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Well, I never called Dr. Kerr about this since my neuro
told me it was and inflammed nerve. It goes kinda from up above my neck
where my leison is to almost my forehead. It is sharp and painful It
stops me in my tracks until it recedes. I never know when it will
happen. Sometimes several times a day and sometimes not a day. I
just don't pay attention to it. But...during my first TM I did not pay
attention to it and I just suffered terribly. I did not know there was
medicine or anything to help me or to even go to the doctor. I just lived
each day in extreme pain. So its good to go to the docs. Maybe they
will know something. Sometimes I think I will die from it but it goes away
and I keep going. I do not know what to do about it and since my neuro
told me not TM related but an inflammed nerve (now I never had an inflammed
nerve in my head before TM) I just believe her and take more neurontin.
Who knows, Good luck. Let me know if you find anything out.
Jmes
----- Original Message -----
Sent: Wednesday, September 06, 2006 12:08
AM
Subject: Re: [TMIC] tm
Hi Jaime - now this is really weird. Ann inflamed nerve and not related
to TM. The reason I originally believed mine was TM related is that the
shooting pains started from my lesions, shot up the right side of my head,
then they got worse and went clear over my head almost to my forehead. Now
that scared me. Well, all I can say is I hope we all find out what the heck it
is because it's downright scary.
Take care and let me know what you find out - I hope all 3 of us aren't
told completely different things!
We'll see....I have never met Dr Kerr, but that might be a good idea to
email him. I just can't believe this hasn't come up before.
Linda C
----- Original Message -----
Sent: Tuesday, September 05, 2006 7:39
PM
Subject: Re: [TMIC] tm
I have that exact thing on the right side of my
head. Severe shooting pains. My neuro said it is an inflammed
nerve and not related to TM. Today I had some pretty bad ones that
made me think I was really having a problem but then they go away and I
ignor it. I just ignor it. I do not know if I should be doing
anything about it or not. Maybe Dr. Kerr at Hopins knows about
this. Do you know of him, you could email him. I won't because I
met him and I think I was a pain to him when I saw him. I was really
sick in my mind. But, I have the shooting weird pain on the right side
of my head alot and I ignor it.
----- Original Message -----
Sent: Monday, September 04, 2006
11:32 PM
Subject: Re: [TMIC] tm
A question to Linda Elgi - your description of how your TM started
intrigues me. Do you know where your
lesion is? I have some of those symptoms also, and my lesions
are are C4,5&6. And I have had a NEW and even better symptom than all
of the others I have - I have shooting pains on the right side of my head,
shooting clear over the top almost to my forehead. Have had them about 8
weeks now. Not fun. Neuro not completely sure what is going on - still
more testing - the never ending tests. Has anyone else had this
happen - the head thing?
Thanks
Linda C
----- Original Message -----
Sent: Monday, September 04, 2006
2:49 PM
Subject: RE: [TMIC] tm
Mine hit me all at once, in half hours time.Started with
a tingly in my low back, and progressed to my legs geting rubbery and
falling alseep and that was it...lost both my legs and got rushed to the
hosp.
Linda Egli <[EMAIL PROTECTED]>
wrote:
My
symptoms came on over a 6 week period. Started with numbness in
hands & feet, moved to arms & legs, then to trunk & chest
with banding below my shoulder & thankfully stopped there. Took
about 6 months for all this to level out & now left with numbness
esp. in hands and feet, fatigue with anything I do, & poor
balance. My main problem now is increasing tremors in my right
hand & now some in lower jaw (have never heard anyone mention
this), but my neuro thinks it is normal.
Jill Z
<[EMAIL PROTECTED]> wrote:
Mine
came on gradually also. I thought it was Cauda Equina Syndrome
again like my dr. said the first time 2 yrs
ago....
"Butcher, Bernie [S&FS]"
<[EMAIL PROTECTED]> wrote:
I think
mine came on gradually - when I thin back to what happened before
I went totally numb, tingly and lame on my left side, there were
some instances where I think it may have been my spinal
condition: walking wobbly, bumping into things, spilling coffee ,
klutzy kinda things.
BERNARD
BUTCHER
I notice that every thing refers to acute TM. Has
anybody in the group had TM that has come on gradually.
Everyone should read the link that Frank sent about GP's.
There I guess is nothing we can do about this but we certainly
should be informed. At a hospital here in Virginia who
employs physicians unless they see patients in an allotted time
the physician is asked to leave. Am afraid that this is
becoming the norm and is certainly a poor way to practice good
medicine.
Ann in
Virginia
Krissy
Zodda
Tri State Support Group
Leader
(603)589-1894
http://www.geocities.com/tmladyk/home.html
~I'm
In pretty Good Shape
For the Shape I am in~
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