not heard from anyone in a long while. This is Beth. Hope everyone out there is hanging in there.. My best to all of you.. KIndest regards, 18's for Marty and hugs to all.. Beth -Original Message- From: 'icandoallttc' via CMLHope To: cmlhope Sent: Mon, Sep 16, 2019

[CMLHope] Is this correct

2019-09-16 Thread 'icandoallttc' via CMLHope
My Motto: Faith and Pills With Love Jeanie free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL

[CMLHope] Not getting any mail

2019-09-16 Thread 'icandoallttc' via CMLHope
Hello I am not receiving any mail from group. Has this group shut down. Anyway Igor a letter in the mail saying AcariaHealth would handle my Ponatinib from now on. I never heard from them and think it’s fraud. Anyone else heard this. Hope everyone is great. My Motto: Faith and Pills With