So glad to see this message! Good on you Christiane for having such
strength.

Me? I am a student of pharmacology, and It's nice to be able to help
in some way.

Regards
Ivan.
  -----Original Message-----
  From: John Osowiecki [mailto:[email protected]]
  Sent: Tuesday, 20 November 2001 4:14 p.m.
  To: [email protected]
  Subject: CS>THANK YOU.......CS in Gall Bladder


  Hello all,
  I am so sorry that I haven't had an opportunity before now to sit
and jot you a line to thank you from the bottom of my heart.
Tracy.................thank you for "giving a yell" so that people
would give me an opinion.  Marshalee..............thank you for all
your kind and gracious words..........I hope to reply to you soon.
Others...........thank you for your responses, I put them all together
in making my final decision.  And..............Last but certainly not
least...........Ivan..........WOW!!!!  You impressed me.  Did you go
look up all that technical info about the gall bladder and its
function, or did you just know it?  You were right on!  In fact, I
printed your email out (leaving out your email addy and name) to bring
to the doctors to help to convince them that what I was doing without
their input wasn't going to kill her. ~:-}

  Anyway, I have put the CS directly into her gall bladder twice a day
for over a week now.  The "floaties" are gone.....the thickness is
gone...........and her itching is relieved.  Last Tuesday I had a
battle with Gabrielle's liver team.  They talked to me intelligently
and with an open mind.  Their initial response was an ABSOLUTE,
resounding NO!!!!  After about 1/2 hour of calm, intelligent
exchanging of facts, they not only agreed to let me continue to use it
(as if they could be in control of what I do at home), but are looking
into it in more detail to perhaps use in other children with "lines"
into their bodies that are having problems with chronic infection.  I
had done a "control study" with the use of CS in her gall bladder, and
that impressed them greatly.  They have adequate proof that it works,
as far as they are concerned, the only problem is that there is only
ONE case study..............Gabrielle.  It is unlikely they will be
able to duplicate this experiment, as this is the first time this type
of tube has been placed in a child.

  I am bless to have so many minds to "pick" when I have questions.
And I thank you for being willing to stand on the "shaky" ground of
giving opinions about treatment of a chronically ill child.  I thank
you all again.

  God bless,
  Christiane