What a glorious story! Love to Gabrielle.
Congratulations on your "calm, intelligent exchanging of facts."
You will note on this list a constant edging toward CS acceptance by
you-know-who because the facts are with us. What facts seemed to impress
them most?
Judy Down Maine
  -----Original Message-----
  From: John Osowiecki [mailto:[email protected]]
  Sent: Monday, November 19, 2001 10:14 PM
  To: [email protected]
  Subject: CS>THANK YOU.......CS in Gall Bladder


  Hello all,
  I am so sorry that I haven't had an opportunity before now to sit and jot
you a line to thank you from the bottom of my heart.
Tracy.................thank you for "giving a yell" so that people would
give me an opinion.  Marshalee..............thank you for all your kind and
gracious words..........I hope to reply to you soon.  Others...........thank
you for your responses, I put them all together in making my final decision.
And..............Last but certainly not
least...........Ivan..........WOW!!!!  You impressed me.  Did you go look up
all that technical info about the gall bladder and its function, or did you
just know it?  You were right on!  In fact, I printed your email out
(leaving out your email addy and name) to bring to the doctors to help to
convince them that what I was doing without their input wasn't going to kill
her. ~:-}

  Anyway, I have put the CS directly into her gall bladder twice a day for
over a week now.  The "floaties" are gone.....the thickness is
gone...........and her itching is relieved.  Last Tuesday I had a battle
with Gabrielle's liver team.  They talked to me intelligently and with an
open mind.  Their initial response was an ABSOLUTE, resounding NO!!!!  After
about 1/2 hour of calm, intelligent exchanging of facts, they not only
agreed to let me continue to use it (as if they could be in control of what
I do at home), but are looking into it in more detail to perhaps use in
other children with "lines" into their bodies that are having problems with
chronic infection.  I had done a "control study" with the use of CS in her
gall bladder, and that impressed them greatly.  They have adequate proof
that it works, as far as they are concerned, the only problem is that there
is only ONE case study..............Gabrielle.  It is unlikely they will be
able to duplicate this experiment, as this is the first time this type of
tube has been placed in a child.

  I am bless to have so many minds to "pick" when I have questions.  And I
thank you for being willing to stand on the "shaky" ground of giving
opinions about treatment of a chronically ill child.  I thank you all again.

  God bless,
  Christiane