[QUAD-L] (no subject)
HI Smurf, Sorry it has taken me a few days to get back to you and the others that had some questions, but right after posting, I came down with a heck of kidney infection.Why is it with us that when we go in with one problem we can end up with a kidney problem in the end ?? After suffering through bactrum and cranberry juice is it finally getting better. Over the past 2 years I have had 7 rounds of botox injections in both legs. The first 2 were very painful and I wore dynasplints on both legs and the splints were nothing but torture. I changed doctors and he also changed my medications that was helping my pain so I agreed to attempt Botox again.I was wearing lidocaide patches on my legs for pain control andit did seem to help, so when he did the botox injection he added lidocaine . He was concerned about my legs because he couldn't get any reaction on the emg, so he was having trouble finding active nerve activity. The last session I went in he said he wanted to take a pen and make points whereI told him I hurt and he would shoot deep trigger points. He injected very deep areas. I was told I didn't want to see the needle. I had no relief at all from that session.I am very glad I tried , botoxbecause I did get some relieve at times, will I go through it again, I don't think so. When I was in the hospital they put pneumatic compression boots on me that felt like I was getting a gentle massage.For the first time, it made my legs feel soft and removed pain, but the bummer is they cost on the low end $800 neither Medicare or Medicaid pays for it. I have read where it says Medicare will, but 2 representatives says no. I have located where , it should have been approved 2001, so I am not through discussing it. If I decide to buy it I will go directly yo the company and not the area corner store to cut out the middle man. Kathy in Mississippi
Re: [QUAD-L] BODY CHANGING 6 YRS POST
I am almost 10 years post injury and it seems some things change continuously. I did experience problems with my catheter and occasionally still have problems with it clogging up for some unknown reason. Going five years without a bowel incident is pretty darn good. I could say that I went a long also, but every incident I have had has usually been the result of my bowel regimen not being completed properly. Over the last few years I have noticed that despite being only a couple of pounds heavier I am having more and more difficulty trying to prevent (what I now believe to be the inevitable) Quad gut. Just when I think I have about everything figured out, something changes and I am learning all over again. On the brighter side, maybe this prevents boredom. Billy Do you Yahoo!? Send a seasonal email greeting and help others. Do good.
Re: [QUAD-L] Re: [Spinalcordinjury] Hey everybody...
Hey Anthony and welcome to the list. I'm Mark a C5/6 froma diving accident on 9/11/99. I'm glad you found this list and hopethings are good with you and if you have any questions there's some quads here thatareseasoned veterans so theyhave good advice. Nice meeting you, Mark ---Original Message--- From: [EMAIL PROTECTED] Date: Monday, December 13, 2004 1:26:34 PM To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED] Subject: [QUAD-L] Re: [Spinalcordinjury] Hey everybody... In a message dated 06/12/2004 17:13:31 GMT Standard Time, [EMAIL PROTECTED] writes: Hi, My names Anthony and im a c5,c6 quad...I had a dirt bike wreck on March 18, 2000 when I was 15. I just wanted to introduce myself as I will be a member of this group now. Thanks Anthony Hi Anthony, I'm Smurf and I'm 20 from the UK. Like with yourself I was injuried at a young age, I became a para when I was 18 after a combination of a car accident and a fall. I always keep the introductions short and sweet, but I look forward to speaking to you soon! Take care, Love Smurf xxx
[QUAD-L] uti's
Hi all, I have been having bad bladder spasms and pain for three monthsmy urologist tells me I just have to live with itmy present urine culture showed 3 types of bacteria. He told me oh well your always going to have bacteria present with a supra pubic or any indwelling catheters. I can understand that to an extent, but in my 7 years post injury this is the third time I have suffered this much for long periods of time...Have any of you gone to a 2nd urologist for a 2nd opinion??? Dan
Re: [QUAD-L] Chat
Hi Mack, That's great! It will be nice to have you back. With Love, CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA mack johnson [EMAIL PROTECTED] wrote: me too.mackOn Dec 11, 2004, at 2:43 PM, David K. Kelmer wrote: Hi Mark, And a very fine chat it was, too. I hope tosee you therenext week. :) With Love, CtrlAltDel aka Dave C4/5 Complete - 28 Years Post Texas, USA QuadPirate <[EMAIL PROTECTED]>wrote: A few of us are in chat at http://health.groups.yahoo.com/group/DisabledOfAmerica/ if anyone wants to join in please come by. Mark
Re: [QUAD-L] uti's
Dan, I am a c5/6 incomplete, 4 1/2 years post quad. Every time I would need to be catheterized or if I had a indwelling catheter I would end up with a UTI 100% of the time. I would be put on antibiotics and thenmy bowels would get real loose and I would have nothing butmesses. I use acondom catheter now and I have not had a UTI for approximately 3 1/2 years. Anytime I even think I'm having the start of a UTI, I try to drink at least 90 ounces of water as fast as I can and then I go to bed and urinate all night. When I wake up I am UTI symptom-free. Jim
Re: [QUAD-L] BODY CHANGING 6 YRS POST
Have you tried wearing an abdominal binder? I find it holds it in pretty well, but there is still a little bulge. :-)BillyNichole Rohling [EMAIL PROTECTED] wrote: MY LIFE IS DEFINITELY NEVER BORING AND YES THE QUAD GUT IS HERE! I WAS WEARING JEANS THAT HELD IT IN BUT AFTER FIGHTING SORES ON THE FLABBY PART OF MY THIGHS AND WAISTLINE I DECIDED IT'S NOT WORTH THE RISK!! NICKI - Original Message - From: B. Kimberlin To: Nichole Rohling ; QUADLIST Sent: Monday, December 13, 2004 1:04 PM Subject: Re: [QUAD-L] BODY CHANGING 6 YRS POST I am almost 10 years post injury and it seems some things change continuously. I did experience problems with my catheter and occasionally still have problems with it clogging up for some unknown reason. Going five years without a bowel incident is pretty darn good. I could say that I went a long also, but every incident I have had has usually been the result of my bowel regimen not being completed properly. Over the last few years I have noticed that despite being only a couple of pounds heavier I am having more and more difficulty trying to prevent (what I now believe to be the inevitable) Quad gut. Just when I think I have about everything figured out, something changes and I am learning all over again. On the brighter side, maybe this prevents boredom. Billy Do you Yahoo!?Send a seasonal email greeting and help others. Do good. Do you Yahoo!? Yahoo! Mail - 250MB free storage. Do more. Manage less.
Re: [QUAD-L] uti's
Hey Jim, Do you not have to be strate cathed at all with the condom cath? What type of condom cath do you use? Silas - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] Sent: Monday, December 13, 2004 2:00 PM Subject: Re: [QUAD-L] uti's Dan, I am a c5/6 incomplete, 4 1/2 years post quad. Every time I would need to be catheterized or if I had a indwelling catheter I would end up with a UTI 100% of the time. I would be put on antibiotics and thenmy bowels would get real loose and I would have nothing butmesses. I use acondom catheter now and I have not had a UTI for approximately 3 1/2 years. Anytime I even think I'm having the start of a UTI, I try to drink at least 90 ounces of water as fast as I can and then I go to bed and urinate all night. When I wake up I am UTI symptom-free. Jim
Re: [QUAD-L] BODY CHANGING 6 YRS POST
OKAY - A QUESTION FOR THE ONES HERE INJURED FOR AWHILE. DID YOUR BODY GO HAYWIRE QUITE SOME TIME (YEARS) AFTER YOUR INJURY? Yes. Gravity (especially after 50) is not kind. My waist has expanded, my formerly "well-toned" pecs are sagging and my chin grew a twin. I hate gravity. LOL BillC-6 incomplete in FL
[QUAD-L] Re: [Spinalcordinjury] Hey everybody...
In a message dated 06/12/2004 17:13:31 GMT Standard Time, [EMAIL PROTECTED] writes: Hi, My names Anthony and im a c5,c6 quad...I had a dirt bike wreck on March 18, 2000 when I was 15. I just wanted to introduce myself as I will be a member of this group now. Thanks Anthony Hi Anthony, I'm Smurf and I'm 20 from the UK. Like with yourself I was injuried at a young age, I became a para when I was 18 after a combination of a car accident and a fall. I always keep the introductions short and sweet, but I look forward to speaking to you soon! Take care, Love Smurf xxx
Re: [QUAD-L] Re: [Spinalcordinjury] Hey everybody...
It is nice to meet you Anthony. I hope you enjoy your stay here and look forward to hearing your comments. Billy Do you Yahoo!? Yahoo! Mail - Easier than ever with enhanced search. Learn more.
Re: [QUAD-L] uti's
2nd opinions are smart especially when a dr is clueless. Sam
