Are you wearing a condom catheter? I can't remember how long ago you said you
had the SP put in, but if it was not that long ago you might still be voiding
through your urethra. I did for quite some time and ended up having to wear
two bags at the same time for a while.
How many total cc do you have in the balloon. I usually use around 8 cc, but
you can go to around 10 cc. I also tried to make sure mine was taught during
the initial adjustment, but you have to be careful, if you make it too taught
it can have a damaging effect in the long run.
Are you experiencing any swelling in your legs when you are up in the
wheelchair? If so, is it going down after spending time in bed?
I don't know if you have any extra chucks, but you might want to think about
putting some around your stoma in an effort to prevent the urine from getting
all over the bed.
I will post this to the Quad list as there is probably some other advice that
others might be able to give that might benefit you.
Quadius
Merrill Burghardt [EMAIL PROTECTED] wrote:
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SPAN.EmailStyle20 { COLOR: navy; FONT-FAMILY: Arial; mso-style-type:
personal-reply } DIV.Section1 { page: Section1 }Hello Quadius,
Thank you for responding. Excues the direct mail but I am not familiar to
posting.
Oh yes the bed is drenched in urine at night, nearly every last drop. During
the day not a drop gets out of bag. True, most folks void in supine. My
doctors are at a lost. I take dettrapan to avoid bladder spasms, now I prop
pillows under my blankets, and have added 5cc extra water to folly. My best
effort comes by pulling folly until snug. The doctors say dont but this works
best. When I become disgusted, I also sleep at approximately 3o degrees which
also works. All the above together have best results.
eRetriever
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From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED]
Sent: Saturday, January 27, 2007 2:03 PM
To: Merrill Burghardt
Subject: Re: [QUAD-L] Supra Pubic problem question
Are you actually wetting the bed when you void at night? I also void
considerably more in the evening than I do during the day. I used to crimp my
Foley, but stop doing that quite some time ago. The urologist told me it
really doesn't do much good any longer. As for abdominal binders, I do wear
them also, but I do not wear them low enough to affect the suprapubic.
Let me know you are actually avoiding into your bed or just more at bed time.
My doctor was concerned with the amount that I was voiding and tried to have me
sleep at a 30° angle, but I'm not able to sleep very well at this particular
angle. I can do it occasionally and he is right I do have much more strength
the next day, but for the most part I sleep around 20°.
Quadius
Merrill Burghardt [EMAIL PROTECTED] wrote:
Hope you do not mind my writing to you but you seem experienced with your
supra pubic. My problem is I void vary little during the day but mostly at
night which totally voids in bed! I wear an abdominal binder but I do not
crimp the folly. Any clues?
Merrill
[EMAIL PROTECTED]
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