Good evening to all
 
I just had to send this too all of you for it says all one can about this special group of people. That we have became the closest of friends for life while sharing this terrible rare disease together. These last few months  have been so trying for many of us and even a lot longer for others. I  speak for  myself and for all the rest, that  there is this huge  feeling of hopelessness one gets when we read how some of you are having such serous health problems. All we can do is give you our love, prayers and support. It seems like you take 2 steps forward and 4 backwards. We all know that everyone is praying for each other each and every day. There has been a whole bunch of special ones too.
 
In these trying times you have shown us the huge courage it takes to keep going each and every day, even when you think you can't do it one more day. When it comes to trail and error you pray the drs can come up with the right treatments for you. You all keep it going and we are behind you to give the extra booze to reach the end of the rainbow. God Love us all, our families and friends.
Love to all
Sally
 
Plunging Into The Deep
Life Can Be Scary

Life can take us on a roller coaster ride full of highs and lows and twists and turns. Even for those of us who enjoy unexpected thrills, it's frightening to suddenly find ourselves heading for a deep plunge. Yet, it happens to all of us. At these moments, it is important to remember that you are not alone in your experiences. No matter how brave, strong, or levelheaded we are, sometimes, we all get scared.

Our fears may revolve around our physical safety, particularly if we are not feeling well, living under difficult circumstances, or doing work that exposes us to hazardous conditions. Or, we may be experiencing financial woes that are causing us to be fearful about making ends meet. We may also fear the loss of a loved one who is sick, or we may be scared of never finding someone special to spend our life with. We may be scared to start at a new school, begin a different job, move to a new town, or meet new people. Whatever our fears are, they are valid, and we do not need to feel ashamed or embarrassed that we are, at times, afraid.

It may be comforting to know that everyone gets scared, and it is perfectly OK. Sometimes just acknowledging our fears is enough to make us feel better. And while it sometimes takes a lot more to ease our mind, we can console ourselves with the knowledge that life can be scary at times. Giving ourselves permission to be scared lets us move through our fears so we can let it go. It also makes it alright to share our fears with others. Sharing our apprehensions with other people can make our fears less overwhelming because we are not letting them grow inside of us as pent up emotions. Sharing our fears also can lighten our burden because we are not carrying our worries all by ourselves. Remember that you are not alone.

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