I’m still here! Hugs, Susan Rosenthal
> On Sep 16, 2019, at 11:10 PM, bkbarney via CMLHope <[email protected]> > wrote: > > > > -----Original Message----- > From: Joyce Mesnarich <[email protected]> > To: cmlhope <[email protected]> > Sent: Mon, Sep 16, 2019 2:08 pm > Subject: Re: [CMLHope] Not getting any mail > > Hi Jeanie. > I think we all have just become quiet on this site. I have received no mail > either. My husband is the CML patient. I am his caregiver. He is presently > taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. > But I, too, would be skeptical of getting meds from a place I didn’t know > anything about. > My husband was previously seeing Dr Talpaz in Michigan. We live in Southern > Illinois. So it was an expensive trip and as we have gotten older we found > it is just too much for us. We found a doctor at Siteman Cancer Center in St > Louis (50 miles from us) and started going to him. He is elderly himself. > The last 2 times we went we saw his PA. She seems good but certainly is not > up to Dr Talpaz standards. We fear that his new doctor may be slipping a bit > and they are keeping him from seeing patients. My husband is doing well as > far as CML goes. But time is taking its toll. He has very low energy. > Don’t know if that is the CML or the medication. > I hope you are feeling well. I know you have had some problems in the past. > I have been in this group since 2008. Seems most everybody is gone. Sad. > Joyce in Southern Illinois > > >> On Sep 16, 2019, at 10:52 AM, 'icandoallttc' via CMLHope >> <[email protected]> wrote: >> > > Hello > I am not receiving any mail from group. Has this group shut down. > Anyway Igor a letter in the mail saying AcariaHealth would handle my > Ponatinib from now on. I never heard from them and think it’s fraud. Anyone > else heard this. Hope everyone is great. > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > To view this discussion on the web visit > https://groups.google.com/d/msgid/cmlhope/7D3D7A1F-0B96-4EE1-A9D0-A1679422842F%40aol.com. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > To view this discussion on the web visit > https://groups.google.com/d/msgid/cmlhope/B1E43834-6B94-4F1D-BE03-DDDA23F4E805%40htc.net. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > To view this discussion on the web visit > https://groups.google.com/d/msgid/cmlhope/2101702186.2334407.1568689845969%40mail.yahoo.com. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To view this discussion on the web visit https://groups.google.com/d/msgid/cmlhope/FFC4B414-72BC-4910-A863-0D1437EC9DBA%40aol.com.
