My sister-in-law had this and it started with an awful pain in the back, and yes, it *was* hell on earth! dee

Neville wrote:

    Yes Richard, and it can either start at the legs and work up, or
    it can start at the throat area and work down.  It started at the
    voice box with the ma in law and worked down, and your analogy of
    'Hell on Earth' is more accurate than non-understanding people of
    MND can possibly imagine.  Neville.







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