Re: [TMIC] TM or MS]

[Jan Hargrove]

During the diagnosis process they did MRIs of the spine and the brain....I had lesions in both....but the lesions on the brain were not MS, but rather I was diagnosed with Acute Tranvsverse Myelitis with Encephalytis (sp?)..............when the Enceph abated, so did the lesions...as did the lesion on my spine..........my most recent brain MRI only shows signs of  TIAs that I've had over the years.......the spine MRI shows t8 as the spot of my TM, but no lesion there....This TM is weird, and each of us differs in how we present our maladies!  janh   Stillwater, OK

Gary and Becky Thomas <[EMAIL PROTECTED]> wrote:

Marie,
I guess this is something new to me. I was under the impression that with
TM the brain had no lesions, just the spinal cord. But if you had lesions
on the brain while at Joh! ns Hopkins and they diagnosed you as TM, not MS,
then someone can have lesions on the brain and NOT have MS (except NOW
another Dr. says you HAVE MS!).
I guess I'm confused about the brain lesions!

Crystal wrote to me, and an MRI DID NOT show lesions on her brain but a
Lumbar Puncture led to a diagnosis of Progressive MS.

So, I guess one can have MS WITHOUT lesions, and according to your Johns
Hopkins diagnosis, one can have brain lesions WITHOUT MS. ??????

Gary in Michigan

----- Original Message -----
From: <[EMAIL PROTECTED]>
To:
Sent: Sunday, February 12, 2006 11:50 PM
Subject: [Re: [TMIC] TM or MS]


> From: [EMAIL PROTECTED]
> Date: Sun Feb 12 22:34:43 CST 2006
> To: Deborah Nord Capen <[EMAIL PROTECTED]>
> Subject: Re: Re: [TMIC] TM or MS
>
> Yes, the lesions were there and I have had no real changes in four years??
> Dr. Pa! rdo saw me four years ago and his diagnosis was TM.
> Thanks for your reply!
> Marie
>
>
>>From: Deborah Nord Capen <[EMAIL PROTECTED]>
>>Date: Sun Feb 12 22:30:11 CST 2006
>>To: [EMAIL PROTECTED]
>>Subject: Re: [TMIC] TM or MS
>
>>Dear Marie,Did you have these lesions on your brain four years ago when
>>you went to Johns Hopkins?? Or are these new developments?? Johns Hopkins
>>Transverse Myelopathy Center is the only center in the world that has the
>>most knowledge and treats approximately 700 patients (more than any other
>>doctor) with TM.? ?The brain lesions may be something that came on after
>>your initial diagnosis.?Take care,Debbie? ----- Original Message -----
>>From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Sunday,
>>February 12, 2006 8:12 PM Subject: [TMIC] TM or MS
>>Feb. 7th was my 4th year anniversary of having TM... I have come a long
>>way from that night from "hell" when no-one could figure out exactly
>>what was wrong with me... Finally, it was decided TM was the diagnosis.
>>Johns Hopkins agreed with this diagnosis.I take 600mg of neurontin 4
>>times a day... tho am never without pain.. I now walk with a walker, have
>>hand controls on my car and with my faith and family have adjusted to my
>>new life style. Due to Medicare I had to switch all my doctors. A
>>Neurologist was highly recommened as one of the best in the area. Long
>>story short...after all new MRI's etc... etc.. he informed me that
>>without a doubt I have Multiple Sclerosis. I am still in shock and not
>>sure what is my next step. I have made an appointment with another "top"
>>neurologist in the D.C area..? I have 5 lesions on? my brain which
>>supposedly indicate MS. I! am 59 years old. Also my brother -55- was just
>>diagnosed with underlying MS....
>>Any thoughts, suggestions would be greatly, greatly accepted... Anyone
>>of you with TM have lesions on the brain????
>>Thanks so much!
>>Marie Arthur
>
>