I'm trying to help a friend who's just been diagnosed
with Primary Muscular Atrophy. It's apparently an
obscure disease (condition?). She needs to find
whatever information there might be on this including
experimental treatments. I don't think that the usual
search engines help (esecially if they are paid ones
to get higher on the search list). Does anyone know
of any posible sites and/or "deep web search" engines
that I might be able to use? Thanks so much for any
help and all effort expended.
Ruth
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