Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-08-25 Thread Gopalsamy Ragavan
Hi Marty, Sorry I didn't update with the developments. I consulted the oncologist and it was diagnosed as fluid in lungs as a side effect. After three years of sprycel, it is the first time faced with this. Probably it has been accumulating over the period. Sprycel is stopped temporarily. It is

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-31 Thread Marty Gartenberg
https://www.verywellhealth.com/the-lowdown-on-unani-medicine-90032 https://www.tandfonline.com/doi/abs/10.3109/10428194.2014.982639 Hi Ragavan, I'm glad that your feeling better, and as I have already explained to you that you are not imagining this because your mind KNOWS when you are felling

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-30 Thread Gopalsamy Ragavan
Dear Marty, Thanks for the long caring reply. :) I am from Chennai, India and part of this group from 2012. Somehow I ended up as silent observer. I think I was wrong to be so. I was diagnosed at the age of 37. I started with Imatinib 400mg per day in 2012. In 2015, after F359V mutation,

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-29 Thread 'Jeanie' via CMLHope
your doc!!! > > Worried about you in Chicago.. > > Love to all, > > 18's Beth. > -Original Message----- > From: Joyce Mesnarich > To: cmlhope > Sent: Sat, Jul 28, 2018 3:22 pm > Subject: Re: [CMLHope] Breathing Difficulties [Dasatinib] > > Gopalsamy, >

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-29 Thread 'Jeanie' via CMLHope
Yes! My Motto: Faith and Pills With Love Jeanie free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-28 Thread bkbarney via CMLHope
-Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Sat, Jul 28, 2018 12:44 pm Subject: Re: [CMLHope] Breathing Difficulties [Dasatinib] I need to clarify my post. My hubby had heart disease and I am the one with the cml. I never had the breathing problems with Dasatinib

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-28 Thread bkbarney via CMLHope
's Beth. -Original Message- From: Joyce Mesnarich To: cmlhope Sent: Sat, Jul 28, 2018 3:22 pm Subject: Re: [CMLHope] Breathing Difficulties [Dasatinib] Gopalsamy, I suggest you make an appointment with your CML specialist right now. My husband had the same experience with Dasatinib

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-28 Thread Joyce Mesnarich
Gopalsamy, I suggest you make an appointment with your CML specialist right now. My husband had the same experience with Dasatinib. Turned out it had caused fluid around his heart. Please get this checked out immediately. Joyce in Southern Illinois (USA) > On Jul 28, 2018, at

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-28 Thread 'Jeanie' via CMLHope
I need to clarify my post. My hubby had heart disease and I am the one with the cml. I never had the breathing problems with Dasatinib but it is a side effect and could be a lung problem. That is why I said don’t wait to get advice on what to do. It quit working for me after 4 years and I

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-28 Thread 'Jeanie' via CMLHope
Hi there You may need oxygen. They gave my husband the choice of oxygen or not since he was borderline. I wish we had opted for but we didn’t. I don’t think I would wait for drs visit. Get it checked now. Just my opinion. Love you so very much My Motto: Faith and Pills With Love Jeanie

Re: [CMLHope] Breathing Difficulties [Dasatinib]

2018-07-28 Thread Marty Gartenberg
Hi Ragavan, I see that your probably new here because I have not seen your name before. Please correct me if I am mistaken. First my name is Marty and I would like to take this opportunity to welcome you here with us. You will find that we are usually an ordinary bunch of caring and helpful

[CMLHope] Breathing Difficulties [Dasatinib]

2018-07-28 Thread Gopalsamy Ragavan
I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. For the last few months breathing difficulty is keep increasing. I am not able to take full breath. It is always half breath. I will discuss with my doctor in the coming visit. Did anybody else face the same problem? How