Re: [CMLHope] Heart valve replacement and TKIs

2016-01-07 Thread sherri swanson
Hi Perry, I've been on Gleevec for 13 years and I just started having trouble with my heart. I am scheduled next week for some tests to rule out some things and hopefully help me with the issues that I am having. I do not have a diagnosis yet, so I can't say if it will be an aortic replacement.

Re: [CMLHope] Heart valve replacement and TKIs

2016-01-07 Thread Joyce Mesnarich
Perry, My husband is the CML patient but what happens to one of us happens to the other, if you know what I mean. He does not DO internet. He has had to have some lesser surgeries and has been told to go off the TKI for 5 days prior. He also has AFIB and takes a blood thinner, which is kind

[CMLHope] Heart valve replacement and TKIs

2016-01-06 Thread Perry Israel
I've been lurking on the list for quite some time, and thought I would seek some advice. I've been on Gleevec for almost 9 years and am doing fine with my numbers--tried a break, numbers started to rise, went back on, fell back to PCRU, and thinking about trying another break in the near

Re: [CMLHope] Heart valve replacement and TKIs

2016-01-06 Thread 'Marcie Goodman' via CMLHope
Perry, I have not but just want to wish you well. Please keep us updated because we look out for one another. Marcie Sent from my iPhone > On Jan 6, 2016, at 7:05 PM, Perry Israel wrote: > > I've been lurking on the list for quite some time, and thought I would seek >