What a great picture of you and your watermelon!
Thanks for the beautiful pics of your vacay. Never been there! We go to the
Shenandoah mountains every couple of years ourselves.
Seize the day, Jeanie!
Love ya and 18's,
On Friday, June 8, 2018 'Jeanie' via CMLHope wrote:
My Motto:
Faith
THIS IS ABSOLUTELY WONDERFUL news to hear!
Hugs,
Susan Rosenthal
Miami, FL
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Hi Marty and all,
Glad to hear from you. I am good today, enjoying the rain we have been
having as of late.
I have to go back to get my blood tested in about 5 weeks now, but I think
the platelets have come back down. I wish there was someway we could test
them daily like they do for
Hi Jeanie,
Living here in Florida where the beach is only 13 miles from here I
still can't go there because if I get a lot of sun then my GVHD starts
acting up and I have had about a dozen skin cancers over the years
after my bone marrow transplant. but nothing terribly dangerous.
Since I had
Hi Marty and thanks, it's funny that I do worry about those platelets
because they have gone out of whack 3 times now resulting in hospital stays and
blood cleanses but you are right, could be some infection going on or
etc--thanks I needed that.
They were perfect about 2 weeks ago when my
Hi Jeanie,
In a way it is better to have higher then lower platelets, but
sometimes it is just some medicine that may be causing it. Even a
virus or a host of other things. Just be patient and I'm sure that it
will all work out.
Yes, I also miss Mommy Lottie as I used to call her, but I have
Hi Marty and all,
Yes that is so right; I have had to fight for just survival in and out of
the hospital.
My PCD doesn't care what he prescribes in reference with Sprycel; if I tell
him I can't take it, he just says it won't hurt.
I had some bad news on platelets; the have risen to 457,000 but
Hi Susan and all my CML warriors,
I am excited about going to get my blood test tomorrow!
I haven't been for 6 months and that is the longest I have ever been going
to see my onc. My PCD did do a blood test and all was good so hoping all
is good tomorrow.
I also get a PCR done when I go; so
Jeanie, I wish you the best. I know that everything will be in your
favor. Good luck with your blood test tomorrow. By the way the next
time that the lab technician makes a mistake not only for not taking
those two tubes, you be sure to make a formal complaing against the
one that did it. Because
Hi Jeanie: You probably thought I fell off the face of the earth.
I just could not get on here no matter what I tryed, but anyhow I got
back on. How have you been since you switched to Tasigna?
I cannot remember how long its been since you switched. I remember
you having lots of problems, and
Hi Jeanie,
I'm Donna , care giver to Jerome . Jerome was DX with CML Oct . 27th 2004. He
was placed on 400 mg. of Gleevec at the time. In May of 2004 his BMB showed he
had Fibrosis scaring of the Marrow. Like you we were concerned and looked up
Myelofibrosis. I have to say it scared us and we
HI Jeanie,
Sorry, I said Jerome BMB in 2004 should have said May of 2005. He Did not have
fibrosis scaring of the marrow before CML. He was DX. Oct. 27th 2004 and
developed the fibrosis in May of 2005. Thank You Donna care giver to Jerome
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