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Well, I have severe pains in my ears when I sleep
but so far I have not mentioned this to anyone I just figure that my
inflammation is up or something. I wake at night and it hurts so much I
cannot move my head off the pillow except very slowly. I do not have MS
cuz I only have one lesion in my cervical area. At least so far. My
neuro says I do not have symptoms of MS. I do not know what the pains in
my right side of head are except what my doc told me, an inflammed nerve.
Why inflammed sometimes and not others?? This is all a guessing
game. Thanks for your note
----- Original Message -----
Sent: Wednesday, September 06, 2006 8:55
AM
Subject: Re: [TMIC] tm and shooting pain
in side of head
Maybe the shooting pain in the side of the head is
Trigeminal Neuralgia? Forgive me but I can't remember if the two of
you who have the shooting pains in your head are considered to be possible MS
or not. I was diagnosed with Trigeminal Neuralgia in the ER in
Homer Alaska. Now I find out that 38% of people with MS also
have Trigeminal Neuralgia. And if a patient presents with bilateral
Trigeminal Neuralgia pain then MS should be looked at. I have
several people on my MS group who have Trigeminal Neuralgia. Some
of them have the severe shooting pain like you describe. Others, like
me, have an aching pain in my jaw, ears, down my neck from the ear and
tooth pain. For years I had gone to the doctor convinced I had an ear
infection or sinus infection only to be told everything was
fine. I'm sure the docs thought I was a hypochondriac. And I
would go to the dentist and say I had a bad tooth or abscessed tooth.
But nothing would be wrong. No one ever put it together until
I went to the ER in Alaska. Anyway, maybe Trigeminal
Neuralgia is the cause of the shooting pain in your heads. Just a
thought.
gentle hugs))
Sharon
Sharon --from Arizona
TM 1997 to MS 1998
It's not easy taking my problems one at
a time when they refuse to get in line. ~Ashleigh Brilliant
-----
Original Message ---- From: Jaime <[EMAIL PROTECTED]> To: L T
CHERPESKI <[EMAIL PROTECTED]>; Krissy Z <[EMAIL PROTECTED]> Cc:
TM List < [email protected]> Sent: Tuesday, September 5, 2006
6:39:27 PM Subject: Re: [TMIC] tm
I have that exact thing on the right side of my
head. Severe shooting pains. My neuro said it is an inflammed
nerve and not related to TM. Today I had some pretty bad ones that made
me think I was really having a problem but then they go away and I ignor
it. I just ignor it. I do not know if I should be doing anything
about it or not. Maybe Dr. Kerr at Hopins knows about this. Do you
know of him, you could email him. I won't because I met him and I think
I was a pain to him when I saw him. I was really sick in my mind.
But, I have the shooting weird pain on the right side of my head alot and I
ignor it.
----- Original Message -----
Sent: Monday, September 04, 2006 11:32
PM
Subject: Re: [TMIC] tm
A question to Linda Elgi - your description of how your TM started
intrigues me. Do you know where your
lesion is? I have some of those symptoms also, and my lesions are
are C4,5&6. And I have had a NEW and even better symptom than all of the
others I have - I have shooting pains on the right side of my head, shooting
clear over the top almost to my forehead. Have had them about 8 weeks now.
Not fun. Neuro not completely sure what is going on - still more testing -
the never ending tests. Has anyone else had this happen - the head
thing?
Thanks
Linda C
----- Original Message -----
Sent: Monday, September 04, 2006 2:49
PM
Subject: RE: [TMIC] tm
Mine hit me all at once, in half hours time.Started with a
tingly in my low back, and progressed to my legs geting rubbery and
falling alseep and that was it...lost both my legs and got rushed to the
hosp.
Linda Egli <[EMAIL PROTECTED]> wrote:
My
symptoms came on over a 6 week period. Started with numbness in
hands & feet, moved to arms & legs, then to trunk & chest
with banding below my shoulder & thankfully stopped there. Took
about 6 months for all this to level out & now left with numbness
esp. in hands and feet, fatigue with anything I do, & poor
balance. My main problem now is increasing tremors in my right
hand & now some in lower jaw (have never heard anyone mention this),
but my neuro thinks it is normal.
Jill Z
<[EMAIL PROTECTED]> wrote:
Mine
came on gradually also. I thought it was Cauda Equina Syndrome
again like my dr. said the first time 2 yrs
ago....
"Butcher, Bernie [S&FS]"
<[EMAIL PROTECTED]> wrote:
I think mine
came on gradually - when I thin back to what happened before I went
totally numb, tingly and lame on my left side, there were some
instances where I think it may have been my spinal condition:
walking wobbly, bumping into things, spilling coffee , klutzy kinda
things.
BERNARD
BUTCHER
I notice that every thing refers to acute TM. Has anybody
in the group had TM that has come on gradually. Everyone
should read the link that Frank sent about GP's. There I guess
is nothing we can do about this but we certainly should be
informed. At a hospital here in Virginia who employs
physicians unless they see patients in an allotted time the
physician is asked to leave. Am afraid that this is becoming
the norm and is certainly a poor way to practice good
medicine.
Ann in
Virginia
Krissy
Zodda
Tri State Support Group
Leader
(603)589-1894
http://www.geocities.com/tmladyk/home.html
~I'm
In pretty Good Shape
For the Shape I am in~
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