Hi Marty,
Sorry I didn't update with the developments.
I consulted the oncologist and it was diagnosed as fluid in lungs as a side
effect. After three years of sprycel, it is the first time faced with this.
Probably it has been accumulating over the period. Sprycel is stopped
temporarily. It is a
Don’t want to scare you but some people have had to have the water drained off
lungs.
Glad you are better but as I said get it checked out right away.
There are other tki you can take.
Good luck
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleev
https://www.verywellhealth.com/the-lowdown-on-unani-medicine-90032
https://www.tandfonline.com/doi/abs/10.3109/10428194.2014.982639
Hi Ragavan, I'm glad that your feeling better, and as I have already
explained to you that you are not imagining this because your mind KNOWS
when you are felling be
Dear Marty,
Thanks for the long caring reply. :)
I am from Chennai, India and part of this group from 2012. Somehow I ended
up as silent observer. I think I was wrong to be so.
I was diagnosed at the age of 37.
I started with Imatinib 400mg per day in 2012.
In 2015, after F359V mutation, switche
eacego see your doc!!!
>
> Worried about you in Chicago..
>
> Love to all,
>
> 18's Beth.
> -----Original Message-
> From: Joyce Mesnarich
> To: cmlhope
> Sent: Sat, Jul 28, 2018 3:22 pm
> Subject: Re: [CMLHope] Breathing Difficulties [Dasatinib]
>
&
Yes!
My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer center sept 2017
Dr Balducci retired
Dr Gedia PCD
0 CBL
-Original Message-
From: 'Jeanie' via CMLHope
To: cmlhope
Sent: Sat, Jul 28, 2018 12:44 pm
Subject: Re: [CMLHope] Breathing Difficulties [Dasatinib]
I need to clarify my post. My hubby had heart disease and I am the one with the
cml.
I never had the breathing problems with Dasatinib
e to all,
18's Beth.
-Original Message-
From: Joyce Mesnarich
To: cmlhope
Sent: Sat, Jul 28, 2018 3:22 pm
Subject: Re: [CMLHope] Breathing Difficulties [Dasatinib]
Gopalsamy,
I suggest you make an appointment with your CML specialist right now. My
husband had the same exper
Gopalsamy,
I suggest you make an appointment with your CML specialist right now. My
husband had the same experience with Dasatinib. Turned out it had caused fluid
around his heart. Please get this checked out immediately.
Joyce in Southern Illinois (USA)
> On Jul 28, 2018, at 8
I need to clarify my post. My hubby had heart disease and I am the one with the
cml.
I never had the breathing problems with Dasatinib but it is a side effect and
could be a lung problem.
That is why I said don’t wait to get advice on what to do.
It quit working for me after 4 years and I was
Hi there
You may need oxygen. They gave my husband the choice of oxygen or not since he
was borderline. I wish we had opted for but we didn’t. I don’t think I would
wait for drs visit. Get it checked now.
Just my opinion.
Love you so very much
My Motto:
Faith and Pills
With Love
Jeanie
🐠f
Hi Ragavan, I see that your probably new here because I have not seen your
name before. Please correct me if I am mistaken.
First my name is Marty and I would like to take this opportunity to welcome
you here with us. You will find that we are usually an ordinary bunch of
caring and helpful people
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