What great news Natalie! Are you taking it at night as recommended? I haven't been able to do that because of the sleep disturbances. I have had such a bad time with the nocturnal leg spasms and intense pain that I just couldn't take the sleep disturbance. I guess only a third of people on LDN have sleep problems and I will try it again at night soon. I've been taking it in the morning.
Keep me posted on your progress. How exciting for you! Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ ----- Original Message ---- From: Natalie Boyles <[EMAIL PROTECTED]> To: Sharon Marsden <[EMAIL PROTECTED]> Cc: [EMAIL PROTECTED]; [email protected] Sent: Tuesday, November 28, 2006 10:11:19 AM Subject: Re: [TMIC] TM Question Hi All, Sharon mentions starting LDN for her MS. Well, it can also be used for TM. I started it a week ago. I have TM, not MS. I was to the pt of not being able to do very much. I had much trouble walking, with my bladder, numbness, awful spasms. I could not go anywhere I was a wreck. I was beginning to wonder how I would take care of myself, my home, my dogs. I was going to ask all of you how you cared for yourselves, as I was have more and more trouble doing it. I was wondering if I would need to get help with meals and all. Well with help of the LDN, I went shopping yesterday, only one store, but that is a great improvement. I am not so stiff and numb. I have had only a few spasms. My bladder is working better or guess should say not so much. I have more feeling in my body; not all those awful numb areas. I have tried the baclofen, the neurontin, a lot of things.They did not work or made me sick or both. None really helped much. My doctor is checking into LDN, but I did not wait for him. I got tired of waiting for my doctors. I got the LDN online. It is working and I am HAPPY to be feeling human again. For more info on LDN just do a web search you will find lots of info. I got mine from www.riverpharmacy.com. LDN is better than magic, :), it works with many and I wish I had know about it yrs ago. Natalie B On 11/28/06, Sharon Marsden <[EMAIL PROTECTED]> wrote: I have burning pain when I lay down too. It's been going on for a year. I have been on as much as 3200 mgs. of Neurontin a day and it did nothing for that leg pain. I take 80 mg. of Baclofen for the spasticity. I take Cymbalta and that has helped. I took Lyrica but had a side effect that brought me more intense pain so I'm off of it. I have recently started on 3 mg. a day of LDN (Low Dose Naltrexone) for MS treatment. I've been surprised that there has been a real, true improvement in the noctural leg pain. I can sleep better! I do think the LDN is the reason for the lower pain level in my legs. Good luck and I hope you find your own magic treatment. hugs))) Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ ----- Original Message ---- From: " [EMAIL PROTECTED]" <[EMAIL PROTECTED]> To: [email protected] Sent: Sunday, November 26, 2006 6:06:41 PM Subject: [TMIC] TM Question I have had TM for six months. I have it from the waist down and was initially paralyed from the waist down. I am now walking on a walker and semi on a heme cane. However, I get these strange sensations from the nerves in my legs and when I am laying down a burning sensation in my thighs that really hurts. Have any of you experienced this and is this medication for it?
