I lost my husband to this in 2008. Was your friend involved with the WTC at all? Hubby drank about a quart a day of CS and it did not help. He worked on the WTC pile for off and on for 4 months (FDNY). His Dr. at Yale was a specialist in treating it and she was very surprised to hear that 4 FDNY members who worked on the pile had CTCL which Sezary is the end type.

Teri
At 08:52 PM 5/12/2011, you wrote:
An acquaintance his been diagnosed with a rare disease.

http://en.wikipedia.org/wiki/Sézary's_disease

If anyone has information about treatments that offer a better prognosis than the standard five years, please advise.

There is reportedly no known cause.



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