[QUAD-L] Question to Brainstem stroke people

2004-12-28 Thread REELQUICK
Do any of you have problems with your temps going too high and you don't have a fever or infection? Do you know what causes this? My son John's temp went to over 104 Sunday night. His Oxygen level was ok, just had a high rapid pulse, no signs of infection. I did suction him...just clear fluid.

Re: [QUAD-L] Sad news

2004-12-28 Thread River Wolfe
Dear Eric, You and your family have my heartfelt sympathy in this difficult time. I agree with Stacy, don't fault yourself for being human. Do something for his wife and kids today, tomorrow and forever. Perhaps we could all do something today, in celebration of your cousin's life and

[QUAD-L] Sad news- Todd Olson

2004-12-28 Thread wheelchair
I'm sorry for the lose of your cousin, Todd Olson. I'm sure that he was a dedicated person and a great soldier. The feeling of guilt is normal and like all thing will pass in time. Your guilt is well worth sharing with other people in your life. We as a population always seem to forget to

Re: [QUAD-L] ESPN special on U of L QB

2004-12-28 Thread Houston809
Title: Re: [QUAD-L] ESPN special on U of L QB Dave Im so happy that now people with disabilities and disabilities period are being shown in positive ways and getting more prime time tv coverage. On 12/27/04 3:16 PM, David K. Kelmer [EMAIL PROTECTED] wrote: Hi Houston, I caught that piece

[QUAD-L] Where did Nan go?

2004-12-28 Thread Lori Michaelson
So she came and she went. Hmm Where art thou oh Nan? Lori "People come go so quickly around here." - Dorothy in The Wizard of Oz

[QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread Jessica Ann Gordon
i'm a c6/c7 female quad thinking about having the mitrofanoff procedure in order to catheterize myself. has anyone had this done and could u offer any advice? r u happy w/ the results? any info would be greatly appreciated! jessica

Re: [QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread Liz
I had it done in '96 with an augment. Best thing I ever did. go to www.sciwire.com there's alot of info there under the care section - Original Message - From: Jessica Ann Gordon [EMAIL PROTECTED] To: Quad List quad-list@eskimo.com Sent: Tuesday, December 28, 2004 12:39 PM Subject:

[QUAD-L] hands free phone

2004-12-28 Thread Liz
Hi, Looking for a hands free phone that will be used by a consumer with MS. The person does use ATT as there service. Verizon has a program for PwD, ATT does not. The Ameriphone costs 600.00. Any suggestions?

Re: [QUAD-L] Sad news- Todd Olson

2004-12-28 Thread Houston809
I'm sorry for the lose of your cousin My deepest condolences 2 your family

Re: [QUAD-L] sexual Frustration

2004-12-28 Thread B. Kimberlin
Houston, You have brought up an interesting point which I was meaning to ask everyone. I understand the prostate gland produces the sperm and when there is too much sperm it exits somebody in the form of what many people call a "wet dream." I am wondering if I am having "wet dreams" when I have

Re: [QUAD-L] hands free phone

2004-12-28 Thread Jkrocks
Before paying for a hands-free phone, contact your phone company or your county services Intel and exactly what you need. The Ameriphone that I have, which is not hooked up yet, was free. Jim

[QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread wheelchair
This is not a new proceedure. Its been performed hundreds of times over the last 10+ years on people with spina bifida. A flap over the belly button, lead you to tapping your bladder when necessary. Just ask you doctor how many they have performed. W In a message dated 12/28/04 11:39:44 AM,

Re: [QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread Liz
I am a c6 and use self contained caths. I refer to them as pee-n-toss. I self cath through a stoma in my belly button. There is no apparent flap. it looks the same as it did before surgery. I have some scarring but it has faded. My doc used part of my intestine. They also may use your

Re: [QUAD-L] hands free phone

2004-12-28 Thread QuadPirate
Liz you can buy phones on Ebay very cheap that work great. I use a PDA/Phone and it works awesome, there are many brands of these to choose from just be sure to purchase a reputable name and almost any phonewill work with all carriers. I have a Pocket PC from Verizon but use Altell as my

Re: [QUAD-L] hands free phone

2004-12-28 Thread Sherry
well...Hey ya.. If you have any of the Bells...you can contact their accessibility /disabled division, and they will send you an adaptive phone for free..(usually a speaker phone with large buttons I think) It wont work through their regular CS..they dont know about it... oddquads

[QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread wheelchair
Thanks Liz for the update on this proceedure. Having a doctor that has performed a number of these precedures instills more confidence in the consideration of having it done. W In a message dated 12/28/04 3:13:44 PM, [EMAIL PROTECTED] writes: I am a c6 and use self contained caths. I refer

Re: [QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread Stacy Harim
I was supposed to get the surgery in January, but it doesn't look like the timing is going to work out. I am thinking about spring break but still not sure. I was told I would be in the hospital a week. Stacy - Original Message - From: [EMAIL PROTECTED] To:

Re: [QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread B. Kimberlin
The women I have known that have had this procedure took some time to recuperate fully. You might want to consider the summer break.BillyStacy Harim [EMAIL PROTECTED] wrote: I was supposed to get the surgery in January, but it doesn't look like the timing is going to work out. I am thinking

[QUAD-L] new pics

2004-12-28 Thread Stuntman
Hey hey, Some new pics at: http://quads.nw-in.com/quad-list/quad-list1.htm Stuntman Billy at the University of South Florida graduation. Stuntman [EMAIL PROTECTED] wrote: Sure, I'll add it to our growing list of pics on line: I have my own domain.

Re: [QUAD-L] new pics

2004-12-28 Thread Oconnelldb
great pics stuntman. how about some names for those of us who don't recognize everyone? dave p.s. i'm just finishing up dan brown's "angels and demons". what a GREAT book. "da vinci code" was great too - Digital Fortress is next. what a super story teller. http://www.danbrown.com/ In a

Re: [QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread River Wolfe
hi, I have seriously considered this surgery, as an indwelling foley in the meatus is so troublesome over time. I also really would like to swim, mithrofanoff is the only thing aside from intermittent cathing through meatus, that will allow me to swim (according to my Dr.). After some serious

Re: [QUAD-L] sexual Frustration

2004-12-28 Thread Houston809
Title: Re: [QUAD-L] sexual Frustration Ive not had it clog up my catheter as of yet knock on wood. On 12/28/04 2:01 PM, B. Kimberlin [EMAIL PROTECTED] wrote: Houston, You have brought up an interesting point which I was meaning to ask everyone. I understand the prostate gland produces the

[QUAD-L] prepay phone plan

2004-12-28 Thread River Wolfe
Hi all, Well after the massive storm and a series of unfortunate events ;-) I've decided to get a cell phone. I need a prepay plan and a phone. There are tons of packages out there, I thought I'd see what plans others have and what they like. Verizon is out, they have terrible customer

Re: [QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread Stacy Harim
The down side of the suprapubic is having to still wear the bed/leg bag. I want to rid that all together. Also I am not concerned with my hospital stay this time. When I was a quad and unable to turn myself, I had a few but since I am able to turn myself, even though I just sleep on a

Re: [QUAD-L] Mitrofanoff Procedure

2004-12-28 Thread Liz
an sp is still indwelling - Original Message - From: River Wolfe To: B. Kimberlin ; quad Sent: Tuesday, December 28, 2004 5:32 PM Subject: Re: [QUAD-L] Mitrofanoff Procedure hi,I have seriously considered this surgery, as an indwelling foley in the meatus

Re: [QUAD-L] new pics

2004-12-28 Thread Houston809
Stuntman I know andrea now who are the others? Who's lil pups? On 12/28/04 5:21 PM, Stuntman [EMAIL PROTECTED] wrote: Hey hey, Some new pics at: http://quads.nw-in.com/quad-list/quad-list1.htm Stuntman Billy at the University of South Florida graduation. Stuntman [EMAIL PROTECTED]

Re: [QUAD-L] prepay phone plan

2004-12-28 Thread Oconnelldb
I love my pay as you go plan. I use mine for emergencies only so the 40 cents a minute is ok. To get more minutes, I dial #611 and enter minutes wanted and a credit card number. Instant more minutes. Very cool. If I don't make one call in a month, they charge me $4.00. (so I call the wife

Re: [QUAD-L] sexual Frustration

2004-12-28 Thread River Wolfe
Houston, you crack me up. ;-) There's nothing like being on a bus going downtown and having a major blowup. Stinking the whole bus up :) well that's aight:) I enjoy seeing the faces on the people tryin 2 figure out where the smells coming from. I look around also like I'm tryin 2 figure it

Re: [QUAD-L] prepay phone plan

2004-12-28 Thread wheelchair
Find out who's got the most towers in your service area. Having a tower close to you will ensure good calling... and receiving. An telephone company is only as good as its closest tower. Check them all out for the best in your area. Best Wishes W In a message dated 12/28/04 4:36:39 PM,

Re: [QUAD-L] Sad news

2004-12-28 Thread SCIQuad96
Eric, I send out my prayers to you and his family... Keith/c4c5/NJ

Re: [QUAD-L] new pics - how to tell

2004-12-28 Thread wheelchair
Aaww Keith. You took all of the funfrom the chase. Now that woulda been interesting, eh? W In a message dated 12/28/04 5:30:40 PM, [EMAIL PROTECTED] writes: Easy way of knowing who the people are in each pic is place your mouse over each pic and the name that stuntman gave his

Re: [QUAD-L] sexual Frustration

2004-12-28 Thread SCIQuad96
britri writes: I would rather have full sexual function than bowel/bladder control,What do you guys think? Gimmie' bowel control any day. Keith/c4c5/NJ

Re: [QUAD-L] sexual Frustration

2004-12-28 Thread SCIQuad96
river writes: You may be surprised at what you feel when viewing something that arouses you (whatever that may be not necessairly porn), your BIGGEST sex organ is between your ears. Hey River, I can truly say now (because of being paralyzed) I can agree with your statement 100%. If I could go

Re: [QUAD-L] new pics

2004-12-28 Thread B. Kimberlin
What irony. I just finished Angels and Demons just three days ago myself. I am now reading my most treasured Christmas present (probably because it's my only one) Nelson DeMille's newest book, Night Fall. Billy[EMAIL PROTECTED] wrote: great pics stuntman. how about some names for those of us

Re: [QUAD-L] prepay phone plan

2004-12-28 Thread B. Kimberlin
Who do you use for a server?Billy in Tampa[EMAIL PROTECTED] wrote: I love my pay as you go plan. I use mine for emergencies only so the 40 cents a minute is ok. To get more minutes, I dial #611 and enter minutes wanted and a credit card number. Instant more minutes. Very cool. If I don't make

Re: [QUAD-L] sexual Frustration

2004-12-28 Thread River Wolfe
wel. I'm here to tell you, it does work the other way around. I, being a woman, have been told my skills in the bedroom are quite good too. ;-) River (giggle) On Dec 28, 2004, at 2:01 PM, B. Kimberlin wrote: It is true that quad men are know for their abilities in the bedroom.

Re: [QUAD-L] Sad news

2004-12-28 Thread Sherry
Ahhh Eric, I give my heart to you and yours. And truly, no need to feel guilty..He was in your heart and that is what matters..all that matters. Someone I know also passed on Christmas day..and I have never seen a nicer letter/email from her husband regarding it..I'm sending it here..to

Re: [QUAD-L] sexual Frustration

2004-12-28 Thread Oconnelldb
river, you little spark plug you. if you ever wanna try some AC just roll that thang ova here, girl. i've been described similarly. "ooohhh", "oh god", and "oohhh yeah" have been gutteraled under my influence as well. dave In a message dated 12/28/2004 6:22:35 P.M. US Mountain Standard

Re: [QUAD-L] prepay phone plan

2004-12-28 Thread Stacy Harim
What plan do you use? Stacy - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, December 28, 2004 5:45 PM Subject: Re: [QUAD-L] prepay phone plan I love my pay as you go plan. I use mine for emergencies only so the 40