Hi Sharon;
Catherine is probably the person to talk to on the drug safety issue;
CCreel, you can find her email and/or website by going through the silver
list archives, as addressed at the bottom of most messages. I think she
was the person who posted the contra-indications on Versed - seriously
bad. There's no need for something as heavy as Ver{i?}sed, there are
milder tranks, and coupled with a local topical anaesthetic on the cath and
a mirror so she can watch and some discussion to make it interesting it
just MIGHT be possible to pull it off. I know that's sort of a long shot,
but for what it's worth, I cath myself several times a day every single day
of my life - and I'm not dead from the waist down. Familiarity breeds
contempt, I s'pose. If there is any way you could get hold of a disabled
(Spinal Cord Injured) group or person, perhaps some kind woman who does
intermittent self-cathing would be willing to let DD see the procedure so
it wasn't such an unholy terror; Most SCI's can remember the fear of our
initial cathings! "You just Don't Do that!!!"
I'm afraid that drugs like Versed (I'm not sure how it's spelled either)
become popular because they are pushed by the Pharm. reps., articles are
published in anaesthesia journals extolling the way they address the last
'drug of preference's' dangers or shortcomings, and the patents just never
run out. Almost universally these new confections offer ease, flexibility
and cover-your-ass mutual approval for the doctor, and the patient takes
the hindmost. Who the hell knows what the side effects of these things
are, they're monkeying with the brain as if it were a drinking fountain;
turn the knob, see if that's enough, watch the dials . . . after all,
they're "just" wiping her memory, what does that mean?
I'm obviously grouchy, biased and unqualified to offer professional medical
judgement. I'm really sorry that Dr. Jacobs is no longer taking patients,
though I thought he had a protege. Could be worth checking out. They have
been pretty successful in treating persistent (resistant?) UTI's. Perhaps
Catherine can offer some accepted alternatives to Versed, give you at least
a few words to say.
Ask your doc, what are the plans if they find "this" or "that", after all,
what are they going to do about it when they know what "it" is?? And go
shopping for consults out of the area. (Of Mutual Influence.) I know
you're up against the wall in terms of needing to do something for her, and
you're prob'ly run pretty ragged, so urging you to do yet more may seem a
pretty wrong and insensitive thing to do. But something doesn't quite add
up here for me; it may be just my response to your disquiet, (and hey, you
did ask,) but the paradigm you're involved in doesn't seem to sit well with
you.
I've made myself late,
Take care, Malcolm
At 09:04 AM 6/3/03 -0700, you wrote:
Hi all,
Some of you may remember that we've been fighting my dd's recurrent
bladder infections off and on for a while now. Previously there was
discussion of all the procedures that the "allopathic" Docs wanted to do.
Since the CS hasn't been working for her to keep the infections at bay
we've decided to go along with the Allopathic tests...
She's already had the ultrasound. Doc suspects reflux and claims he can
see some limited kidney damage. Next up is the VCUG. I remember there was
discussion of the particular drug recommended for sedation for this
procedure being somewhat dangerous. I am trying to decide whether to give
it to her. Does anyone remember what drug it was? They are proposing to
give her something called verised. I made the nurse spell it so I could
look it up. When I try to search pub med I get nothing, so something is
off. Can anyone help me with the correct spelling? Or info on this drug?
Or tips to make the whole catheterization process easier??? I hate to do
this but we feel quite backed into a corner. We've exhausted all our other
options.
Thanks in advance!
Sharon Cooper
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