Interesting, because we walked about at the shops and I had to sit down and relax and that is not me! I usually have much better stamina. I just did not feel like myself. I'm sure there will be more limitations to discover. It just is my effort to understand what they may be and why I feel a certain way at times.
Bev
From: "Lisa Domenic" <[EMAIL PROTECTED]>
To: "Beverly Barr" <[EMAIL PROTECTED]>, <[EMAIL PROTECTED]>, <[email protected]>, <[EMAIL PROTECTED]>
Subject: Re: [TMIC] Not Devic's (MS)- then what???
Date: Wed, 20 Sep 2006 11:09:44 -0500
I was/am terribly affected by the heat. 1st summer (after 1st bout) a bit fatigued; 2nd summer (after 2 more bouts) a complete noodle bc. heat and humidity. Not only drained/fatigued but, blurred vision, nausea and leg muscle weakness if I was out in the sun for any period of time. I used a big hat for shade, and would keep a cool bandana around my neck and that helped tremendously if I did go out. I bought the bandanna at Walmart in the camping section. You soak it in ice water or put it in the fridge and it stays cold for hours. I spent the rest of my time in AC.Lisa D----- Original Message -----From: Beverly BarrSent: Wednesday, September 20, 2006 9:47 AMSubject: RE: [TMIC] Not Devic's (MS)- then what???Same here; inflammation and my fluid pressure was high (but I'm not sure what that means).
Bev
From: "Butcher, Bernie [S&FS]" <[EMAIL PROTECTED]>
To: "Beverly Barr" <[EMAIL PROTECTED]>, <[email protected]>, <[EMAIL PROTECTED]>
Subject: RE: [TMIC] Not Devic's (MS)- then what???
Date: Wed, 20 Sep 2006 08:04:49 -0400
The only thing they found from my spinal tap was evidence of inflammation (?)BERNARD BUTCHER
From: Beverly Barr [mailto:[EMAIL PROTECTED]
Sent: Tuesday, September 19, 2006 6:52 PM
To: [email protected]; [EMAIL PROTECTED]
Subject: [TMIC] Not Devic's (MS)- then what???Last week I had the spinal tap and today I found out that the results were negative. Negative for MS I'm guessing. I have to wait until next week Tuesday in order to have a visit and sit down with my Dr. What does this all mean? That I most likely have Devic's and definately not MS? I need some answers so that I do not get overly weighed downed...
I went to Cancun with my sister a two weeks ago. I left children and husband behind...I really needed to mope and think. My sister has Lupus and she was quite helpful on what to do when you are exhausted, tired or just not in the right frame of mind. While I was there, I believe I was very much affected by the hot weather. I was sick for two days, back, neck pain and I even spiked a fever overnight and woke up with a fever blister on my lip. I had no appetite and I was a just wanting to sleep. I took some of my sister's 600mg ibuprofen for comfort. I typically, love and enjoy the warm weather. I love the feel of the sun on me and I just was a little disturbed that i did not feel well and was so drained on my vacation.
Does the warm weather affect persons with Devic's in this mannter??
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I just received a call from my dr. that my antibody test from the Mayo Clinic was negative for Devic's disease. He previously ruled out MS based on my MRI scans, what then is plaguing me? It is possible to have Devic and have a negative testing for the particular antibody?
Bev
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED], [email protected]
Subject: Re: [TMIC] subscribe
Date: Thu, 31 Aug 2006 23:02:30 EDT
You can correspond with all of the group by just writing using the original address that you used that I replied to. In case you do not still have it, the address is listed above along with yours.Ann in Virginia
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