Re: [ozmidwifery] hemihypertrophy question

2005-09-13 Thread mh
I'm sure you've excluded it Kylie but you don't mention it so I thought I 
would just suggest checking for congenital dislocation of her hip- a cousin 
had that and it wasn't picked up until she was seen to throw her ;leg out 
with each step.(Unless that's what hemihypertrophy is, in which case I am 
going to feel very stupid.)

Monica

- Original Message - 
From: Kylie Carberry

To: ozmidwifery@acegraphics.com.au
Sent: Tuesday, September 13, 2005 1:43 PM
Subject: [ozmidwifery] hemihypertrophy question


Hi Everyone,
I was in need of some information in regard to my 18 month old daughter, 
Poppy, and although I have a doctors appt it is not until tomorrow afternoon 
and I thought someone on this list may have some info on what I am looking 
for...
Poppy was diagnosed with urinary reflux at about seven weeks following a 
renal scan.  The scan was recommended as I had a two vessel cord which was 
apparent at my 18 week scan during pregnancy.  After several UTI's and 
assciated kidney infections (despite antib's), she has been booked in for 
surgery to correct the 'faulty' ureters that are causing the reflux.
Since about 10 months old when she began to walk around furniture we have 
noticed Poppy kind of limps...she kind of throws her left leg out as she is 
walking.  We thought we'd wait until walking was fully established until 
worrying - after all she has one thing wrong and what parent wants to think 
there could be something else.  Anyway she has now been walking unaided for 
about 2 months and I was starting to worry  because of the still obvious 
limp she has.  I laid her down the other day and when I put her legs out in 
front was astonished that the right is actually 2 cm longer than the left. 
It all made sense and we couldn't believe we overlooked it.  Whilst awaiting 
for xrays to come back I have done some internet research and I believe you 
call this condition hemihypertrophy.  Now I suddenly panicked when I saw 
that this could be related to a kidney cancer called Wilms' tumor.  My 
initial panic subsided and I began to think if she did have this Wilms 
surely they would have picked it up somewhere over the last year and a half 
amidst the numerous nuclear kidney scans and ultrasounds she has had.  I am 
praying that I am right and it is just a case of one leg being longer for 
growth reasons, but does anyone think it could be related to the urinary 
problem?  Could they have overlooked it during all of the tests?

Any info or thoughts would be truly appreciated...
best wishes



Kylie Carberry
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Re: [ozmidwifery] hemihypertrophy question

2005-09-13 Thread Andrea Quanchi
I agree I'd be looking at her hips before thinking of a kidney tumour. Urinary reflux is very common.
Andrea Q
On 13/09/2005, at 1:43 PM, Kylie Carberry wrote:

Hi Everyone,

I was in need of some information in regard to my 18 month old daughter, Poppy, and although I have a doctors appt it is not until tomorrow afternoon and I thought someone on this list may have some info on what I am looking for...

Poppy was diagnosed with urinary reflux at about seven weeks following a renal scan.  The scan was recommended as I had a two vessel cord which was apparent at my 18 week scan during pregnancy.  After several UTI's and assciated kidney infections (despite antib's), she has been booked in for surgery to correct the 'faulty' ureters that are causing the reflux. 

Since about 10 months old when she began to walk around furniture we have noticed Poppy kind of limps...she kind of throws her left leg out as she is walking.  We thought we'd wait until walking was fully established until worrying - after all she has one thing wrong and what parent wants to think there could be something else.  Anyway she has now been walking unaided for about 2 months and I was starting to worry  because of the still obvious limp she has.  I laid her down the other day and when I put her legs out in front was astonished that the right is actually 2 cm longer than the left.  It all made sense and we couldn't believe we overlooked it.  Whilst awaiting for xrays to come back I have done some internet research and I believe you call this condition hemihypertrophy.  Now I suddenly panicked when I saw that this could be related to a kidney cancer called Wilms' tumor.  My initial panic subsided and I began to think if she did have this Wilms surely they would have picked it up somewhere over the last year and a half amidst the numerous nuclear kidney scans and ultrasounds she has had.  I am praying that I am right and it is just a case of one leg being longer for growth reasons, but does anyone think it could be related to the urinary problem?  Could they have overlooked it during all of the tests?

Any info or thoughts would be truly appreciated...

best wishes


Kylie Carberry
-- This mailing list is sponsored by ACE Graphics. Visit  to subscribe or unsubscribe.

[ozmidwifery] hemihypertrophy question

2005-09-12 Thread Kylie Carberry
Hi Everyone,
I was in need of some information in regard to my 18 month old daughter, Poppy,and although I have a doctors appt it is not until tomorrow afternoon and I thought someone on this list may have some info on what I am looking for...
Poppy was diagnosed with urinary reflux at about seven weeks following a renal scan. The scan was recommended as I had a two vessel cord which was apparent at my 18 week scan during pregnancy. After several UTI's and assciated kidney infections (despite antib's), she has been booked in for surgery to correct the 'faulty' ureters that are causing the reflux. 
Since about 10 months old when she began to walk around furniture we have noticed Poppy kind of limps...she kind of throws her left leg out as she is walking. We thought we'd wait until walking was fully established until worrying - after all she has one thing wrong and what parent wants to think there could be something else. Anyway she has now been walking unaided for about 2 months and I was starting to worry because of the still obvious limp she has. I laid her down the other day and when I put her legs out in front was astonished that the right is actually 2 cm longer than the left. It all made sense and we couldn't believe we overlooked it. Whilst awaiting for xrays to come back I have done some internet research and I believe you call this condition hemihypertrophy. Now I suddenly panicked when I saw that this could be related to a 
kidney cancer called Wilms' tumor. My initial panic subsided and I began to think if she did have this Wilms surely they would have picked it up somewhere over the last year and a half amidst the numerous nuclear kidney scans and ultrasounds she has had. I am praying that I am right and it is just a case of one leg being longer for growth reasons, but does anyone think it could be related to the urinary problem? Couldthey have overlooked it during all of the tests?
Any info or thoughts would be truly appreciated...
best wishes

Kylie Carberry

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This mailing list is sponsored by ACE Graphics.
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Re: [ozmidwifery] hemihypertrophy question

2005-09-12 Thread brendamanning



Kylie,

Just my 2c worth !
This sounds more likely to be related to your little 
ones hips than her kidneys.
Perhaps she has a degree of congenital hip dysplasia 
which has been missed?
All will be revealedby the Xrays, in the 
meantime, love her heaps  try not to worry. If she looks well she probably 
is !

Brenda.

  - Original Message - 
  From: 
  Kylie Carberry 
  To: ozmidwifery@acegraphics.com.au 
  
  Sent: Tuesday, September 13, 2005 1:43 
  PM
  Subject: [ozmidwifery] hemihypertrophy 
  question
  
  
  Hi Everyone,
  I was in need of some information in regard to my 18 month old daughter, 
  Poppy,and although I have a doctors appt it is not until tomorrow 
  afternoon and I thought someone on this list may have some info on what I am 
  looking for...
  Poppy was diagnosed with urinary reflux at about seven weeks following a 
  renal scan. The scan was recommended as I had a two vessel cord which 
  was apparent at my 18 week scan during pregnancy. After several UTI's 
  and assciated kidney infections (despite antib's), she has been booked in for 
  surgery to correct the 'faulty' ureters that are causing the reflux. 

  Since about 10 months old when she began to walk around furniture we have 
  noticed Poppy kind of limps...she kind of throws her left leg out as she is 
  walking. We thought we'd wait until walking was fully established until 
  worrying - after all she has one thing wrong and what parent wants to think 
  there could be something else. Anyway she has now been walking unaided 
  for about 2 months and I was starting to worry because of the still 
  obvious limp she has. I laid her down the other day and when I put her 
  legs out in front was astonished that the right is actually 2 cm longer than 
  the left. It all made sense and we couldn't believe we overlooked 
  it. Whilst awaiting for xrays to come back I have done some internet 
  research and I believe you call this condition hemihypertrophy. Now I 
  suddenly panicked when I saw that this could be related to a kidney cancer 
  called Wilms' tumor. My initial panic subsided and I began to think if 
  she did have this Wilms surely they would have picked it up somewhere over the 
  last year and a half amidst the numerous nuclear kidney scans and ultrasounds 
  she has had. I am praying that I am right and it is just a case of one 
  leg being longer for growth reasons, but does anyone think it could be related 
  to the urinary problem? Couldthey have overlooked it during all of 
  the tests?
  Any info or thoughts would be truly appreciated...
  best wishes
  
  Kylie 
  Carberry-- This mailing 
  list is sponsored by ACE Graphics. Visit to 
  subscribe or unsubscribe.