Hi Ruth! I have a few sites for you, and being that I'm a nurse, I can tell you that
that MA or "SMA" isn't all that obscure. It's not COMMON, but it is a form of Muscular
Dystrophy.
Anyway, here are some links. Let me know if ya want more :o)
http://www.fightsma.com/
http://www.smaangel.com/
Peace
AND....health!
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On Fri, 04 August 2000, Ruth Foster wrote:
I'm trying to help a friend who's just been diagnosed with Primary Muscular Atrophy.
It's apparently an obscure disease (condition?). She needs to find whatever
information there might be on this including experimental treatments. I don't think
that the usual search engines help (esecially if they are paid ones to get higher on
the search list). Does anyone know of any posible sites and/or "deep web search"
engines
that I might be able to use? Thanks so much for any help and all effort expended.
Ruth
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