Re: [QUAD-L] medical supplies

2024-05-28 Thread Lissette Whitehead
What is the material and size of the catheters? Get Outlook for iOS<https://aka.ms/o0ukef> From: Nichole Rohling Sent: Tuesday, May 28, 2024 11:56:02 AM To: 'Michael Galvin' ; quad-list@eskimo.com Subject: RE: [QUAD-L] medical supplies What brand l

RE: [QUAD-L] medical supplies

2024-05-28 Thread Nichole Rohling
What brand leg bag and what tubing? From: Michael Galvin [mailto:whatsu...@gmail.com] Sent: Tuesday, May 28, 2024 9:33 AM To: quad-list@eskimo.com Subject: [QUAD-L] medical supplies I have a bunch of leg bags, tubing and catheters. If anyone is interested and willing to pay for the

Re: [QUAD-L] medical supplies

2024-05-28 Thread Eric Olson
It depends on what brand of leg bags and extension tubes. Also, what brand and size are the catheters? On Tue, May 28, 2024 at 9:32 AM Michael Galvin wrote: > > I have a bunch of leg bags, tubing and catheters. If anyone is interested > and willing to pay for the shipping, I will send them to

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-25 Thread Don Price
; 'Dan G.' <dng47...@gmail.com>; 'Daniel Gove' <quadz...@optonline.net>; wheel...@centurylink.net; 'Edward Tessier' <e...@artecopartners.com>Subject: RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-21 Thread Noel
, April 11, 2024 11:28 AM > *To:* 'Ben Mattlin' ; 'Jeffrey Gaede' < > jsga...@yahoo.com>; quad-list@eskimo.com; 'Dan G.' ; > 'Daniel Gove' ; wheel...@centurylink.net; 'Edward > Tessier' > *Subject:* RE: [QUAD-

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-15 Thread Don Price
nt: Thursday, April 11, 2024 11:28 AM To: 'Ben Mattlin' ; 'Jeffrey Gaede' ; quad-list@eskimo.com; 'Dan G.' ; 'Daniel Gove' ; wheel...@centurylink.net; 'Edward Tessier' Subject: RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/re

RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-11 Thread Ben Mattlin
Probably right. Many thanks. From: Eric Olson Sent: Thursday, April 11, 2024 11:48 AM To: Ben Mattlin Cc: Jeffrey Gaede ; quad-list@eskimo.com; Dan G. ; Daniel Gove ; wheel...@centurylink.net; Edward Tessier Subject: Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-11 Thread Eric Olson
*Sent:* Wednesday, April 10, 2024 8:44 PM > *To:* quad-list@eskimo.com; Dan G. ; Daniel Gove < > quadz...@optonline.net>; wheel...@centurylink.net; Edward Tessier < > e...@artecopartners.com> > *Subject:* Re: [QUAD-L] > https://www.amazon.com/Orthopedic-Cushion-H

RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-11 Thread Ben Mattlin
' ; quad-list@eskimo.com; 'Dan G.' ; 'Daniel Gove' ; wheel...@centurylink.net; 'Edward Tessier' Subject: RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib

RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-11 Thread Paul Jacobson
to you. Hope this helps. Paul From: Ben Mattlin Sent: Thursday, April 11, 2024 10:44 AM To: 'Jeffrey Gaede' ; quad-list@eskimo.com; 'Dan G.' ; 'Daniel Gove' ; wheel...@centurylink.net; 'Edward Tessier' Subject: RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable

RE: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-11 Thread Ben Mattlin
, quad from spinal muscular atrophy) From: Jeffrey Gaede Sent: Wednesday, April 10, 2024 8:44 PM To: quad-list@eskimo.com; Dan G. ; Daniel Gove ; wheel...@centurylink.net; Edward Tessier Subject: Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-10 Thread Jeffrey Gaede
to go back to work and be more active raising my kids https://www.ridedesigns.com/wheelchair-cushionsFrom: Jeffrey Gaede Sent: Tuesday, April 9, 2024 10:33 AM To: quad-list@eskimo.com ; Dan G. ; Daniel Gove ; wheel...@centurylink.net Subject: Re: [QUAD-L] https://www.amazon.com/Orthopedic

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-10 Thread Edward Tessier
From: Jeffrey Gaede Sent: Tuesday, April 9, 2024 10:33 AM To: quad-list@eskimo.com ; Dan G. ; Daniel Gove ; wheel...@centurylink.net Subject: Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-09 Thread Jeffrey Gaede
True On Tuesday, April 9, 2024 at 10:26:34 AM PDT, wheel...@centurylink.net wrote: i bought one like this and it made me so unbalance that i could not sit on it. i am thinking of designing and making my own cushion with cutout for groin area. get really thick memory foam or other

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-09 Thread wheelsdw
i bought one like this and it made me so unbalance that i could not sit on it. i am thinking of designing and making my own cushion with cutout for groin area. get really thick memory foam or other material and cut out a hole. or use donut cushion with other material around it. there is a

Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

2024-04-07 Thread Jeffrey Gaede
One thing I was warned about this type of objects a long time ago was that, while you are relieving pressure to the area in the middle, the outside rings can be cutting off at least some blood flow to where you are relieving pressure. Not saying that it shouldn't be used. Just say be careful. 

Re: [QUAD-L] Question about lockdown systems.

2024-03-02 Thread SHIRLEY BELL
I have a manual chair with ez lock > On 02/19/2024 5:53 PM EST wheelch...@aol.com wrote: > > > > Greetings, > I've never seen a manual wheelchair, using a single post on an EZ Lock > System, for driving or riding. I have seen double wheel securement for > riding wheelchairs. The

Re: [QUAD-L] Question about lockdown systems.

2024-02-27 Thread Don Price
Hi everyone! Invacare is in business again and has released a rear-wheel drive Storm model. I have one and so far it has worked well for me (I've been using it about a year now.)It's probably very different from the old Storm model, but if you're an Invacare fan it's worth looking into. Mine

Re: [QUAD-L] Question about lockdown systems.

2024-02-22 Thread Edward Tessier
Subject: Re: [QUAD-L] Question about lockdown systems. Thank you Nicki & EVERYONE ! All input is very much appreciated! Shelly c5-c6-c7 On Tuesday, February 20, 2024 at 05:52:11 PM EST, Nichole Rohling wrote: I’ve had 3 Invacare chairs over over 25 years….I refuse to change to any o

Re: [QUAD-L] Question about lockdown systems.

2024-02-22 Thread wheelsdw
ink.net] *Sent:* Tuesday, February 20, 2024 1:11 PM *To:* wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL *Subject:* Re: [QUAD-L] Question about lockdown systems. I am going through process of getting new electric wheelchair and trying to get a model that has an ezlock for it. I have

Re: [QUAD-L] Question about lockdown systems.

2024-02-20 Thread Shelly Kerchner
ered-Wheelchairs/Rear-Wheel-Drive/c/Rear-Wheel-Drive   Nicki C5/6   From: wheel...@centurylink.net [mailto:wheel...@centurylink.net] Sent: Tuesday, February 20, 2024 1:11 PM To: wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL Subject: Re: [QUAD-L] Question about lockdown sys

RE: [QUAD-L] Question about lockdown systems.

2024-02-20 Thread Nichole Rohling
1:11 PM To: wheelch...@aol.com; Shelly Kerchner; Quad-list; SHIRLEY BELL Subject: Re: [QUAD-L] Question about lockdown systems. I am going through process of getting new electric wheelchair and trying to get a model that has an ezlock for it. I have invacare storm series but invacare went

Re: [QUAD-L] Question about lockdown systems.

2024-02-20 Thread wheelch...@aol.com
Invacare is still in business Worldwide and continues to make some excellent electric wheelchairs.Second, Dealers should not advise you of which brand and model is best for you.  They have an agenda to sell YOU something, to make a profit.  Same as a car dealer, trying to telling YOU to buy a

Re: [QUAD-L] Question about lockdown systems.

2024-02-20 Thread wheelsdw
I am going through process of getting new electric wheelchair and trying to get a model that has an ezlock for it. I have invacare storm series but invacare went bankrupt, and dealer wants me to switch to Quantum R-TRAK rear wheel drive.Does anybody with ezlock have one for quantum chair? I

Re: [QUAD-L] Cordless phone do you all use?

2024-02-20 Thread Eric Olson
Mine is a Panasonic KX-TGE23. It's an older model now, but I just searched for - Panasonic cordless phone on Best Buy and there is a bunch to choose from. Happy hunting On Mon, Feb 19, 2024 at 2:39 PM Daniel Gove wrote: > Hello Everyone, > I just have a quick question for the group. I'm

Re: [QUAD-L] Question about lockdown systems.

2024-02-19 Thread Jeffrey Gaede
I have a power wheelchair and an EZ lock system in my van. The one thing I would warn about is to make sure they don't install that "single post" so low on your chair, manual or not, that it interferes with bumps, curb cuts or anything else. That's an issue I'm dealing with now.Jeff On

Re: [QUAD-L] Question about lockdown systems.

2024-02-19 Thread Shelly Kerchner
Thank you! So very much! I no longer feel so very alone! On Monday, February 19, 2024 at 05:53:18 PM EST, wheelch...@aol.com wrote: Greetings,I've never seen a manual wheelchair, using a single post on an EZ Lock System, for driving or riding.   I have seen double wheel securement

Re: [QUAD-L] Question about lockdown systems.

2024-02-19 Thread wheelch...@aol.com
Greetings,I've never seen a manual wheelchair, using a single post on an EZ Lock System, for driving or riding.   I have seen double wheel securement for riding wheelchairs.  The design of an EZ lock system was designed for drivers and riders using powered chairs.  I would consider going

Re: [QUAD-L] Question about lockdown systems.

2024-02-19 Thread SHIRLEY BELL
Hi Shelly, are you in the new England area? > On 02/19/2024 2:40 PM EST Shelly Kerchner wrote: > > > hi to all ! Past two years been having health issues/skin breakdown, rotator > cuff surgery, recovery, etc. so I have been absent from this group! I hope > everyone is well! > >

RE: [QUAD-L] CNA rates?

2024-01-29 Thread Paul Jacobson
- $30/hr. It seems to work. Thank you, Paul c5/6 From: Aaron Mann Sent: Monday, January 29, 2024 3:41 PM To: Eric Olson Cc: Dana ; Daniel Gove ; quad-list@eskimo.com Subject: Re: [QUAD-L] CNA rates? I know the rate that we pay our attendants can vary based on where we live, but I

Re: [QUAD-L] CNA rates?

2024-01-29 Thread Aaron Mann
I know the rate that we pay our attendants can vary based on where we live, but I have a hard time seeing more than $25 an hour being the top end. Especially just for basic ADLs. If you are paying $30 an hour, I sure hope your expectation of care is stellar. I mean immaculate care, always on time,

Re: [QUAD-L] CNA rates?

2024-01-29 Thread wheelsdw
I agree that you are over paying for ADL'S. $30/hr is nurse pay. not CNA. I live in rural area. Agencys here pay workers $9.50/hour for part time. Other pays $14/hour. If I paid $30/hour, there would be a line of people wanting the job. You should look to hire young people just out of school. I

Re: [QUAD-L] CNA rates?

2024-01-27 Thread Eric Olson
I agree. $30/hour seems awfully generous even if your cares were extensive and more complex. Doing just basic ADL'S seems like a pretty easy gig especially for that money On Sat, Jan 27, 2024 at 5:54 AM Dana wrote: > That is way above the average pay a CNA makes. They should not be asking >

Re: [QUAD-L] CNA rates?

2024-01-27 Thread Dana
That is way above the average pay a CNA makes. They should not be asking for a raise if so I try to find other people. That's just my opinion. It will be great to hear, what others have to say from the list. Thank you for asking pertinent questions. Dana On Thu, Jan 25, 2024 at 3:18 PM Daniel

Re: [QUAD-L] sweating profusely when laying on my side at night

2024-01-12 Thread Jeffrey Gaede
A lot of this sounds way too familiar for me. I would be thinking hip bones/heads of your femur pressure points or less likely your ischeal (butt) bone. You may want to have it checked out now because if it's started something inside that's yet to show itself, there may be something that can

Re: [QUAD-L] sweating profusely when laying on my side at night

2024-01-12 Thread Eric Olson
Wish I could help. You could just monitor it, but if it continues, I would assume something is going on. I don't have any sweating issues so I can't really relate.Regardless, sweating is probably not a good sign. Sorry I couldn't be more helpful On Thu, Jan 11, 2024 at 10:37 PM Michelle Harkness

Re: [QUAD-L] sweating profusely when laying on my side at night

2024-01-11 Thread Michelle Harkness
Hey Greg! I'm a C5 Quad, 30 years post. It's always either a pressure point, bowel or UTI for me. Bowel and UTI are usually not constant though, they come and go for sweats, like when I'm actually pooping. I also use a magic bullet every other night and have been successful with it for 30

Re: [QUAD-L] Leg Fracture - Above knee

2024-01-03 Thread Tod Santee
40 years this August > -- > *From:* Edward Tessier > *Sent:* Wednesday, January 3, 2024 4:22 PM > *To:* Tod Santee ; Philip Wells < > philipdwe...@gmail.com> > *Cc:* quad-list > *Subject:* Re: [QUAD-L] Leg Fracture - Above knee > > hey Ph

Re: [QUAD-L] Leg Fracture - Above knee

2024-01-03 Thread Edward Tessier
sorry for my typo! I'll be a quad 40 years this August From: Edward Tessier Sent: Wednesday, January 3, 2024 4:22 PM To: Tod Santee ; Philip Wells Cc: quad-list Subject: Re: [QUAD-L] Leg Fracture - Above knee hey Philip and Todd, Thank you so much for posting

Re: [QUAD-L] Leg Fracture - Above knee

2024-01-03 Thread Edward Tessier
From: Tod Santee Sent: Wednesday, January 3, 2024 4:15 PM To: Philip Wells Cc: quad-list Subject: Re: [QUAD-L] Leg Fracture - Above knee Hi Philip, I'm 56, (C5/6 for 40 yrs) and broke my femur --just above the knee-- in a car accident 2 yrs ago. Even with my advanced

Re: [QUAD-L] Leg Fracture - Above knee

2024-01-03 Thread Edward Tessier
From: Tod Santee Sent: Wednesday, January 3, 2024 4:15 PM To: Philip Wells Cc: quad-list Subject: Re: [QUAD-L] Leg Fracture - Above knee Hi Philip, I'm 56, (C5/6 for 40 yrs) and broke my femur --just above the knee-- in a car accident 2 yrs ago. Even

Re: [QUAD-L] Leg Fracture - Above knee

2024-01-03 Thread Tod Santee
Hi Philip, I'm 56, (C5/6 for 40 yrs) and broke my femur --just above the knee-- in a car accident 2 yrs ago. Even with my advanced osteoporosis it healed well with no bracing needed. I also had a burst fracture at L4 that was a whole different story. We thought my leg was causing autonomic

Re: [QUAD-L] PROLIA

2024-01-03 Thread Tod Santee
Hi Paul, I'm also a C5/6 quad. I've been getting Prolia for the past 3 yrs and haven't felt any difference after any injections. It seems to have, at least, slowed my bone loss. My SCI was in 1983 so I'm 40 yrs into this. I started with Fosamax pills around 2000, then moved on to another

Re: [QUAD-L] BONE DENISITY

2023-12-27 Thread SHIRLEY BELL
I gree, I tied some shots, they did help but would have to keep doing and they have side effects. My primary said the same. plus no weight bearing. > On 12/27/2023 3:00 PM EST Eric Olson wrote: > > > This is just my opinion, but I think you hit the nail on the head. Without > weight

Re: [QUAD-L] BONE DENISITY

2023-12-27 Thread Eric Olson
This is just my opinion, but I think you hit the nail on the head. Without weight bearing, do these drugs do anything? They were not developed to be used for people that are not weight bearing, Just my 2 cents. On Wed, Dec 27, 2023 at 2:35 AM Dana wrote: > I wonder why they took me off

Re: [QUAD-L] BONE DENISITY

2023-12-27 Thread Dana
I wonder why they took me off Fosamax, maybe my bone density had not improved. I don’t know if our bone density can ever improve since we aren’t able to bear weight. What do you think? Dana On Thu, Dec 14, 2023 at 8:35 AM Noel wrote: > I was diagnosed with osteoporosis about 10 years ago, high

Re: [QUAD-L] Prolia to treat osteoporosis

2023-12-24 Thread Tod Santee
2023 1:42:27 PM > *To:* 'Paul Jacobson' ; 'quad-list' < > quad-list@eskimo.com> > *Subject:* RE: [QUAD-L] Prolia to treat osteoporosis > > > Yup. I've been on it for several years now. One shot every six months. > Other quads had warned me about bad side effects, but

Re: [QUAD-L] BONE DENISITY

2023-12-14 Thread Noel
I was diagnosed with osteoporosis about 10 years ago, high risk of fracture. I've been taking Fosamax ever since. I had another bone density test a couple of months ago, to see if the Fosamax was working. She didn't give me the results of the latest bone density test, just tell me to keep taking

Re: [QUAD-L] bladder update

2023-12-13 Thread Michelle Harkness
PMNR = Physical Medicine and Rehabilitation I'm not sure if you fully understand what a supra pubic catheter is? It's a foley catheter, inserted in the hole they make in your abdomen that sits in your bladder. There is literally an open hole in your abdomen and that is where the catheter comes

Re: [QUAD-L] BONE DENISITY

2023-12-13 Thread Dana
Yes I have taken for several years. I need to get a DEXA scan before I can get another injection. This is my third type of treatment for osteoporosis. I was injured at 20 and the state would not pay for a standing frame like they suggested at rehab, this caused me to get osteoporosis. I go to a

Re: [QUAD-L] bladder update

2023-12-12 Thread SHIRLEY BELL
what is a PMNR doc? When you used a night bag you must have used a floley. Also, when you capped off the s pubic, did you use a reg cath to drain it intermittently? Also, where did you have these surgeries? I am in RI sorry to keep asking, it is confusing. I read online that with a supra pub

Re: [QUAD-L] bladder update

2023-12-12 Thread Michelle Harkness
Hey Shirley, I actually capped mine off and drained it periodically - trying to sustain some bladder capacity. It was tiny though, and only could hold about 100-150 cc's before I had to empty it. I did use a night bag when sleeping to make things easier though. I would speak with your quad doc

Re: [QUAD-L] bladder update

2023-12-12 Thread SHIRLEY BELL
Hi Michelle, one question, when you did supra pubic did you use a Foley catheter? you would have had to? Please let me know thanks! > On 12/11/2023 9:52 PM EST Michelle Harkness > wrote: > > > Hey Shirley! I've been on this page forever and learned lots from y'all, but > I tend to keep

Re: [QUAD-L] bladder update

2023-12-12 Thread SHIRLEY BELL
Thank you Michelle. I don't think I would be a candidate for this because I used a foley all these yrs but I will ask. Good luck to us all on this quad journey! > On 12/11/2023 9:52 PM EST Michelle Harkness > wrote: > > > Hey Shirley! I've been on this page forever and learned lots from

Re: [QUAD-L] bladder update

2023-12-12 Thread SHIRLEY BELL
How can you have this Mitrofinoff surgery after yrs of a folley? > On 12/12/2023 4:12 PM EST Michelle Harkness > wrote: > > > Eric - I was TERRIFIED of the Mitrofinoff surgery for about 28 years. I had > never had a surgery other than my spinal fusion, so I was not on board with >

Re: [QUAD-L] bladder update

2023-12-12 Thread Michelle Harkness
Eric - I was TERRIFIED of the Mitrofinoff surgery for about 28 years. I had never had a surgery other than my spinal fusion, so I was not on board with signing up for anything major! I'm also on blood thinners because of blood clots/pulmonary embolism and I'm overweight, so add those two layers

Re: [QUAD-L] bladder update

2023-12-12 Thread Eric Olson
I had my supra pubic done a couple decades ago and it certainly makes things easier for my care givers. I still have problems with uti's. I was thinking about the Mitrofinoff,but it is a no joke surgery. I have started doing gentamicin bladder irrigations. Gentamicin is an antibiotic. It's

Re: [QUAD-L] bladder update

2023-12-11 Thread Michelle Harkness
Hey Shirley! I've been on this page forever and learned lots from y'all, but I tend to keep kinda quiet. Not sure what your situation is exactly, but I've been a C5-6 quad for 30 years and I had always done intermittent cathing, relying on someone else for help with it. In February of this

Re: [QUAD-L] bladder update

2023-12-11 Thread wheelch...@aol.com
Thanks for the update.  The bladder, over time, for those with indwelling caths, will/can shrink to the size of a walnut, compared to what it used to be.  When you consider the size of the cath, plus the balloon, inside a walnut.  there is not much room for urine to collect and it may pass

Re: [QUAD-L] Ileostomy

2023-12-08 Thread Gail Holmes
al Cleroux Subject: Re: [QUAD-L] Ileostomy   I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor didn’t know how to do the surgery that was needed to make another ileo-conduit. She wanted to put me on hospice. We started cal

Re: [QUAD-L] Ileostomy

2023-12-08 Thread Danny Hearn
Wednesday, December 6, 2023 10:39 PM To: Eric Olson Cc: Quad List ; Val Cleroux Subject: Re: [QUAD-L] Ileostomy I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor didn’t know how to do the surgery that was needed to make another il

Re: [QUAD-L] Ileostomy

2023-12-08 Thread Val Cleroux
ubject: Re: [QUAD-L] Ileostomy I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor didn’t know how to do the surgery that was needed to make another ileo-conduit. She wanted to put me on hospice. We started calling every kid

Re: [QUAD-L] Ileostomy

2023-12-07 Thread Edward Tessier
Wow, what a journey Dana So glad you are still with us From: Dana Sent: Wednesday, December 6, 2023 10:39 PM To: Eric Olson Cc: Quad List ; Val Cleroux Subject: Re: [QUAD-L] Ileostomy I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept

Re: [QUAD-L] Ileostomy

2023-12-06 Thread Dana
I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor didn’t know how to do the surgery that was needed to make another ileo-conduit. She wanted to put me on hospice. We started calling every kidney doctor and that was able to do

Re: [QUAD-L] Ileostomy

2023-12-06 Thread Edward Tessier
Sorry, I just saw this email from months ago. Have you made a decision on what to do? My late best friend had her ileostomy after years of incontinence, occasional impactions, and discomfort with every bowel movement. She hated the idea of the colostomy bag, so she resisted her doctor's

Re: [QUAD-L] Prolia to treat osteoporosis

2023-12-05 Thread toran spencer
Outlook for iOS<https://aka.ms/o0ukef> From: Ben Mattlin Sent: Sunday, December 3, 2023 1:42:27 PM To: 'Paul Jacobson' ; 'quad-list' Subject: RE: [QUAD-L] Prolia to treat osteoporosis Yup. I've been on it for several years now. One shot every six months.

RE: [QUAD-L] Prolia to treat osteoporosis

2023-12-03 Thread Ben Mattlin
Yup. I've been on it for several years now. One shot every six months. Other quads had warned me about bad side effects, but I've never experienced any. My latest bone-density scans don't show any improvement, but my osteoporosis has not gotten worse, either. My doctor says that's a win. From:

Re: [QUAD-L] PLAN F PLANS

2023-11-30 Thread SHIRLEY BELL
never heard of? > On 11/30/2023 3:11 AM EST Dana wrote: > > > What is plan F, As I have never heard of before. Thank you Paul > > On Wed, Nov 29, 2023 at 5:25 PM Paul Jacobson mailto:pjacob...@san.rr.com> wrote: > > > > > Hi, it is that time of the year where I need to renew Plan F. > >

Re: [QUAD-L] PLAN F PLANS

2023-11-30 Thread Dana
What is plan F, As I have never heard of before. Thank you Paul On Wed, Nov 29, 2023 at 5:25 PM Paul Jacobson wrote: > Hi, it is that time of the year where I need to renew Plan F. > > Does anyone know where I can find simple cost comparisons? > > > > Thank you, > > > > Paul > > C5/6 Injured

Re: [QUAD-L] indwelling urinary catheter problems

2023-11-06 Thread Don Price
; 'Danny Hearn'; quad-list@eskimo.com Subject: Re: [QUAD-L] indwelling urinary catheter problems     How often should you flush your tube often?    Get Outlook for iOS From: Nichole Rohling Sent: Saturday, November 4, 2023 1:02:48 PM To: 'Danny Hearn' ; quad-list@eskimo.com Subject: RE: [QUAD

Re: [QUAD-L] indwelling urinary catheter problems

2023-11-06 Thread Don Price
Regarding my post about colloidal silver bladder flush. The colloidal silver comes in a suspension of distilled water. How much of it you use will vary from person to person, depending on your bladder capacity. I know my bladder holds about 100cc comfortably for 20 minutes, but yours may hold

RE: [QUAD-L] indwelling urinary catheter problems

2023-11-05 Thread Nichole Rohling
Great to see you post! I’ll have to check it out! Nicki From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Sunday, November 5, 2023 2:00 PM To: 'toran spencer'; quad-list@eskimo.com; Nichole Rohling Subject: Re: [QUAD-L] indwelling urinary catheter problems Not sure

Re: [QUAD-L] indwelling urinary catheter problems

2023-11-05 Thread wheelch...@aol.com
wrote: I do 30 ml twice in the evening when I get in bed and 1 time in the morning before I get up       From: toran spencer [mailto:toran.spen...@outlook.com] Sent: Saturday, November 4, 2023 4:31 PM To: Nichole Rohling; 'Danny Hearn'; quad-list@eskimo.com Subject: Re: [QUAD-L

RE: [QUAD-L] indwelling urinary catheter problems

2023-11-05 Thread Nichole Rohling
I do 30 ml twice in the evening when I get in bed and 1 time in the morning before I get up From: toran spencer [mailto:toran.spen...@outlook.com] Sent: Saturday, November 4, 2023 4:31 PM To: Nichole Rohling; 'Danny Hearn'; quad-list@eskimo.com Subject: Re: [QUAD-L] indwelling urinary

Re: [QUAD-L] indwelling urinary catheter problems

2023-11-04 Thread toran spencer
How often should you flush your tube often? Get Outlook for iOS<https://aka.ms/o0ukef> From: Nichole Rohling Sent: Saturday, November 4, 2023 1:02:48 PM To: 'Danny Hearn' ; quad-list@eskimo.com Subject: RE: [QUAD-L] indwelling urinary catheter proble

RE: [QUAD-L] indwelling urinary catheter problems

2023-11-04 Thread Nichole Rohling
I just use sterile water. Work fine for me. Nicki From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Saturday, November 4, 2023 2:07 PM To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede Cc: quad-list Subject: Re: [QUAD-L] indwelling urinary catheter problems I have a supra-pubic

Re: [QUAD-L] indwelling urinary catheter problems

2023-11-04 Thread Danny Hearn
I have a supra-pubic also..like some of you I have persistant bacteria that I live with also, when I flush we just use sterile water, I have read that some use saline or a mix of water and 0.25 acetic acid, I have not tried the colloidal silver as a flush eitherwhat type flush do most

Re: [QUAD-L] indwelling urinary catheter problems

2023-11-04 Thread Eric Olson
How much water and how much silver? On Fri, Nov 3, 2023 at 3:13 PM Don Price wrote: > Shirley, > > I hope you get everything figured out and working properly again. UTIs and > incontinence are such a life-suck. They're just about the hardest part of > life with SCI. > > I'm 41 years post-injury

Re: [QUAD-L] indwelling urinary catheter problems

2023-11-03 Thread Jeffrey Gaede
I feel for you, Shirley. I'm right there with you, Don. I really don't have an issue with incontinence but I've had my share of UTIs (indwelling catheter). I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" that's not an issue for the most part. I'm told it's just

Re: [QUAD-L] indwelling urinary catheter problems

2023-11-03 Thread Don Price
Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is

Re: [QUAD-L] PROLIA INJECTIONS - BONE LOSS

2023-10-26 Thread Dana
Thank you so much for your input. I haven’t gotten a scam for 2 1/2 years it seems like it always gets worse and I take prolia. On Wed, Oct 25, 2023 at 10:09 AM SHIRLEY BELL wrote: > Hi Dana, I had something years back, shots of ? I don't get bone scans > anymore. I feel what is the use? > > On

Re: [QUAD-L] indwelling urinary catheter problems

2023-10-25 Thread SHIRLEY BELL
Thanks everyone, My Dr does want a sample when I change the catheter again. I just did and this time things are ok, right now. don't want to try to change again as that's when it goes south. > On 10/25/2023 1:30 PM EDT Eric Olson wrote: > > > just happened to run across this article.

Re: [QUAD-L] indwelling urinary catheter problems

2023-10-25 Thread Eric Olson
just happened to run across this article. Looks like you have a few of the signs of an infection https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL wrote:

Re: [QUAD-L] indwelling urinary catheter problems

2023-10-25 Thread Eric Olson
I don't know if a supra pubic would solve your problems or not. but it sure makes catheter changes easier. I too wonder if you have a uti On Wed, Oct 25, 2023 at 10:42 AM Nichole Rohling wrote: > Hi Shirey, > > > > I’ve had an indwelling cath for 25 years. Minimal problems. Do you > irrigate

RE: [QUAD-L] indwelling urinary catheter problems

2023-10-25 Thread Nichole Rohling
Hi Shirey, I’ve had an indwelling cath for 25 years. Minimal problems. Do you irrigate it? I irrigate in the morning and at night. Is sediment stopping it up? If so could be a bladder stone. Do you have a UTI? That can cause spasms. Hope you get it figured out soon. Nicki

Re: [QUAD-L] PROLIA INJECTIONS - BONE LOSS

2023-10-25 Thread SHIRLEY BELL
Hi Dana, I had something years back, shots of ? I don't get bone scans anymore. I feel what is the use? > On 10/24/2023 2:34 AM EDT Dana wrote: > > > I get them, I don’t really know how effective They are. I am months behind on > getting mine because I need A new dexis. sorry for the

Re: [QUAD-L] PROLIA INJECTIONS - BONE LOSS

2023-10-25 Thread Dana
I get them, I don’t really know how effective They are. I am months behind on getting mine because I need A new dexis. sorry for the spelling error. I have had three different types of treatment. I have had her shots, the infusion and now Prolia. My bone loss is always worse.I appreciate

Re: [QUAD-L] nighttime alert

2023-10-15 Thread Dana
; >> *From:* Edward Tessier >> *Sent:* Thursday, October 12, 2023 1:38 PM >> *To:* Ben Mattlin ; 'Noel' >> *Cc:* 'Jeffrey Gaede' ; 'Eric Olson' < >> whee...@wi.rr.com>; 'Quad List' >> *Subject:* Re: [QUAD-L] nighttime alert >> >> >> &g

Re: [QUAD-L] nighttime alert

2023-10-12 Thread Jim Lubin
d, say, or any other time I'm > away from my phone or computer. > > > > *From:* Edward Tessier > *Sent:* Thursday, October 12, 2023 1:38 PM > *To:* Ben Mattlin ; 'Noel' > *Cc:* 'Jeffrey Gaede' ; 'Eric Olson' ; > 'Quad List' > *Subject:* Re: [QUAD-L] nighttime alert &

RE: [QUAD-L] nighttime alert

2023-10-12 Thread Ben Mattlin
' ; 'Eric Olson' ; 'Quad List' Subject: Re: [QUAD-L] nighttime alert Oh and one more great feature of the Amazon/Alexa smart speakers Being able to intercom hands-free to my attendant, no matter where in the house she is Also, when my wife and kids are not around, I know my wife appreciates

Re: [QUAD-L] nighttime alert

2023-10-12 Thread Edward Tessier
911 From: Edward Tessier Sent: Thursday, October 12, 2023 1:29 PM To: Ben Mattlin ; 'Noel' Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 'Quad List' Subject: Re: [QUAD-L] nighttime alert What nest products were you thinking of using? Just a thermostat? Cameras

Re: [QUAD-L] nighttime alert

2023-10-12 Thread Edward Tessier
ede' ; 'Eric Olson' ; 'Quad List' Subject: RE: [QUAD-L] nighttime alert Thanks for the feedback and advice, everyone! What a great community! From: Edward Tessier Sent: Wednesday, October 11, 2023 10:35 PM To: Ben Mattlin ; 'Noel' Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 'Quad List' Subject:

RE: [QUAD-L] nighttime alert

2023-10-12 Thread Ben Mattlin
Thanks for the feedback and advice, everyone! What a great community! From: Edward Tessier Sent: Wednesday, October 11, 2023 10:35 PM To: Ben Mattlin ; 'Noel' Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 'Quad List' Subject: Re: [QUAD-L] nighttime alert We tried nest. Lots of glitches

Re: [QUAD-L] nighttime alert

2023-10-11 Thread Edward Tessier
We tried nest. Lots of glitches and updates and not connecting well to Wi-Fi. From: Ben Mattlin Sent: Tuesday, October 10, 2023 3:14 PM To: 'Noel' Cc: 'Jeffrey Gaede' ; 'Eric Olson' ; 'Quad List' Subject: RE: [QUAD-L] nighttime alert Anybody tried Google Nest

Re: [QUAD-L] Ileostomy

2023-10-11 Thread Eric Olson
There was a person on the list that had a syrinx, but sadly, she passed away. She had a shunt put in that let the fluid in the syrinx drain continuously into her stomach. Since you're doing research anyway, perhaps do some research on a shunt. Neither is a no joke surgery. Are you sure your

RE: [QUAD-L] nighttime alert

2023-10-10 Thread Ben Mattlin
Anybody tried Google Nest? From: Noel Sent: Tuesday, October 10, 2023 11:20 AM To: Ben Mattlin Cc: Jeffrey Gaede ; Eric Olson ; Quad List Subject: Re: [QUAD-L] nighttime alert Surprisingly yes, it even whispers back. On Tue, Oct 10, 2023 at 11:58 AM Ben Mattlin mailto:benmatt

Re: [QUAD-L] nighttime alert

2023-10-10 Thread Noel
> > > *From:* Jeffrey Gaede > *Sent:* Tuesday, October 10, 2023 10:01 AM > *To:* Noel ; Eric Olson > *Cc:* Ben Mattlin ; Quad List > *Subject:* Re: [QUAD-L] nighttime alert > > > > You get a couple of the cheapest Amazon Echos, assuming you have Internet, &

RE: [QUAD-L] nighttime alert

2023-10-10 Thread Ben Mattlin
t Subject: Re: [QUAD-L] nighttime alert You get a couple of the cheapest Amazon Echos, assuming you have Internet, and turn the volume up because that's both the speaker and the microphone, and keep it nearby. Should work fine On Tuesday, October 10, 2023 at 09:58:35 AM PDT, Eric Olson m

Re: [QUAD-L] nighttime alert

2023-10-10 Thread Jeffrey Gaede
You get a couple of the cheapest Amazon Echos, assuming you have Internet, and turn the volume up because that's both the speaker and the microphone, and keep it nearby. Should work fine On Tuesday, October 10, 2023 at 09:58:35 AM PDT, Eric Olson wrote: I go low tech and just use a

Re: [QUAD-L] nighttime alert

2023-10-10 Thread Eric Olson
I go low tech and just use a baby monitor. On Mon, Oct 9, 2023 at 3:11 PM Noel wrote: > I use an Amazon Echo, it can hear me whisper at night for controlling the > TV. Can make phone calls, or drop in on other echo devices > > On Mon, Oct 9, 2023 at 1:20 PM Ben Mattlin wrote: > >> I have

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